PODCAST · business
A Mama’s Xtra Love
by A Mama’s Xtra Love
Talk Fragile X Podcast exists to provide a platform for families and Fragile X experts to share their knowledge, resources, and experiences, all in the hopes of creating more awareness, advocacy, and support of Fragile X Syndrome! Even if you don’t know what Fragile X Syndrome is, this Podcast is for you! I want everyone to know what Fragile X is and understand it’s genetic prevalence in individuals lives.
Episodes
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Small Steps, Big Impact!
It’s the first episode of A Mama’s Xtra Love Podcast! Woohoo! Tune in to hear about the power of early intervention and how it’s impacted our son’s life tremendously.
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Q&A Part 1: Fragile X Treatments, Anxiety and more!
Tune in for our first ever Q&A episode! We’re excited to answer your questions about all things Fragile X!
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Rare Patient Voice’s Stacey joins Talk FX Host Nicole Smith!
I’m so excited about this collab with Rare Patient Voice! Stacey and her heart for this organization is incredible. Please tune in and hear how you can get involved in rare disease studies, including Fragile X Syndrome!
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The Raw Realities of Grief & More!
Tune into a new episode of Talk Fragile X as we discuss Developmental Disabilities Awareness Month, the raw realities of grief, and so much more!
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A Fragile X Family’s Diagnosis Journey
It’s great to be back on the Podcast! I have many updates for you all that I can’t wait for you to hear about. Tune in to this week’s episode of Talk FX to hear more!
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An Update on our Fragile X Journey!
During Fragile X Awareness Month there’s lots in store, including an update on my family and I’s journey with Fragile X!
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An Important Message from Talk Fragile X
It’s Fragile X Awareness Month! As we kick off this important month, Talk Fragile X has an important announcement!
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Talk Fragile X is Back with News!
It’s great to be back on Talk Fragile X Podcast! I share some updates to our Fragile X journey, what you can expect from the podcast this year, and more!
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Why Should We Advocate for Inclusion in the Workplace and in the Community?
October got away from me, but I still wanted to share this important episode with you all! After all, Disability Employment Awareness shouldn’t just be focused on for one month out of the year, but rather every day! It’s an ongoing effort that needs our support!
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Special Guest: Rob Snow, Director of the CEO Commission for Disability Employment
The CEO Commission for Disability Employment was created to increase opportunities for individuals with disabilities to obtain and/or maintain employment. The CEO Commission for Disability Employment focuses on three main goals: Policy, Practice and Culture! Tune in to learn more about CEO...
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Disability Employment Awareness Month 2023
This month is Disability Employment Awareness Month! I'm SO passionate about this very topic! As an Employment Specialist who sees and experiences firsthand the challenges and difficulties of promoting inclusion in the workplace for our neurodiverse peers, I share my experiences, encouragement…
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An Update from FRAXA Research Foundation’s Katie Clapp & Holly Roos!
I had the pleasure of welcoming Katie Clapp and Holly Roos from FRAXA Research Foundation on this weeks episode of Talk Fragile X! Katie and Holly talked all things World Fragile X Day 2023, as well as FRAXA’s significant research advancements that have been made this year, and what they look...
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Fragile X Awareness Month & A Suprise Announcement!
Fragile X Syndrome is the leading genetic cause of Autism. It's caused by a mutation of the FMR1 gene responsible for cognitive and behavioral development. Fragile X is often passed on unknowingly. The month of July is Fragile X Awareness Month! An opportunity to continue to spread more awareness...
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Life Update!
I'm back! It's been several months since I've released a new episode. It's been a hard last couple of months for so many reasons. I shed some more light on this in the episode, and I hope you'll take a listen. Don't worry, I'm not missing Autism Awareness Month!!
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The One Where It's The First Episode of 2023!!
It's crazy that we are in 2023 now! I had a great time off my podcast duties for the last month or so of December, and now I'm ready to get to work! What better way to kick off the new year with a rare vulnerable episode. I don't often share life updates, but this one in particular I felt was...
