PODCAST · health
HSCT Warriors
by Zen Jen Stansbury Koenig
Illuminating the invisibilities of autoimmune disease.Designed to bring voice to HSCT journeys – highlight the snowflakes (individual experiences) and recognize our superpowers – because we are as unique in our HSCT journey as we are in our experience with autoimmune disease.
Episodes
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Unpacking the latest books authored by Dr. Richard Burt (Ep. 109)
Warrior: Richard K. Burt, MD HSCT: pioneer Superpower: maverick and founder of HSCT for autoimmune diseases How do we navigate health with care these days? This conversation with Dr. Richard Burt about his latest books, Kill Switch: The history of how viruses shaped humanity and led to Covid-19...
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Meet Anthony and learn about the various tools he embraced to battle MS (Ep. 108)
Warrior: Anthony Ramirez AI: caregiver for son with MS HSCT: December 12, 2016 Superpower: resilience To what extent do you appreciate the journey? What version of yourself do you present to the world? After a concussion landed Anthony in the ER, his diagnosis of multiple sclerosis was not easy…
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Connect with Cindi to learn how she continues to advocate for her son (Ep. 107)
Warrior: Cindi Ramirez AI: caregiver for son with MS HSCT: December 12, 2016 Superpower: resilience How determined are you to find the best care? When her son suffered a concussion at a company picnic, a CT scan revealed a diagnosis of Multiple Sclerosis. Determined to get him the best care…
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Meet Larry and learn what inspired him to make HSCT more accessible (Ep. 106)
Warrior: Larry Powalisz AI: Primary Progressive Multiple Sclerosis HSCT: May 2022 Superpower: humbled by MS How dedicated are you to health and wellness? How committed are you to helping people halt autoimmune disease? After Larry’s left hand went numb and he was diagnosed with MS, the only…
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Check-in with Ali at more than seven years post-HSCT as we launch our twelfth season (Ep. 105)
Warrior: Ali Strong AI: Multiple Sclerosis HSCT: November 2017 Superpower: wellness When doctors aren’t able to answer your questions, who do you turn to? Are you someone who strives to find answers? Do you find the present in each day? The beginning of a new season offers the opportunity to…
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Connect with Veena and learn how she embodied a positive mindset through HSCT (Ep. 104)
Warrior: Veena Kinni AI: Multiple Sclerosis HSCT: Cleveland Clinic, 2021 Superpower: ability to know inner strength How fully do you embrace opportunities to enjoy life? How do you promote a positive mindset? As a trained physician, it was hard for Veena as she transitioned to being a patient…
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Meet Janet and learn more about how she eliminated stress along her path to HSCT (Ep. 103)
Warrior: Janet Matthews AI: Multiple Sclerosis HSCT: Puebla, February/March 2022 Superpower: kindness To what extent are you able to eliminate stress from your life? Do you believe you can achieve whatever you put your mind to? To what extent are you aware of treatment options? Despite noticing...
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Connect with Christian to learn more about his mindful approach to HSCT in Calgary (Ep. 102)
Warrior: Christian AI: Multiple Sclerosis HSCT: 11/3/23 at the Tom Baker Cancer Center in Calgary Superpower: body awareness What is your capacity for listening to your body? How well do you fare through complications? How comfortable are you with looking inward? After the numbness and tingling…
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Connect with Fiona to learn more about perseverance and Marburg’s variant of MS (Ep. 101)
Warrior: Fiona Mitten AI: Marburg’s variant of Multiple Sclerosis HSCT: 12/29/2011 Superpower: living in the moment Are you someone who believes that everything happens for a reason? How many moments do you treasure each day? Diagnosed 18 years ago after being hit by a drunk driver, several...
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Check-in with Ali at more than six years post-HSCT as we launch our eleventh season (Ep. 100)
Warrior: Ali Strong AI: Multiple Sclerosis HSCT: November 2017 Superpower: boundaries Are you someone who feels your emotions? Are you one to choose happiness? Do you find the present in every moment? The beginning of a new season offers the opportunity to check in with Ali and how she is faring,...
