World Rare Disease Day Is February 29 This Year #RareDiseaseDay episode artwork

EPISODE · Feb 28, 2020 · 14 MIN

World Rare Disease Day Is February 29 This Year #RareDiseaseDay

from Fred LeFebvre and the Morning News

The last day of February each year is rare disease day and this year Fred had on Deb Ayres and daughter Avalon who created the Avalon Foundation known as kidcaringforkids. Avalon suffers from HPP Hypophosphatasia a rare genetic disorder characterized by the abnormal development of bones and teeth. She began kidscaringforkids.org as a way to help other kids with HPP.

Episode metadata supplied by the publisher feed · Published Feb 28, 2020

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World Rare Disease Day Is February 29 This Year #RareDiseaseDay

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