USA Today, Synchrony Conf, #EEC2026, Portugal & Family Resources — #CureSYNGAP1 in Action #S10E218

Tuesday, September 8, 2026 — Week 37DON’T MISS ASO UPDATEEpisode 217 came out over the weekend. Don't miss it. There was lots of ASO news in there.https://www.linkedin.com/feed/update/urn:li:activity:7502544874399928322/NATIONAL PRESSUSA TODAY Special-needs care / education crisis — and a SYNGAP1 family featured. Diagnosis and future therapies aren't enough. Families need care, education and support today. https://www.linkedin.com/posts/bernadette-basilico-6924b29a_a-two-year-postdoctoral-position-with-share-7500493855591432192-sOD6/ https://www.usatoday.com/story/life/health-wellness/2026/09/01/kids-special-education-school-shortage-care/90851980007/ADVOCACY UPDATESYNCHRONY — PALO ALTOKAH + I attended the BRAIN Foundation's Synchrony symposium.The autism community is starting to wake up to neuroinflammation, and mental health psychiatrists are really working hard on this topic. There are also people looking more at the impact of diet. https://brainfoundation.org/synchrony-symposia/ILAE #EEC2026 — ATHENSVirginie + Jaime + Vicky + Katrine representing SYNGAP1 at the 16th European Epilepsy Congress, Sept. 5–9. https://www.ilae.org/eec2026Virginie’s Post: https://www.linkedin.com/posts/virginie-mcnamar_eec2026-ugcPost-7502600886368559105-LPbu/THINGS YOU CAN DO RIGHT NOW1. GENEDX SURVEYHow has getting a SYNGAP1 diagnosis improved your child's care?5 minutes. Worth it. Please do it. https://curesyngap1.org/GDXsurvey2. ARI / CITIZEN HEALTHSign up. Longitudinal medical records → research-ready data.This is clearly the future. https://citizen.health/ari/syngap13. SYNGOSYNGAP1 resource for families from LATAM, ask it to speak English! https://curesyngap1.org/syngoCOMMUNITY GROWTH AND SUCCESSCURE SYNGAP1 PORTUGAL  🇵🇹Congratulations to the Portuguese SYNGAP1 community — legal organization established + website live.Special applause for Henrique’s leadership. Another national organization building local advocacy and community. https://curegyngap1-portugal.org/enSCRAMBLE FOR SYNGAP — SOLD OUTCongratulations to the Scramble team — the 5th Annual Scramble for SYNGAP is SOLD OUT.25 days to go. A great example of a community building momentum year after year. https://mailchi.mp/796f3e59d71b/the-scramble-for-syngap-is-sold-outUPCOMING EVENTS — COUNTDOWNSHOOT FOR SYNGAP1 — 67 DAYSNovember 14 — Hurricane, UtahAiming for a Cure — Shooting for Hope https://cureSYNGAP1.org/ShootFIGHT FOR FELIPE — 81 DAYSNovember 28 — Boston, Massachusetts https://cureSYNGAP1.org/FightCURE SYNGAP1 CONFERENCE — 86 DAYSDecember 3–4 — Denver, Colorado https://cureSYNGAP1.org/Reg26PUBMED50 SYNGAP1 publications in 2026. +13 vs. Week 37. https://pubmed.ncbi.nlm.nih.gov/42692765/Last year finished at 61 publications — +9 vs. the year. https://pubmed.ncbi.nlm.nih.gov/?term=syngap1&filter=years.2026-2026&sort=dateUSA 🇺🇲: Use your ICD-10, F78.A1SOCIAL MATTERS5,220 LinkedIn — https://www.linkedin.com/company/curesyngap11.61k YouTube https://www.youtube.com/@CureSYNGAP111.1k X https://x.com/cureSYNGAP143.7k Instagram https://www.instagram.com/curesyngap1Like and subscribe to this podcast wherever you listen. https://curesyngap1.org/podcasts/syngap10Episode 218 of #Syngap10 #SYNGAP1 #ASO #AngelmanSyndrome #AlexanderDisease #RareDisease #CureSYNGAP1 #PatientAdvocacy