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Meet Matt and be inspired to find peace of mind (Ep. 99)
Warrior: Matt LeFrance AI: Multiple Sclerosis HSCT: June-July 2022 Superpower: peace of mind How do you know what to expect? From whom do you seek feedback? How do you decide to take the next step? Diagnosed just after college at the young age of 25 when he experienced double vision and a variety...
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Reconnect with Mike and celebrate one year of freedom post-HSCT Warriors (Ep. 98)
Warrior: Mike AI: Multiple Sclerosis HSCT: January 17, 2022 Superpower: acceptance and grace Where does kindness hit you? To what extent do you seek grace? How well do you find acceptance? We first met Mike in Season 7, shortly after he found out about HSCT. After battling with insurance and...
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Continue learning with Dr. Burt and be inspired to question dogmas (Ep. 97)
Warrior: Dr. Richard K. Burt AI: halter HSCT: pioneer Superpowers: vast knowledge, being patient-centric, caring for improvement in quality of life, facilitating clarity through education, and fortitude in human spirit With gratitude for the additional time to connect with Dr. Richard Burt and...
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Learn more about Dr. Burt's journey with HSCT and his latest book, Everyday Miracles (Ep. 96)
Warrior: Dr. Richard K. Burt AI: Halter HSCT: Pioneer Superpowers: tenacity, resilience, curiosity, compassion, holistic approach With gratitude for time to connect with Dr. Richard K. Burt and celebrate the recent publication of his latest book, Everyday Miracles: Curing multiple sclerosis,...
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Connect with Ali and celebrate launching season 10 of the podcast (Ep. 95)
Warrior: Ali Strong AI: Multiple Sclerosis HSCT: November, 2017 Superpower: Acceptance What do you do for yourself that brings you joy? Are you someone who accepts moderation? To what extent do you find balance in life? Check in with Ali Strong to recount her experience finding her way to and...
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Reconnect with Graciela along her journey to HSCT in her hometown of Monterrey (S7 replay)
Warrior: Graciela AI: Multiple Sclerosis HSCT: January 2021 Superpower: value for life After initially being told her symptoms were all in her head, Graciela received an apology from her neurologist along with her diagnosis. She was presented with options for treatment including disease modifying...
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Reconnect with Heidi to learn how she took back control to pursue HSCT Warriors (S7 replay)
Warrior: Heidi Peterson AI: Relapsing Remitting MS HSCT: July, 2019 Superpower: strength Do you take the time to celebrate in life? How often do you recognize the little victories? Although Heidi was diagnosed relatively soon after her first experiences with early symptoms of multiple sclerosis,...
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Continue learning the power of mindset along Zarko’s journey with HSCT in Moscow (S7 replay, part 2)
Warrior: Zarko Bilal AI: Relapsing Remitting MS HSCT: April, 2021 Superpower: positive thinking When did you start to figure out the important things in life? How do you overcome fear of the unknown? How do you keep your mentality in tact? The continuation of this two-part episode reveals even…
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Revisit Zarko's journey to HSCT and find joy with what is (S7 replay, part 1)
Warrior: Zarko Bilal AI: Relapsing Remitting MS HSCT: April, 2021 Superpower: positive thinking When did you start to figure out the important things in life? How do you overcome fear of the unknown? How do you keep your mentality in tact? After a happenstance diagnosis of MS, Zarko initially…
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Reconnect with HSCT hopeful Yavor to learn from his consistency and positive mindset (S7 replay)
Warrior: Yavor Milanov AI: Relapsing Remitting MS HSCT: Scheduled in March 2022 Superpowers: Consistency How well do you attune with culture? Is your mindset one of growth, or is it fixed? How do you navigate your internal compass? After his diagnosis, Yavor felt tired and run-down facing his...
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Reconnect with Samantha along her journey from Melbourne to Moscow for HSCT(S7 replay)
Warrior: Samantha Lakey AI: Primary Progressive Multiple Sclerosis HSCT: July 5, 2021 Superpower: eating Are you someone who believes in fate? How do you recognize joy in yourself? Only after Samantha endured a full-body seizure and spent weeks in the hospital did she finally receive a diagnosis...
