PODCAST · health
Help and Hope Happen Here
by Mark Levine
This Podcast is going to be about Pediatric Cancer and the need to keep the awareness of this terrible disease in the public eye. My plan is to be able to interview a wide spectrum of people who all have a passion and a stake in finding a way to make the lives of these Pediatric Cancer Patients easier. I will interview oncologists, nurses, recovered patients, parents who have had to oversee their children's cancer fight, heads of Pediatric Cancer Foundations and Organizations , and others who would like to use this forum to advocate for these children.
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Lauren and TJ Bailey will talk about their son Brody who was born with a Congenital Diaphragmatic Hernia in early 2023 and then just after his first birthday he was diagnosed with Neuroblastoma.
Brody Bailey is one of possibly two children in the World who have been born with a Congenital Diaphragmatic Hernia and then diagnosed with Neuroblastoma. Lauren and TJ Bailey are Brody's parents and will talk about his journey with the good news being that he is more than 3 years old and is doing as well as possible health wise. The Bailey family has received great support from their Township of Deptford New Jersey community, especially from Rich Nardiello who is the head of the great Pop Pop Custom Cars Non-Profit and a wonderful advocate for the cause of Pediatric Cancer.
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Jordan Belous will talk about her spectacular connections that she has made with so many pediatric cancer patients and their families through her WHIP PEDIATRIC CANCER Non-Profit
Jordan Belous has always had a soft spot for Pediatric Cancer Patients and when she was 16 years old in 2015 she issued a "challenge", much like the Ice Bucket Challenge, when she created a video that went viral by dancing for 14 seconds to the song WHIP/NAE NAE by Rapper Silento to either Dance or Donate. More than 7000 people took up her challenge and donated more than $100,000 to Memorial Sloan Kettering to fight the cause of Pediatric Cancer. That was the birth of her WHIP PEDIATRIC CANCER Non- Profit. Since that time Jordan has personally developed long standing and iron clad friendships with more than 300 Pediatric Cancer patients and has done extraordinary work for these kids, their families and the cause of Pediatric Cancer.
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Matt Giegerich will talk about his role as CEO of the Matthew Larson or Iron Matt Foundation for Pediatric Brain Tumors which was started by young Matt's parents Kelly and Greg after his passing from a form of Pediatric Brain cancer in 2007
Matt Giegerich has been the Chief Executive Officer of The Matthew Larson Foundation for Pediatric Brain Tumors for the past 18 months. This foundation, also known as the Iron Matt Foundation, was started by young Matt's parents Kelly and Greg after Matt passed away from the Pediatric Brain Cancer Choroid Plexus Carcinoma in 2007, when he was 7 years old. This Foundation focuses on helping families with financial assistance as well as focusing on raising money to award Grants to researchers who are trying to help solve the many issues that are involved with Pediatric Brain Cancer. This Foundation has now awarded over 100 Grants to researchers in the United States and Canada.
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Leslie and Michael Fox will talk about their son Mason who was diagnosed with Acute Lymphoblastic Leukemia in April of 2023, was doing well, and then was attacked by a Fungal infection that led to his passing in February of 2024.
Mason Fox was 10 years old when he was diagnosed with Acute Lymphoblastic Leukemia in April of 2023. Mason then went through treatment and was doing very well with his recovery before a Fungal infection got the best of him quickly in February of 2024, and led to his surprising and unfortunate passing, not even 10 full months past his original diagnosis. His parents Leslie and Michael detail the amazing persona that Mason had as he was most concerned with helping others even during treatment for this blood cancer, as he bought toys with his own money and would walk down the halls at St. Joseph's Children's Hospital with these toys in a wagon, hooked up to his IV pole, and would deliver them to the other Pediatric Cancer patients on his floor.
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Nick and Sarah Bascle will talk about their son Liam who was diagnosed with an Ependymoma Brain Tumor when he was 10 months old in April of 2015, and lived his best life possible before his passing on November 23rd of 2021
Liam Bascle was only able to live 7 1/2 years because of an Ependymoma Brain Tumor that he was diagnosed with in April of 2015. His persona resonated with many people despite his tender age and many tributes came his way after his very unfortunate passing in November of 2021, after fighting with this Brain Tumor for 6 1/2 years . To honor the memory of their beloved son his father Nick, with support from his mom Sarah, started the Links Fore Liam Golf Tournament in New Hampshire to help raise money for the cause of Ependymoma and Pediatric Cancer. This tournament is now held in New Hampshire, Colorado, and Louisiana, with at least 4 more locations on the horizon.
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Amy and Matt Cisneros will talk about their son Cullen who was diagnosed with Acute Myeloid Leukemia when he was 3 years old in 2012, gained remission quickly, was in good health for the next 8 years, and then was diagnosed with Ewings Sarcoma
After being diagnosed with Acute Myeloid Leukemia when he was 3 years old in 2012, Cullen Cisneros was able to live the next 8 years of his life free of cancer until 2020 when leg pain during a baseball game led to a diagnosis of Ewings Sarcoma. Cullen's parents Amy and Matt will talk about their beloved son, who fought from 2020 until May of 2025 to try and do everything he could to stay alive, only to pass away from this Bone Cancer when he was 15 years old.
