Von Hippel-Lindau Disease: Meet Patient Advocate Justin Corbin

from Wait, How Do You Spell That? A Rare Disease Podcast · host Patient Worthy

Patient Worthy's award-winning podcast is back! In this episode, we discuss Von Hippel-Lindau Disease. That's a genetic condition that causes constant tumor growth, commonly in the eyes, spine, brain and kidneys. Patient advocate Justin Corbin shares his diagnosis and treatment journey, which stretches from the 1990s today. Read more about Justin's journey in this interview over at PatientWorthy.com. To learn more about Von Hippel-Lindau Disease, check out the VHL Alliance. Chronic conditions and rare diseases don't discriminate. Patient Worthy and its partners are interested in amplifying the voices of those from all identities and backgrounds. If you have a journey to share, reach out to learn more about how your voice can help spread awareness and inspire individuals from all walks of life.

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This episode is 8 minutes long.

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This episode was published on October 13, 2023.

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