PODCAST · health
IBDetermined
by Michelle and Mason Harvey
Created to discuss living with Crohn's disease and made for adults, kids, teens, and families to encourage them to find ways to overcome obstacles, small and large. We will invite guests from multiple perspectives to give us insight on how they have handled challenges and what they did to get through them. Some episodes will focus on open and honest discussions about Crohn's disease from a caregiver and patient perspective. We will talk to others with IBD, chronic illnesses, and life changing situations people have learned to navigate. Hosted by a mom and son duo who had their lives flipped upside down with a severe Crohn's disease diagnosis. They are living their best lives and helping others survive and thrive by creating awareness and finding empowerment.
Episodes
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S6 Episode 5 - Insurance is denying infusions at our children's hospital. But, is this bad news?!
Send us Fan Mail We received a letter from insurance that upset all of us. Mason was no longer able to receive infusions at Rady Children's Hospital. We have been getting them there the past 6.5 years. But after speaking with his doctor, understanding how much more our hospital is charging, and...
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S6 Episode 4 - Getting through fun events when you are having a challenging day.
Send us Fan Mail We recently went to an event for someone we really care about. It was a great party but it also got us to thinking how a lot of IBD patients have to hide their feelings, not eat, things like that. We decided to have a discussion about these kind of things and would love to know…
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S6 Episode 3 - Will we someday be able to predict IBD before it ever starts?
Send us Fan Mail Today we go into a recent article by the Crohn's and Colitis Foundation. It caught our attention because it goes into what is currently being done to predict IBD before it starts. Hear our thoughts as we go through the article! We are family friendly and want our audience to be...
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S6 Episode 2 - What if Crohn's disease is more than one disease? What if it were different subsets?
Send us Fan Mail We have talked about it before but it deserved another discussion. What if Crohn's disease is so different for everyone because there are different subsets of it? What if it was separate diseases entirely? How would his affect the way we view it and treat it? We get more into…
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S6 Episode 1 - We update listeners on Mason, life, and our new lesson plan books we published!
Send us Fan Mail Welcome to a new season!! Season 6 opens with catching up on how Mason is doing, we talk about our candles business, insect additions to the family, and show off our new lesson plan books we published!! They are made to accompany our newest book, "Not Your Average Food Pyramid"…
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S5 Episode 16 - Is Mason in a Crohn's flare? We go over what is currently going on!
Send us Fan Mail As most of our listeners might know, there is that familiar moment of panic, despair, frustration when things change. It can happen overnight and in a matter of minutes. And sometimes it is hard to know what is going on, no matter how many flares you have had before. Things have...
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S5 Episode 15 - Why it is so important to be a support and to have support in the IBD world!
Send us Fan Mail We briefly discuss our newest book and talk about a few of the stories we included. We wanted to share a story of where Mason found support and how those new friendships both helped to heal him, but also encouraged him to want to be that support for others. Finding support can be...
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S5 Episode 14- We look into what were the most searched IBD questions of the week!
Send us Fan Mail Sometimes it is interesting to see what other patients are searching. It helps give you an idea of similar concerns or questions as well as alerts you to new articles out there. We decided to do a search and go over them as we find them. It was interesting to see what you all are...
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S5 Episode 13- Finding joy and the silver linings in a difficult and challenging IBD diagnosis.
Send us Fan Mail We just published our second book and we are really hoping it helps patients reframe their outlooks. How you choose to grieve, to celebrate, to handle a diagnosis, is your choice. But we wanted to share what has helped Mason and us (as his parents and caregivers) find ways to...
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S5 Episode 12 - Tips to help prepare for a smoother transition from pediatric care to adult care!
Send us Fan Mail Even though Mason isn't quite to moving to adult care yet, we realize listeners might be at different ages. Some might be adults, while some might be very early onset. We wanted to sit down and go over the ways you can begin to think and prepare for moving to adult care. This...
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S5 Episode 11 - We published a new book!! Learn all about "Not Your Average Food Pyramid"!!
Send us Fan Mail Reggie is back! Today we finally reveal the name of our new children's book and the second one in the series. It took around 8 months and we are so proud to tell you all about it! Join us as we take you through the process of a book we can't wait to share with all of you! We hope...
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S5 Episode 10 - The High Price and Process of Biologics Explained!
Send us Fan Mail We are finally back to our short series on treatments and biologics. Today we go over the expenses associated with developing and manufacturing a biologic. We might not like the prices but it is important to understand if we ever hope to make changes that benefit everyone. We…
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S5 Episode 9 - How to handle unwanted advice and opinions from friends, family, & strangers!