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Revisit Mike's journey to HSCT and be inspired by his humble fortitude (S7 replay)
Warrior: Mike AI: Multiple Sclerosis HSCT scheduled for January 2022 Superpower: fortitude How do you share your diagnosis with others? How familiar are your loved ones with the demons you battle? How do you reconcile your experience with disease? Having received a diagnosis at the young age of…
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Revisit Amy's preparation for HSCT and be inspired to move beyond judgment (S7 replay)
Revisit Amy's preparation for HSCT and be inspired to move beyond judgment (S7 replay) by Zen Jen Stansbury Koenig
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Revisit insights from Jacob’s strategies to navigate the journey to HSCT (S7 replay)
Warrior: Jacob Kinch AI Multiple Sclerosis HSCT: October, 2020 Superpower: new perspective Where do you find glimmers of hope? Do you recognize the double-edged sword of multiple sclerosis? Jacob shares so many relatable aspects of his experience with multiple sclerosis, including frustration…
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Reconnect with Cassidy along her journey of over-achieving before and after HSCT* (S6 replay)
*This episode contains content that may be alarming to some listeners, including mentions of suicidal ideation. Please check the show notes for more detailed descriptions and take care of yourself* Warrior: Cassidy V. Chapman AI: Multiple Sclerosis HSCT: July15, 2019 Superpower: Passion for...
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Revisit Rachel's journey with CIDP before myeloablative HSCT at the CBCI in Denver (S6 replay)
Warrior: Rachel Gallery AI: Chronic Demyelinating Polyneuropathy Disease HSCT: Oct 19, 2020 Superpower: Empathy Do you consider yourself a lucky person? How often do you receive treatment for autoimmune disease? How layered is your circle of support? After spending nearly a year with strange...
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Reconnect with Erin to find empathy and connection despite feelings of isolation (S6 replay)
Warrior: Erin Schoenlein AI: Multiple Sclerosis HSCT: March 15, 2020 Superpower: energy to help other people How wide is your view? Do you know what it feels like to be well? For how long have you been distanced? Having been diagnosed with an autoimmune disease in high school, Erin is no stranger...
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Continue learning from DeWayne’s experience with myeloablative HSCT (S6 replay part 2)
Warrior: DeWayne Durr AI: Multiple Sclerosis HSCT: Oct 29, 2020 Superpower: Confidence How supported do you feel? To what extent do you think about each step that lies ahead? Continuing from where we left off in this two part episode, tune in to learn from DeWayne as he shares more about his...
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Revisit DeWayne's experience as the first patient for MS at the Cleveland Clinic (S6 replay part 1)
Warrior: DeWayne Durr AI: Multiple Sclerosis HSCT: Oct 29, 2020 Superpower: Confidence Are you one to Check-in with DeWayne to hear more about his experience as the first patient to receive HSCT for Multiple Sclerosis at the Cleveland Clinic. With so many details about his experiences with the...
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Revisit the continuation of Joceline’s journey and a COVID work-around (S6 replay part 2)
Warrior: Joceline AI: Multiple Sclerosis HSCT: soon in 2021? Superpowers: doing nothing How comfortable are you with uncertainty? Are you able to leave the unknown alone? How do you find patience when you find yourself on the brink? Picking up where we left off in this two part episode, tune in…
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Revisit Joceline’s honest reflections and find compassion for others (S6 replay part 1)
Warrior: Joceline AI: Multiple Sclerosis HSCT: sometime in 2021? Superpowers: doing nothing How do you establish trust in the systems? How many doctors have you fired? How do you find patience when you find yourself on the brink? After initially being brushed off by doctors, once diagnosed with...
