Waterfall Rupture: Nina Scherenberg on Motherhood, Disability, and Survival

In this episode of Rupture, host Wendy Lurrie welcomes back Nina Scherenberg for an intimate and devastatingly honest conversation about what happens when one rupture becomes many.After a traumatic birth, Nina sensed something was wrong with her newborn son, but her concerns were repeatedly dismissed. Days later, she learned he had suffered a massive ischemic stroke that destroyed much of the left side of his brain. That diagnosis was only the beginning.Nina shares the cascade that followed. NICU uncertainty, infantile spasms, frightening insurance hurdles, early intervention, invisible disability, public misunderstanding, caregiving isolation, and the emotional and professional cost of holding everything together as the sole reliable parent.This episode explores:what Nina means by a waterfall rupturethe shock of becoming a special needs parent overnighthow systems assume support that often is not actually therethe invisible labor of managing disability and caregivingwhat happens to identity and career after a life-altering medical crisisthe emotional complexity of parenting a child whose future remains uncertainwhy self-advocacy becomes survivalwhat Nina wants other parents to knowIt is also a story of profound tenacity. Not only Nina’s, but her son’s.Watch the full episode on YouTube: https://www.youtube.com/@BestGuessistanSubscribe to our Substack: https://bestguessistan.substack.com/Follow us on Instagram: https://www.instagram.com/bestguessistan/Join the conversation on Facebook: https://www.facebook.com/bestguessistan/