Victoria's PAH Update

Victoria shares an update on her PAH after months of worsening shortness of breath, chest pain, palpitations, and fatigue. Even though her January echo looked promising and labs were normal, her specialist ordered a right heart cath with a nitric oxide challenge, and she was a responder. Her doctor called with great news: her pressure is 27, and her heart shows no signs of heart failure, and she thinks Victoria may be overmedicated, so she's cutting her tadalafil dose in half. She's grateful but still anxious because her symptoms haven’t fully improved yet, with a two-week nurse check-in and a follow-up appointment in June.00:00 Welcome and Update00:26 What PAH Means02:41 Diagnosis Delays04:59 Stabilizing on Treatment06:13 Right Heart Cath Explained08:17 Vasoreactivity Breakthrough09:23 New Meds and Low BP10:31 Symptoms Creeping Back13:35 January Tests and Monitor15:44 March Labs and Cath Scheduled17:57 Spiraling Before Procedure19:22 Mom Guilt Morning Prep20:00 Heart Cath Setup20:21 Awake Neck Procedure22:42 Nitric Oxide Results24:34 Discharge And Sick Ride26:21 Great News Med Cutback27:25 Symptoms Vs Numbers31:16 Faith And Advocacy Call33:41 One Week Update Next Steps35:50 Closing Thanks And Follow