Send us Fan Mail We have discussed the difficulty of outside opinions and judgement with IBD. Today we read an anonymous letter we received from a "neighbor". Might have been well-intended but the advice was dangerous. We discuss the ways you can support and help patients when offering advice but...
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S5 Episode 8 - We are celebrating our 100th episode!!
Send us Fan Mail Today is a big day for the IBDetermined podcast family. You have made it with us to our 100th episode! We never had any idea how many podcasts we would create and we sure are happy we have made it to the big 100. We are also excited to keep going and continue to make podcasts!…
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S5 Episode 7 - Why are Pharma and Biosciences accused of not wanting cures? Why aren't they trusted?
Send us Fan Mail On today's episode we are continuing a series on better understanding biologics and expensive treatments. Today we are covering the reasons bioscience companies and pharmaceutical companies are accused of not wanting a cure. We examine why these claims are being made, how…
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S5 Episode 6 - How IBD treatments have changed in the past 20 years!
Send us Fan Mail On today's episode we are beginning a series on better understanding biologics and expensive treatments. Our hope is to create more awareness and hopefully spark change and understanding. We begin this series by going over a brief history of how treatments have changed over the...
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S5 Episode 5 - We discuss an article on how step therapy is affecting young adults with IBD!
Send us Fan Mail On today's episode we go over a recent article from the Crohn's & Colitis Foundation. It is about a study and how step therapy affects young adults in particular. It is helpful to better understand how to help young adults facing the challenges of step therapy. We are family...
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S5 Episode 4 - We talk all about Calprotectin tests and give you an update on Mason's health!
Send us Fan Mail On today's episode we discuss what Calprotectin tests are, how the scores work, and why your results might be a clue as to where your inflammation is located. Mason discusses his most recent results and why he is no longer in lab remission. We are family friendly and want our...
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S5 Episode 3 - We review a book about the immune system by Philipp Dettmer!
Send us Fan Mail We discuss a book called "Immune: A Journey Into the Mysterious System That Keeps You Alive" by Philipp Dettmer. We highly recommend it for anyone but it was particularly interesting to us as we made connections to the IBD world. And we have more exciting news about jumping...
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S5 Episode 2 - Overcoming fears and making difficult IBD decisions based on facts, not fear.
Send us Fan Mail Having IBD can be scary and confusing. When you have to make decisions it is easy to be afraid of the unknown. We go over how we help ease those fears so we can make good decisions that are based on facts. We hope our techniques might help you empower yourself and make the best...
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S5 Episode 1 - What does a cure for Crohn's Disease look like and how close are we to a cure?
Send us Fan Mail Welcome to Season 5 Episode 1! We are excited to start a new season in the new year. We wanted to kick it off with a topic and question we hear about often, is Crohn's curable? But then we got to thinking what a cure would look like. We go further into both topics and hope you…
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S4 Episode 17 - We discuss our holiday and favorite family-friendly Christmas movies!
Send us Fan Mail Welcome to S4 episode 17! Mason got to pick what he wanted to end the year and final season 4 with and he chose Christmas movies. We sometimes do Christmas Day throughout the year. When Mason is having a tough time we watch Christmas movies, bake, do whatever we can to enjoy the...
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S4 Episode 16 - Major IBD breakthroughs, developments, and news stories from 2025!
Send us Fan Mail Welcome to S4 episode 16! As we head towards the end of 2025, we wanted to cover IBD breakthroughs, treatment developments and other stories that were in the news. We felt these stories were important to share because a lot of times there are click bait stories out there that can...
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S4 Episode 15- It is IBD Awareness Week!
Send us Fan Mail Welcome to S4 episode 15! It is IBD Awareness week but also a shorter show. We both ended up with colds but we didn't want to miss a podcast on such an important week. Use this week to tell your story, to raise awareness, and to find support! Feel free to comment and share your…
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S4 Episode 14 - We discuss the challenges of the holidays and offer solutions to help ease stress!
Send us Fan Mail Welcome to S4 episode 14! We know there is a lot to consider with IBD on a normal day. We know the holidays is even more demanding and our goal is to discuss common problems and offer solutions. This disease is never fair and it isn't right that you should have to have more…
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S4 Episode 13 - Does having IBD mean catching colds and viruses more easily? What to know!
