Who Knew You Could Live Without Kidneys? {Chronic Illness Podcast}

“Denial? Or I’m just a tough jackass that won’t just die” — Robert Fukushima Bad Ass With No KidneysHemodialysis ACA Fluids in foods Hyperphosphatemia Flavor Boosting Phosphates in food Artificial Kidney  More about Artificial KidneysKidney transplant rejection  Did You Like What You Listened To? Sign up with your email address to receive news and updates. Email Address Sign Up We respect your privacy. Thank you! Robert FukushimaAge: 56Gender: MaleDisability: Kidney failure, avascular necrosis of the hipAge disorder became a daily issue: 24Is there anything you would do if you were not sick? Travel, eat more, drink more, return to work, gardenWhat would make living and moving in the world easier for you? Kidney transplant would be the biggest thingDisability Lifehacks? My biggest thing is to remind myself that I am disabled even if I'm not feeling so. Things take longer, something's can't be the sameSupport from family or friends? I have exceptional family and friend support.Do you find that people do not believe you are sick because of your appearance? YesHow has this affected you positive or negative? I am one of those people who doesn't care, for the most part, what others think of me.What are you afraid to tell even the people closest to you? I'm actually a fairly open book, even when sober.Does the fact that your disease is invisible change how healthcare professionals treat you? NoBest coping mechanism? Denial? Or I'm just a tough jackass that won't just dieWhat are you the most fearful of and what are you the most hopeful for in the future? The effects of President Trump's effects on society (fear). My biggest hope is to get a kidney and I'll at least be close to feeling well.Favorite swear word? I'm not sure I do swearPermalink Hosted on Acast. See acast.com/privacy for more information.