PODCAST · health
Caregivers In Crisis
by Onesimus
Stories and conversations from adult caregivers who feel they have no one to talk to, who understands. It is completely anonymous to reduce fears of judgmentalism or embarrassment. We’re not looking for advice or fixes, we just want to be heard without our feelings and fears being held against us now or later.
Episodes
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Day by Day
I've been waiting, hoping for something significant and positive to occur before doing another episode, simply so that every post isn't just whining; however, nothing really positive has occurred, so an update. Basically, every day is a wait. A wait to see if a scheduled sitter will arrive, be...
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"The Caregiver's Lament" : Waiting
A brief description of how much "waiting", is a part of caregiving.
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Guilt and Excitement. Slight progress towards nursing home placement.
There seems to be some positive movement towards getting both parents admitted to a local nursing home. It is the #2 option, at least from previous conversations with my mom, those times she seems amenable to her going to a nursing home (usually as part of an attempted guilt trip), or having dad…
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The sleeping sitter, when the patient/charge falls and the sitter is asleep
The whole reason for hiring sitters is to assist in caregiving, and especially overnight, to keep their charges (your family members) safe, by being awake and alert to render immediate assistance should they need it, especially if one charge is a high fall risk, and very impulsive (meaning they...
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Tunnel Vision - How sleep deprivation and depression can narrow what you even can think about.
Much like severe and sudden stress or even oxygen deprivation, after a while, caregiving can lead to what I'm calling "Tunnel Vision", in that the combination of stress, sleep deprivation, depression, continual denial of even considering an activity or anything which is meaningful to you as an...
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Holidays, are not exactly celebratory time
The holidays don't exactly mean fun, family, relaxation, and celebration when you are a primary or full-time caregiver of one person, much less two. Often it means more work, more stress and less help.
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Your normal, is my fantasy
For non-caregivers, your "normal" day, is my fantasy. Normal people go to Disney, or Epcot, or Universal, or Hogwarts for a bit of magic or superhero fantasy before returning to the humdrum normalcy of just working on a small project, or leisurely shopping, trying a new restaurant, even just...
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The "No Changes" update
For the most part, there has been no substantial change. Still trying to determine what documents the nursing home needs, and get those. I realize I'm doing it a bit of the hard way, and being a typical control freak in that I'm not just signing a blank "release of information" which they can…
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Applications dropped off at the Nursing Home
Basically, I've dropped off the applications at the nursing home, asking to be put on a waiting list, when two beds open up. Preferably in the same room, but not required at the beginning (definately something to work towards). In the meantime, Mom has another UTI and/or Upper Respiratory...
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Selfishness or Self Preservation, the mental and emotional battle
The last few days, the major battle in my head has been determining which thoughts and feelings are selfish, and which are self-preservation.
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Initial consultation with Care Right Inc
I had an initial consultation, via Zoom with Annalee Kruger, Author of "The Invisible Patient", and founder of Care Right Inc. In the absence of significant assistance from family, with the struggles and dearth of competent, consistent and affordable in home care, at the level required for my two...
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All Words & No Action
It's one of those days where I am more or less numb, at least on the surface, because it feels like I can't allow any emotion to get near the surface, lest I lose control. It seems there are plenty of offers to talk; however, no offers to actually perform any actions that lead to true change.…
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Results of "SLUMS" test - Father
The SLUMS test was administered today to my father by the speech therapist with Home Health, by order of my father's PCP. His score on this basic screening (not diagnostic) test was squarely in the middle of the "Dementia" range. From past records, this is 1/2 of his score recorded the last time…
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Explaining the green light, and carrying two burdens
This one just needs listening to, without explanation.
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Basically, I'm screwed. Trapped into full time caregiving by "the system"
I'm in a situation where in order to regain any part of my freedom and life, my parents need to go to a nursing home or some place able to care for one person who is "total care", and another fast approaching that level. One needs at least 2 people 24/7 for safe and proper care, the other needs…
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Progress following decision to regain my life.
About a week ago, I hit my wall. I realized I could no longer continue full-time, in-home care of both parents at the same time. In the subsequent week, I have made some notifications and requested a tour of one facility, as well as information, suggestions, and/or options from an attorney…
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Can caregiving, become co-dependency, and if so, what happens when it ends?
We become caregivers, often by default and hopefully out of an urge or obligation to care for the person(s). However, is there a danger of this becoming unhealthy for one or all, and if so, what happens when that is finally realized, and the caregiver, needing to care first for her/himself, has…
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The Decision
Over the last 2-3 weeks, due to illness or other reasons, the number of no-call/no-show or other missed shifts from the home sitter service has increased. There have been a couple of new caregivers sent who, while nice, simply do not have the training, experience, or physical strength and mass to...
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A weekend away...
I was able to schedule and attend a festival of sorts, two states away. While it did occur, the preparation for, execution of the trip and return was far from without stress and drama. Since I would be away, and we do not have adequate coverage from sitters 24/7, in order for my parents to be…
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Sitter Struggles
Fresh on my unsleeping mind, the struggle finding and keeping paid sitters to help share the load of caregiving such that you can get a modicum of sleep, and perhaps even run errands and other daily activities, and just get some down time for psychological health. Unfortunately, a brand new…
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Lesser of two evils
Which is the lesser of two evils? Two parents being placed in a nursing home and the sole caregiver regaining a life & freedom, or the caregiver remaining so that the parents can stay at home. What if, in staying all three, having vastly reduced ability to socialize, begin experiencing increasing...
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Episode one, where I am and how I got here.
Episode one of the podcast. The purpose is to be able to say what I wish I could say to a friend or counselor, but cannot for fear of being judged, or certain comments and feelings being documented and held against me in years to come. We need to be able to express ourselves if we are to survive...
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ABOUT THIS SHOW
Stories and conversations from adult caregivers who feel they have no one to talk to, who understands. It is completely anonymous to reduce fears of judgmentalism or embarrassment. We’re not looking for advice or fixes, we just want to be heard without our feelings and fears being held against us now or later.
HOSTED BY
Onesimus
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Frequently Asked Questions
How many episodes does Caregivers In Crisis have?
Caregivers In Crisis currently has 22 episodes available on PodParley. New episodes are automatically indexed when they're published to the podcast feed.
What is Caregivers In Crisis about?
Stories and conversations from adult caregivers who feel they have no one to talk to, who understands. It is completely anonymous to reduce fears of judgmentalism or embarrassment. We’re not looking for advice or fixes, we just want to be heard without our feelings and fears being held against us...
How often does Caregivers In Crisis release new episodes?
Caregivers In Crisis has 22 episodes. Check the episode list to see recent publication dates and frequency.
Where can I listen to Caregivers In Crisis?
You can listen to Caregivers In Crisis on PodParley by clicking any episode. We provide an embedded audio player for direct listening, and you can also subscribe via your preferred podcast app using the RSS feed.
Who hosts Caregivers In Crisis?
Caregivers In Crisis is created and hosted by Onesimus.
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