Caregiver's Compass

5) Episode 121: From caring for her mom with frontotemporal dementia, to creating a film and advocating to normalize the caregiving experience, with Katie Prentiss  4) Episode 136 : The Statistics Behind Caregiver Mental Health: You’re Not Alone  3) Episode 120: Guilt about moving someone to a facility when you promised them you would always keep them at ‘home’, with Susanne White 2) Episode 123: Talking all about ANGER and resentment in caregiving 1) Episode 128: All about the Association of Frontal Temporal Degeneration (AFTD) including what they do, who they help, and where they hope to go next, with Esther Kane and Debbie Elkins We truly hope you enjoyed this season and we cannot wait to see you back here for season 6.*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*Visit us on our website to see all that we offer for caregiver support:www.compassionincaregiving.comFor more visit our Instagram!http://www.instagram.com/compassionincaregiving

On today’s episode, we are elated to welcome Renee Reina, host of The Mom Room podcast (@themomroom) and content creator, to discuss her experience navigating care for her son Milo while experiencing her father’s cancer diagnosis and passing in early 2025. She very openly talks about learning about her father’s decision for Medical Assistance in Dying and experiencing the MAID process with him and as a parent of a young child. About Renee Reina:Renee Reina is the host of The Mom Room podcast (@themomroom), where she brings humour, honesty, and some sarcasm to conversations about motherhood, marriage, and modern life. Beyond the mic, she also creates relatable content that resonates with women everywhere on her personal account @thereneereina. She lives with her husband, their seven-year-old son, and two adorable Pomeranians in Ontario. *The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*Visit us on our website to see all that we offer for caregiver support:www.compassionincaregiving.comFor more visit our Instagram!http://www.instagram.com/compassionincaregiving

Born blind, from a very young age, Elizabeth Mohler experienced the barriers and obstacles one with a disability can face in an ableist society. With lived experience as both a care recipient and a caregiver, Elizabeth shares her insightful perspectives on care and the education and changes she feels are instrumental in supporting a culture of accessibility. About Elizabeth Mohler:Elizabeth Mohler is a sibling care partner, researcher, and educator whose work bridges lived experience, scholarship, and advocacy. She is a PhD candidate in Health and Rehabilitation Sciences at Western University, where her research examines how autonomy, support, and care are represented within Ontario’s Direct Funding program. Drawing on critical disability studies and occupational science, Elizabeth explores how ideas of independence and productivity shape the lives and identities of disabled people and their care partners.Elizabeth also works as a Pre-Employment Specialist at BALANCE for Blind Adults, supporting blind and partially sighted job seekers in building confidence, technology skills, and pathways to meaningful employment. In addition, she is a Family as Faculty member at Holland Bloorview Kids Rehabilitation Hospital, contributing to the training of healthcare professionals and promoting more relational, family-centered approaches to care and research.As a sibling care partner, Elizabeth understands care as a shared, interdependent practice—one that values reciprocity, creativity, and dignity. Across her academic, professional, and community work, she continues to advocate for inclusive and compassionate models of care that recognize families and disabled people as essential voices in shaping change.*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*Visit us on our website to see all that we offer for caregiver support:www.compassionincaregiving.comFor more visit our Instagram!http://www.instagram.com/compassionincaregiving

Facing the loss of her mother in her 20s, Barri Leiner found herself experiencing the sudden shock of grief. Turning her pain and learning into purpose, Barri transformed her life and career into meaningful giving and support through The Memory Circle. In today’s episode, Barri shares the experience of losing both her parents and how she started and continues to support so many through The Memory Circle.About Barri Leiner:Barri Leiner Grant is a highly respected grief specialist, author and founder of The Memory Circle, a creative and healing space for remembrance and ritual. Barri brings a distinct aesthetic sensibility to the field of grief work—bridging beauty and healing in ways that feel modern, personal, and deeply human.She is the creator of Permission Granted, a widely read Substack newsletter that invites readers to navigate loss with honesty, tenderness, and earned wisdom. Barri is recognized for her unique approach to grief support, which combines storytelling, symbolism, and community to help people mark loss with intention and carry memories forward with care.Sought after as a speaker, collaborator, and guide, Barri is redefining how we talk about grief—removing the shame and silence, and replacing it with permission, presence, and grace.Her work has been featured in The Washington Post and Psychology Today and on award winning podcasts. *The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*Visit us on our website to see all that we offer for caregiver support:www.compassionincaregiving.comFor more visit our Instagram!http://www.instagram.com/compassionincaregivingThank you to today's episode sponsor, Eugeria. Eugeria's Idem clock and the Idem Connected Pill Dispenser, are designed to reduce stress for caregivers and help older adults keep their independence and routines. To learn more about the Idem clock visit  https://idem.care/pages/the-idem-smart-clock?utm_source=social+&utm_medium=video&utm_campaign=compassionincaregiving and enter code COMPASSION10 for 10% off your purchase.

Elizabeth Marie Chambers shares her experiences as a muti-generational caregiver in today’s episode as she highlights caring for a child with complex medical needs, multiple children, and a parent.  She details her breaking point in care and how she recognized the need to care for herself. She further highlights how she uses her experiences to drive change and advocate for shifts in the system and how others view ‘caregiving’. About Elizabeth Marie Chambers:Elizabeth Marie Chambers is a teacher, life long learner and the epitome of a (club)sandwich generation caregiver. Elizabeth and her husband care for her elderly mother who has Alzheimer's; their adult son with lifelong support needs, who spent his childhood as Elizabeth’s foster brother; their resilient teenage daughter; and their medically complex youngest son. Before becoming a Medical Mama and Knowledge Broker, Elizabeth was working at a national level organization leading professional learning for educators and school administrators. After the traumatic birth of her youngest, which they barely survived, Elizabeth’s life followed a path to becoming involved in the field of childhood disability research. The experience with her youngest has involved over 300 days of inpatient hospital care, countless interactions with multidisciplinary healthcare teams, and daily engagement with disability support systems, which all profoundly informed her approach to research and community leadership. Elizabeth’s passion for transformative family-centred practices began with a research study at CanChild Centre for Childhood-Onset Disability Research, based out of McMaster University, called ENVISAGE. This experience marked a pivotal shift in her trajectory from caregiver to research partner, advocate, facilitator, and leader. Since then, she has become devoted to sharing the ideas of family-centered care, strengths-based approaches, partnerships and advocacy at a local and international level. She feels honoured to now be a member of the International Leadership Team for ENVISAGE. Elizabeth is also a Parent Partner and Co-Principle Investigator in several research projects; has chaired several advisory committees at her local children’s treatment centre; is a committee member and consultant for a new pediatric hospice build, a global speaker and a blogger at www.lightkeeperlife.com Elizabeth is deeply committed to creating inclusive, collaborative spaces in healthcare, education and research and is a fierce advocate, for her family, for other children, other elders, other caregivers and the service professionals who support them.*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*Visit us on our website to see all that we offer for caregiver support:www.compassionincaregiving.comFor more visit our Instagram!http://www.instagram.com/compassionincaregiving