Send us Fan Mail Welcome to S4 episode 13! This time of year brings out a lot of questions about IBD and getting through cold and flu season. We go over risks of getting sick, treatments, ways we minimize risk, and things to consider if you have IBD. We are family friendly and want our audience…
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S4 Episode 12 - Michelle is Volunteer of the Year & more about the Crohn's & Colitis Foundation Gala
Send us Fan Mail Welcome to S4 episode 12! Michelle was honored by the local Crohn's and Colitis Foundation as the Volunteer of the Year at the Champions of Hope Gala. We go over the hope and inspiration we left with, tell you who we met, who was honored, and everything else about the wonderful...
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S4 Episode 11 - Methods to help relax and reduce anxiety at medical appointments and infusions!
Send us Fan Mail Welcome to S4 episode 11! Mental health is so important for anyone. For IBD patients, they sometimes have more appointments, treatments, and procedures than the average person. A lot of time these situations can create anxiety. Today we go over several methods you can do…
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S4 Episode 10 - Thanks to a new initiative, hospitalizations and emergency room visits are 50% down!
Send us Fan Mail Welcome to S4 episode 10! The Crohn's and Colitis Foundation recently released a news article about their initiative and study that has decreased hospitalizations and emergency room visits. It is all about working together and coming up with early intervention at the clinics.…
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S4 Episode 9 - Navigating the ups and downs of dream granting organizations and IBD kids!
Send us Fan Mail Welcome to S4 episode 9! Today we discuss what we have noticed, our experiences, and our ideas with organizations that are intended to help chronically ill children. These organizations are phenomenal and we sure would love to see more IBD kiddos be recognized! Most of all, we…
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S4 Episode 8 - Learn more about differences and similarities between Stelara, Skyrizi, and Tremfya!
Send us Fan Mail Welcome to S4 episode 8! It is so important to learn more about biologics o we can ask educated questions when we meet with a GI. We have heard about similarities between Tremfya, Stelara, and Skyrizi. Today, we go over all of them to better help you understand the options out...
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S4 Episode 7 - We offer suggestions and tips on what to bring to an infusion and what to ask for!
Send us Fan Mail Welcome to S4 episode 7! After 5 years of infusions, we wanted to share our tips and tricks on what to bring, what to ask for, and what to expect at an infusion. Our tips will bring comfort and ideas to make an infusion a little better! We are family friendly and want our…
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S4 Episode 6 - Introducing our new patient support program called "Karmatude Clips."
Send us Fan Mail Welcome to S4 episode 6! There have been so many times we wished we could help infusion patients, newly diagnosed IBD patients (or various other diagnoses!), and also thank blood donors. We think we found a way we can do all those things with Karmatude Clips. These will be…
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S4 Episode 5 - We discuss the article that mentions a breakthrough in Crohn's disease complications
Send us Fan Mail Welcome to S4 episode 5! There was an article that was on social media and had been sent to me by a few friends. We wanted to go further than the headline to see what this article actually meant for those who suffer from IBD. The article was called, "Scientists discover network…
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S4 Episode 4 - Using ChatGPT and AI to answer IBD and other medical questions.
Send us Fan Mail Welcome to S4 episode 4! There has been a lot of talk about using ChatGPT to evaluate lab results, medical pictures and even help diagnose patients. We put it to the test and asked 10 questions about IBD to determine how accurate and helpful ChatGPT and Google AI really are. We…
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S4 Episode 3 - We discuss the unwanted mental burdens that are placed on IBD patients & caregivers!
Send us Fan Mail Welcome to S4 episode 3! We have discussed the physical aspects of this disease along with the financial burdens of IBD. Today we go more into the unwanted and unfair mental burdens placed on both the patient and caregivers. Our hope is to show you aren't alone and offer the ways...
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S4 Episode 2 - Mason is graduating 2 years early! How he achieved that goal with his IBD diagnosis!
Send us Fan Mail Welcome to S4 episode 2! We have had a busy week and wanted to share the good news that Mason is graduating. To be clear (since I am not sure how clear we are in the podcast), Mason was one year ahead in school prior to his Crohn's disease diagnosis. After diagnosis, he gained...
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S4 Episode 1 - How Lego therapy helps patients and we share Mason's new Lego MRI scanner!
Send us Fan Mail Welcome to S4 episode1! After 75 episodes, we have officially entered season 4 of our podcast. It is a very proud moment for both of us and we are so hopeful this podcast is helpful to you. Today we discuss Lego and how they can help with hospital stays, being unwell, and how…
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S3 Episode 21 - We won our appeals for Mason! Let doctors make decisions for their patients!
Send us Fan Mail Welcome to S3 episode 201! We go over how our appeals went and are happy to share that we won this round. However we know the fight isn't over and we are hoping to testify before congress or share this story. We aren't alone in this and there are so many who are forced to make...
