We Just One-Daying It: Miya + Mila’s Hydrocephalus Story

Send us Fan MailIn this first episode of Hydro Heroes Unite, I sit down with Miya — a mother of three whose youngest daughter Mila lives with hydrocephalus and cerebral palsy. Miya opens up about navigating a four-month NICU stay with newborn twins during the pandemic, while also parenting a toddler at home.We explore what survival mode really looks like, what comes after crisis, and how Miya stays grounded in the long game of raising a child with special medical needs. This conversation is raw, real, and incredibly powerful. Topics we cover include:  - NICU life with preemie twins - Balancing home and hospital during COVID - Processing trauma after survival - Self-care, grief, and advocacy - The strength of doing “just one day” at a timeResources: - Hydro Hero Shout-Out Form Resources relevant to today’s conversation curtesy of the Hydrocephalus Association:Shunt Systems Article: https://www.hydroassoc.org/shunt-systems/Shunt Malfunction FAQs Article: https://www.hydroassoc.org/shunt-malfunctions-frequently-asked-questions/Complications of Shunt System Article: https://www.hydroassoc.org/complications-of-shunt-systems/Developing an Emergency Plan for Hydrocephalus Complications Article: https://www.hydroassoc.org/emergency-plan-for-hydrocephalus-complications/Ask the Expert Video: Barometric Pressure https://www.hydroassoc.org/ask-the-expert-video-series-barometric-pressure-and-hydrocephalus/Find a Doctor - HA Physicians' Directory: https://www.hydroassoc.org/physicians-directory/Traveling and Hydrocephalus Article: https://www.hydroassoc.org/traveling-with-hydrocephalus/Download HydroAssist® Mobile Application - https://www.hydroassoc.org/hydroassist/Essential Guide: Developmental Milestones in Hydrocephalus Article: https://www.hydroassoc.org/developmental-milestones-in-hydrocephalus/Your Healthcare Team Article: https://www.hydroassoc.org/your-healthcare-team-2/Search HA's Hydrocephalus Resource Library: https://www.hydroassoc.org/hydrocephalus-library/Parent Resources: https://www.hydroassoc.org/parent-hydrocephalus-resources/Get Support: https://www.hydroassoc.org/get-support/Caring for the Caregiver Article: https://www.hydroassoc.org/caring-for-the-caregiver/Follow + Subscribe: Wherever you get your podcasts – and don’t forget to leave a review if this story moved youJoin us on social media:Taisha: @taishaycameronHA: @hydroassocLearn more about hydrocephalus: https://www.hydroassoc.orgRequest a Hydro Hero shoutout on the show: https://bit.ly/hydroheroformFollow on Instagram: @taishaycameron, @hydroassoc