A very common sentiment we hear from caregivers is the loneliness and isolation felt as a result of misunderstandings between other family members or friends, the feeling that others don’t understand the caregiving perspective and feeling as though there is no one to share the day-to-day highs and lows with. In today’s episode, Stephanie invites her friend and fellow FTD daughter, Jacquelyn Shapiro, onto the podcast to discuss how their friendship formed, their thoughts on friendship in caregiving and how to find community at a time when you feel the most lonely.About Jacquelyn:Jackie first learned about AFTD in October 2020, when her mother was diagnosed with bvFTD and learned that the progranulin (GRN) mutation was the cause, despite there being no family history of dementia. Since then, Jackie has used the Instagram @ftdalovestory as a platform to educate others about FTD, advocate for caregivers and families, and discuss genetics and genetic testing. She has been featured in a caregiving documentary, interviews, and several podcasts, and works with researchers and pharmaceutical companies to educate their staff on FTD and how to work with families dealing with dementia. She is currently the New York Ambassador for the AFTD, and a CureGRN Champion.*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*Visit us on our website to see all that we offer for caregiver support:www.compassionincaregiving.comFor more visit our Instagram!http://www.instagram.com/compassionincaregiving

Having just started her career and life as a young mom, Katie Brandt’s entire world changed in an instant when her husband was diagnosed with FTD in his early 30s. The next several years, compounded by care for multiple family members in addition to her young son, threw her in the depths of ongoing crisis. But through her tremendous resiliency and learning, Katie has used her pain and story for change and tremendous ongoing advocacy in ways we often could not imagine.About Katie:Katie Brandt, MM is a global advocate, national dementia care expert and Director of Caregiver Support Services, Massachusetts General Hospital Frontotemporal Disorders Unit. As former Co-Chair of the US National Alzheimer’s Project Act Advisory Council, CEO of Katie Brandt Advocacy, and From Care to Cure podcast host, Katie harnesses the power of lived experience as a caregiver for her late husband and father to advance person-centered care, influence policy, and inspire hope that the cure of tomorrow is not so far from the care of today. Learn more about Katie’s story on her website; www.KatieBrandt.org .Thank you to today's episode sponsor, Eugeria. Eugeria's Idem clock and the Idem Connected Pill Dispenser, are designed to reduce stress for caregivers and help older adults keep their independence and routines. To learn more about the Idem clock visit  https://idem.care/pages/the-idem-smart-clock?utm_source=social+&utm_medium=video&utm_campaign=compassionincaregiving  and enter code COMPASSION10 for 10% off your purchase.*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*Visit us on our website to see all that we offer for caregiver support:www.compassionincaregiving.comFor more visit our Instagram! http://www.instagram.com/compassionincaregiving

We have heard about caregiving, we have heard about eldercare, but how often do you hear about working caregivers? This topic is JUST starting to come to the forefront, yet millions of caregivers have been balancing work and care for years and continue to on a daily basis.  In today’s episode, Christa Haanstra, lead for the working caregiver initiative at the Canadian Centre for Caregiving Excellence (an initiative by the Azrieli Foundation), joins Stephanie to talk about the statistics of working care, what we know to be true about caregivers in the workplace and how workplaces can do better to support their caregivers, most who are hidden. Christa also talks about the invaluable skills caregivers bring to their jobs and the reasons why caregivers choose to hide their roles at home.This is an episode you do not want to miss!About Christa Haanstra:Christa has been a public voice in creating awareness of the role offamily caregivers in our society. She is a passionate spokesperson forbetter identifying, recognizing, supporting and ultimately integrating caregivers as true partners with health and social care teams.Christa is the lead for the Working Caregiver initiative at the Canadian Centre for Caregiving (CCCE) – a program of the Azrieli Foundation - and is the past co-chair of CCCE’s lived experience advisory panel: Caregivers CAN. Christa is also the Founder and Managing Director of 4C Strategy group, a company dedicated to advancing meaningful change by working with organizations to ensure lived experiences are at the heart of everything they do.Find Christa: https://www.4cstrategy.ca/our-team https://canadiancaregiving.org/ *The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*Visit us on our website to see all that we offer for caregiver support:www.compassionincaregiving.comFor more visit our Instagram!http://www.instagram.com/compassionincaregiving

The person you care for has a daily routine or activities in their daily life they hope to continue to uphold, but yet when connected to a new home care agency or when in hospital, they are told they may have to modify or change how they approach their activities of daily life. How can these third parties tell you and the person you care for how to participate in activities of daily living and why is this important?In today’s episode, Stephanie explores the background on why and how third parties can inform care in alternative settings or while using external services and what you can do about this approach to care. *The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.* Visit us on our website to see all that we offer for caregiver support:www.compassionincaregiving.comFor more visit our Instagram!http://www.instagram.com/compassionincaregiving

Spencer Cline was only 7 years old when his father was first diagnosed with frontotemporal degeneration (behavioural variant). From a very young age, he witnessed how profoundly this illness affected his father, mother, and entire family. Today, Spencer is a passionate advocate for FTD, dedicated to changing the narrative around the disease and supporting those impacted by it. He recently biked 3600+ miles across America to raise awareness about FTD and continues to speak publicly and educate others, driven by his commitment to help end this devastating illness.In today's episode he talks about his profound experience of love, loss and change.About Spencer:Spencer Cline became familiar with FTD at a very young age, as his father started exhibiting behavioral changes shortly after he was born. His dad was diagnosed with bvFTD when Spencer was seven years old, then was diagnosed with the C9orf72 genetic variant, which is linked to both FTD and ALS. After watching his dad fight the disease until he passed in 2012, Spencer developed a passion for spreading awareness in hopes to find a cure – a passion that has only grown with time. He has organized multiple fundraising/awareness events with the Babson College men’s basketball team, biked across the U.S. in support of FTD in 2024, and was Keynote Speaker at AFTD’s 2025 Hope Rising Benefit. He also serves as an AFTD Ambassador.Find Spencer on Instagram: @spencer_cline22*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*Visit us on our website to see all that we offer for caregiver support:www.compassionincaregiving.comFor more visit our Instagram!http://www.instagram.com/compassionincaregiving

