EPISODE · Feb 28, 2020 · 14 MIN
World Rare Disease Day Is February 29 This Year #RareDiseaseDay
from Fred LeFebvre and the Morning News
The last day of February each year is rare disease day and this year Fred had on Deb Ayres and daughter Avalon who created the Avalon Foundation known as kidcaringforkids. Avalon suffers from HPP Hypophosphatasia a rare genetic disorder characterized by the abnormal development of bones and teeth. She began kidscaringforkids.org as a way to help other kids with HPP.
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World Rare Disease Day Is February 29 This Year #RareDiseaseDay
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