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Amelia Mijach will talk about her son Hayes who was diagnosed with High Risk Acute Lymphoblastic Leukemia when he was 2 years old in 2024 and after very difficult treatment, he is finally feeling better and is back to being an active little boy.
Amelia Mijach's then 2 year old son Hayes was diagnosed with High Risk Acute Lymphoblastic Leukemia when he was 2 years old in August of 2024 and the reason for his high risk status was because of his extraordinarily high white blood cell count at diagnosis. Hayes then contacted a serious fungal infection during his consolidation phase of his treatment and during the next year and a half of treatment he needed to fight off a battle of Neutropenic Fever and he experienced other battles as well. Finally in December of 2025 Hayes turned the corner and is doing much better physically and is as active as possible.
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Erik Rees will talk about his daughter Jessie who was diagnosed with DIGP on March 3rd of 2011 and passed away only 10 months later on January 5th of 2012 when she was 12 years old. Jessie was the inspiration behind the Jessie Rees Foundation.
Erik Rees became an amazing Cancer Dad and Pediatric Cancer advocate during and after his daughter Jessie battled with and passed away from DIPG at the age of 12 in January of 2012. Erik talks about his beloved daughter and then details the Jessie Rees Foundation which was started because of Jessie's wish to help Pediatric Cancer patients who were at Children's Hospital of Orange County in California. Jessie started her Jessie's Joy Jars while battling her Pediatric Brain Cancer, and nearly 600,000 patients have received these Joy Jars in the United States and across the globe since Jessie was able to donate 3000 of these to patients before her passing. This foundation now raises 5 1/2 million dollars each year.
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Ben Shroyer will talk about his now 10 year old daughter Hannah who is a survivor of Stage 4 Neuroblastoma and Histiocytosis and will talk about his Casting For The Kids Foundation which he started to help families financially and emotionally.
Ben Shroyers then 2 year old daughter Hannah was diagnosed with Stage 4 Neuroblastoma in 2018, then was diagnosed with Histiocytosis which ended up in her brain before she became cancer free in 2021. Now 10 years old and in 3rd grade, Hannah is doing well health wise. Ben started the Casting For The Kids Foundation in 2020 during the pandemic as a way to help families both emotionally and financially through a fishing tournament which has now raised $460,000 over the past 6 years . Ben is an amazing advocate for families in the Sarasota, Florida area and what he has accomplished through his foundation for many individuals and families in the Pediatric Cancer world is truly outstanding.
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Kelly DiGiammo and her son Brayden will talk about Brayden's battle with Acute Myeloid Leukemia which Brayden was diagnosed with in late February of 2024. Brayden is now just one month away from the second anniversary of his remission and is doing well
When Kelly DiGiammo's son Brayden was 13 years old in early 2024 he developed troubling health symptoms, including going from being one of the fastest runners in the school to losing his breath and running very slowly, experiencing continuing colds, and then having a bout with the flu. Brayden was diagnosed late in February of that year with Acute Myeloid Leukemia. Brayden successfully completed a Stem Cell Transplant and has been in remission since May of 2024. Kelly and Brayden will talk about his journey which has been a successful one and Kelly will also talk about her experiences getting involved in advocacy work for the cause of Pediatric Cancer.
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Mary Kemp and Kaitlyn Lee will talk about the Society For Emerging Leaders organization which Mary co-founded in 2022 and which Kaitlyn is its Executive Director. This organization is made up by over 350 students..
The bill AB 703 which was signed into law by California Governor Gavin Newsom and which I talked about with Sahil Metha on my podcast a few weeks ago is just one of the important accomplishments that was led by the Society Of Emerging Leaders, which was co founded by Mary Kemp in 2022 and is under the direction of Kaitlyn Lee. This law now gives the voters in California the option to check off a box on their state tax form if they would like to donate to the cause of Pediatric Cancer. Mary and Kaitlyn will talk about many of the other programs that The Society For Emerging Leaders have started in California to benefit the cause of Pediatric Cancer.
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Jacob Orlick was 11 years old when he was diagnosed with Ewings Sarcoma in 2019. Now 18 years old and doing well, Jacob will talk about his roles as A Motivational Speaker and his podcast, Motvational Mic.
Jacob Orlick is now a senior in High School and making plans to attend Penn State University in the fall. Jacob was 11 when he was diagnosed with the Bone Cancer Ewings Sarcoma, had his right leg amputated, but has been able to live a fulfilling life which includes his work as a Motivational Speaker and his Podcast entitled Motivational Mic. Jacob is hoping that his career path leads him into becoming a Professional Sports Broadcaster.
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Dr. Katerina Levy is a Pediatric Psychologist who has written a book entitled THE HEALING GARDEN. This book is fiction but gives great strategies to kids and families who are trying to cope with a Pediatric Cancer diagnosis.
