When to Consider Discontinuing Maintenance Therapy?

Send us Fan MailHaving AL amyloidosis, a disease that at present is incurable, can be an emotional rollercoaster. Over the course of one’s journey, patients may go on treatment post-diagnosis, go off treatment if they have achieved complete or very good response, relapse, and then need to go back on treatment. This cycle may span multiple years, and may repeat. It varies widely from patient to patient. Particularly challenging may be when patients have been on treatment and, for whatever reason, feel it may be time to consider discontinuing their treatment. This was the case for today’s guest, Darlene.   For an overview of amyloidosis, please see episode 2 (for clinicians) or episode 3 (for patients).