PODCAST · education
Beyond Labels and Limitations
by John Graybill
Welcome to the podcast for Beyond Labels & Limitations. John talks about living a life with Muscular DystrophyBL&L, started as an organization to raise money dedicated exclusively to Limb-Girdle Muscular Dystrophy 2A (LGMD2A) and to educate on the disease course and associated struggles of LGMD2A, as recounted through my personal experiences.
Episodes
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Episode 95: A Job, Physical Challenge and Where I'm at
On episode 95 of Beyond Labels & Limitations, JOHN GRAYBILL shares his new job, what is going on with him physically and how trusting that everything is unfolding as it should has changed him. ________________ Connect with John: YouTube Channel Website Email: [email protected] ________________...
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Episode 94: Taking Back My Mental Power
On Episode 94 of Beyond Labels & Limitations, John shares a statistic that we have 60-80 thousand thoughts a day, 95% of the thoughts are repetitive, and 80% are negative. One morning, John woke up and noticed thoughts flooding his head. Instead of just believing the thoughts, which is what he...
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Episode 93: Insight into Vulnerability and Avoidance
On episode 93 of Beyond Labels & Limitations, John Graybill shares an insight he had while writing. The insight is into being vulnerable and how that vulnerability led to avoidance. It was from avoidance that he discovered he wasn't accepting his diagnosis. ------------------------------ Connect...
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Episode 92: Health Challenges, Confidence and What's Important
On episode 92 of Beyond Labels & Limitations, JOHN GRAYBILL shares where he's been all summer, what "accident" he had and how he is moving forward with it. _________________________ Connect with John: YouTube Channel Website Email: [email protected] _________________________ "Desire to…
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Episode 91: Confidence after a fall and Volunteering
On episode 91 of Beyond Labels & Limitations, John Graybill shares the battle that takes place within his mind after a fall and how that battle determines his actions going forward. John also shares what he got from volunteering at his daughters elementary school. ___________________ Connect with...
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Episode 90: Happy Birthday & Toilet Fall
On episode 90 of Beyond Labels & Limitations, John Graybill wishes some very important people in his life a happy birthday and shares a fall he had while getting up from the toilet. _________________________ Connect with John YouTube Channel Website Email: [email protected]...
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Episode 89: Another Fall and Keep Going
On episode 89 of Beyond Labels & Limitations, John Graybill shares how he physically just got over his last fall, in terms of bumps and bruises, only to have another fall today. John shares the importance of not allowing the situations in life to bring you down but rather to keep going no matter...
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Episode 88: What a Day looks like with Limb Girdle Muscular Dystrophy
On episode 88 of Beyond Labels & Limitations, John Graybill shares what his day looks like. John is ambulatory, 44 years old, been living with the diagnosis for 27 years but the first signs of weakness showed up 33 years ago at the age of 12, and he hasn't worked since 2006 (16 years ago). This...
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Episode 87: Body Changes, Chloe Skiing and Being Alone
On episode 87 of Beyond Labels & Limitations, John Graybill shares the body changes he is currently experiencing, his daughter skiing for the first time and how he was alone for 13 hours. _____________________ Connect with John: Website YouTube Channel Email: [email protected]...
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Episode 86: Fatigue and My Mind
On episode 86 of Beyond Labels & Limitations, John Graybill shares how fatigue comes on for him and how he handles it now. John also looks at how the mind adds meaning to everything that happens and that by not adding meaning to events you can free yourself from suffering.…
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Episode 85: Living Life or Living from Stories
On episode 85 of Beyond Labels & Limitations, John Graybill asks the question, "Am I living life or being lived by the stories in life?" This question should be asked daily when dealing with events taking place in life. John has found that an event takes place, then there's an...
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Episode 84: Tripped by My Cat
On episode 84 of Beyond Labels & Limitations, John Graybill shares how his cat tried to kill him with a Karate Kid style move of sweeping the leg. John shares how he felt during and after the fall and how the world can seem to be coming down on you. But, all was not lost as a little boy...
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Episode 83: Fatigue, Pushed by a 5 year old, and Chloe sees the future
On episode 83 of Beyond Labels & Limitations, John Graybill talks about how tired he was this past week, a five year old pushed him down and how his daughter predicted the fall 2 days prior. _____________________ Connect with John: YouTube Channel Website Email: [email protected]...
