EPISODE · Apr 29, 2020 · 17 MIN
Young adults changing rare disease legislation, ft. Dan Pezatta from YARR
from Wait, How Do You Spell That? A Rare Disease Podcast · host waithowdoyouspellthatraredisease
We've got a short episode with Dan Pezatta, a representative from YARR. YARR might sound like a pirate greeting you but it's actually something even cooler: Young Adults of RDLA (RDLA, in turn stands for Rare Disease Legislative Association.) Dan joined Rebekah and Ilana during Rare Disease Week to talk a little about what led him to advocacy, the legislative change he hopes to see, and what it's like to be in a young adult rare disease community.
What this episode covers
We've got a short episode with Dan Pezatta, a representative from YARR. YARR might sound like a pirate greeting you but it's actually something even cooler: Young Adults of RDLA (RDLA, in turn stands for Rare Disease Legislative Association.) Dan joined Rebekah and Ilana during Rare Disease Week to talk a little about what led him to advocacy, the legislative change he hopes to see, and what it's like to be in a young adult rare disease community.
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Young adults changing rare disease legislation, ft. Dan Pezatta from YARR
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