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The One Where It's The Last Episode of 2022!
If you caught the Friends reference in the title, big thumbs up to you! If not, it's okay, you're still welcome here! It's crazy to think this is our last episode of 2022, but we are here! I will be taking a break from the podcast world for the remainder of the year to spend time with family. I...
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It's Disability Employment Awareness Month!
In this week's episode, I talk about the importance of Disability Employment Awareness Month, and how it's an opportunity to talk about the transition for our neurodiverse peers from high school to competitive integrated employment. Which is one of the biggest changes our neurodiverse peers face!...
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What More Special Needs Families Should Be Talking About! With Special Guest: Ashley Zazueta
Something that doesn’t seem to be talked about enough is the journey of finding the right therapists for our special needs children! For so many families, this can be a very challenging and emotional process. Ashley shares her journey of finding the right therapists for her full-mutation Fragile…
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Life Update!
Happy September! On this weeks episode of Talk FX I share some life updates and the importance of encouraging our neurodiverse peers to expand their comfort zones, and how I've been able to see this first hand. Tune in and subscribe to Talk Fragile X Podcast!
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A Raw Conversation with Andrea Miller
About a year ago, I had the pleasure of meeting Andrea when she reached out to me on social media one day. We ended up connecting on a phone call and talked about life, family, faith, and of course Fragile X for over an hour! Since then, we talked about continuing our conversations on a future...
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We Must Do Better!
This is an important episode that I hope you will listen to, share, and be encouraged by. I also hope that you will hear my heart in why we have work to do to continue to work towards a more inclusive environment for our neurodiverse peers!
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How do we maintain hope? (Part 1)
Maintaining hope in our lives is a daily journey. Whether you're a parent of someone with Fragile X, self-advocate or full-mutation carrier. Often times the amount of hope we have is dependent on how our day is going, how our children are behaving, or discouragement in general. Not to mention our...
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Special Guest: Stephanie Hanrahan Blogger & Founder of the Non-Profit Labeled and Loved
Stephanie Hanrahan was just your seemingly average housewife until she grew tired of pretending and decided to make her private journal public. Since sharing her story, Stephanie has achieved viral success with her website Tinkles Her Pants, which chronicles her journey as a wife to a husband…
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Fear & Anxiety Part 2 With Kirsten Fowler
I can’t say enough about Kirsten Fowler! She’s a mother to three children with full-mutation Fragile X, is a female Full-Mutation carrier just like myself, and is overall just one of the most kind and genuine individuals that I’m so blessed to have met! When thinking about how I wanted to create...
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THIS is why inclusion is important!
This is an important episode that I hope each and every one of you will take the time to listen to! Please share with your friends, family and whoever else that you feel could benefit from hearing this message. Let's continue to create a more inclusive, understanding and supportive environment…
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Fear & Anxiety Part 1
As we continue Fragile X Awareness Month, I think fear & anxiety as it relates to being a carrier of Fragile X Syndrome is so important to talk about and encourage one another in! It's not always easy for me to be open about the effects of Fragile X in my life, but I hope it will encourage even...
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It's Fragile X Awareness Month 2022!
Fragile X Awareness Month is here! For the whole month of July, we are going to be releasing weekly episodes in effort to be a part of supporting, educating and creating more awareness of Fragile X Syndrome! I'm so excited to kick off awareness month joined with my husband Moe! We talk about what...
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World Fragile X Day with Special Guests: Katie Clapp & Holly Roos with FRAXA Research Foundation
On this weeks episode of Talk FX, I’m joined with President & Co-Founder of FRAXA Research Foundation, Katie Clapp! As well as the Community Services Director, Holly Roos! We chat about all things World Fragile X Day 2022, research, the re- naming of the FMR1 gene responsible for Fragile X, and...
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A Conversation with Kirsten Fowler, Author of Family, Faith & Fragile X
In this weeks episode I’m joined with Author, Kirsten Fowler! Mother of four children, with three having Full-Mutation Fragile X Syndrome. Kirsten shares about her vulnerability and inspiration behind writing her book, what it’s like being a mother to three children with fragile x, and much more!
