What’s Your Story, Justin Brubaker? Parenting with purpose, rare resilience, and a whole lot of love

In this deeply moving and joy-filled episode, we sit down with Justin Brubaker, a devoted dad, advocate, and business professional who shares the extraordinary journey of raising his two sons, Jackson and Cooper, both of whom live with Saul Wilson Syndrome, a rare form of dwarfism affecting fewer than 25 people in the world.Justin opens up about the challenges and triumphs of parenting children with unique needs, the strength of his family’s bond, and the joy they’ve found in living big, loving hard, and embracing life without limits. From musical gifts to martial arts, advocacy work to spontaneous family adventures, this conversation will inspire anyone who believes in the power of community, love, and resilience.Key topics discussedA rare diagnosisJustin shares the emotional journey of discovering both of his sons had Saul Wilson Syndrome, and what it meant to navigate a diagnosis so rare that fewer than 25 people globally are affected.How their family learned to advocate, educate, and support one another through an often-unpredictable medical journey.Talents that shine brightJackson’s musical genius including perfect pitch and teaching himself piano during the pandemic.Cooper’s fearless spirit excelling in martial arts and taking on leadership roles on his sports teams despite physical limitations.The power of communityHow neighbors, schools, and friends rallied around the Brubakers, supporting Jackson’s role as football team manager and helping the boys thrive.Why finding allies, both near and far, has made all the difference in their family’s journey.Parenting through challengesHow Justin and his wife empower their kids by blending advocacy with independence, teaching their sons to adapt and thrive in any environment.The delicate balance of protecting their children while preparing them to speak up for themselves.Lessons in acceptance and advocacyHow the Brubakers face societal ignorance and gently push for more understanding, inclusion, and acceptance.Justin’s belief that everyone’s uniqueness deserves celebration, not pity.Cherishing life’s momentsWhether it’s a Disney trip or a day at home, the Brubaker family is committed to finding joy in the little things.Justin reflects on gratitude, perspective, and intentionally making every moment count.Justin asks if you would like to make a donation please do so to Manheim Central Football booster club. This will benefit the kids who have really adopted his boys as big brothers and peers.  Memorable quotes“Why us? Changed to, I’m glad it’s us. We’re meant for this.” – Justin Brubaker“We don’t focus on what they can’t do; we adapt to help them do anything they dream of.” – Justin Brubaker“It’s not about the size of the dog in the fight—it’s about the size of the fight in the dog.” – Justin BrubakerWhere to listen & watch:YouTube: https://youtu.be/HOaxG4DQ8PsApple Podcasts: https://tinyurl.com/mtkxjcezSpotify: https://tinyurl.com/yhkw24v7Amazon Music: https://tinyurl.com/2hnfynpmConnect with Justin:LinkedIn: https://www.linkedin.com/in/justinbrubaker/Learn about Saul Wilson Syndrome: https://tinyurl.com/t3nb2y38Other articles to read: https://tinyurl.com/9d3hpu2whttps://tinyurl.com/3amfvku8https://tinyurl.com/4xrs8spdIf this episode inspired you, subscribe, rate, and review our podcast! Your support helps us reach more people and continue sharing powerful stories.Follow us on:Instagram: www.instagram.com/JaimeSpeaksFacebook: www.facebook.com/JaimeMarcoSpeaksLinkedIn: www.linkedin.com/in/jaimeamarcoJaime Marco Website: jaimemarco.comGot feedback or a guest recommendation? Email us at [email protected]!