Dr. Katerina Levy decided to write her book THE HEALING Garden while she was a resident at the Broward Medical Health Center in South Florida. This book was based on the Healing Garden that she saw while at that Medical Center and is full of strategies that work for kids who are trying to cope with being diagnosed with any form of Pediatric Cancer. Dr. Levy is still in the very early stages of her career as a Pediatric Psychologist.
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Meghan Macantee was diagnosed with Acute Myeloid Leukemia as a sophomore at SUNY Potsdam where she originally hurt her hamstring during swimming practice. Meghan is fine now but went through some terrible times before her diagnosis .
Being treated terribly by her swimming coach and eventually belittled and made fun of by her teammates, Meghan Macantee was diagnosed with Acute Myeloid Leukemia in the fall of 2023, during her sophomore year at SUNY Potsdam where she was a member of the swimming team. Before her diagnosis, Meghan went to the emergency room 11 times where she was also treated poorly. In short, no one believed this wonderful young woman The fact that she was diagnosed with such a difficult form of Pediatric Cancer says it all. Meghan is now doing well health wise and giving back to others with her non-profit MEGHANSMISSIONINC. Meghan never received an apology from any of the people who so terribly wronged her. SHAME ON THEM.
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Kim Alexander will talk about her daughter Payton who was 15 years old when she was diagnosed with Ewings Sarcoma in January of 2018 and fought bravely for 3 1/2 years until her passing in November of 2021 at the age of 19
Payton Alexander was living a healthy and normal life for a 14 year old until late in 2017 when she began experiencing symptoms that needed to be checked out. These symptoms led to her diagnosis of Ewings Sarcoma in January of 2018. Payton continued to try and live as good of a life as possible as she joined the Make A Wish and Little Warrior Foundations to try and help other patients suffering from Pediatric Cancer. Payton fought for 3 1/2 years with this Bone Cancer before her passing in November of 2021 when she was 19. Her mom Kim, who talked beautifully about her beloved daughter during our podcast, has been involved in the cause of Pediatric Cancer since Kim's passing, with her Payton Alexander Foundation.
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Tamy Bell will talk about her son Griffin who was diagnosed with Neuroblastoma when he was 16 months old in September of 2018, and had his 3rd relapse in April of 2023, leading to his passing at 6 years old in March of 2024.
Tamy Bell's son Griffin was born 3 months prematurely in June of 2017 and 16 months later was diagnosed with Neuroblastoma in September of 2018. Griffin relapsed on two occasions after that but then in April of 2023, had a 3rd relapse that was more severe as his cancer had spread to his orbital bone. This relapse took away any realistic hope of further treatment that would help Griffin, and he passed away on March 18th of 2024, 3 months before his 7th birthday,
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Sahil Mehta will talk about the amazing and far too short life of his older brother Ronil who passed away from DIPG in 2018 and what Sahil did subsequently in Ronil's honor and memory to greatly affect the cause of Pediatric Cancer.
Sahil Mehta's older brother Ronil wanted to donate his brain to Stanford University after his passing from DIPG in 2018 in the hope that it would help another DIPG Victim in the future. Sahil took this request as his personal responsibility and then got so involved in the cause of Pediatric Cancer that he eventually worked with California Assemblyman Alex Lee to form the bill AB703, that would give the California State Taxpayers the option on their tax forms to check a box that would allow them to donate to the cause of Pediatric Cancer. This bill was fully formed and ready by July of 2025 to have Governor Gavin Newsom sign it into law. California is now only the 8th state in the country to have this provision on their tax form and Sahil is hoping that many other states will join in this effort to bring much more money into the cause of Pediatric Cancer.
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Carrigan Nelson's mom Tammy, her Aunt Bonnie, and closest friends Devean Piermont, Hannah Nasser, and Madison Quinn will join in a tribute to a true Icon, who passed away from Osteosarcoma on Christmas Day of 2025.
Carrigan Nelson was diagnosed with Osteosarcoma in March of 2019 and fought for the next 69 months with this form of Pediatric Bone Cancer until her passing on Christmas Day in 2025 when she was 24 years old. Carrigan was a truly Iconic young woman who did so much for the cause of Pediatric and Adolescent Cancer and was beloved by everyone that knew her. A very well accomplished Singer, Dancer, and Artist, she looked at life with Joy and nothing mattered to her more than trying to inspire other young patients with her singing and reaching out in compassion to help others in any way possible. Her mom Tammy, her Aunt Bonnie, and her greatest friends Deaven Pierpoint, Hannah Nasser, and Madison Quinn will talk about their beloved daughter, niece, and friend in this Tribute To Carrigan.
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Tony Garcia is now 55 years old and is a 43 year Pediatric Cancer survivor, having been diagnosed with Leukemia when he was 2 1/2 years old in 1973 and his treatment ended 10 years later in 1983.
