EPISODE · May 18, 2022 · 49 MIN
When the promise of Gene therapy does not apply to your child
from The Rare hour with Christopher Velona · host Christopher Velona
On today's show, our guest is Batten CLN8's dad, Muhammad Dawood, who talks with us about Hannah, his terminally ill child. From a normal life to a nightmare of testing to broken hopes for therapy. Muhammed explains what it was like, what happened and what is like now in today's rare disease world and gives a few important tips for parents just coming into this disease. To support Hannah and follow her on social media: Instagram: @hanna_cln8
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When the promise of Gene therapy does not apply to your child
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