Writing Through Lupus, Fibromyalgia, Hepatitis B, Neurological Functional Disorder, & Stroke: The Indomitable Georgiana episode artwork

EPISODE · Aug 31, 2018 · 39 MIN

Writing Through Lupus, Fibromyalgia, Hepatitis B, Neurological Functional Disorder, & Stroke: The Indomitable Georgiana

from Invisible Not Broken - Chronic Illness Podcast Network · host Hosts: Monica and Eva

https://georgiana3026.wixsite.com/mybeautifultr: websitehttps://twitter.com/mybeautifulTr/https://www.facebook.com/mybeautifulTr/https://www.facebook.com/groups/mybeautifultrauma/What is your disorder? *SLE Lupus, Fibromyalgia, Hepatitis B, Neurological Functional Disorder, StrokeAt what age did your disorder become a daily issue? *12Who were you before your illness became debilitating? *Youth WorkerWhat would you do if you were not dealing with your invisible illness? *An active member of the community Urban Vision, while being a Youth WorkerWhat would you like people to know about your daily life? *My health is not reliable (i have good days but bad, I get sick easily and fatigue levels can come and go without warning)What would make living and moving in the world easier for you? *Being able to work from home (Which I started this year) Also not having illnessesDo you have any life hacks? *Stay Positive, even when it's hard tooWhat kind of support do you get from family or friends? *Emotional, Love and travelHave you ever had someone not believe you have an invisible illness because of your appearance and if so are there any examples that stand out? *I've had strangers who want me to move so they can sit, (when I don't take my walking stick, which I only use when I'm tired and Lupus is flaring up).How has your invisible illness affected your relationships? *I can't commit to doing everything and anythingIs there anything you are afraid to tell people in your life? *Nope, I try to be honest about my life as it's been filled up with challengesDoes the fact that your disease is invisible change how healthcare professionals treat you? *Yes, my careers hours has been dramatically decreased, and travel costs are no longer part of my career taking me to appointments and regular blood tests when I am sore and tired we have to walk.What is your best coping mechanism? *laughter and surrounding myself with loved onesWhat are you the most concerned about and the hopeful for in the future? *That I get seriously sickWhat is your favorite swear word?Fucking HellWhat is the hardest and/or best lesson your condition has taught you?It's ok to put yourself first, so you can be there for othersWhat is the best purchase under $100 that helped your lifemeds Hosted on Acast. See acast.com/privacy for more information.

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Writing Through Lupus, Fibromyalgia, Hepatitis B, Neurological Functional Disorder, & Stroke: The Indomitable Georgiana

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