Tony Garcia will talk about his early in life Pediatric Cancer battle which began in 1973 when he was diagnosed with Leukemia when he was 2 1/2 years old. Tony's treatment finally ended nearly 10 years later in 1983 and since that time he has been doing as well as possible for the past 43 years, as a long term Pediatric Cancer survivor. Now 55 years old, Tony just published his first book (memoir) at the end of January called MY CHILDHOOD CUT SHORT. SURVIVING LEUKEMIA AND FINDING PURPOSE BEOND PAIN. Tony also is involved in supporting Pediatric Cancer patients through fundraising, volunteering, and advocacy work.
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The Leandro Family which includes 9 year old Jack, 11 year old Sydney, and parents Lyndsey and Adam will talk about Sydney's diagnosis of Acute Lymphoblastic Leukemia and what her brother Jack did in response to it.
Sydney Leandro was 5 years old on Easter Sunday of 2020 when she was diagnosed with Acute Lymphoblastic Leukemia. Now at age 11, Sydney is feeling and doing well and is able to live a good life. In 2025 her brother Jack, who is now 9 years old, decided to start a non-profit called PUCKS FOR BUCKS in which he shot approximately 200 pucks a day from his driveway into a hockey goal and raised $1.00 for each puck he shot, which he donated in Sydney's honor and to help other Pediatric Cancer Patients. He donated this money to the A Wish Come True Non- Profit which had treated the Leandro family to a trip to San Diego in 2023. Jack will continue his non profit after his current hockey season ends and will begin from where he left off last summer in which he had totaled 10,027 pucks shot.
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Kendel Davy and Meghan Fessenden will talk about Meghan's sister Riley who was diagnosed with the Nasal Cavity cancer Esthesioneuroblastoma when she was 6 years old in 2013 and passed away from this disease in 2016 at the age of 9
Kendel Davy is a Founding Member of the Riley Rocks Memorial Foundation and Meghan Fessenden is the Director of Social Media and Marketing for the Foundation and is Riley's sister. Together they will talk about Riley who was diagnosed with Esthesioneuroblastoma which is a Pediatric Cancer of the Nasal Cavity when she 6 years old in 2013, and battled for 3 years before her passing on July 20th of 2016 when she was 9 years old. They will also talk about their Foundation which was started by Riley's parents Kamie and Todd.
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Tara Daniels will talk about her 2009 diagnosis of Acute Lymphoblastic Leukemia when she was 16 years old and her relapses in 2012 and 2016. Tara is now more than 9 years past her last cancer battle and is living as good of a life as possible.
Tara Daniels is now 33 years old , married, working at a job that she enjoys , and living as good of a life as she can. Back in 2009 when Tara was 16 years old this was not the case as she was diagnosed with Acute Lymphoblastic Leukemia . Tara relapsed twice, with the last relapse coming in 2016. Tara then received a Bone Marrow transplant and since that time period, she has been cancer free. Tara will talk about all that she has been through, including survivorship on today's podcast.
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Gabriella and Nicholas Conjelko are 22 year old twins who will talk about their cousin Maia who passed away from Ewings Sarcoma at the age of 9 on November 2nd of 2025. They will also discuss their wonderful non-profit Strides For Sarcoma.
Gabriella and Nicholas are 22 years old, and about to graduate from Purdue University and Indiana University respectively. This fall they will enter Medical School and will likely pursue careers in the medical field that will concentrate on Pediatric Cancer. Their cousin Maddox is now 14 years and well past his battle with Acute Lymphoblastic Leukemia but Maddox's sister Maia, who was diagnosed with Ewings Sarcoma in 2022 when she was 6 years old, passed away from this Bone Cancer on November 2nd of 2025. Gabriella and Nicholas will talk about what Maia went through during her cancer battle and will also talk about their amazing Strides For Sarcoma Non-Profit which they started after Maia relapsed, which shows both their dedication to Maia and their dedication to doing what they can to help eradicate the disease that Maia was forced to go through.
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Suzanne Graney will talk about being the Executive Director of the Four Diamonds Pediatric Cancer Charity Organization which has raised more than $350 million dollars since it was started in 1972 by Charles and Irma Millard.
After their son Christopher passed away in 1972 from Rhabdomyosarcoma, Charles and Irma Millard decided to start a Charitable Gift Fund that would help Pediatric Cancer Patients and their families. This organization was named Four Diamonds and Suzanne Graney, who has been its Executive Director for the past 15 years, will talk about this amazing organization which pays all expenses for each child that is treated at Penn State Health Golisano Children's Hospital that are not covered by insurance. Four Diamonds is part of Penn State University and has been partnering with their Dance Marathon known as Thon which is the largest Student Run Philanthropy in the World. All of the proceeds go to Four Diamonds to help Penn State Health Golisano Children's Hospital and Penn State College of Medicine to fight Pediatric Cancer.
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Maithili Shah who is from Mumbai India will talk about her son Agastya who was diagnosed with Medulloblastoma when he was 6 months old in late July of 2023. After a difficult beginning to his treatment, Agastya is now doing as well as possible.