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Episode 82: Button Pusher
On episode 82 of Beyond Labels & Limitations, John Graybill shared how just when he thought he was mature, at 44, his button pusher showed up, sending him back to his 12 year old self. It's hard to see the lessons the button pusher show us when it's happening. The important part however is not…
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Episode 81: Meditation, Judgmental Johnny and Time Does Not Heal All Wounds
On episode 81 of Beyond Labels & Limitations, John Graybill shares an online meditation retreat he attended and how aspects of himself came out. Also, John shares how the saying "Time heals all wounds" is not true. The name of the retreat John briefly spoke about in the beginning of the podcast…
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Episode 80: Happiness is Healing, Chloe's 6th Birthday and Sleepy Mind with Muscular Dystrophy
On episode 80 of Beyond Labels & Limitations, John Graybill shares his daughters 6th birthday and what his daughter's friend shared with him that move him, how John's mind works in the morning, and a dream John had. The YouTube channel where John talked about Shane and SMA is Squirmy and Grubs:...
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Episode 79: Changing the mentality of "How do I get rid of muscular dystrophy" to "How do I live with it"
On episode 79 of Beyond Labels & Limitations, John Graybill shares how he went from a "get rid of this disease" mentality to "How do I live with this." It wasn't easy at first questioning his beliefs/thoughts but once he saw them for what they were, self-limiting, he set out to dismantle their...
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Episode 78: Getting Covid and having Limb Girdle Muscular Dystrophy
On episode 78 of Beyond Labels & Limitations, John Graybill shares his experience with Covid. He breaks down the first week of his symptoms. After a week John was starting to feel like his old self. One important part for John was to take care of his immune system by taking Vitamin D3, Vitamin C,...
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Episode 77: What have I learned from myself in 2021 with Limb Girdle Muscular Dystrophy
On this final episode of season 2 of Beyond Labels & Limitations, John Graybill shares what he has learned from himself over the past year while living with Limb Girdle Muscular Dystrophy. All was not bad. In fact, when John can create some distance from his "sufferings" is when he learns the…
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Episode 76: Having a Mobility Scooter Means What and A Cinderella Play
On episode 76 of Beyond Labels & Limitations, John Graybill shares what having a mobility scooter has done for him, what beliefs he had about having the scooter, and a play he went to with his family. There are lessons in everything and it's up to us to find them. _____________________ Connect…
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Episode 75: Self Esteem with Limb Girdle Muscular Dystrophy
On episode 75 of Beyond Labels & Limitations, John Graybill talks about self esteem and living with a disease like muscular dystrophy. ________________________ Connect with John: Website YouTube Channel Email: [email protected] _________________________ "Desire to Inspire" TKG
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Episode 74: When I Get Sick and Thanksgiving Take Away
On episode 74 of Beyond Labels & Limitations, John Graybill shares what it is like to be sick and what he got from his Thanksgiving get together. _____________________ Connect with John: Website YouTube Channel Email: [email protected] ______________________ "Desire to Inspire" TKG
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Episode 73: Chloe Climbs a Wall, Bathroom Get Up & Thanksgiving
On episode 73 of Beyond Labels & Limitations, John Graybill shares his daughters success climbing a rock wall, how that inspired him to get up from the toilet after a long day sitting in a scooter and what can you be thankful for with having LGMD. ___________________________ Follow John: Website...
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Episode 72: A Fall from a toilet, Untethered Soul, Letting go and moving on with Limb Girdle Muscular Dystrophy
On episode 72 of Beyond Labels & Limitations, John Graybill shares a fall he had while getting up from the toilet, a book he is re-reading called, "Untethered Soul", and finally, letting go and moving on. _________________________ Connect with John: YouTube Channel Website Email:...
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Episode 71: Elijah Stacy, Author of "A Small IF"
On episode 71 of Beyond Labels & Limitations, John Graybill talks with Elijah Stacy about his life with Duchenne Muscular Dystrophy. Contact Elijah Stacy: Non-Profit Website Elijah Stacy's Personal Site To purchase A Small IF _______________________ Connect with John: Website YouTube Page Email:...
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Episode 70: A Fall, Halloween and Sleep Struggles with Limb Girdle Muscular Dystrophy
On episode 70 of Beyond Labels & Limitations, John Graybill shares a recent fall he had while walking from the bathroom, a halloween party he went to and how LGMD is effecting sleep. ______________________ Connect with John: Website YouTube Channel Email: [email protected]…
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Episode 69: Limb Girdle Muscular Dystrophy - Is my Mind a Friend or Foe
On episode 69 of Beyond Labels & Limitations, John Graybill looks at what his mind tells him, why does he blindly believe the stories it tells him and how he can go beyond the mind chatter. ___________________________ Connect with John: Website YouTube Channel Email: [email protected]...