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Catch-up with Amy and celebrate her learning journey at nearly one-year post HSCT (Ep. 94)
Warrior: Amy Capel AI: Multiple Sclerosis HSCT: October 2021 Superpower: mentality To what extent are you distracted? Have you ever been on the outside looking in? We first met Amy in Season 7 when she described her struggle to understand the disease and the storm of negative side effects from…
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Check-in with DeWayne after two-years from being the first patient on the BEAT-MS trial (Ep. 93)
Warrior: DeWayne Durr AI: Multiple Sclerosis HSCT: October 20, 2020 Superpowers: gratitude Do you enjoy finding the why? How often do you extend gratitude? As the first person to receive HSCT as a part of the BEAT-MS trial at the Cleveland Clinic, DeWayne has graciously offered great insights...
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Reconnect with Allison to celebrate superpowers at eight-years post-HSCT (Ep. 92)
Warrior: Allison Carr AI: Multiple Sclerosis HSCT: December, 2014 Superpowers: hope and grit Are you motivated to give back to others? To what extent do you recognize superpowers in others? How challenging is it for you to be optimistic? As someone who spent nearly twenty years battling the...
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Meet Alisha, hopeful for HSCT someday, even if it isn’t an option where she lives (Ep. 91)
Warrior: Alisha Daly AI: Multiple Sclerosis HSCT: hopeful Superpower: Resilience and compassion How fair is the playing field in your experience with autoimmune disease? How far have you been strung along before receiving a diagnosis? Despite a severe bout of optic neuritis, it took more than…
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Meet Rebecca at four years post-transplant and learn from her gracious outlook (Ep. 90)
Warrior: Rebecca Katonica AI: Multiple Sclerosis HSCT: November 2018 Superpower: Grace Do you try to explain away that which might be serious? When was the last time you took a leap of faith? After an explosive headache behind her eyes, Rebecca found herself at the eye doctor who ordered an MRI...
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Be inspired by Cecilia's resilience at four years post-transplant (Ep. 89)
Warrior: Cecilia Reyes AI: Multiple Sclerosis HSCT: July, 2018 Superpower: Resilience To what extent has your view softened? To what extent are you learning as you move through life? Do you find blessings and opportunities in the challenges you face? Check-in with Cecilia at four years...
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Find motivation from the success of Steve's journey to HSCT in Russia (Ep. 88)
Warrior: Steve Apperson AI: Multiple Sclerosis HSCT: April 9, 2015 Superpower: compassion Is there anything you can’t do? How often do you find time for reflection? How often do you have space to go within? After initial symptoms that occurred years apart, when Steve found himself unable to run...
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Learn from Elyse about the possibilities of HSCT to halt both Lupus and Sjogren’s (Ep. 87)
Warrior: Elyse Meyer AI: Lupus and Sjogren’s HSCT: July 2020 Superpower: not afraid to try new things Are you aware of being comfortable? How do you define success? How do you define quality of life? Despite maxing out every possible treatment option, including biologics and steroids, Elyse’s...
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Check-in with Ali at nearly five years post-HSCT as we launch our ninth season (Ep. 85)
Warrior: Ali Roberts AI: Multiple Sclerosis HSCT: November 6, 2017 Superpower: Motivation Are you someone who feels your emotions? Do you focus on what can (v. can’t) be done? Can you find the present in each moment? The beginning of a new season offers the opportunity to check in with Ali and…
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Revisit Vic's inspiring resolve and determination despite the naysayers and COVID (S6 replay)
Warrior: Vic Bonilla AI: Multiple Sclerosis HSCT: Oct 2020 Superpower: unbreakable resolve Have you ever felt like an observer of your life? Have you stared down the barrel of mortality? Is the patience you have with others, the same, greater, or less than the patience you have with yourself?...
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Revisit Chloe's inspiration to increase awareness, and stay sane, despite COVID (S6 replay)
Warrior: Chloe Zallen AI: Relapsing remitting multiple sclerosis HSCT: Oct/Nov 2020 Superpowers: self-love Are you able to recognize your limitations? Are you aware of your stressors? As a traveling cardiac specialist with experience at several hospitals, Chloe found herself in an extremely...
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Revisit Christy's journey to Monterrey and learn more about the power of connections (S6 replay)
Warrior: Christy Miller Kuziensky AI: MS HSCT: February 2021 in Monterrey Superpowers: patience and trust in Clinica Ruiz Have you been fortunate enough to find confidence in your big decisions? How has patience served you along your journey? Are you comfortable showing up with no expectations?...