Maithili Shah was told by one surgeon that her then 6 month old Agastya who was diagnosed with Medulloblastoma in July of 2023, would most likely not survive 4 more months. Thankfully, Matihili and her husband made a change in surgeon's, Agastya's Brain Tumor was totally resected, and now, over 2 1/2 years later , Agastya is doing well physically as he continues to make progress from this Pediatric Brain Cancer.
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Johanna Annuziata and Angela Blazis will talk about Angela's then 4 year old daughter Ava who was diagnosed with Acute Lymphoblastic Leukemia in 2023 and how Basketball has played such a major role in TEAM AVA
4 year old Ava Blazis woke up on the morning of March 11th 2023 with a very unusual pain in her abdomen which continued to get worse as the day wore on. Her mother Angela brought her to UMass Memorial Medical Center and 3 days later on March 14th, she was diagnosed with Acute Lymphoblastic Leukemia. Angela and Ava then spent the next 65 days at Boston Children's Hospital while Ava was undergoing treatment. Meanwhile Angela's sister Johanna Annuziata got busy with helping to look after Ava's brother Michael, and also helping to start Team Ava, an unofficial Non-Profit, which has already raised over $300,000 to help in the cause of Pediatric Cancer. Ava is now 7 years old and is doing well physically as she has been in remission since May of 2025.
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Alexandria Rodts and her husband Matthew will talk about their son Brayton who was diagnosd with the Pediatric Brain Cancer ATRT in August of 2023 after a far too long 6 month wait, and now is doing as well as possible as he will be 4 years old in 2026
Alexandria Rodts's son Brayton got the stomach flu in February of 2023 which had already affected his family in January. Brayton's symptoms continued well past the normal time for a stomach flu to be an issue, and this was not helped by the fact that all the doctors he went to basically came to the same conclusion that by taking Zofran, he would feel better. 6 months later, in August of that year his diagnosis of ATRT which was so shocking, was finally confirmed at Rady's Children's Hospital in San Diego, thanks to his pediatrician who pushed much harder than others to get Brayton's true issue diagnosed correctly. He was 19 months old at the time of his diagnosis. Brayton is feeling well and doing as well as possible as 2026 is underway.
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Marie Gulliver will talk about her son Ezra who was diagnosed with High Risk Acute Myeloid Leukemia when he was 2 years old in 2022, has had many struggles since, but has been cancer free for more than 3 years.
Persistent colds and a chronic cough were followed by not being able to walk and being constantly tired for Marie Gulliver's 2 year old son Ezra in 2022. These symptoms were finally diagnosed as High Risk Acute Myeloid Leukemia, which was complicated by a genetic mutation and the always difficult Graft vs, Host Disease after Ezra received a successful Bone Marrow Transplant in September of 2022. Ezra has been cancer free for more than 3 years and has ony a 5 percent chance of a relapse which is great news for him and his family.
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Aaira Khan is 13 years old and lives in Sydney Australia. She will talk about her commitment to the cause of Pediatric Cancer since 2021, including riding in the Great Cycle Challenge and starting her own CAN CAMPAIGN to help these kids.
When Aaira Khan was in 5th grade in 2021 she and her classmates at their school in Sydney Australia received a letter from a Pediatric Cancer patient which talked about the Great Cycle Challenge. Aaira quickly decided to ride in this event to raise money for this patient and for the cause of Pediatric Cancer. Aaira has now ridden in this event each year since and in the fall of last year, started her own CAN CAMPAIGN fundraiser. This fundraiser focuses on people picking up empty cans, bringing them to get recycled, and taking the proceeds that they receive from each can and donating all of these proceeds for research, to help join in the fight for these kids who need as much help as possible as they fight their own cancer battels. This campaign was just started 3 months ago and has already raised $2600.
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Sara Bailey will talk about her daughter Brynlee who was diagnosed with Medulloblastoma in April of 2025 when she was 4 years old, and the much longer then necessary wait for this diagnosis.
With all types of troubling symptoms which began at the end of 2024, Sara Bailey was told that these symptoms in her then 4 year old daughter Brynlee indicated that she had Strep Throat, after the doctors that she was seeing basically dismissed her symptoms and how she was feeling. This totally unnecessary DELAYED DIAGNOSIS took approximately 4 months until her symptoms were actually examined, thanks to the insistence of Sara that Brynlee needed the proper testing which she finally received. Brynlee is scheduled later this week to Ring The Bell indicating that her treatment for her Pediatric Brain Cancer Medulloblastoma has ended, and hopefully will go into remission with a much better future then she was allowed to have when she was 4 years old and diagnosed on April 9th of 2025.
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Katie Taylor will talk about her very successful 15 year career to this point as a Certified Child Life Specialist, as well her accomplishments as a Public Speaker. Author, and Host of the INSIDE THE CHILDREN'S HOSPITAL Podcast.
