PODCAST · kids
Congenital Heart Defect Archives - Orangesocks.org
by Orange Socks
Orangesocks.org - Every four and a half minutes a child is born or diagnosed with a condition parents never dreamed would be their reality. If this is you, you’re in the right place. You’re not alone. Find Hope! There are others out there who know exactly how you feel.
Episodes
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Katherine and Jeff: Ellis-Van Creveld Syndrome- Follow Up
Both of their daughters were diagnosed in utero with a fatal form of Dwarfism. They chose to continue with the pregnancy, and doctors couldn't give them statistics, because everyone else they knew that received the same diagnosis chose to abort. The post Katherine and Jeff: Ellis-Van Creveld...
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Sandra: ADNP Syndrome
It took six years for Sandra to receive a diagnosis for her son Tony. He was diagnosed with ADNP syndrome and was the 11th person to be diagnosed. With little information available, Sandra set out to create more awareness for her son’s extremely rare disability. Ten years later, she has helped…
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Jessica and Johnny: Goldenhar Syndrome
Griffin is a young boy with Goldenhar syndrome. He is proud of who he is! His positive attitude helps his parents not view his diagnosis as a bad thing. The post Jessica and Johnny: Goldenhar Syndrome appeared first on Orangesocks.org.
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Jessie and Nathan: DiGeorge Syndrome
Baby Ammon was diagnosed with DiGeorge syndrome and numerous other abnormalities. His parents are grateful he is here despite the difficulties. The post Jessie and Nathan: DiGeorge Syndrome appeared first on Orangesocks.org.
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Kaitlin: Chromosome Deletion
Mason has a long list of medical complexities including a double chromosome deletion. Despite his many medical challenges, he is a light for his family. The post Kaitlin: Chromosome Deletion appeared first on Orangesocks.org.
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Kayla and Josh: ADNP Syndrome
At the time of his diagnosis, Parker was the 85th case person to be diagnosed with ADNP syndrome. He has a rare genetic condition that can cause a variety of different abnormalities. Kayla and Josh talked about their journey towards finding a diagnosis and what life has been like with Parker.…
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Brittany and Tyler: Hydrocephalus, Encephalocele, Amniotic Band syndrome
Max was born with numerous medical complications involving his heart and brain. His short life brought his parents much joy and peace. The post Brittany and Tyler: Hydrocephalus, Encephalocele, Amniotic Band syndrome appeared first on Orangesocks.org.
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Kim: CHARGE Syndrome
When Jackie was diagnosed with CHARGE syndrome, her mom was overwhelmed by all of her impairments. Since then, she's learned to enjoy every day with her. The post Kim: CHARGE Syndrome appeared first on Orangesocks.org.
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Kierra: DiGeorge Syndrome
Evanna was born with DiGeorge syndrome. A 400-day hospital stay wasn't easy for her parents but it strengthened their marriage and love for their daughter. The post Kierra: DiGeorge Syndrome appeared first on Orangesocks.org.
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Katherine and Jeff: Ellis-Van Creveld syndrome
A routine prenatal ultrasound showed Katherine’s baby had shorter limbs than was typical. Baby Arabella was misdiagnosed with fatal disorders twice while in utero. Katherine and Jeff refused to terminate the pregnancy. It wasn’t until she was born that they got an official diagnosis of Ellis-Van...
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ABOUT THIS SHOW
Orangesocks.org - Every four and a half minutes a child is born or diagnosed with a condition parents never dreamed would be their reality. If this is you, you’re in the right place. You’re not alone. Find Hope! There are others out there who know exactly how you feel.
HOSTED BY
Orange Socks
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Frequently Asked Questions
How many episodes does Congenital Heart Defect Archives - Orangesocks.org have?
Congenital Heart Defect Archives - Orangesocks.org currently has 10 episodes available on PodParley. New episodes are automatically indexed when they're published to the podcast feed.
What is Congenital Heart Defect Archives - Orangesocks.org about?
Orangesocks.org - Every four and a half minutes a child is born or diagnosed with a condition parents never dreamed would be their reality. If this is you, you’re in the right place. You’re not alone. Find Hope! There are others out there who know exactly how you feel.
How often does Congenital Heart Defect Archives - Orangesocks.org release new episodes?
Congenital Heart Defect Archives - Orangesocks.org has 10 episodes. Check the episode list to see recent publication dates and frequency.
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Who hosts Congenital Heart Defect Archives - Orangesocks.org?
Congenital Heart Defect Archives - Orangesocks.org is created and hosted by Orange Socks.
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