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S3 Episode 20 - We are asking insurance to end step therapy. Stop demanding a patient fail a treatment!
Send us Fan Mail Welcome to S3 episode 20! We are facing a treatment change by insurance against Mason's doctor's wishes. It has been a fight with pharmacists, health solutions, and insurance to do what is right and let Mason remain on what is working for him, not what will save money. Our hope…
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S3 Episode 19 - The blame game of trying to figure out the cause of IBD
Send us Fan Mail Welcome to S3 episode 19! How many times have you caught yourself trying to figure out what caused your Crohn's disease or Ulcerative Colitis? There are the scientific ideas, then there is what you can google and find. A lot of people think it is something they did and we are…
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S3 Episode 18 - The Reggie Project and how we can help you raise awareness for any health challenge!
Send us Fan Mail Welcome to S3 episode 18! Today we revisit the Reggie Project. We would love to have any of you participate and really help us provide a place where you have a platform and a voice for whatever chronic illness or disease you wish to discuss. We go over the ways we can help you...
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S3 Episode 17 - Discussing how stem cell transplants and GLP2 peptides are helping to treat IBD!
Send us Fan Mail Welcome to S3 episode 17! We attended IBD day at Rady Children's Hospital and one of the things discussed were stem cell injections and GLP2 peptides. We were excited to learn more about stem cells and GLP2 peptides and better understand how they work. We decided to discuss what…
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S3 Episode 16 - We taste tested 21 supplemental drinks and also go over nutritional details!
Send us Fan Mail Welcome to S3 episode 16! We ordered and taste tested 21 different supplemental drinks that are the type used for liquid diets and supplements for Crohn's disease and Ulcerative Colitis. We tried Boost, Ensure, Kate Farms, Fairlife, and Glucerna. We tasted each one to honestly…
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S3 Episode 15 - The use of Intestinal Ultrasounds for monitoring Crohn's and Ulcerative Colitis!
Send us Fan Mail Welcome to S3 episode 15! The Crohn's Colitis Congress recently held their event and Intestinal Ultrasounds was a popular topic. While used in other countries, they are still relatively new in the U.S. but we are very excited to discuss the incredible benefits they offer! We are...
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S3 Episode 14 - Juggling all those helpful and non-helpful IBD opinions you are receiving!
Send us Fan Mail Welcome to S3 episode 14! We wanted to revisit a topic that continues to happen to those of us living with or living with someone we love with IBD. Opinions! There are a lot of them, some good, some bad. We go over how we handle them, ways to help keep you sane, and laugh/cry...
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S3 Episode 13 - We discuss how steroids are used to treat IBD and their potential side effects.
Send us Fan Mail Welcome to S3 episode 13! Today we talk about the types of steroids used to treat Crohn's disease and Ulcerative Colitis. We also go further into potential side effects and usage recommendations. We are family friendly and want our audience to be involved! Listen together,...
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S3 Episode 12 - How joint pain and arthritis is connected to Crohn's disease and Ulcerative Colitis.
Send us Fan Mail Welcome to S3 episode 12! I have noticed that some IBD patients are unaware of the involvement of joint pain and arthritis with IBD. It is a part of the disease for some and something worth discussing further! Mason has dealt with joint pain and goes over how his story connects...
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S3 Episode 11 - How Costco helped us get Mason's biologics approved when our insurance denied them!
Send us Fan Mail Welcome to S3 episode 11! We wanted to share a positive story for the holidays about Costco. Besides being an incredible business to work for, they also stood by us with Mason's diagnosis. We go further into how they helped us get Mason's biologics approved when we had run out of...
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S3 Episode 10 - We discuss DEXA scans and how IBD affects bone density and osteoporosis!
Send us Fan Mail Welcome to S3 episode 10! Bone health is something that goes hand in hand with IBD. It can be a silent problem until it isn't. We go over how it is detected through a DEXA scan, how to understand your scores, things you can do for better bone health, and how IBD patients are...
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ABOUT THIS SHOW
Created to discuss living with Crohn's disease and made for adults, kids, teens, and families to encourage them to find ways to overcome obstacles, small and large. We will invite guests from multiple perspectives to give us insight on how they have handled challenges and what they did to get through them. Some episodes will focus on open and honest discussions about Crohn's disease from a caregiver and patient perspective. We will talk to others with IBD, chronic illnesses, and life changing situations people have learned to navigate. Hosted by a mom and son duo who had their lives flipped upside down with a severe Crohn's disease diagnosis. They are living their best lives and helping others survive and thrive by creating awareness and finding empowerment.
HOSTED BY
Michelle and Mason Harvey
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