Among Katie Taylor's successes as a Certified Child Life Specialist over the past 15 years have been focusing on the parents of the children that are undergoing treatment for Pediatric Cancer, and empowering these parents to help get their children and adolescents ready for upcoming doctor's appointments, which can be a tricky proposition. Katie also established a Child Life Services program at a Newborn Intensive Care Unit with an astounding 80 beds to help these critically ill newborns. These accomplishments also go along with her being an Author, Public Speaker, and Podcast Host. Katie is an extremely busy and totally dedicated professional .
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Tony Suttles and James Cumby will talk about the Dirt Track Car Race FIGHT LIKE A KID that Tony started to raise money for the cause of Pediatric cancer in 2024 and the great impact that it has already had.
When Tony Suttles heard about 9 year old Haley Chandler being diagnosed with a form of Pediatric Cancer in 2020, he decided that he needed to do something to help this girl and their family. His solution was to start a Dirt Track Car Race and decided to call it FIGHT FOR A KID. His first race in 2024 attracted 80 cars on a track that normally had 30 cars race each weekend. By 2025, 106 cars entered and over $12,000 was raised in honor of kids like Haley who were going through their individual cancer battles. Tony and James Cumby, the father of 12 year old Brailynn Cumby who I spoke with on my Podcast on Christmas Day about her Ewings Sarcoma battle, will talk about this race and the expansion plans they have for it beginning in September when their next race is scheduled.
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Liz and Adie Alonzo will talk about Adie's diagnosis of Hodgkins Lymphoma when she was 14 years old late in 2024 , and is doing well health wise as this now 16 year old has been in remission since May 29th of 2025.
The only symptom that 14 year old Adie Alonzo was showing beginning in the spring of 2024 was an enlarged lymph node on her left side that had not impacted Adie's health in any way. It was not until 7 months later that this swollen lymph node was diagnosed as Hodgkins Lymphoma. After undergoing difficult treatment at Kaiser Hospital in Fontana California, Adie achieved remission on May 29th of 2025 and is doing well as 2026 begins. Adie is now 16 years old.
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Latanya Morrison will talk about her role as Grandmother to Ahmad Butler who passed away from Ependymoma when he was 6 1/2 years old in 2015, and her role as Executive Director of the Ahmad Butler Foundation.
Ahmad Butler described the headache that he was dealing with as "Pain On The Brain" in February of 2015, a headache that was almost immediately checked out, and one day later Ahmad was undergoing Emergency Brain Surgery at St. Christoper's Hospital in Philadelphia. This surgery revealed that Ahmad was suffering from the Pediatric Brain Cancer Ependymoma. Ahmad lived for only 9 months after his diagnosis, passing away at 6 1/2 years old in November of 2015, and his Grandmother Latanya Morrison started the Ahmad Butler Foundation in 2020, a Foundation that she has been running with unyielding focus and passion.
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Dr. Cristina Pozo-Kaderman will talk about her very thorough and easy to read book COPING WITH CANCER IN EARLY ADULTHOOD , a malady that strikes 80,000 young adults in the United States each year and is considered the "forgotten" cancer problem.
Dr. Cristina Pozo- Kaderman is the Director of the Young Adult Program at the Dana Farber Cancer Institute and just published her book COPING WITH CANCER IN EARLY ADULTHOOD, a book that talks about the many issues that young adults, beginning at age 19 have to go through. These issues have a wide variety of problems attached to them and Cristina writes about the many solutions for which this group of cancer fighters can choose from to help them live their best lives possible.
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Brailynn Cumby and her parents Raquel and James will talk about Brailynn's shocking diagnosis of Ewings Sarcoma in October of 2024 when she was 11 years old and her interest in helping others, even during her treatment
When a "small pimple" that was on 11 year old Brailynn Cumby's back that seemed to be a simple cyst turned into Ewing's Sarcoma in October of 2024, her parents Raquel and James, not to mention Brailynn, were shocked. Brailynn went through her treatment which ended on September 9th of 2025 when she was able to Ring The Bell at Texas Children's Hospital and while in treatment, Brailynn managed to write a book entitled PETALS OF HOPE and also managed to design a Chemo Shirt which hopefully will be put to good use by other pediatric cancer patients.
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Caitlin White will talk about her son Grant who was diagnosed with B Cell Acute Lymphoblastic Leukemia at 2 years old in November of 2022 after a seemingly small bite on his thumb turned into a far more serious matter
Caitlin White's son Grant was 2 years old when he complained of pain from his thumb in November of 2022. This pain was not taken seriously enough by his doctors, one of whom looked at Grant while he was lying on the floor and gasping for breath in the hospital waiting room and said that his "shift was almost over" and he would order him a prescription, which had been the supposed solution heard too many time before by Caitlin. Caitlin then demanded a change in doctors, receiving a new female doctor, and this led to Grant finally being diagnosed properly for Leukemia, and began his treatment almost immediately.
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Chad Gordon will talk about his daughter Adley who was diagnosed with B Cell Acute Lymphoblastic Leukemia just before her 2nd birthday in February of 2022, underwent 800 days of treatment , and is doing very well 18 months after her treatment ended.
