Valuable cGVHD Products and Resources

• Viki’s presentation will cover the following organ systems re: cGVHD. Skin, Fingernails: • If you do not feel greasy from the lotions you apply, you are not using enough! • Fun facts about the sun—we all need some! • You did not go through a transplant to sit at home in the house—just do not burn. A sunburn is your enemy. • Fingernail care: keep them filed and avoid gels nail polishes • Steroids and bruising—what to look for • Fish oil explained Joints: • Edema GVHD explained • Cramps: this is what you need! • Stretching and Acupuncture: try gentle yoga and gentle message Eyes: • Eyes Need Lubrication • Preservative free single use tears/eye drops • Steroid eye drops: consult with your ophthalmologist • Scleral Lenses discussed: grant available through your doctor Bone Mass: • Osteopenia and osteoporosis discussed • Bone density scans • Importance of weight bearing exercise • IV preps explained Mouth: • Dry mouth and certain candy to try • Biofeedback helpful too • Does your toothpaste burn? Try children’s toothpaste. Here’s why! Lips: Steroid ointment might be an option • Steroids: oral antifungals • Visit your dentist • Trouble swallowing? Listen up Lungs and Sinusitis • Short of breath? Importance of catching lung cGVHD issues asap • Importance of promoting lung function—go take a walk • Medical Marijuana – Prescription please! GI Issues • Is it GVHD? • Correct diagnosis is so important • Wasting syndrome/protein loss • Food Diary Tips Female and Male Issues • GYN exams, early menopause and vaginal dryness • Males: impotence, decreased testosterone and lesions Mood Changes and Fatigue • Steroids and their role • Adrenal glands explained • Suicide • Depression • Get your thyroid checked • Anti-Depressants can help • It’s okay to feel depressed • Resources and more resources: www.nbmtlink.org • Talk about it! National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/Check out our valued nbmtLINK resource books, some for sale, some free as downloadable, https://www.nbmtlink.org/shop/nbmtLINK Facebook Page:  https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.This content is provided for informational purposes only and is not intended to substitute for professional medical advice, diagnosis, or treatment.  It is crucial to consult directly with a qualified healthcare professional regarding any medical conditions, treatment options, or other health concerns.The views and opinions expressed by the speakers are their own and do not necessarily reflect the official policy or position of the nbmtLINK.  Unless otherwise stated in an official policy, the nbmtLINK does not endorse any specific treatments, products, or services mentioned by the speakers. Reliance on any information provided is solely at your own risk.The Marrow Masters Podcast is produced by JAG Podcast Productions: https://jagpodcastproductions.com/ Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.