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eCysticFibrosis Review
by eCysticFibrosis Review
Expert insight and analysis providing information directly relevant to cystic fibrosis care, through topic-focused newsletters summarizing the peer-reviewed literature and accompanying podcasts to illustrate how to apply that information in the clinic. Hosted on Acast. See acast.com/privacy for more information.
Episodes
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Cystic Fibrosis Life Transitions
Until the advent of highly effective CFTR modulator medications, cystic fibrosis was considered a pediatric disease, because most individuals did not survive into adulthood. Now, with more adults living with CF than children, priorities must change. In these interviews, we discuss what…
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CF and Diet and Nutrition: The Changing Paradigm
Individuals with cystic fibrosis — adults as well infants and children — have long struggled to gain and maintain their weight. But how has the current widespread use of highly effective modulator treatments — HEMT — changed that situation? That’s the focus of this eCysticFibrosis Review Special...
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ETI (CFTR Triple Therapy): Clinical Opportunities
The advent of triple CFTR modulator therapy – ETI (elexacaftor/tezacaftor/ivacaftor) — poses a number of clinical questions. Are three agents really better than two? For which patients, in what circumstances? What does the CF Team need to understand to ensure their patients get maximum benefit?...
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Pulmonary Exacerbations and IV Antibiotics
Managing pulmonary exacerbations in people with cystic fibrosis: is there high-grade evidence to support best practices? How helpful is the most current guidance? Does the recent research challenge the current standard of care? Join us for this eCysticFibrosis Review podcast, as Dr. D.B. Sanders...
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Race, Ethnicity, and Cystic Fibrosis
Race and ethnicity. How do they affect a patient’s ability to receive a timely and accurate cystic fibrosis diagnosis? How do the social determinants of health limit access to appropriate CF treatment and produce poorer outcomes? That’s what we’re here to talk about today with Dr. Jennifer...
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The Pancreas, Malnutrition, and CFTR Modulators
Pancreatic insufficiency. In children with CF, it’s been associated with delayed development and increased odds of developing severe lung disease. How can it be more accurately diagnosed? And what does the evidence say about the effects of treatment with CFTR modulators? That’s what we explore in...
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CF and COVID-19: The Data and the Real World
Do cystic fibrosis lung impairment and the COVID-19 virus create the disastrous combination they would seem to make? What do the currently published data say about the clinical effects of the pandemic on people living with CF? How have the safety-mandated lockdowns and clinic closures affected CF...
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Managing Psychosocial and Economic Stress
Do cystic fibrosis lung impairment and the COVID-19 virus create the disastrous combination they would seem to make? What do the currently published data say about the clinical effects of the pandemic on people living with CF? How have the safety-mandated lockdowns and clinic closures affected CF...
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Overcoming Shutdown Challenges
Do cystic fibrosis lung impairment and the COVID-19 virus create the disastrous combination they would seem to make? What do the currently published data say about the clinical effects of the pandemic on people living with CF? How have the safety-mandated lockdowns and clinic closures affected CF...
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Maintaining CF Infection Prevention and Control
Do cystic fibrosis lung impairment and the COVID-19 virus create the disastrous combination they would seem to make? What do the currently published data say about the clinical effects of the pandemic on people living with CF? How have the safety-mandated lockdowns and clinic closures affected CF...
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Clinical Considerations for Women with CF
Studies have shown that adolescent and young adult women with cystic fibrosis often turn to their CF care team for answers to their questions about their sexual and reproductive health. But how prepared are CF clinicians to initiate conversations? Do they have the most current data about…
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Antibiotics, Dosing, and CFTR
Airway infections are a hallmark of cystic fibrosis, making antibiotic therapies a mainstay of CF treatment. While the fight against ABX resistance is ongoing, newer data are showing that commonly used dosing regimens may have to be altered to account for the particular pharmacodynamics in people...
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Bringing Telemedicine to the CF Clinic: A Success Story
No-contact telemedicine to better protect CF clinic patients and staff during this pandemic may sound like a great idea, but is it even possible to institute? In this eCysticFibrosis Review Special Edition podcast, we find out how pulmonary and critical care specialists Dr. Dana Albon and Dr....