Vivian Stamatopoulos - advocate, professor, and long-time researcher in the field of caregiving and long-term care-joins the podcast to uncover the hidden truths about our long-term care system. Vivian shares what she realized during COVID about the nursing home crisis, where long-term care stands today, and the significant changes needed to improve care and shift the narrative for those living in nursing homes and the people who love them the most. This powerful conversation shines a light on what must happen to create a more positive and dignified future for long-term care.About Vivian:Dr. Vivian Stamatopoulos is an Associate Teaching Professor at Ontario Tech University and one of Canada’s leading experts on family caregiving, child and youth-based caregiving (young carers) and long-term care. With a PhD in Sociology, her research focuses on the experiences of family caregivers (particularly young carers/caregivers) and the systemic challenges facing older adults in institutional care. During the COVID-19 pandemic, Dr. Stamatopoulos emerged as a nationally recognized advocate for long-term care reform. She became a prominent media commentator and policy voice, exposing the devastating impact of systemic neglect, inadequate staffing, and profit-driven models of care on vulnerable residents. Often referred to as a “long-term care crusader,” she has worked alongside families, legal advocates, and community organizations to push for meaningful change in elder care policy. Her expertise has been sought by policymakers, parliamentary committees, and grassroots advocacy groups and beyond academia, she continues to amplify the voices of residents and families, insisting that dignity, transparency, and accountability must be at the center of Canada’s care system. For her scholarship and advocacy work, she has earned various recognitions, including KITE-UHN’s Paper of the Year Award (University Health Network), The Doris Anderson Award (Chatelaine Magazine), The Orville Thacker Award (Ontario Health Coalition), Health Hero (Best Health Magazine) and Vaccine Hero (Toronto Star).Find Dr. Vivian Stamatopoulos on X:  https://x.com/drvivians?lang=en*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*Visit us on our website to see all that we offer for caregiver support:www.compassionincaregiving.comFor more visit our Instagram!http://www.instagram.com/compassionincaregiving

Carla Velastegui began caring for her mother with Parkinson’s disease while still in high school, experiencing both the challenges and deep insights that caregiving can bring. In this episode, Carla shares how those early experiences shaped her life, her relationships, and her future. She discusses the ups and downs of her caregiving journey and how it inspired her career as a consultant working with organizations to adapt and implement technology to assist and transform the caregiving experience. About Carla: Carla Velastegui is a healthcare technologist and long-term caregiver whose early caregiving experiences continue to shape her work in healthcare, technology, and policy. Since her teenage years, she has cared for her mother, diagnosed with young-onset Parkinson’s Disease in 2010. This perspective informs the systems and solutions she helps design, with a commitment to placing patients, caregivers, and their supporters at the center. Known for her deep understanding of healthcare and technology, Carla is a dedicated advocate, global speaker, and thought leader in the caregiver community. She has led digital health initiatives, advised on policy and innovation strategies, and worked across startups, government, healthcare, and research organizations. She serves on the boards of Acclaim Health and YWCA Hamilton and holds advisory roles with the Parkinson’s Foundation, Canada’s Drug Agency, and other healthcare and research organizations.Passionate about ethical, inclusive, and practical health technologies, Carla brings lived experience and professional expertise to conversations about caregiving, patient engagement, and equity, focusing on how AI and emerging technologies can help shape systems that reflect the realities of care.Find Carla: https://www.linkedin.com/in/carla-velastegui/?originalSubdomain=chVisit us on our website to see all that we offer for caregiver support:*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*www.compassionincaregiving.comFor more visit our Instagram!http://www.instagram.com/compassionincaregiving

In this episode, we dive into the numbers behind caregiver mental health, sharing Canadian statistics that reveal just how many caregivers, including those who are working caregivers, face similar challenges. While it can often feel like you’re alone in your struggles, the truth is that far more people are experiencing the same difficulties than you may realize. Stephanie breaks down the facts to help you feel seen, supported, and connected in your caregiving journey.Visit us on our website to see all that we offer for caregiver support:www.compassionincaregiving.comFor more visit our Instagram!http://www.instagram.com/compassionincaregiving*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*

In this episode, Stephanie explores a common question caregivers face: Do I need to change my entire routine to feel better if I am overwhelmed as a caregiver? When self-care feels overwhelming or unattainable, is a complete lifestyle overhaul the only answer-or can small, realistic steps make a real difference? Stephanie shares insights on what truly helps when you’re feeling stretched thin, offering practical ideas to support your well-being without adding more pressure.Visit us on our website to see all that we offer for caregiver support:www.compassionincaregiving.comFor more visit our Instagram!http://www.instagram.com/compassionincaregiving*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*

Dr. Adrianna Shnall, program director at the Baycrest Kochinsky Centre, has been a social worker and clinician in the field of aging and caregiving for over 30 years. In today’s episode, she shares her top learnings in the field, what she feels is the most noteworthy in the area of aging and caregiver mental health today, and what may be on the horizon for caregivers in the future.Dr. Adriana Shnall: , PhD, MSW, RSW, serves as the Program Director of the Koschitzky Centre for Innovations in Family Caregiving at Baycrest in Toronto. With over 30 years of clinical experience, Dr. Shnall has made significant contributions to the field of gerontology, working with older adults and their families across various settings, including outpatient community services, long-term care, and inpatient services. Her extensive experience and dedication to improving the lives of older adults have earned her prestigious recognitions, such as the Baycrest Outstanding Innovations Award and the Stephen Herbert Award for Excellence in Education. In addition to her clinical work, Dr. Shnall is an Assistant Professor at the University of Toronto. She teaches graduate courses related to “Caregiving and Aging” and “Aging and Health” at the Factor- Inwentash Faculty of Social Work and at the Institute for Life Course and Aging. Dr. Shnall is also deeply involved in advocacy and community service. She is a board member of the Petro Canada CareMakers Foundation, which supports family caregivers, and the Ontario Caregiver Coalition and participates in numerous local, provincial, and national advocacy tables. Her involvement in these organizations demonstrates her commitment to influencing policy and improving support systems for caregivers and older adults on a broader scale.A respected speaker, Dr. Shnall frequently presents on topics related to family caregiving, aging, and dementia. Her presentations are informed by her rich background in clinical practice, education, research, and leadership. By sharing her insights and experiences, she empowers healthcare providers, family caregivers, and the general public to enhance their quality of life and that of the individuals they care for. Dr. Shnall’s work is characterized by a seamless integration of clinical practice, education, research, and leadership. Her holistic approach ensures that she addresses the multifaceted needs of older adults and their families, providing comprehensive support and innovative solutions. Her dedication to the field of geriatric care and her numerous contributions make her a leading figure in the area of family caregiving and aging.Through her ongoing efforts, Dr. Adriana Shnall continues to make a significant impact on the lives of older adults, their families, and the professionals who serve them, ensuring that the quality of care and support available to this population is continually enhanced and improved.Find Adrianna on LinkedIn: https://www.linkedin.com/in/dr-adriana-shnall-phd-msw-rsw-88b8a4150/?originalSubdomain=caC-CART: https://c-cart.baycrest.org/Visit us on our website to see all that we offer for caregiver support:www.compassionincaregiving.comFor more visit our Instagram!http://www.instagram.com/compassionincaregiving*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provid

Many of us have had the conversation- we vow to keep the person we care for home forever; We will never move them to a facility or otherwise... And then one day, reality hits, and we face the fact that we may not be able to follow through on this promise that once seemed feasible. In today’s episode, Jeanette Yates discusses how she navigated this exact situation with her own mother and what she learned in the process. She shares her experiences and learnings with listeners that are sure to leave you feeling validated, heard and understood.About Jeanette:Jeanette began caring for her mother at 8 years old. As a lifelong caregiver, she understands the challenges of balancing self-care with the demands of caring for others. She eventually discovered the power of prioritizing her own needs without sacrificing the care she provides to her loved ones. Jeanette started The Self-Caregiver to help caregivers take time for themselves, without being weighted down by guilt. Jeanette is the author of From Guilt To Good Enough: A Caregiver's Journey of Overcoming Burnout Through Healing Childhood Trauma. You can find her on Instagram (@theselfcaregiver), TikTok, and Substack (selfcaregiver.substack.com).Visit us on our website to see all that we offer for caregiver support:www.compassionincaregiving.comFor more visit our Instagram!http://www.instagram.com/compassionincaregiving*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*

