You are not alone - resources to help

Episode three of RareAF: Advocacy & Facts, In episode three of Rare AF, we celebrate the holidays while shining a light on resources that support the rare disease community. This episode explores the realities of the season and where to find help when it’s needed most.Watch and listen to new episodes of RareAF every month and follow us on Social Media for all the best moments from the show:  https://linktr.ee/RareAFpodcast. You can also listen to new episodes Spotify, Youtube or Apple Podcasts.Resource Checklist: https://heritagebiologics.com/wp-content/uploads/2025/12/resourcechecklist.pdf Rare Disease Specific National Organization for Rare Disorders (NORD) — Rare Disease Community - National Organization for Rare Disorders PAN Foundation (Patient Access Network Foundation) —  PAN Foundation - Patient financial assistance, advocacy, and education Ben's Friends — Patient Communities for People with Rare Diseases Take Part Foundation — Take Part Foundation Serenely Guided Foundation —  Rare Diseases Support | Serenely Guided Foundation In conjunction with Mom’s Meals GARD (Genetic and Rare Diseases Information Center) Every Life Foundation The Hope Project for Kids Hope Kids Rare Diseases Clinical Research Network Take Part Foundation RareKC – Look for local organizations for less competition MGA/Hope for Hemophilia/CureDuchenne- Look for disease specific organizations Accessia Health Rare Diseases International- For listeners outside of US Caregiver Action Network- For rare disease caregiver support/resources General Assistance United Way | United Way Worldwide  Donate to Feeding America | Feeding America Home Page - Volunteers of America Home - Family Promise  Location Search | The Salvation Army USA The views expressed in this podcast are those of the individual speakers and guests and do not necessarily reflect the views of Heritage Specialty Pharmacy or any affiliated entities. This podcast is provided for informational and educational purposes only and is not intended to provide medical, legal, or other professional advice, nor to replace the guidance of a qualified healthcare professional. Always seek the advice of your physician or other qualified healthcare provider with any questions you may have regarding a medical condition, treatment, or health‑related decision. Guests or speakers who share personal experiences are sharing their own perspectives only. Individual experiences and outcomes may vary, and listeners should not rely on anecdotal information when making medical or healthcare decisions. This podcast may include discussion of specific therapies, products, brands, companies, or treatment approaches. Such discussion is provided for general awareness only and does not constitute endorsement, recommendation, or affiliation by Heritage Specialty Pharmacy. Any references to products or services offered by Heritage Specialty Pharmacy are for informational purposes only and are not intended as an advertisement or solicitation. Trademarks and brand names mentioned are the property of their respective owners. All content is current as of the date of recording and may be subject to change.