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CFTR, Growth & Liver Disease: A Clinical Perspective
Where, beyond the lungs, do CFTR modulators provide beneficial effects? Can treatment promote growth in height and BMI? What’s known about CFTR modulator effects on cystic fibrosis-associated liver disease? In this eCysticFibrosis Review podcast, Drs. Darla Shores and Anna Reed from the THRIVE...
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In the Clinic: Triple Combination CFTR Modulation
Elexacaftor/tezacaftor/ivacaftor — the newly approved triple combination CFTR modulator therapy. What are the benefits? For which patients? What are the potential adverse effects? Who’s most likely to receive them? In this issue, Dr. Scott Sagel from the Breathing Institute at the Children’s...
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Addressing Mental Health in CF
Anxiety and depression in cystic fibrosis — who do these conditions affect? How much do they influence patient health? How can clinicians identify and manage them? What evidence-based interventions have been shown to work? In this issue, Dr. Anna Georgiopoulos, Assistant Professor of Psychiatry,...
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Clinical Considerations: New Anti-Inflammatories & New CFTR Modulators
New CFTR modulators for F508del mutations? New research into reducing inflammation in the CF lung? In this issue, Dr. Jennifer Taylor-Cousar from National Jewish Health in Denver explains the potential clinical impact of new and emerging CF disease modifying therapies. Take our post-test to claim...
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Continuous Alternating Therapies: A Clinical Perspective
Inhaled antibiotics have become the foundation of treating chronic respiratory tract Pseudomonas infection in individuals with cystic fibrosis. But what happens when inhaled monotherapy doesn’t sufficiently manage the symptoms? Which patients are appropriate candidates for treatment with multiple...
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In The Clinic: CFTR Modification & Nutritional Deficiencies
The effects of CFTR modifiers on improving lung function in people with cystic fibrosis are well known. But what about their effects on the GI tract that directly affect nutrition? In this issue, Dr. Michael Wilschanski — Director of Hadassah Hospital’s Pediatric Gastroenterology Unit at Hebrew...
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NTM Infection: Today's Treatments & New Antibiotics in Development
Volume 8, Issue 7. Part 3 Hosted on Acast. See acast.com/privacy for more information.
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NTM Infection: Risk of Patient-to-Patient Transmission in CF Centers
Volume 8, Issue 7. Part 2 Hosted on Acast. See acast.com/privacy for more information.
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NTM Infection: Risks of Acquisition from the Environment
Volume 8, Issue 7. Part 1 Hosted on Acast. See acast.com/privacy for more information.
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Clinical Insight: CFTR Modulators
In this issue, Dr. Gregory Sawicki — Associate Professor of Pediatrics at Harvard Medical School and Director of the Cystic Fibrosis Center at Boston Children’s Hospital — discusses how the recent findings about the real-world use of CFTR modulators can impact clinical practice. Take our…
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Clinical Approaches to MDR Lung Infections
Multidrug resistant lung infections present an increasingly common and increasingly dangerous threat to all individuals with cystic fibrosis. Common CF pathogens — Pseudomonas aeruginosa, Burkholderia cepacia complex, Achromobacter xylosoxidans, Stenotrophomonas maltophilia — are all showing...
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Lung Transplant and CRC Screening
Screening to avoid the morbidity and mortality of colorectal cancer (CRC) in patients with CF, with the incidence of CRC rising, has become an increasingly important challenge, particularly among lung transplant patients. But how and when should patients be screened? With colonoscopy or...
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CFTR Modulators: Clinical Insights
Volume 7, Issue 12. In this podcast Dr. John P. Clancy reviews CFTR modulators, and discusses insights presented at the 2017 NACFC. Take our post-test to claim CME credits: Physician post-test Nurse post-test To read a companion newsletter click here. The post CFTR Modulators: Clinical Insights...
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Screening and Diagnosis of CFRD
Volume 7, Issue 10. In this podcast Andrea Granados, MD describes the clinical impact of the early diagnosis of glucose abnormalities in people with CF, summarizes the limitations of alternative modalities for screening and diagnosing CFRD, and and identifies the current recommendations for the...