Why would you even want to talk about or process the deep emotions? The painful thoughts or feelings that just feel too difficult to think about? In caregiving, isn’t it easier to just let these go and focus on the task of hand since things are already so stressful? In today’s episode, Stephanie answers these questions and talks about why therapy can be so helpful for caregivers and why doing some of the hard work can lead to very positive benefits ongoing.Visit us on our website to see all that we offer for caregiver support:www.compassionincaregiving.comFor more visit our Instagram!http://www.instagram.com/compassionincaregiving*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*

In this episode, Stephanie shares some of the most memorable (frankly, ridiculous) things people have said to her while she was caring for her mother and following her mother’s passing. Visit us on our website to see all that we offer for caregiver support:www.compassionincaregiving.comFor more visit our Instagram!http://www.instagram.com/compassionincaregiving*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*

Charles Morris has an incredible story, and we are so thankful he is sharing it on our podcast today. From not speaking to his mother for years, to forming a beautiful and meaningful relationship with her, to moving in with his parents and caring for them for years… And then a traumatic brain injury…. This is an episode you do not want to miss.About Charles Morris:Charlie Morris was a full time live-in caregiver for his mother as she died from dementia and cancer, during the peak of the Covid pandemic. He has turned his journal entries from that time into a book and podcast titled "Us At Our Worst". Charlie currently lives in Iowa City, Iowa where he spends as much time outside as possible and bothers his two adult children by checking in with them way too often. Find Charles Morris on instagram: @thevideoslabVisit us on our website to see all that we offer for caregiver support:www.compassionincaregiving.comFor more visit our Instagram! http://www.instagram.com/compassionincaregiving*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*

Canada is in dire need of a national caregiving strategy. And on today’s episode, we welcome James Janeiro, director of policy and government relations at the Canadian Centre for Caregiving Excellence (CCCE), a program of the Azrieli Foundation, to discuss what he and the CCCE are tirelessly working on to make this dream a reality. If you have ever wondered how policies come into effect and what it takes behind the scenes to make this happen (and how a Canadian caregiver strategy may be closer than ever before) listen now!About James:James Janeiro is a public policy and advocacy professional with over a decade of experience in politics, policy and government relations. As director of policy and government relations at the Canadian Centre for Caregiving Excellence, James leads an ambitious national and pan-Canadian advocacy and policy development agenda focused on substantive and practical reform.He began his career in the Ontario Public Service working on disability legislation. He then transitioned to the political policy space and served two successive Ontario ministers of community and social services as senior policy advisor on social assistance, poverty, disability, and veterans’ issues.In 2014, James assumed a new role serving Premier Kathleen Wynne as her social policy advisor. In this position, he was responsible for a diverse array of policy areas, including poverty reduction, housing, the Basic Income Pilot, disability issues, autism services and municipal affairs. In 2018, James left government for a senior role in the not-for-profit sector. He was director of community engagement and policy at Community Living Toronto from 2018 to 2022. In this role, James developed and executed advocacy strategies focused on housing, income security, and service improvement.He holds an honours BA in political science, history, and languages and a master’s in public policy from the University of Toronto. James lives in Toronto with his wife, dog and two cats.Find the CCCE: https://canadiancaregiving.org/On instagram: @canadiancaregivingVisit us on our website to see all that we offer for caregiver support:www.compassionincaregiving.comFor more visit our Instagram! http://www.instagram.com/compassionincaregiving*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*

In today’s episode, caregiver @debbieelkins , shares her story caring for her husband Chuck with frontotemporal degeneration (FTD), and discusses how @theaftd  supported her during both her caregiving journey, and provided her a sense of purpose through volunteer and advocacy. AFTD’s director of support and education, Esther Kane, also joins us on today’s insightful episode to discuss all that AFTD provides currently, how they support caregivers and those with an FTD diagnosis, and what may be on the horizon for the organization and the FTD landscape.About Debbie Elkins: Debbie Elkins is a care partner for her husband, Chuck, who is living with Frontotemporal Degeneration (FTD), a proud mother of three daughters and a grandmother of six. She is deeply committed to advocacy and education, volunteering with The Association forFrontotemporal Degeneration (AFTD) as an Ambassador and support group leader, and serving as a voting member of the West Virginia State Dementia Task Force. Through her efforts, she strives to raise awareness, support affected families, and contribute to the development of a stronger, more informed future for those impacted by dementia. You can theaftdconnect with Debbie on Instagram @debbieelkinsAbout Esther Kane:Esther Kane, MSN, RN-CDP, has been serving as the Director of Support and Education at AFTD since November 2020. With a rich background in dementia care, Esther previously held the position of Director of Nursing at several long-term care facilities specializing in the care of individuals with dementia. Her expertise in clinical dementia care, combined with her deep commitment to delivering compassionate, high-quality care for those living with neurological conditions, drives her work at AFTD. Esther is dedicated to ensuring that every person affected by Frontotemporal Degeneration (FTD) has access to the support and care they need. She is also passionate about educating healthcare professionals to enhance diagnosis and care, underscoring the critical role of education and training throughout the entire process from diagnosis on. Find the AFTD website here: https://www.theaftd.org/Find the AFTD on Instagram here: @theaftdVisit us on our website to see all that we offer for caregiver support:www.compassionincaregiving.comFor more visit our Instagram! http://www.instagram.com/compassionincaregiving*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*

This is not commonly provided education so do not worry if this is all new or confusing! Most people are confused about powers of attorney, advanced directives and wills and why they can be extremely important/ what they can help with. In today’s episode, Stephanie discusses her perspectives on having a power of attorney document and what she has seen in her personal life and in hospital and private practice when it comes to powers of attorney and advanced directives. *please note, Stephanie is not a lawyer and this episode does not represent legal advice. Please speak to a lawyer or other legal representative for your own power of attorneys and other legal matters*Visit us on our website to see all that we offer for caregiver support:www.compassionincaregiving.comFor more visit our Instagram! http://www.instagram.com/compassionincaregiving*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*

This is a common scenario- perhaps when there was an initial diagnosis, people showed up and offered support and over time they stopped coming as often or at all. Or maybe even at the time of diagnosis people did not visit. Whatever the case may be, if you are finding that no one visits, this episode is for you. Stephanie breaks down the most common reasons why people don’t visit, how you can communicate your wish for visitors with others and pave the way to continue visits ongoing. Visit us on our website to see all that we offer for caregiver support:www.compassionincaregiving.comFor more visit our Instagram! http://www.instagram.com/compassionincaregiving*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*

