Decoding Duchenne

Episodes

1. 11

   11. Duchenne UK Family Funds

   We know that the people who are most passionate about raising money to find treatments and a cure for Duchenne Muscular Dystrophy are those who live with it every day. That's why we at Duchenne UK want to help and support you - the friends and families of those living with DMD - with raising the...

   Sep 12, 2019

   9m
2. 10

   10. Repurposing Drugs for DMD

   Repurposing is an exciting approach to drug development; it involves looking at existing medicines, and testing them to see if they could be effective in treating Duchenne Muscular Dystrophy. Our host Clare Runacres speaks to Emily Crossley, Duchenne UK Co-founder, and Professor Dirk Fischer…

   more
   Sep 2, 2019

   12m
3. 9

   9. Growing Up With DMD - Saul Catlin

   Our host Clare Runacres speaks to Saul Catlin about growing up with DMD. Saul is an 18 year old man living with DMD. He is studying games design at university. If you have any questions or would like to get in touch please email [email protected] or visit www.duchenneuk.org

   Jul 31, 2019

   14m
4. 8

   8. The DMD Hub - Alex Johnson, Emily Crossley, Prof Volker Straub and Emma Helsop

   Our host Clare Runacres speaks about the DMD Hub with Prof Volker Straub - Professor of Medicine and Professor of Neuromuscular Genetics at Newcastle University, Emma Heslop - DMD Hub manager and Duchenne UK's co-founders Alex Johnson and Emily Crossley. Visit dmdhug.org If you have any questions...

   Jul 8, 2019

   12m
5. 7

   7. What Is Duchenne - Dr David Bull

   Our host Clare Runacres speaks with Duchenne UK's Director of Research, Dr David Bull, about Duchenne muscular dystrophy. If you have any questions please email [email protected].

   Jun 24, 2019

   26m
6. 6

   6. SPECIAL EPISODE - Testosterone as a treatment for DMD with Prof Volker Straub

   In this podcast we speak with Prof Volker Straub about Testosterone, which is sometimes given to patients with Duchenne Muscular Dystrophy (DMD) who take steroids. Steroids are part of the recognised standard of care in treating Duchenne Muscular Dystrophy (DMD). But long-term use of steroids...

   Apr 1, 2019

   12m
7. 5

   5. Decoding Duchenne - Clinical trials with Dr David Bull

   In this episode Dr David Bull gives a breakdown about how clinical trials work. This was recorded at our Patient Information Day in September 2018. We host free patient information days twice a year. Please join us at our next information day on Saturday 16th March 2019 at Guy’s Hospital in London.

   Jan 7, 2019

   17m
8. 4

   4. Decoding Duchenne - Advice From Parents

   In this weeks episode of Duchenne UK's DECODING DUCHENNE podcast series, our host Clare Runacres interviews Lisa Kuhwald and Alex Johnson, whose son's both have Duchenne, about the time of diagnosis. Alex Johnson is one of the co-founders of Duchenne UK. Earlier this year, Lisa joined Duchenne UK...

   Dec 21, 2018

   25m
9. 3

   3. Decoding Duchenne - Project Hercules

   In this weeks episode of Duchenne UK's DECODING DUCHENNE podcast series, our host Clare Runacres speaks to Emily Crossley, Fleur Chandler and Josie Godfrey about Project HERCULES. ​​Project HERCULES is a collaborative global project set up by Duchenne UK to increase the chances of patients with...

   Dec 15, 2018

   24m
10. 2

    2. Decoding Duchenne - An interview with Andy Farrell

    This is a special episode featuring Andy Farrell OBE, recorded at Duchenne UK's rugby dinner in September. Andy talks with our host Clare Runacres about his involvement with the charity.

    Dec 8, 2018

    8m
11. 1

    1. Decoding Duchenne - An Introduction To Duchenne UK

    In the first of our podcast series, our host Clare Runacres talks to Emily Crossley and Alex Johnson about why they co-founded the charity - Duchenne UK. They discuss their sons DMD diagnosis and the work the charity is doing to find treatments for Duchenne muscular dystrophy. Duchenne UK is a...

    Nov 26, 2018

    16m