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New Directions in CFTR Modification
Volume 7, Issue 8. In this podcast Dr. George Solomon discusses new directions in CFTR modification in the context of case studies. Take our post-test to claim CME credits: Physician post-test Nurse post-test To read a companion newsletter click here. The post New Directions in CFTR Modification...
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Nutritional Management for Individuals with CF: Practical Applications
Volume 7, Issue 6. Our guest author is Amanda Leonard, MPH, RD, CDE, from the Johns Hopkins Children's Hospital in Baltimore, MD. Take our post-test to claim CME credits: Physician post-test Nurse post-test To read a companion newsletter click here. The post Nutritional Management for Individuals...
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Adherence – What You Should be Telling Your Patients
Volume 7, Issue 4. Our guest author is Gregory Sawicki, MD, MPH from Boston Children's Hospital, and Harvard Medical School in Boston, MA. Take our post-test to claim CME credits: Physician post-test Nurse post-test To read a companion newsletter click here. The post Adherence – What You Should…
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Weighing the Options in Managing Exacerbations
Volume 7, Issue 2. Our guest authors are Mark T. Jennings, MD, MHS and Rebecca Dezube, MD from the Johns Hopkins University School of Medicine in Baltimore, MD. Take our post-test to claim CME credits: Physician post-test Nurse post-test To read a companion newsletter click here. The post…
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Future Landscape of CFTR Modulators
Volume 6, Issue 12. Claire Wainwright, FRACP, MD and Tonia Douglas, MD cover the important topic of the Future Landscape of CFTR Modulators in the format of case-study scenarios for the clinical practice. Take our post-test to claim CME credits: Physician post-test Nurse post-test To read a...
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Pseudomonas aeruginosa Eradication and Outcomes: Key Questions
Volume 6, Issue 10. Christopher Oermann, MD covers the important topic of the Pseudomonas Eradication in the format of case-study scenarios for the clinical practice. Take our post-test to claim CME credits: Physician post-test Nurse post-test To read a companion newsletter click here. The post...
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Nutritional Issues in Cystic Fibrosis
Volume 6, Issue 8. Dr. Deepak Agrawal, MD covers the important topic of Nutritional Issues in Cystic Fibrosis in the format of case-study scenarios for the clinical practice. Take our post-test to claim CME credits: Physician post-test Nurse post-test To read a companion newsletter click here.…
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Trends in Inhaled Antibiotic Therapy
Volume 6, Issue 6. Daniel Heintz, MD and Karen McCoy, MD cover the important topic of Trends in Inhaled Antibiotic Therapy in the format of case-study scenarios for the clinical practice. Take our post-test to claim CME credits: Physician post-test Nurse post-test To read a companion newsletter...
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Pulmonary Exacerbations and the Microbiology of the CF Lung
Volume 6, Issue 4. Our guest author is John J. LiPuma from the University of Michigan in Ann Arbor, Michigan. Take our post-test to claim CME credits: Physician post-test Nurse post-test To read a companion newsletter click here. The post Pulmonary Exacerbations and the Microbiology of the CF…
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The Current State of CFTR Modification
Volume 6, Issue 2. In this issue we are joined by one of our Program Directors, Dr. Noah Lechtzin from the Johns Hopkins University. Dr. Lechtzin will address the current state of CFTR modification and how it can be applied in practice. Take our post-test to claim CME credits: Physician post-test...
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Breaking Coverage of CAT trial
Special Edition 2015, Part 4. Join us as Dr. Patrick Flume of the Medical University of South Carolina interviews Dr. Stuart Elborn of Queen's University in Belfast, Ireland. Dr. Elborn discusses the implications of the CAT study and how it effects his practice. The post Breaking Coverage of CAT...
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Breaking Coverage of CAT trial
Special Edition 2015, Part 2. Join us as Dr. Patrick Flume of the Medical University of South Carolina interviews Dr. Scott Bell of the QIMR Berghofer Medical Research Institute. Dr. Bell discusses the implications of the CAT study and how it will effect his practice. The post Breaking Coverage…
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Breaking Coverage of CAT trial
Special Edition 2015, Part 1. Join us as Dr. Peter Mogayzel of the Johns Hopkins University discusses the design and findings for the CAT study with Dr. Patrick Flume of the Medical University of South Carolina. Learn about the importance of the study and how it may effect your practice. The post...
