You Can Build A Big Life With Hemophilia episode artwork

EPISODE · Apr 4, 2026 · 46 MIN

You Can Build A Big Life With Hemophilia

from HemoLife Podcast · host L.A. Aguayo

Send us Fan MailWe sit down with Johnny Hawkins to talk about surviving a life-threatening brain bleed as a toddler and growing into a confident adult with severe Hemophilia A. We get real about bullying, treatment discipline, staying active, and why your bleeding disorder can shape you without limiting you.• Johnny’s origin story as the first known case in his family• A childhood intracranial bleed and craniotomy plus how his dad’s CPR training saved his life• Parents and friends who treat him as capable not fragile• Bullying and the emotional cost of looking “fine” one day and injured the next• Prophylaxis infusions, ports, target joints and learning to feel a bleed coming• Training and sports with hemophilia plus smart risk taking without “bubble wrap”• Building a hands-on custom automotive business and rejecting limiting career advice• New hemophilia treatments, reactions, and what aging with hemophilia changes• Consistency, mentorship and community as the difference between inspiration and lasting changeMake sure to subscribe and stay connected with a group of extraordinary achievers and pioneers.Thanks for tuning into the HemoLife Podcast. Be sure to subscribe, leave a review, and share this episode with someone who needs a spark of hope or encouragement. Follow us on Instagram @HemoLife_Podcast and YouTube for updates, guest highlights, and behind-the-scenes content. New episodes drop regularly—your story matters, and this is just the beginning.

Episode metadata supplied by the publisher feed · Published Apr 4, 2026

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Send us Fan Mail We sit down with Johnny Hawkins to talk about surviving a life-threatening brain bleed as a toddler and growing into a confident adult with severe Hemophilia A. We get real about bullying, treatment discipline, staying active, and why your bleeding disorder can shape you without limiting you. • Johnny’s origin story as the first known case in his family • A childhood intracranial bleed and craniotomy plus how his dad’s CPR training saved his life • Parents and friends who tre...

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You Can Build A Big Life With Hemophilia

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This episode was published on April 4, 2026.

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