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Reconnect with Ovi on her way to Puebla and learn what it means to be strong-strong (S6 replay)
Warrior: Ovi James AI: MS HSCT: February 2021 Superpower: mindset How well do you navigate self-advocacy? After years of terrible headaches and issues with standing and walking, Ovi ended up losing her job and her home which caused significant relapses that rendered her disabled. As a single...
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Reconnect with Lynn and gain insights on the nuances of CIDP (S5 replay)
Warrior: Lynn Rogers AI: Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) HSCT Hopeful: Superpower: widened lens Have you ever worried about asking people for help when their investment isn't a sure thing? How do you define barriers to treatment for your autoimmune disease? As a…
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Revisit Sagirah's commitments in defining success with HSCT (S5 replay)
Warrior: Sagira Ahmed Norris AI: Multiple Sclerosis HSCT: January 2020 Superpower: flexibility Are you someone who prefers to schedule a plan for every detail in life? Do you After first being diagnosed, Sagira found herself more driven than ever to complete life goals ahead of schedule while she...
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Revisit our chat with Brooke Slick about managing setbacks post-HSCT (S5 replay)
Warrior: Brooke Slick AI: Multiple Sclerosis HSCT: 2013 Superpower: surrender Are you able to surrender to all that seems out of your control? How easy is it for you to allow things to just happen? Revisit Brooke’s journey to HSCT and learn more about the setbacks she has faced post-HSCT,...
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Reconnect with Felicia and how she fought against the odds and COVID to pursue HSCT (S5 replay)
Warrior: Felicia Merritt AI: Progressive Multiple Sclerosis HSCT: August 2020 Superpower: Feeling invincible Have you ever suddenly realized just how much you were taking for granted? Have you been able to find internal strength? What about internal peace? Shortly after turning 30, Felicia began...
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Revisit our catch-up with Marlo, who persevered despite a super twisted path to HSCT (S5 replay)
Warrior: Marlo Kalb AI: Relapsing Remitting Multiple Sclerosis HSCT: confidence to fight back Superpower: 9.30.19 How will you face the many curves that lie ahead? Diagnosed at just 13 years old, Marlo found herself eager for HSCT after doing research and listening to this podcast. First...
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Meet Mendo and the positive mindset he embraces, thanks to HSCT (Ep. 84)
Warrior: Mendo Micevski AI: Primary Progressive Multiple Sclerosis HSCT: June 2021 Superpower: Mindset Are you someone who prefers to live in the shadows? How well do you notice the ‘chalk and cheese’? After years of noticing odd symptoms that doctors could not figure out, Mendo was walking to...
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ABOUT THIS SHOW
Illuminating the invisibilities of autoimmune disease.Designed to bring voice to HSCT journeys – highlight the snowflakes (individual experiences) and recognize our superpowers – because we are as unique in our HSCT journey as we are in our experience with autoimmune disease.
HOSTED BY
Zen Jen Stansbury Koenig
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Frequently Asked Questions
How many episodes does HSCT Warriors have?
HSCT Warriors currently has 227 episodes available on PodParley. New episodes are automatically indexed when they're published to the podcast feed.
What is HSCT Warriors about?
Illuminating the invisibilities of autoimmune disease.Designed to bring voice to HSCT journeys – highlight the snowflakes (individual experiences) and recognize our superpowers – because we are as unique in our HSCT journey as we are in our experience with autoimmune disease.
How often does HSCT Warriors release new episodes?
HSCT Warriors publishes regularly with 227 episodes available. Check the episode list for the typical release schedule.
Where can I listen to HSCT Warriors?
You can listen to HSCT Warriors on PodParley by clicking any episode. We provide an embedded audio player for direct listening, and you can also subscribe via your preferred podcast app using the RSS feed.
Who hosts HSCT Warriors?
HSCT Warriors is created and hosted by Zen Jen Stansbury Koenig.
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