PODCAST · science
Audio Podcast
by MitoAction
The official MitoAction podcast is a monthly call often with physicians who are experts on mitochondrial disease. Mitochondrial disease occurs when the mitochondria(the powerhouse of a cell) are unable to effectively generate energy during food metabolism. Approximately one in 4000 adults and children have mitochondrial disease ("Mito"). MitoAction is a non-profit organization dedicated to support, education and advocacy for the mitochondrial disease patient community.
Episodes
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Dr. Kendall Discusses "Is It Really Mito?:"
Dr. Fran Kendall of VMP Genetics discusses "Is it really Mito? When an alternative diagnosis should be considered."Talking points include:Clinical red flags that suggest an alternative diagnosis should be considered;Why that option should be entertained;Tools utilized to reanalyze patients...
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Mitochondria and MitoQ: A Research Update
MitoQ's mission is to raise awareness of mitochondria and the link between optimal mitochondria function, health, and longevity.
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Managing the Day-to-Day of Mitochondrial Disease
Managing the Day- to-Day of Mitochondrial Disease, a MitoAction presentation for ThriveRx Day-to-Day Management of Mitochondrial Disease from mitoaction
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Mito-autism support group call and discussion of PANDAS, Jan 2017
Mito-autism support group call and discussion of PANDAS, Jan 2017
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2017 Mito Town Meeting
The annual town meeting is our way of kicking off the new year by sharing all that is planned for the next 12 months. We'll hear from organizations, camps, and companies around the globe that have special opportunities, programs, and projects for patients and families with mitochondrial disease.
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Exercise and nutrition therapy for mitochondrial disease
Dr. Tarnopolsky, Professor of Pediatrics and Medicine, President and CEO, Exerkine Corporation, and Director of Neuromuscular and Neurometabolic Clinic at McMaster University Medical Center, will discuss the theory and practical issues with endurance and resistance exercise therapy; general...
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Getting Through the Day with Mito
Getting Through the Day with Mito: Treatments, Supplements, and Humor
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Molecular diagnostic testing for mitochondrial disorders
Dr. Adams, Medical Director of the Goryeb Children’s Hospital Genetics and Metabolism Division in addition to the Personalized Genomic Medicine Program at Atlantic Health System in Morristown, NJ, will: Explore gene testing and discuss the rationale for using it as first-line testing.Review...
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Medical Homes
Topics include:The importance of a medical home for a mitochondrial disease patient.Definition of a medical home.How to establish a medical home.Why a medical home is an essential component of good patient advocacy.Tips on maintaining a healthy medical home relationship.Ms. Wees will describe...
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Extended School Year and Summer Camp Planning with Annette Hines, Esq.
Summertime is a time of changed routines for many Mito families. Camp programs, such as those supported by the Matthew Harty Camper Fund, provide special opportunities for children with mitochondrial disease. Mitochondrial disease patients often qualify for and benefit from extended school year...
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Mitochondrial Medicine Society update 2016
Dr. Amy Goldstein provides an update on the Mitochondrial Medicine Society.Areas of discussion include: Transplantation in Mito patientsStroke protocol for MELASStandards of care for Mito patientsCenters of Excellence and the need for community involvement/input
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Incapacity Planning and Guardianship
As patients or caregivers, it is frightening to think about what would happen if we could not advocate for ourselves. Fortunately, there are legal documents that can be used to communicate our wishes under such circumstances. This type of legal preparation is called incapacity planning and...
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NORD Public Policy Team
Please join MitoAction this month for a conversation with the public policy team for the National Organization for Rare Disorders (NORD).
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Fatty Acid Oxidation Disorders
Areas of discussion include: * Do patients with mitochondrial defects also have the potential to have fatty acid oxidation defects? * How do disorders of metabolism such as FAOD and mitochondrial disease impact the body's ability to grow, develop and function? * What is the current focus in...
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2016 Mito Town Meeting
Updates from around the globe during the 2016 Mito Town Meeting.
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Diet, Dysmotility, and Tube Feeding
Many children and adults with mitochondrial disease experience significant gastrointestinal or digestive issues as part of their daily disease challenges. When considering the pros and cons of a feeding tube and struggling to identify the best diet for dysmotility, many parents, patients and...
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Mitochondrial myopathy with Dr. Bruce Cohen
Join MitoAction and Dr. Bruch Cohen as we discuss Mitochondrial myopathy.