If you have ever faced navigating the healthcare system through a dementia diagnosis, you know the difficulties that can be faced. A confusing path to navigate, difficulties receiving diagnoses, often not knowing what comes next and staying up-to-date and confident in the way forward. In today’s episode, we are pleased to welcome Dr. Saskia Sivananthan who shares her knowledge about how we approach dementia in our healthcare system, her organization The Brainwell Institute, and how we work on a more positive path forward for our aging population.About Dr. Saskia Sivananthan: Dr. Saskia Sivananthan, an internationally recognized strategy and policy advisor on dementia care, is the co-founder and CEO of the Brainwell Institute – a nonprofit dementia policy think tank. She is also an Affiliate Professor at McGill University and health data scientist.Find Dr. Saskia and Brainwell on instagram: http://www.instagram.com/brainwell_instituteOn their website: https://brainwellinstitute.orgVisit us on our website to see all that we offer for caregiver support:www.compassionincaregiving.comFor more visit our Instagram! http://www.instagram.com/compassionincaregiving*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*

Caring for someone can add complexity and conflict in a romantic relationship. Whether your partner disagrees with your decisions and beliefs regarding caregiving or whether they feel you are not present for them the way you once were, this is for any caregiver experiencing changes in a romantic relationship.Barry Jacobs and his wife Julie Mayer are clinical psychologists who specialize in family therapy and caregiving and provide their perspectives on different case examples in this enlightening episode.About Barry: Barry J. Jacobs is a clinical psychologist, family therapist, and a Principal for Health Management Associates, a national health care consulting firm. A former magazine journalist, he is the author of The Emotional Survival Guide for Caregivers: Looking After Yourself and Your Family While Helping an Aging Parent (Guilford, 2006) and coauthor with his wife, Julia L. Mayer, PsyD, of AARP Meditations for Caregivers: Practical, Emotional, and Spiritual Support for You and Your Family (Hachette, 2016), AARP Love and Meaning After 50: The 10 Challenges to Great Relationships—and How to Overcome Them (Hachette, 2020), and The AARP Caregiver Answer Book (Guilford, 2025). He has also written a self-help column for caregivers for AARP.org since 2013. An honorary board member of the Well Spouse Association and a former director of behavioral sciences for the Crozer Health Family Medicine Residency in Springfield, PA, USA, he maintains a psychotherapy practice in Media, Pennsylvania, specializing in supporting individuals with chronic and serious illness and their caregivers.Find Barry on X: @drbarryjjacobsFind Barry and Julie’s new book, The AARP Caregiver Answer Book: https://www.amazon.com/AARP-Caregiver-Answer-Book/dp/1462557872About Julie: Julie L. Mayer is a clinical psychologist in private practice in Media, Pennsylvania, who has specialized for three decades in helping women in caregiver roles, as well as those with troubled marriages and histories of sexual trauma. She is the author of the novel A Fleeting State of Mind (2014) and coauthor of AARP Meditations for Caregivers and AARP Love and Meaning After 50. She is a former president of the board of PSCP—The Psychology Network. Since 2016 she has cohosted the podcast Shrinks on Third on psychology and social justice.Find Julie on X: @JuliaLMayer23Visit us on our website to see all that we offer for caregiver support:www.compassionincaregiving.comFor more visit our Instagram! http://www.instagram.com/compassionincaregiving*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*

What leads to anger and resentment in caregiving and is there anything you can do to help prevent or mitigate these very intense, and sometimes overpowering, emotions?Today Stephanie talks about what can commonly trigger feelings of anger and resentment in caregiving and provides some realistic strategies to help you through these emotions while caring for someone else. If you are sick and tired of yelling and snapping at others and feeling out of control- this episode is for you.Visit us on our website to see all that we offer for caregiver support:www.compassionincaregiving.comFor more visit our Instagram! http://www.instagram.com/compassionincaregiving*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*

Do you care for multiple family members or friends? Do you feel like you are not doing all you ultimately ‘should be’ doing given the limitations of caring for multiple people (plus potentially working and other responsibilities)? In today’s episode, Stephanie discusses this element of guilt and what happens & what you can do about being pulled in 3,4,5 or 90 different directions.Visit us on our website to see all that we offer for caregiver support:www.compassionincaregiving.comFor more visit our Instagram! http://www.instagram.com/compassionincaregiving*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*

After being thrust into the world of caregiving and caring for her mom with frontotemporal dementia (FTD), Katie Prentiss saw the need to share the caregiver experience with others, both those who could relate or those who did not understand and could learn. With her upcoming feature film, Wake up Maggie, Katie has made it her mission to bring caregiving to the forefront, inspiring other caregivers and raising awareness about the realities of caring for someone with FTD.About Katie Prentiss: Two years after losing her mom to dementia at a young age, Katie began a career in acting with her role as Denise on Sophie Jones. Acting immediately became her passion and seemed to be the perfect culmination of her previous chapters in life - from English major, to mother, to portrait photographer, Katie has lived stories and loved people. Katie is most known for her roles as Beth in Winter Island and Sadie in Going Home, seasons 1 & 2. Her award winning films include Front Porches (2020 | Best Oregon Film, Best Actress) and a web series called Gamer (2022/2023 | Best of Oregon, Best micro short). She is currently working on her first feature film called Wake Up Maggie which is a love letter to her mom. Find Katie and learn more about Wake Up Maggie: https://www.katieprentiss.com/wake-up-maggieFind Katie on Instagram: @katieprentiss Visit us on our website to see all that we offer for caregiver support:www.compassionincaregiving.comFor more visit our Instagram! http://www.instagram.com/compassionincaregiving*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*

In today’s episode, Stephanie speaks to Susanne White (Caregiver Warrior) about the one thing that brought her tremendous guilt for many years after the passing of her parents: transferring them to a facility after promising she would keep them at home. Susanne discusses the situation that led to this change in her caregiving path, and how she now views this decision and the lessons associated. This is a scenario so many caregivers face, and we are so grateful for Suzanne’s vulnerability and openness when discussing such a deep topic.About Susanne White:When faced with the opportunity to care for her parents,Susanne ventured out on a caregiving journey that would change her life. She blogs about this journey on her website, caregiverwarrior.com, and shares her experience, strength, and hope with others so that they too may navigate caregiving with grace and empowerment. Known for her unique, authentic style and wisdom from the inside of many caregiving journeys, she is an outstanding motivational keynote speaker, bestselling author, gifted writer, exceptional ERG webinar host, and thought leader in the caregiver advocacy community. White’s latest book, Self-Care for Caregivers: A Practical Guide to Caring for You While You Care for Your Loved One, is now available at your favorite bookstores. Visit caregiverwarrior.com for more information.Visit us on our website to see all that we offer for caregiver support:www.compassionincaregiving.comFor more visit our Instagram! http://www.instagram.com/compassionincaregiving*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*

