PODCAST · business
Bonafide HPP
by Soft Bones, Inc.
Learn more about HPP with this educational podcast series hosted by Deborah Fowler.
Episodes
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Episode 15: Physical Therapy & HPP from a Patient and Provider Perspective
What happens when a seasoned physical therapist becomes the patient? For Adam, that question became deeply personal after being diagnosed with hypophosphatasia 4.5 years ago. As a physical therapist for over 27 years, Adam shares his perspective on the purpose of physical therapy and how it can...
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Episode 14: Mindfulness in the Face of ADHD, Anxiety, and Needle Phobia
ADHD, anxiety, and needle phobia, oh my! Join guest host Cindy Reasor as she interviews HPP caregiver and Licensed Professional Counselor (LPC) Christine McGowan. What is ADHD and anxiety? How is it diagnosed? When to seek professional help. Tune in to learn more. Follow us on social media:...
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Episode 13: Why YOUR Voice Matters
Join Deborah Fowler as she talks with Dr. Anthony Yanni, Senior Vice President of Patient Centricity at Astellas Pharma, to explore how patient engagement can transform lives. Learn why your voice matters and how it is key to advancing research, improving treatment options, and shaping the future...
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Episode 12: A Taste of Mindfulness with Alison S.
💚 May is Mental Health Awareness Month. For many patients living with a rare disease, stress, anxiety, and other mental challenges can manifest in different ways. Join guest host Cindy Reasor as she interviews certified health coach and HPP patient Alison S. What is stress? How can we manage it?...
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Episode 11 - HPP Clinical Trials: What Are They and Are They Right for Me?
Dive into the world of HPP clinical trials with Soft Bones. Host Deborah Fowler chats with Dr. Kathryn Dahir, Professor of Medicine at Vanderbilt University, about the basics of clinical trials and the current HPP trials. Don’t miss this insightful and informative episode—tune in now!
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Episode 10 - A Conversation with Guest Host Cindy Reasor and Sue Krug
Join guest host Cindy Reasor as she chats with patient and Soft Bones Patient Liasion, Sue Krug.
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Episode 9 - A Conversation with Guest Host Aaron Blocker and Deborah Fowler
In this special episode, Aaron Blocker is guest hosting to discuss hypophosphatasia (HPP), a rare genetic bone disease that they live with. They interview Deborah Fowler, the founder of Soft Bones, a foundation that provides support, resources, and advocacy for those affected by HPP. Together…
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Episode 8 - Be Involved: A Conversation with Patient, Caregiver, and Advocate, Janni K.
Featuring guest host Cindy Reasor and patient Janni K.
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Episode 7 - Commonly Asked Questions About ELISA Testing with Dr. Steven Petak
Featuring Dr. Steven Petak, former Head of Endocrinology at Houston Methodist Hospital and a former Associate Clinical Professor at Weill Cornell Medical College and Texas A&M.
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Episode 6 - A Conversation with Lindsey W. And How HPP Has Shaped Her Life
Featuring guest host Cindy R. and Region Lead and Patient Lindsey W.
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Episode 5 - PFDD
PFDD (Patient-Focused Drug Development)
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Episode 4 - The Meg Foundation
Featuring Jody Thomas
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Episode 3- Physical Therapy
Featuring Donna Griffin, PT
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Episode 1- Questions About HPP and Dental Health
Featuring Timothy Wright, MS, DDS
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Episode 2- Pain Management
Featuring Chris Sobey, MD
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ABOUT THIS SHOW
Learn more about HPP with this educational podcast series hosted by Deborah Fowler.
HOSTED BY
Soft Bones, Inc.
CATEGORIES
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Frequently Asked Questions
How many episodes does Bonafide HPP have?
Bonafide HPP currently has 15 episodes available on PodParley. New episodes are automatically indexed when they're published to the podcast feed.
What is Bonafide HPP about?
Learn more about HPP with this educational podcast series hosted by Deborah Fowler.
How often does Bonafide HPP release new episodes?
Bonafide HPP has 15 episodes. Check the episode list to see recent publication dates and frequency.
Where can I listen to Bonafide HPP?
You can listen to Bonafide HPP on PodParley by clicking any episode. We provide an embedded audio player for direct listening, and you can also subscribe via your preferred podcast app using the RSS feed.
Who hosts Bonafide HPP?
Bonafide HPP is created and hosted by Soft Bones, Inc..
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