Chad Gordon radiated positivity when talking about his daughter Adley's successful battle with B Cell Acute Lymphoblastic Leukemia which began just before her 2nd birthday in February of 2022, and ended 800 days later when she was able to Ring the Bell at Penn State's Hersey Children's Hospital. Chad talks about what Adley went through, and also how the THON event which is a very well known Dance Marathon at Penn State, and the Four Diamonds Childhood Cancer Organization did so much to help Adley and the Gordon Family.
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Tim Finkel will talk about his beloved son Ryder, who was 7 years old when he was diagnosed with the terrible Pediatric Brain Cancer DIPG in October of 2023, and passed away just 54 days ago on October 22nd.
I am always amazed and humbled when any parent can come on to my podcast to talk about the passing of their child from any form of pediatric cancer. This feeling was no more striking than in my conversation with Tim Finkel, who spoke so eloquently about losing his and Angela's youngest son Ryder just 54 days ago to DIPG at the age of 9. This Pediatric Brain cancer still does not have any type of good news as far as a survival rate is concerned, which is the same story that DIPG parents and families have been hearing for over 60 years.
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Logan McCullough will talk about her now 4 1/2 year old daughter Waylynn who was diagnosed with High Risk B Cell Acute Lymphoblastic Leukemia in January of 2024 and is feeling much better after the difficult treatment that she underwent.
Even though it made perfect sense that 2 year old Waylynn McCullough was experiencing the same cold like symptoms that her dad Kevin and her mom Logan had already been through, Waylynn was not as fortunate to say the least, as what she was experiencing was her lead up to her High Risk B Cell Acute Lymphoblastic Leukemia diagnosis which was given to her in January of 2024. Waylynn is now 4 1/2 years old and has been through a very difficult initial treatment plan which was followed by a very difficult Delayed Intensification Treatment plan. Waylynn is now feeling well and thankfully is leading the life for the most part as a very healthy 4 1/2 year old girl.
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16 year old Grace Eline will talk about her recovery from the Stem Cell Cancer Germinoma which was found in her brain when she was 9 years old, and her amazing Advocacy work for Pediatric Cancer that she has been working on since she was 4 or 5 years old.
Grace Eline was taught values by her mom Aubrey and her father Dan at a very early age, that giving to others was far more important than wanting for yourself. Well before she was diagnosed with the Germ Cell Cancer Germinoma which took place when Grace was 9 years old, Grace had decided that rather than accepting birthday gifts, she wanted people to donate to the cause of Pediatric Cancer. Now 16 years and completely healthy, Grace started the WITH GRACE INITIATIVE as a non-profit to help other Pediatric Cancer Warriors and their families as they go through their cancer battles. This outstanding young woman attended the State of the Union when she was 10 years old as a Pediatric Cancer Representative, and has continued her work to help others, practicing the lessons that she was taught by her parents over 10 years ago.
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499
Multi Award winning 16 year old Film Director Nya Chambless and her father Jerry will talk about the Short Film MY GUARDIAN ANGEL that Nya directed, which is the true story of Nya's relationship with Teeja Johnson, who passed away from Neuroblastoma
Nya Chambless is now 16 years old, has been an actor since she was 4 years old, and is the now the Award Winning 16 year old Director of the Short Film MY GUARDIAN ANGEL. Nya and her father Jerry, who is the film's producer, will talk about this film which details the true story of the friendship between Nya and Teeja Johnson, who met in pre kindergarten, became best friends , and then Teeja passed away from Neuroblastoma just 5 months later. This film was introduced to Film Festivals across the country and beyond in April of 2025, has won multiple awards, and features topics such as Inclusion, Acceptance, Love, Friendship , the scrooge of Bullying, and awareness of Pediatric Cancer. If you would like to see information on this film click on this link. http://www.griefdialogues.com/my-guardian-angel/
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498
Amelia Fish will talk about her daughter Abby's Diagnosis of Choroid Plexus Carcinoma in the summer of 2025, which was complicated by her genetic condition of Li Fraumeni
When Abby Fish, who was still under the age of 2 in the summer of 2025 was diagnosed with the Pediatric Brain Cancer Choroid Plexus Carcinoma, her mom Amelia and her dad Joel were told how rare and difficult this cancer was. When they then found out that Abby also had the genetic condition Li Fraumeni to go along with her Brain cancer, they were told that the chances of her surviving until she was at least 5 years old were less than 12 percent. After hearing that, they found the Burzynski Clinic in Houston Texas, and that Dr. Burzynski had treated a young woman named Kaityln who is now 25 years old, and had suffered from both the same cancer and same genetic condition that Abby has. Abby is now following the same treatment path that Kaitlyn did.
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497
Karla Gess will talk about her daughter Kadence who has been fighting Stage 4 Neuroblastoma for 17 months, and still has at least one year of treatment in front of her.