Have you ever had your caregiving or involvement as a caregiver questioned? This can STING. You have spent so much time and energy providing care and suddenly someone is questioning what you have done or how you have done it. Or maybe you have finally implemented boundaries in your caregiving and people are pushing back and commenting on you and your involvement or intentions.In today’s episode, Stephanie talks about the implications of being questioned about your caregiving involvement and how you can start to process and manage this interaction. Visit us on our website to see all that we offer for caregiver support:www.compassionincaregiving.comFor more visit our Instagram! http://www.instagram.com/compassionincaregiving*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*

Welcome back to Caregiver’s Compass! We cannot believe we are already on season 5 and we have some incredible guests coming your way. In this episode Stephanie introduces this season and briefly discusses her mom’s recent passing after many years of caregiving.Visit us on our website to see all that we offer for caregiver support:www.compassionincaregiving.comFor more visit our Instagram! http://www.instagram.com/compassionincaregiving

We are back and covering the most listened-to episode of season 4! Here is a recap:5) Episode 105: What exactly is ‘Caregiver Burnout’?4) Episode 95: Yes, eating disorders can very much be related to caregiving- with Kyla Fox3) Episode 93: ‘My parent has poor health habits but refuses any of my support or suggestions for change’2) Episode 94: Supporting Family Caregivers in Healthcare Through Research, Education and in Practice with Dr. Jasneet Parmar1) Episode 92: How to Care for the CaregiverWe truly hope you enjoyed this season and we cannot wait to see you back here for season 5.Visit us on our website to see all that we offer for caregiver support:www.compassionincaregiving.comFor more visit our Instagram! http://www.instagram.com/compassionincaregiving

Palliative care: a term we often hear in our communities and in the healthcare system. But do we actually know what the term palliative care means for us and the people we care for? In today’s enlightening episode, palliative care physician, Dr. Samantha Winemaker, talks to Stephanie about this very important topic in addition to concepts surrounding advocacy for palliative care and MAID. About Dr. Samantha Winemaker:Dr. Winemaker is an Associate Clinical Professor, Department of Family Medicine, in the Division of Palliative Care at McMaster University. She teaches palliative care to health care professionals. She has won numerous awards for her work.Find Dr. Winemaker:On Instagram: @sammy.winemakerAt the Waiting Room Revolution: https://www.waitingroomrevolution.com/We want your feedback. Let us know how you liked today’s episode! Rate, review and subscribe to let us know you are enjoying this podcast and want to hear more!Visit us on our website to see all that we offer for caregiver support: www.compassionincaregiving.com For more visit our Instagram!http://www.instagram.com/compassionincaregiving*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*

Lynn Posluns dedicates her life to women’s brain health, education and research for prevention and improvement that you can make in your life right now. In today’s episode, Lynn provides insightful and valuable information on brain health and talks about her ‘why’ for founding the WBHI. She additionally goes into detail about the many ways WBHI is working each and every day to help others learn how to take small and attainable steps to shift their brain health for the present and help to prevent cognitive decline for the future. This is one episode you don’t want to miss!About Lynn:Lynn Posluns is the Founder, President, and CEO of Women’s Brain Health Initiative, the only organization dedicated to protecting the brain health of women, caregivers, and families. Since the charity launched in Canada and the U.S. in 2012, Women's Brain Health Initiative has made tremendous strides in raising awareness about the inequity in brain aging research for women, in funding that research, and in creating compelling preventative health evidence-informed education programs so there is a greater understanding by the public of the best ways to prolong their cognitive vitality.Lynn has held several executive positions within the Retail and Fashion industries and, throughout her career, has raised millions of dollars for many philanthropic causes, focused primarily on the healthcare industry.Lynn has received numerous awards for her work in philanthropy and giving back to the community, including the University of Toronto’s Rotman School of Management’s Top Ten High Achieving Women Award, Rotary International’s Paul Harris Fellowship Award, an Honorary Doctorate by York University and most recently Canada’s Top 25 Women of Influence award.In December 2021, Lynn was appointed as a member to the Order of Canada for her contribution to research on cognitive health and aging through the founding of Women's Brain Health Initiative.We want your feedback. Let us know how you liked today’s episode! Rate, review and subscribe to let us know you are enjoying this podcast and want to hear more!Visit us on our website to see all that we offer for caregiver support: www.compassionincaregiving.com For more visit our Instagram!http://www.instagram.com/compassionincaregiving*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*

Are you caregiving and working at the same time? This very real and very common situation is also very hidden and not talked about enough… But when you take the stress of home and everything you have to balance with the person you care for ON TOP of a career and working, the stress and overwhelm can be above and beyond what you may feel is manageable. In today’s episode, Stephanie talks about caregiving and balancing a career and offers some practical tips you can use if you are in this situation and trying to keep your head above water. We want your feedback. Let us know how you liked today’s episode! Rate, review and subscribe to let us know you are enjoying this podcast and want to hear more!Visit us on our website to see all that we offer for caregiver support: www.compassionincaregiving.com For more visit our Instagram!http://www.instagram.com/compassionincaregiving*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*

The nursing home transition can be very very hard, not only for the person who is moving to the residence, but for the caregiver too (in a big way). In today’s episode, Stephanie talks about this transition, the emotions behind nursing home transitions for caregivers and some helpful strategies that can help along the way.We want your feedback. Let us know how you liked today’s episode! Rate, review and subscribe to let us know you are enjoying this podcast and want to hear more!Visit us on our website to see all that we offer for caregiver support: www.compassionincaregiving.com For more visit our Instagram!http://www.instagram.com/compassionincaregiving*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*

There are over 4 million caregivers in Ontario, yet the Ontario Caregiver Organization (OCO), a government funded organization aimed to support this wide variety of caregivers, is still relatively new. In today’s episode, OCO CEO, Amy Coupal joins Stephanie on the podcast to talk about who she is behind her vocation, her caregiving experiences and how she and her team work to shape an organization that caregivers truly need. We want your feedback. Let us know how you liked today’s episode! About Amy : Amy Coupal is the CEO of the Ontario Caregiver Organization (OCO), a charitable organization that exists to support Ontario’s 4 million caregivers who provide physical and/or emotional support to family members, partners, friends and neighbours. A visionary leader with over 20 years experience in the not-for-profit sector, Amy is passionate about mobilizing change through knowledge exchange and building collaborative initiatives that positively impact the lives of individuals and communities. The impact of this work is demonstrated through the breadth of direct to caregiver programs and services available through OCO, as well as the early successes of embedding caregiving in the culture of healthcare and the amplification of the voices of caregivers to influence decision making at a system level.Amy has a Master of Education from the University of Calgary and is an Adler-trained coach. Her insights have been shared through speaking and media engagements, both internationally and here in Canada. Amy has a deep understanding of the benefits and challenges associated with caregiving. As acaregiver for most of her life, Amy helped to support her brother who had Cerebral Palsy. She was also a caregiver to her mother throughout her cancer journey and now supports her father through older adulthood.Find Amy and the OCO at: http://www.ontariocaregiver.caRate, review and subscribe to let us know you are enjoying this podcast and want to hear more!Visit us on our website to see all that we offer for caregiver support: www.compassionincaregiving.com For more visit our Instagram!http://www.instagram.com/compassionincaregiving*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*

