【新桃】没有站在光里的人——从罕见病说起(下)20240108 episode artwork

EPISODE · Jan 8, 2024 · 56 MIN

【新桃】没有站在光里的人——从罕见病说起(下)20240108

from 新桃换旧符

为国际罕见病日活动而做一期播客主持:梅老师,特邀主持:乐老师,宝老师特邀嘉宾:贾仔伊:蔻德罕见病中心创始人助理,新桃换旧符甲群成员。艾力亚尔·艾克排尔:蔻德患者部主管,同时也是FSHD(面-肩-肱型肌营养不良症)患者。註:闲聊摆龙门阵,其中怪力乱神内容,仅为个人观点。与蔻德罕见病中心机构无关。从罕见病到玄学到尘到光;从西医到中医到法术祝由。

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【新桃】没有站在光里的人——从罕见病说起(下)20240108

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