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Exciting News for The Fragile X Community!!
This week's episode is a special one!! I'm sure so many of you have seen the news of the change in name of the FMR1 gene responsible for Fragile X Syndrome! This has been a long time coming! I'm looking forward to how this positive step forward creates a more appropriate and factual description…
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Special Guest: Kate Swenson Author of Forever Boy: A Mother’s Memoir of Autism and Finding Joy
Surprise!!! On this weeks episode of Talk FX, I had the pleasure of chatting with Author, Blogger, and Mother of 4 children, Kate Swenson! Kate was recently on the Today Show promoting her new book and sharing a snippet of her and her son Cooper’s story! Since then, her new book has become a Best...
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Autism Awareness Month
It's Autism Awareness Month!! On this week's episode of Talk FX, we not only discuss the mission of Autism Awareness Month, but we also break down what Autism is and how individuals with Fragile X Syndrome are often co-diagnosed with Autism. I also share a bit of my 13-year-old cousin's journey…
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Another Fragile X Diagnosis Story with The Knudson Five family!
On this weeks episode of Talk FX, I’m joined with Sara Knudson, a passionate mom of three children, with two of the three being affected by Fragile X Syndrome. Sara shares about her children’s diagnosis stories, the struggles, the joys, and the amazing resources and support they have available in...
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Prioritizing Self-Care in Your Life
Prioritizing self-care is not always simple! Whether you're a mom of a fragile x child, self-advocate, or full-mutation carrier, it can be challenging to find time for yourself to be alone or do what helps you to reset or re-energize! In this week's episode of Talk FX, we discuss not only the...
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Advocacy Day 2022 is here!!
On Tuesday, March 1st the National Fragile X Foundation will be having their annual Advocacy Day virtually! This is an opportunity for families affected by Fragile X Syndrome, caregivers, self-advocates, doctors, and researchers to meet with their members of congress and be an advocate for…
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Preparing your Fragile X child for Employment
If you're reading the title of this episode and you're thinking "this doesn't pertain to us yet, think again!" In this week's episode of Talk FX, we discuss what it looks like to prepare our children for employment. We understand that there is a pretty big spectrum of families in the Fragile X...
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A raw conversation with family about Fragile X Syndrome
On this weeks episode of Talk FX, it was so special to welcome my Aunt Michelle and Uncle Jeff, and my cousin Nathan for a raw family conversation about Fragile X Syndrome. We discussed the education system, advocacy, fragile x experts, supports and much more. I’m so thankful for my family and...
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How FRAXA Research Foundation is keeping hope alive for a cure for Fragile X!
Joining us for our second episode of 2022 is President & Co Founder of FRAXA Research Foundation; Katie Clapp! She shares with us the exciting research proposals coming up for FRAXA to support, the 2nd annual World Fragile X Day on July 22nd, 2022 and how you can be involved, and much more!
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My Fragile X Diagnosis Story with Special Guest: My Husband Moe Smith!
What better way to start off the new year then kicking off Season 5 of Talk FX with a very personal episode! I'm excited to have my husband Moe on with me for the first time ever! We talk about my diagnosis story, how fragile x has affected our relationship, the hardships, and more. In the...
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Preparing for Doctors Appointments
Cheers to our very last episode of 2021!! I've had many conversations with Fragile X families in the last few months regarding a topic that is so important. I've also seen so many families reaching out for support on this topic as well. That is on preparing our children for doctor's appointments!...
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Transition from Grade School to Adulthood: Part 2!
In this episode of Talk FX, we dive deeper into the important topic of transitioning from grade school to adulthood for our FXer's! Where do I start? What questions do I ask? What services are available in my state? Whether you're a newly diagnosed family, self advocate, full-mutation carrier, or...
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Giving Tuesday!
On Tuesday, November 30th it’s National Fragile X Foundation’s Giving Tuesday! We discuss how this annual day of giving is an amazing opportunity to make a difference in the lives of families affected by Fragile X Syndrome. Tune into this weeks episode to learn how you can be apart of Giving...