Nicole Dauz imagined an idyllic future for her family of 4 after giving birth to her baby daughter. She soon realized that her vision of what would be looked very different in reality. In today’s episode, Nicole takes us through her journey caregiving for her kids, learning about navigating the system and care for a child with autism and a rare genetic disease and learning the true meaning of self-care to survive. Nicole has used her learnings and experience and has become a self-care coach for other parents and leads the way when it comes to changing the narrative of caregiving.About Nicole:Nicole Dauz is a self-care coach, speaker, author and advocate who chooses happiness despite her circumstances. Experience is her teacher as the mother of a 17-yr-old neurotypical son and a 15-yr-old autistic daughter with a rare genetic disease.Her mission in life is to change the story around caregiving and celebrate the journey. She honours the role of the caregiver by helping them recognize their worth and their true gifts. As a self-care coach, she works with parents who feel overwhelmed and at the end of their rope. She helps them regain control of their lives and provides them the tools and strategies needed to shift parents from feeling stressed and overwhelmed to regaining control of their lives and feeling gratitude and joy in their lives.Find Nicole on IG: @nicoledauz http://www.nicoledauz.comWe want your feedback. Let us know how you liked today’s episode! Rate, review and subscribe to let us know you are enjoying this podcast and want to hear more!Visit us on our website to see all that we offer for caregiver support: www.compassionincaregiving.com For more visit our Instagram!http://www.instagram.com/compassionincaregiving*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*

The first, second, third…. times we experience a holiday or an event since changes or the loss of someone we love can be so hard. These moments and the anticipation of them can be so full of loss and grief and memories of what once was. In today’s episode, Stephanie talks about these moments, what they can feel like and what we can start to do to process and acknowledge them rather than push the pain away. We want your feedback. Let us know how you liked today’s episode! Rate, review and subscribe to let us know you are enjoying this podcast and want to hear more!Visit us on our website to see all that we offer for caregiver support: www.compassionincaregiving.com For more visit our Instagram!http://www.instagram.com/compassionincaregiving*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*

As an only child, for many years Stephanie thought that having a sibling by her side would really help in the caregiving process. But after working with caregivers for many years, she soon realized that this is not always the case. In today’s episode, Stephanie walks listeners through some scenarios when sibling conflict was more prevalent than support in caregiving. We want your feedback. Let us know how you liked today’s episode! Rate, review and subscribe to let us know you are enjoying this podcast and want to hear more!Visit us on our website to see all that we offer for caregiver support: www.compassionincaregiving.com For more visit our Instagram! http://www.instagram.com/compassionincaregiving*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*

Nicole Petrie is not a person who is easily describable with words. Using her passion for FTD advocacy and surpassing numerous obstacles and limits in her way, she achieved an outstanding career in modeling, featured in some of the largest publications and on the largest platforms worldwide. In today’s episode, Nicole talks about her journey caring for her mother with early onset FTD as she continues to pursue her career, boundlessly advocating for dementia and FTD and all that surrounds these diagnoses.We want your feedback. Let us know how you liked today’s episode! Rate, review and subscribe to let us know you are enjoying this podcast and want to hear more!Visit us on our website to see all that we offer for caregiver support: www.compassionincaregiving.com For more visit our Instagram! http://www.instagram.com/compassionincaregivingAbout Nicole:Nicole Petrie is a model, activist, entrepreneur, and caregiver from Wisconsin. Since her mom's FTD diagnosis she has dedicated her career & social media presence to raising awareness for dementia related diseases and the hard work of caregivers everywhere. She has grown an online community of over 1.1 million followers between tiktok & Instagram, sharing a variety of videos including, her day-to-day life as a young adult caregiver & educational information about dementia. Some of her notable professional accomplishments include being featured in Sports Illustrated’s Swimsuit Edition, becoming an official ambassador for The Association of FrontoTemporal Degeneration, & modeling for brands such as Ulta, Bulgari, and Balmain. Additionally, Nicole has recently created a clothing & accessory merchandise line with designs that aim to recognize caregivers, spread awareness for FTD, and honor her mother. Find Nicole on Instagram: @nicolepetrie On her website: http://www.nicolepetrie.comThank you to today’s sponsor, Memorable Minds. To learn more about Memorable Minds and all that they do for caregivers, visit https://www.memorablemindsconsulting.com/.*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*

When Katrina Prescott left her commercial production role in New York City and returned to British Columbia as she was faced with the realities of her aging grandmother. Little did she know, almost immediately following her grandmother’s passing, she would become a full on solo caregiver for her mother with FTD. In today’s episode, Katrina takes you through her caregiving journey and talks about what she learned along the way and the incredible advocacy she now engages in daily for caregivers everywhere.About Katrina:Katrina Prescott is an accomplished media producer.Her personal experience caring for her mother who was living with dementia compelled her to embark on a new career in caregiving advocacy and education. Now a sought-after Caregiving Coach, Katrina has harnessed what she learned first-hand as a full-time caregiver with her innate ability to teach and guide others without judgment as they navigate through this often overwhelming, exhausting, and yet also potentially rewarding journey.From navigating the healthcare system, guiding people through the fluctuating stages of hope and grief, finding helpful programs and resources, and encouraging caregivers in a straightforward yet highly engaging approach, Katrina is a beacon for both caregivers and care recipients.  By combining her role as a producer with insights from lived caregiving experiences, Katrina produced the widely viewed web series “Therapeutic Fibbing”.  Already seen by over one million people to date, this innovative educational series uses real-life examples and re-enactments of common scenarios often encountered by people who find themselves as caregivers to loved ones with dementia. The series offers tools and learning - and even some gentle humour - and has garnered significant caregiver engagement.In 2023, Katrina received an award for Caregiving Advocacy by the Canadian Centre for Caregiving Excellence. Looking ahead, she aspires to drive transformation in health care for individuals with chronic illness and their caregivers and collaborates with a wide range of stakeholders including non-profit groups, researchers, politicians, universities and medical professionals.Find Katrina on her website: https://www.katrinaprescott.com/We want your feedback. Let us know how you liked today’s episode! Rate, review and subscribe to let us know you are enjoying this podcast and want to hear more!Visit us on our website to see all that we offer for caregiver support: www.compassionincaregiving.com For more visit our Instagram! http://www.instagram.com/compassionincaregiving*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*

As people, we have thousands and thousands of thoughts each and every day. But do you truly recognize your thoughts and are you aware of the thoughts you are having? How are your thoughts impacting you and your daily life as a caregiver?In this episode, Jessica and Stephanie talk about the importance of noticing our thoughts and how this practice can change our lives, emotions and overall outlook. About Jessica:Jessica is a writer, meditation teacher, death doula, and dementia consultant. Her studies with Ram Dass, Joseph Goldstein, Alua Arthur, and Pema Chodron have shaped her mindfulness and doula work with the dementia community, which focuses on bringing awareness to our thoughts and leading with compassion. You can find her on Instagram (@alzheimers_awakening) and Substack (@alzheimersawakening).We want your feedback. Let us know how you liked today’s episode! Rate, review and subscribe to let us know you are enjoying this podcast and want to hear more!Visit us on our website to see all that we offer for caregiver support: www.compassionincaregiving.com For more visit our Instagram! http://www.instagram.com/compassionincaregiving*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*

