What Happens After Your Child Ages Out? Two Dads Share Truth with Jon Hockenyos

What happens after autism services end?In this powerful Autism Labs episode, Mike Carr sits down with Jon Hockenyos economist, policy expert and father of a 23-year-old son with profound autism for a candid, dad-to-dad conversation about life after the school system.Together, they explore the reality families face when structured support disappears. From early experiences of being removed from programs due to behavior, to navigating a broken adult services system with decades-long waitlists, this episode highlights the critical gaps in care for profoundly autistic adults.Jon shares insights from both a personal and professional lens, including his work on insurance mandates and public policy. The conversation also dives into the financial burden of lifelong care, the inefficiencies of current funding systems and why many families are forced to create their own solutions.Mike and Jon discuss how they came together to build a residential model focused on community, familiarity and intentional support giving their sons the opportunity to gradually transition toward independence in a safe and trusted environment.Key Topics Covered:The “autism cliff” after age 18-22Why behavior limits access to servicesMedicaid waiver waitlists and funding challengesThe true cost of lifelong autism carePreparing for residential livingBuilding community-based solutions for adultsThis episode is essential listening for parents, caregivers and professionals seeking honest insight into the future of autism care.#Autism #ProfoundAutism #AutismPodcast #AutismAdults #AutismSupport #SpecialNeedsParenting #DisabilityServices #Caregiving #AutismTransition #AdultAutism