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Agents for the management of Pseudomonas aeruginosa infection
Volume 5, Issue 14. In this issue we are joined by Dr. Shawn Aaron of University of Ottawa in Ontario, Canada. Dr. Aaron will discuss infection in patients with optimal therapy of chronic Pseudomonas aeruginosa cystic fibrosis, describe the pathophysiology of pulmonary exacerbations associated…
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Benefits of CFTR Modification Beyond FEV1 Improvement
Volume 5, Issue 12. In this issue of eCysticfibrosis Review Dr. Chris Goss of the University of Washington Medical Center. Dr. Goss discusses the benefits of CFTR modification beyond Fev1 improvement through the use of patient-cases. The post Benefits of CFTR Modification Beyond FEV1 Improvement...
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The Effects of CFTR-modifying Therapies
Volume 5, Issue 10. In this issue of eCystifibrosis Review we will be join by Dr. Stuart Elborn of Queens University in Belfast, Northern Ireland. Dr. Elborn discusses the effects of CFTR-Modifying Therapies. He will present three patient-case scenarios and identify appropriate treatment options....
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Optimizing Nutrition in Individuals with Cystic Fibrosis
Volume 5, Issue 8. In this issue of eCysticFibrosis Review Dr. John Pohl discuses how to optimize nutrition in individuals with CF. Through patient case-scenarios he applies best practices to achieve optimal nutrition using PERT dosing. The post Optimizing Nutrition in Individuals with Cystic...
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Improving digestive capabilities in nutritionally compromised patients with CF
Volume 5, Issue 6. In this issue Dr. Steven Freedman, Professor of Medicine from Harvard Medical School discusses digestive capabilities in nutritionally compromised patients with CF. Listen in as Dr. Freedman explains the importance of pancreatic enzyme replacement and present patient scenarios...
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P. aeruginosa eradication and reinfection
Volume 5, Issue 4. In this issue of eCysticfibrosis Review Dr. Ratjen discusses the challenges of P. aeruginosa eradication. He explains the importance to treat early and available treatment options. He also addresses whether treatment should be repeated in patients who develop recurrence of...
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Pulmonary exacerbations: diagnoses, and therapeutic regimens
Volume 5, Issue 2. In this podcast Dr. Patrick Flume, Professor of Medicine and Pediatrics at the Medical University of South Carolina in Charleston, discusses pulmonary exacerbation. He provides patient case scenarios to understand the importance of pulmonary exacerbation and the ability to...
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What Does CFTR Tell Us About Lung Disease?
Volume 4, Issue 12. In this issue our guest author is Dr. Patrick Sosnay, Assistant Professor at the Johns Hopkins Cystic Fibrosis Center. Dr. Sosnay will illustrate how the genetics of CF can be used to make a diagnosis or identify a CF carrier, predict how individuals with a given mutation will...
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Behavioral Treatment to Improve Dietary Adherence and Weight Gain in Children with Cystic Fibrosis
Volume 4, Issue 10. In this podcast we have guest author Lori Stark, PhD, ABPP, Professor of Pediatrics at the University of Cincinnati College of Medicine. Dr. Stark, discusses how to use “shaping” to encourage a child to eat a non-preferred food, describes the role of “attention” in maintaining...
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Highlights of the 27th Annual North American Cystic Fibrosis Conference
Special Edition 2014 – Steven Rowe. In this special edition of eCysticFibrosis Review, Dr. Peter Mogayzel discusses data findings from Dr. Steven Rowe results of the G551D observational study presented at the 27th Annual North American Cystic Fibrosis Conference in Salt Lake City, Utah. The post...
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ABOUT THIS SHOW
Expert insight and analysis providing information directly relevant to cystic fibrosis care, through topic-focused newsletters summarizing the peer-reviewed literature and accompanying podcasts to illustrate how to apply that information in the clinic.
Hosted on Acast. See acast.com/privacy for more information.
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eCysticFibrosis Review
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