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Why Advocate?
On this weeks episode of Talk FX, we focus on one of the most impactful aspects of Fragile X Syndrome, and that’s Advocacy! With Advocacy Day a few months away, it’s important to start thinking about how you can participate! But that’s not all, we can be apart of advocacy in other ways as well…
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Transition from Grade School to Adulthood
What does the transition from grade school to adulthood look like for your FX child? In this weeks episode, we talk about what challenges are involved in this particular transition in an individual with FX’s life, and the supports that are available! It is so vital to provide these resources, and...
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We’re back! With Special Guest: Dr. Randi Hagerman
In this weeks episode of Talk FX, we are joined with a very special guest, Dr. Randi Hagerman! She is a distinguished professor of Pediatrics at the University of CA Davis Medical Center, and is the director of the Fragile X Research and Treatment Center at the MIND Institute. It doesn’t end…
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World Fragile X Day
We’re excited to be back with a new episode of Talk FX, after taking a pause. What better way to kick things off then to have special guest Katie Clapp, Founder of FRAXA Research Foundation on with us to share about the launch of World Fragile X Day. She shares how this idea came about, how…
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Special Guest: Brandy - Two boys with Full-Mutation Fragile X Syndrome
In this weeks episode, we chat with our Instagram Giveaway winner Brandy! Her and her husband have two boys (ages 3 & 6) with Fragile X. She shares how they navigate life, how much support they’ve found in their tight nit community, and talk about what being a Fragile X Parent is all about - the...
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Special Guest: Katie Clapp (President & Co-Founder of FRAXA Research Foundation)
We’re back with another episode of Talk FX! What better way to kick things off after a short break from our weekly episodes then to have Katie Clapp, President & Co-Founder of FRAXA Research Foundation join us! She shares with us the history of FRAXA, the motivation behind starting the…
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ADVOCACY DAY 2021!
It’s a new year, that means another Advocacy Day is upon us! We are excited about what 2021 holds for the Fragile X Community, and gaining more awareness and support for FX! Even though this year’s Advocacy Day will be virtual, we know it’s going to be just as impactful of a day, if not more! So…
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Approaches to Handling Aggressive Behavior & Discipline
In this weeks episode we’re joined with Debbie! She has a 13 year old son with Full-Mutation Fragile X and she shares with us her experiences with aggressive behavior & discipline as a Mother, and as a Paraeducator! We talk about the importance of patience and communication! As well as helpful...
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ABOUT THIS SHOW
Talk Fragile X Podcast exists to provide a platform for families and Fragile X experts to share their knowledge, resources, and experiences, all in the hopes of creating more awareness, advocacy, and support of Fragile X Syndrome! Even if you don’t know what Fragile X Syndrome is, this Podcast is for you! I want everyone to know what Fragile X is and understand it’s genetic prevalence in individuals lives.
HOSTED BY
A Mama’s Xtra Love
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Frequently Asked Questions
How many episodes does A Mama’s Xtra Love have?
A Mama’s Xtra Love currently has 72 episodes available on PodParley. New episodes are automatically indexed when they're published to the podcast feed.
What is A Mama’s Xtra Love about?
Talk Fragile X Podcast exists to provide a platform for families and Fragile X experts to share their knowledge, resources, and experiences, all in the hopes of creating more awareness, advocacy, and support of Fragile X Syndrome! Even if you don’t know what Fragile X Syndrome is, this Podcast is...
How often does A Mama’s Xtra Love release new episodes?
A Mama’s Xtra Love has 72 episodes. Check the episode list to see recent publication dates and frequency.
Where can I listen to A Mama’s Xtra Love?
You can listen to A Mama’s Xtra Love on PodParley by clicking any episode. We provide an embedded audio player for direct listening, and you can also subscribe via your preferred podcast app using the RSS feed.
Who hosts A Mama’s Xtra Love?
A Mama’s Xtra Love is created and hosted by A Mama’s Xtra Love.
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