What's it like to live with endometriosis? episode artwork

EPISODE · Nov 18, 2025 · 37 MIN

What's it like to live with endometriosis?

from (MIS)Treated · host TVO

According to the World Health Organization, it can take 4 to 12 years to be diagnosed with endometriosis. In Canada, it's 5 years, and in the U.K., 9 years. We speak to Evelyn Scott, who is from the U.K., about her experience with endometriosis. It took 15 years for her to receive a diagnosis, and she tells us what's it like to live with a condition that doesn't have a cure and how doctors repeatedly dismissed her symptoms. Got a question or comment? Email us at: [email protected] If you, or someone you know, is struggling with mental health, visit any of the following resources for support: Canada.ca/mental-health Kids Help Phone Call 1-800-668-6868 (toll-free) or text CONNECT to 686868. The Government of Ontario's Mental Health Support Resources: https://www.ontario.ca/page/find-mental-health-support Follow TVO on social: https://www.youtube.com/theagenda https://www.instagram.com/mistreatedtvo Join our newsletter: https://www.tvo.org/newsletters Visit the TVO Today website for current affairs journalism, documentaries and podcasts: https://www.tvo.org Research links Endometriosis: https://www.who.int/news-room/fact-sheets/detail/endometriosis Endometriosis: three reasons care still hasn’t improved: https://theconversation.com/endometriosis-three-reasons-care-still-hasnt-improved-157457 Pathways to Diagnosis: https://endometriosisnetwork.com/paths-to-diagnosis Women in UK waiting almost nine years for endometriosis diagnosis, study finds: https://www.theguardian.com/society/2024/mar/04/women-in-uk-waiting-almost-nine-years-for-endometriosis-diagnosis-study-finds 1 in 10 Women Have Endometriosis. Why Don’t Their Doctors Believe Them?: https://www.vice.com/en/article/1-in-10-women-have-endometriosis-why-dont-their-doctors-believe-them Why hasn’t endometriosis care improved?: https://www.independent.co.uk/health_and_wellbeing/endometriosis-awareness-week-2022-nhs-b2026658.htmlSee omnystudio.com/listener for privacy information.

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