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Episode 68: Desires to get up, Repetition is key and a Trusting Mindset
On episode 68 of Beyond Labels & Limitations, John Graybill shares his desire to just get up and move-similar to how Forest Gump broke free from his leg braces, a talk he had with his friend Scott about how people in the CrossFit arena get better and lastly the trusting mindset one needs to…
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Episode 67: Blood Test Results, Belts for Independence and Dealing with Struggles
On episode 67 of Beyond Labels & Limitations, John Graybill talks about his latest blood test results, how using a belt has helped him keep his independence and how he deals with struggles. _________________________ Connect with John: YouTube Channel Website Email: [email protected]...
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Episode 66: Dream, Estes Park & Insight into self
On episode 66 of Beyond Labels & Limitations, John Graybill shares his recent trip to Estes Park with his family, what struggles he encountered there and how a frustrated man who honked at him revealed something. Lastly, John shares a dream he had at the end. _____________________________ Connect...
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Episode 65: LGMD Awareness Day, Physical Struggles and Blood Work
On episode 65 of Beyond Labels & Limitations, John Graybill talks about the LGMD Awareness Day which is every September 30th. This day is important in spreading awareness about LGMD. Go to LGMD Awareness Foundation to learn more about LGMD. John also shares some physical struggles he's had over…
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Episode 64: 2021 LGMD International Conference take away, Garden of Life supplement, and Neck Stiffness Tip
On episode 64 of Beyond Labels & Limitations, John Graybill shares his take away from the 2021 International LGMD Conference, which was put on by the Speak Foundation. If you missed the conference you can view all 4 days at this link: 2021 LGMD International Conference John also shares his latest...
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Episode 63: 2021 LGMD International Conference, Pinched Nerve, Mind Chatter and LGMD is like the game Jenga
On episode 63 of Beyond Labels & Limitations, John Graybill talks about a few things. First of all, the upcoming 2021 LGMD International Conference. This is huge and is put on by The Speak Foundation. If you would like to attend please go to: The Speak Foundation National LGMD Conference The...
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Episode 62: Physical Health Review
On episode 62 of Beyond Labels & Limitations, John Graybill looks back on his health from March 16, 2020 to now and what has changed. John has done a podcast on changes to his health that you can hear on episodes 5, 19 and 37. In each of these episodes, John shares what struggles he has going on...
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Episode 61: When is the time to stop driving when you have limb girdle muscular dystrophy
On episode 61 of Beyond Labels & Limitations, John Graybill shares an almost accident he had while driving in a parking lot. This got John to thinking about is it time to stop driving. John looks at the first signs of driving becoming too difficult to do. He also shares how the meaning he gives…
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Episode 60: Why do I struggle with Muscular Dystrophy
On episode 60 of Beyond Labels & Limitations, John Graybill shares how he struggles with limb girdle muscular dystrophy. The struggle wasn't always the same over 26 years. When John was younger he believed himself to be the physical John. Naturally, whenever he lost an ability, he took it hard…
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Episode 59: Struggling with Negative Thinking
On episode 59 of Beyond Labels & Limitations, John Graybill shares how a negative thought spiraled into more negative thoughts about how his life is terrible. This isn't something new to John's life but rather a constant battle he has endured for close to 26 years. Everybody has these days but…
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Episode 58: Going somewhere, why it can be stressful when you have Limb Girdle Muscular Dystrophy
On episode 58 of Beyond Labels & Limitations, John Graybill shares how traveling to his parents house brought up challenges he hadn't encountered on previous trips there. Why your friend, child or partner doesn't want to go new places or even places visited before is probably due to it's getting...
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Episode 57: How I see Limb Girdle Muscular Dystrophy in my life
On episode 57 of Beyond Labels & Limitations, John Graybill talks about how he sees his life with LGMD. John was diagnosed in 1995 at the age of 17. He thought his life was over when the doctors told him he had muscular dystrophy. John gave up on life. When John met Wayne Dyer, his perspective on...
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Episode 56: What sucks about having Limb Girdle Muscular Dystrophy
On episode 56 of Beyond Labels & Limitations, John Graybill shares some of the things that suck and have sucked regarding being diagnosed with a physical disability such as Limb Girdle Muscular Dystrophy. John looks at areas of dating, walking, getting up from a chair, climbing stairs, rolling…
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Episode 55: What I have learned from having Limb Girdle Muscular Dystrophy
In episode 55 of Beyond Labels & Limitations, John Graybill shares what he has learned over the course of 26 years being diagnosed with LGMD. 1. Don't believe everything I think 2. Accept constant change 3. A belief can be powerful when given enough attention 4. Appreciate what I have while I…
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Episode 54: Finding beauty in Limb Girdle Muscular Dystrophy is a choice
On episode 54 of Beyond Labels & Limitations, John Graybill talks about finding beauty in a disease that takes away your physical abilities. It's not easy to find the lessons in your situations especially when you think your life should be another way, but it is a choice you must make if you want...
