We Need Decisions that Lead to Therapies for GPX4

I am all-in for science. I actually get really excited when we discuss all the nerdy science details, but at the end of the day we want therapies and if this group cannot produce therapies, then we have failed in our responsibility. - Sanath RameshWe have previously shared the behind the scenes look at how Sanath and Ramya very rapidly adopted a virtual conference format due to the COVID outbreak.  It turned out that this change served to enhance both the attendance and the effectiveness of the conference. It was a milestone in the search for a treatment and cure for baby Raghav. In this episode, we turn back to the conference to talk about the content and outcomes from that day.  The importance and power of bringing experts in different fields together to focus on one problem just cannot be overstated.  Please donate to cureGPX4.org or contact us at [email protected] to sponsor the podcast.

Episode metadata supplied by the publisher feed · Published Jun 6, 2020

Embed this episode

Attribution link and audio player

Ready to play

We Need Decisions that Lead to Therapies for GPX4

0:00 32:19

1×

No transcript for this episode yet

We transcribe on demand. Request one and we'll notify you when it's ready — usually under 10 minutes.

Share this episode

Similar Episodes

No similar episodes found.

Similar Podcasts

Thriving Mom Tribe | Practical Health Solutions for Moms Lindsay Rattay, Nutritional Therapy Practitioner The Go-To Podcast for all Moms who want to have a Thriving home. Do you struggle to find the balance between holistic health and living in the world?Are you tired of trying every diet yourself and still not feeling good?Do you find yourself researching for hours how to find the best remedy for your child’s sickness but end up feeling defeated?You want to be metabolically healthy but don’t know where to start?Do you wish you could feel confident in how you feed your family during the week knowing that you have to eat out because life is busy?You just enjoy going to a restaurant and don’t want to feel guilty about it?Do you want a cookie and a healthy salad?I am Lindsay Rattay, I am so excited that you are here on the Thriving Mom Tribe Podcast. I remember being the mom who researched everything from nutrition to exercise. To feeling tired and depressed. Trying to find the balance of wanting more holistic options for my family while still raising busy kids. But I discovered easy Working Mom Moments | Work Life Balance, Energy, Stress, Career, Time Management, Mom Guilt Lacy Jungman | Speaker, Author, Leader, Consultant Are you running a marathon at sprint speed, juggling career deadlines, family dinners, and that ever-elusive ”me time”?Welcome to Working Mom Moments, where we turn chaos into clarity and overwhelm into opportunity!I’m Lacy Jungman, corporate executive and mom of four boys. I understand what it’s like to feel overwhelmed with the mental load of being a working mom. I used to think constant exhaustion and stress were just part of the deal. But here’s the truth I discovered: getting stuck in that mindset was holding me back from creating the life I actually wanted. That’s exactly why I created this show. In this podcast, you will find:*Real-world solutions that actually work*Conversations with women at varying stages of working motherhood*Skills that apply both at home and at work*Time-saving strategies and motivation for the hard days*A roadmap to mindset transformationWhile raising our boys alongside my husband, I’ve held various individual contributor and executive roles in b The ZoneCoach® Show Jim Fannin Bringing you extreme positivity on a daily basis, The ZoneCoach® Show gives YOU the opportunity to learn from the very best in the world. Join America’s ZoneCoach®, Jim Fannin, who has been coaching the best in life, business, and sports for over 50 years. This groundbreaking production offers viewers the rare opportunity to learn about the secrets of peak performance. Airing daily, Monday through Friday, around 12:30pm CST, the majority of our shows are LIVE on social media platforms with video. This gives the chance for viewers to interact directly with our host and guests. Become a better parent, sibling, athlete, employee/employer, & overall best version of yourself by tuning into The ZoneCoach® Show! Boy Girl Mom & Dad BoyGirlMom.Com, Lauren & Nick Mulenos Feeling left out as a first time mom of boy girl twins, Lauren Mulenos created Boy Girl Mom to explore the differences (and joys!) of raising both boys and girls. (#BoyMom and #GirlMom, y’all are welcome here too!) While this podcast is an extension of her parenting website BoyGirlMom.com, think of it as a weekly parenting discussion including real life examples, approaches, tips, and support. Regularly co-hosting with her husband Nick Mulenos, the ”dad” of Boy Girl Mom & Dad (and provider of dad jokes and laughs), they’re hoping to grow as parents and hopefully help their generation of parents grow as well, empathetically versus instructionally... not for you, but with you! Boy Girl Mom (& Dad), where you’re not alone unless you want to be. Join the conversation!

Frequently Asked Questions

How long is this episode of Raising Rare?

This episode is 32 minutes long.

When was this Raising Rare episode published?

This episode was published on June 6, 2020.

Can I download this Raising Rare episode?

Yes. Use the download control on the episode player to save the publisher-provided media file.

URL copied to clipboard!