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Mito-Autism Q&A and Parent/Patient Discussion of Mitochondrial Toxicity
Mito-Autism Q&A and Parent/Patient Discussion of Mitochondrial Toxicity
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Mitochondrial Disease and Toxins
Mitochondrial dysfunction has been identified as an important factor in many diseases and conditions beyond primary mitochondrial disease, including autism, ALS, Parkinson's, Alzheimer's, and diabetes. Exposure to toxins via medication, lifestyle, and the environment may lead to mitochondrial...
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Mito Supplement Therapy
What is "the Mito Cocktail"?Referring to the combination of vitamins and supplements used as therapies in the treatment and management of mitochondrial disease and mitochondrial dysfunction, the "Mito Cocktail" is unique to every patient. Join us with compounding pharmacist Ted Toufas PharmD RPh...
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Back to School Tips
It's that time of year ... summer comes to a close and children everywhere are going back to school! While a relief for some families, going back to school can be stressful for parents of children with mitochondrial disease.
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Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI) with Annette Hines, Esq. and Tai Venuti, MPH
Overview of SSI and SSDI programs;The differences between SSI and SSDI;Social Security’s definition of disability as it pertains to mitochondrial disease;How SSDI is designed to work, eligibility criteria, and the full range of SSDI benefitts;The application and appeals processes for SSI and SSDI;
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Getting Involved: Awareness Walk & Events 2015
Join Mitoaction as we discuss how to get involved with the Awareness Walk & Events in 2015.
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Basics of Estate Planning and Special Needs Trusts with special guest speaker Annette Hines, Esq.
Please join MitoAction as we welcome Annette Hines, Esq., founding partner of the Special Needs Law Group of Massachusetts. Ms. Hines will be speaking on the basics of estate planning and special needs trusts laws in the U.S.
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Cannabis oil to treat mitochondrial disease
Dr. Fran Kendall gives the answers to these questions and more regarding the use of medical marijuana (cannabis oil) for treatment in mitochondrial disease patients.What is the historical use of marijuana for medical purposes? Are there legalities associated with medical marijuana use? When is...
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Stealth BT mitochondrial myopathy trial
Join us with Stealth BioTherapeutics CEO Travis Wilson and others from the Stealth BT team for a live update from Stealth BT, information about Bendavia, and details about StealthBioTherapeutics' 2015 mitochondrial myopathy clinical trial.
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2015 Mito Town Meeting
The annual town meeting is our way of kicking off the new year by sharing all that is planned for the next 12 months. We'll hear from organizations, camps, and companies around the globe that have special opportunities, programs, and projects for patients and families with mitochondrial disease....
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Complex Medical Needs and Medical Child Abuse Accusations
Mitochondrial disorders are characterized by complex presentation of multiple symptoms. Due to a variety of factors, including heterogenity of the disease, erratic symptom presentation and general lack of awareness about the condition, families with mitochondrial disease are more often faced with...
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2014 Mito Awareness Rally
Join us as we kick off a month of mito awareness!
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ABOUT THIS SHOW
The official MitoAction podcast is a monthly call often with physicians who are experts on mitochondrial disease. Mitochondrial disease occurs when the mitochondria(the powerhouse of a cell) are unable to effectively generate energy during food metabolism. Approximately one in 4000 adults and children have mitochondrial disease ("Mito"). MitoAction is a non-profit organization dedicated to support, education and advocacy for the mitochondrial disease patient community.
HOSTED BY
MitoAction
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Frequently Asked Questions
How many episodes does Audio Podcast have?
Audio Podcast currently has 140 episodes available on PodParley. New episodes are automatically indexed when they're published to the podcast feed.
What is Audio Podcast about?
The official MitoAction podcast is a monthly call often with physicians who are experts on mitochondrial disease. Mitochondrial disease occurs when the mitochondria(the powerhouse of a cell) are unable to effectively generate energy during food metabolism. Approximately one in 4000 adults and...
How often does Audio Podcast release new episodes?
Audio Podcast publishes regularly with 140 episodes available. Check the episode list for the typical release schedule.
Where can I listen to Audio Podcast?
You can listen to Audio Podcast on PodParley by clicking any episode. We provide an embedded audio player for direct listening, and you can also subscribe via your preferred podcast app using the RSS feed.
Who hosts Audio Podcast?
Audio Podcast is created and hosted by MitoAction.
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