Woman Living with Endometriosis Says Pain is so Bad That She is No Longer Able to Leave her Home - 05/05/2026

A very brave woman who has previously shared her battle with severe endometriosis here on The Agenda says she is now at “breaking point” and is pleading for urgent help.Amie Berns says her condition has deteriorated to the extent that she is living in constant, excruciating pain and is now effectively housebound. She is reliant on a catheter due to complications affecting her bladder, and describes experiencing repeated contractions every day, pain she says feels like being in labour.She says she can no longer walk for more than a few minutes, and despite urgently needing treatment, she has been told she could be left waiting for months. Amie also says her attempts to reach health authorities have gone unanswered, leaving her feeling completely abandoned.A full-time carer to her young son, she says her life has been turned upside down and she is now speaking out in desperation, hoping that by sharing her story, she can finally get the care she needs.Aime joined us on The Agenda this morning to talk to us some more about this and she broke down while telling us about what she has been living with. Hosted on Acast. See acast.com/privacy for more information.