The driver’s license and cognitive or physical impairment. Something that, unless you’ve experienced it, you can never fully understand. The battle and the ethics and the nuances to exploring safety vs. autonomy and taking the path of least resistance.What in the world do we do when we are faced with the reality that it may be time to confront the reality that to the person you care for may no longer be safe to drive (or maybe they have already been told by a member of their medical team they cannot and you are now dealing with the aftermath).In this episode, Stephanie takes you through the emotions and internal/ external battle of this very complex situation and takes you through her own personal experiences with the driver’s license and her own mother.We want your feedback. Let us know how you liked today’s episode! Rate, review and subscribe to let us know you are enjoying this podcast and want to hear more!Visit us on our website to see all that we offer for caregiver support: www.compassionincaregiving.com For more visit our Instagram! http://www.instagram.com/compassionincaregiving*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*

We hear about this term, caregiver burnout, so often. But what exactly is ‘burnout’ and how do we get there? What can we do to try and prevent or mitigate burnout? In today’s episode, Stephanie takes it back to basics to talk about this commonly used term and what it means.We want your feedback. Let us know how you liked today’s episode! Rate, review and subscribe to let us know you are enjoying this podcast and want to hear more!*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*Visit us on our website to see all that we offer for caregiver support: www.compassionincaregiving.com For more visit our Instagram! http://www.instagram.com/compassionincaregiving

Caitlin Melvin’s life changed forever in 2021 when her 3 week old baby Scottie passed away. Having to continue caring for her young son in the face of grief, Caitlin learned how to navigate a situation she never thought she would face. In today’s episode, Caitlin talks about feeling substantial pain and having to continue on while growing her family and running a successful business.About Caitlin:Caitlin Melvin lives in Vancouver, British Columbia with her husband and two children, Huxley and Goldie (and kitty - Lucca!). Caitlin owns Melvin Marketing Group, a boutique marketing agency that focuses on social media marketing and branding. She balances life with her passions for motherhood, cooking and baking, snowboarding, and enjoying Vancouver and the surrounding area via hiking boots, her bicycle and long drives with her family.Find Caitlin on Instagram: @caitlinalison *The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*Visit us on our website to see all that we offer for caregiver support:www.compassionincaregiving.com For more visit our Instagram!http://www.instagram.com/compassionincaregiving

Patti LaFleur (known as misspatticake on social media) has become a well-known figure in the caregiving space. After leaving her teaching job of many years, she dedicated her life to caring for her father and her mother Linda, diagnosed with dementia. Documenting her journey daily, Patti and Linda were an inspiration and a real view on the happiness and positivity that was possible in a carepartner bond between mother and daughter. When Linda passed away more suddenly than ever anticipated, Patti found herself lost and confused, looking to find herself and her identity once again. In today’s episode Patti bravely talks about her experiences in loss and grief, finding meaning after loss and learning who she is once again. About Patti:Patti LaFleur is the former care partner to her mom, Linda, who had younger-onset mixed dementia. Patti brings a wealth of knowledge after caring for both parents, teaching for ten years, volunteering with people living with neurocognitive disorders in art classes, and serving as a community educator for the Alzheimer’s Association. Patti also has a Masters in Instructional Leadership and is a Certified Dementia Practitioner. She is a member of the Lorenzo's House team, leading their vision as their Youth and Lighthouse Outreach Lead, where she connects with families, designs and implements youth programming, and leads their ambassador initiative (valued volunteer leaders).Find Patti on Instagram: @misspatticake Thank you to the sponsor of thoday’s episode, Innerhive. To learn more about Innerhive, visit http://www.innerhive.com !*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*Visit us on our website to see all that we offer for caregiver support:www.compassionincaregiving.com For more visit our Instagram!http://www.instagram.com/compassionincaregiving

Mary Lou Falcone lived a life of sophistication and excitement as a prominent figure in the classical music space, her husband a well-known artist. Using music throughout her life helped as a means of expressing herself and proved to be paramount when her husband was diagnosed with Lewy body dementia- at a time in her life that was shocking and unexpected. In this episode, Mary Lou describes her journey through caregiving and the rollercoaster of moments that will be sure to leave you with tears.About Mary Lou Falcone:Mary Lou Falcone is internationally known as a classical musicpublicist/strategist who for fifty years has helped guide the careersof celebrated artists – Van Cliburn, Gustavo Dudamel, RenéeFleming, Sir Georg Solti, James Taylor – and advised manyinstitutions including Carnegie Hall, Chicago Symphony, Los AngelesPhilharmonic, Philadelphia Orchestra, New York Philharmonic,Vienna Philharmonic. Combining communication skills with herbackground as a performer and educator, she now adds anotherlayer: advocate for Lewy body dementia (LBD) awareness. Her latehusband, the illustrator Nicky Zann who died from LBD in 2020, wasthe catalyst for her first book, I DIDN’T SEE IT COMING: Scenes ofLove, Loss, and Lewy Body Dementia.Find Mary Lou: https://maryloufalcone.com/*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*Visit us on our website to see all that we offer for caregiver support:www.compassionincaregiving.com For more visit our Instagram!http://www.instagram.com/compassionincaregiving

Do you ever feel completely removed, turned off or differently in general about your partner who you care for? Do you notice that you no longer want to engage in intimacy with your partner because of the changes in your relationship and the dynamic as a result of your caregiving? In today’s episode, Stephanie touches upon the topic of sex as a caregiver and normalizes and validates the emotions you may have surrounding sex and intimacy.Today’s episode was the number 1 requested episode this season by our audience on social media! If you feel this way you are NOT alone.We want your feedback. Let us know how you liked today’s episode! Rate, review and subscribe to let us know you are enjoying this podcast and want to hear more!*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*Visit us on our website to see all that we offer for caregiver support:www.compassionincaregiving.com For more visit our Instagram!http://www.instagram.com/compassionincaregiving

For 43 years André Picard has been at the forefront of health journalism and health reporting for The Globe and Mail. In today’s episode, André takes a deep dive into the reality of our healthcare system and its impact on caregivers and the people they care for. André compares and contrasts the Canadian system in relation to systems in other nations, the gains that have been made in the Canadian system over time and what improvements are needed to best impact caregivers, both now and in the future.About André Picard:André Picard is the health columnist at The Globe and Mail. He was named Canada’s first Public Health Hero by the Canadian Public Health Association, and a Champion of Mental Health by the Canadian Alliance on Mental Illness and Mental Health. He received the Queen Elizabeth II Diamond Jubilee Medal for his dedication to improving healthcare.He is also the author of six bestselling books, most recently “Neglected No More: The Urgent Need To Improve The Lives of Canada’s Elders.”Find André:https://www.andrepicard.com/*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*Visit us on our website to see all that we offer for caregiver support:www.compassionincaregiving.com For more visit our Instagram!http://www.instagram.com/compassionincaregiving