What It’s Like to Be Diagnosed with ITP as a Kid with Connor & Kim

Connor and his mum, Kim, share their story of bruises, hospital visits and finding confidence again after an ITP diagnosis.  Being diagnosed with Immune Thrombocytopenia (ITP) as a child can be confusing, frightening and life‑changing — not just for kids, but for their parents too. In this episode of Beyond the Count, Danielle sits down with Connor and his mum Kim to share their honest, heartfelt story of what those early days were really like.Connor talks about the first signs that something wasn’t right — unusual bruises during footy, a strange rash on his shoulders, and the moment a small knock caused his tongue to turn black. He describes the fear and confusion of hospital visits, blood tests and hearing the words “you have ITP” for the first time. Kim offers the parent perspective, reflecting on the instinct that something was wrong, the anxiety of waiting for answers, and the challenge of trying to keep life normal while navigating restrictions, school changes and the emotional toll on the whole family. Together, they share how ITP affected Connor’s daily life — from missing sport and feeling isolated at school to dealing with fatigue and the frustration of not being able to do the things he loved. They also talk about the turning point that came with starting treatment, the support they received from teachers and the ITP community, and how life slowly opened back up again.  This episode is full of honesty, courage and hope. It reminds kids that it’s okay to feel scared or confused, and it reassures parents that their instincts, questions and advocacy truly matter. Most importantly, it shows that with the right support, kids with ITP can still live active, joyful and confident lives.Support the showThanks for listening to Beyond the CountFor more information, resources and lived experiences about Immune Thrombocytopenia (ITP), visit ITPANZ.org.au.📱 Follow us on social media:Instagram: @ITP_ANZFacebook: facebook.com/ITPANZ LinkedIn: ITP Australia & New ZealandYouTube: @ITPANZ🎧 Subscribe to Beyond the Count on your preferred podcast platform so you never miss an episode.Do you have feedback or a story to share? We’d love to hear from you. Get in touch at [email protected]