Karla Gess's daughter Kadence had been limping on her right leg for several weeks, and each time Karla or Kadence's father Jarret would take her to the emergency room, her limping would be dismissed and the only thing that she was told was to take Motrin. Finally a Pediatric Nurse saw Kadence, thought her color seemed off and ordered labs, which led to her diagnosis of Stage 4 Neuroblastoma. Kadence is now 5 years old and has been battling this form of Pediatric Cancer for 17 months with at least one year of treatment on the horizon.
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496
Jocelyn Espinoza and Samuel Steward will talk about their son Jacob who was diagnosed with the Pediatric Brain cancer ATRT when he was 20 months old in 2024 and is now doing as well as possible health wise.
After noticing that their 20 month old son Jacob was wobbling while walking and had fallen to the ground in February of 2024 , Jocelyn Espinoza and Samuel Steward, took their son first to a doctor in Tijuana Mexico, and shortly thereafter to Rady's Children's Hospital in San Diego where he was diagnosed with the Pediatric Brain Cancer ATRT. It has been over a year and a half since Jacob's diagnosis, and he is currently doing very well and living the life of a very active 3 1/2 year old boy.
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495
Rylee Clark's parents Michelle and Mike and her twin sister Reese will talk about Rylee's devastating diagnosis of Pineoblastoma, a Brain Cancer that led to her passing in June of 2023, when she was 16 years old.
When Rylee Clark began to complain about troublesome headaches in 2020 when she was 12 years old, the original thought was that these were Migraines. That did not turn out to be the case however, as Rylee was diagnosed with Pineoblastoma, a fast growing cancerous brain tumor. Rylee's parents Michelle and Mike and her twin sister Reese will talk about this diagnosis, which led to the far too short life of their beloved daughter and sister.
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494
Aliyah Vida will talk about her beloved son Joshua (Goose) who was developmentally delayed at birth, diagnosed with Stage 4 Neuroblastoma in April of 2022, and passed away in April of 2024, before his 4th birthday.
Because he was Developmentally Delayed at birth, Aliyah Vida was not that surprised when her son Joshua, who was affectionately known as Goose, slipped while walking to the bathroom and hit is eyebrow, causing a small bump. Unfortunately this bump continued to grow, as did his feeling lethargic, and then not eating or drinking. Goose was then diagnosed with Stage 4 Neuroblastoma in April of 2022, and this form of Pediatric Cancer led to his passing in April of 2024, before he was to turn 4 years of age.
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493
Brittany and Brandon Smith will talk about their son Gunner who was totally healthy until he was diagnosed with a High Grade Multi Form Glioma in August of 2017, and passed away when he was 14 years old, on May 28th of 2021.
Just a few days after complaining of a headache and vomiting on his way to school the next day in August of 2017, Gunner Smith, who was a 4th grade student was having emergency brain surgery at the Vanderbilt University Medical Center, after being diagnosed with a High Grade Multi Form Glioma. This operation was so serious that there was a question as to whether Gunner would even be able to wake up from this surgery. Gunner's parents Brittany and Brandon will talk about their son who showed so much bravery while he fought his disease and uttered these words after his diagnosis. "We Got This." Gunner passed away from this Pediatric Brain Cancer on May 28th of 2021.
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492
Mariah Forster Olson will talk about her book HOPE OVER DESPAIR which talks about the many struggles she has endured since she was diagnosed with Neuroblastoma, 45 years ago on June 6th of 1980.
Being put in a garbage can by a fellow classmate while in Junior High School, and having a teacher laugh at her as she was being forced to clean up the spill of a lunchroom tray which she did not cause, are just a few of the things that Mariah Forster Olson talks about in her recently published book HOPE OVER DESPAIR which details her life of the physical and mental after effects of her Neuroblastoma battle that she has lived with since her diagnosis of this form of Pediatric Cancer when she was a year old in June of 1980. Now at the age of 46, Mariah has proven without a doubt that it is possible to live a meaningful and successful life, despite being forced to endure the many unfortunate details that she describes so eloquently in her book.
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Kerri Steele will talk about the rare terminal cancer that her husband Will was diagnosed with in February of 2010 and led to his passing on Christmas Eve in 2012, and how it affected their children who were 2,4, and 6 years of age at his diagnosis
Kerri Steele's husband Will ran 13 miles each day, went home to help get his young children ready for the day afterwards, and then put in a full day of work. Needless to say, it was a total shock to Kerri and Will when he was diagnosed with a rare form of cancer that was determined to be terminal upon his diagnosis in February of 2010, and which led to his passing on Christmas Eve of 2012. Kerri will talk about Will, and about the difficult years ahead for her and their children who were 2,4, and 6 when their father got sick.
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ABOUT THIS SHOW
This Podcast is going to be about Pediatric Cancer and the need to keep the awareness of this terrible disease in the public eye. My plan is to be able to interview a wide spectrum of people who all have a passion and a stake in finding a way to make the lives of these Pediatric Cancer Patients easier. I will interview oncologists, nurses, recovered patients, parents who have had to oversee their children's cancer fight, heads of Pediatric Cancer Foundations and Organizations , and others who would like to use this forum to advocate for these children.
HOSTED BY
Mark Levine
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