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Episode 53: Digestive Issues and Limb Girdle Muscular Dystrophy
On episode 53 of Beyond Labels & Limitations, John Graybill shares how not watching what you eat can upset your digestive system. He also shares what the symptoms are and how he dealt with them. ______________________________ Connect with John: Visit the Website Subscribe on YouTube Email:...
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Episode 52: Keeping the mindset of "I'm going to beat Limb Girdle Muscular Dystrophy" alive
On episode 52 of Beyond Labels & Limitations, John Graybill shares what keeps him motivated to not give up. He shares how a 3 year old helped him see more clearly. The mindset is a big determining factor in the course of your life regardless of having LGMD or not. One thing to keep in mind is…
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Episode 51: What do you do for a living when you have Limb Girdle Muscular Dystrophy
On episode 51 of "Beyond Labels & Limitations", John Graybill looks at the question, "What do you do for a living". John has been asked this question for over 15 years, since he's been on disability, and how this question has impacted him. From feeling ashamed and embarrassed to making a…
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Episode 50: How Can I be Grateful when I have Limb Girdle Muscular Dystrophy
On episode 50 of "Beyond Labels & Limitations," John Graybill talks about how his wife and daughter leaving for a camping trip helped him examine his life. Being around people all the time doesn't allow for you to be alone with your thoughts, and some of the thoughts aren't positive. So, when...
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Episode 49: Donavon Decker, LGMD2D, and his participation in Gene Therapies
On episode 49 of Beyond Labels & Limitations, John Graybill talks with Donavon Decker, who has LGMD2D. Donavon comes from a family of 8 with 5 of them being diagnosed with LGMD2D. His unaffected sister later had 2 children who were diagnosed with LGMD2I. Donavon also shares how the LGMD2D...
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Episode 48: What I Learned from My Cat
On episode 48 of Beyond Labels & Limitations, John Graybill shares what his whining cat showed him about his relationship with his 5 year old daughter and himself. ______________________________ Connect with John: Subscribe on YouTube Visit the Website Email: [email protected]...
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Episode 47: Meet Brad Williams, Ph.D, who also has Limb Girdle Muscular Dystrophy 2B/R2
On episode 47 of Beyond Labels & Limitations, John Graybill talks with Brad Williams about his life with LGMD2B/R2. Brad shares how he waited nearly 18 years to find out what he had. Brad was a figure skater, runner, very athletic in his youth but around the age of 18 he noticed he couldn't stand...
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Episode 46: Healing in Brazil at the Casa De Dom Inacio
On episode 46 of Beyond Labels & Limitations, John Graybill shares his experience of traveling to Abadiania, Brazil. It's in Abadiania where John of God's Healing Center, Casa De Dom Inacio, is located. This episode will be difficult for those who are deeply rooted in the Bible teachings. An open...
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ABOUT THIS SHOW
Welcome to the podcast for Beyond Labels & Limitations. John talks about living a life with Muscular DystrophyBL&L, started as an organization to raise money dedicated exclusively to Limb-Girdle Muscular Dystrophy 2A (LGMD2A) and to educate on the disease course and associated struggles of LGMD2A, as recounted through my personal experiences.
HOSTED BY
John Graybill
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Frequently Asked Questions
How many episodes does Beyond Labels and Limitations have?
Beyond Labels and Limitations currently has 95 episodes available on PodParley. New episodes are automatically indexed when they're published to the podcast feed.
What is Beyond Labels and Limitations about?
Welcome to the podcast for Beyond Labels & Limitations. John talks about living a life with Muscular DystrophyBL&L, started as an organization to raise money dedicated exclusively to Limb-Girdle Muscular Dystrophy 2A (LGMD2A) and to educate on the disease course and associated struggles of LGMD2A,...
How often does Beyond Labels and Limitations release new episodes?
Beyond Labels and Limitations has 95 episodes. Check the episode list to see recent publication dates and frequency.
Where can I listen to Beyond Labels and Limitations?
You can listen to Beyond Labels and Limitations on PodParley by clicking any episode. We provide an embedded audio player for direct listening, and you can also subscribe via your preferred podcast app using the RSS feed.
Who hosts Beyond Labels and Limitations?
Beyond Labels and Limitations is created and hosted by John Graybill.
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