PODCAST · health
IgAN Journey
by igan.org
Whether you or someone you love has been diagnosed with the kidney disease IgA Nephropathy you are in the right place for information, support and encouragement. This podcast is brought to you by the IgA Nephropathy Foundation. It's mission: to be a patient-centric organization focused on finding a cure for IgA Nephropathy. Using the power of the patient community we are focused on funding research, using patient advocacy to empower our patients, and building a network of support.You are not alone https://igan.org/
Episodes
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Ep20 Celebrating 20 Years of Passion and Commitment
In this special episode, Bonnie Schneider, co-founder of the IgA Nephropathy Foundation, shares her journey and reflects on 20 years of service to families affected by this rare disease. When her son Eddie was diagnosed with IgA Nephropathy (IgAN) at age 13, Bonnie and her husband felt lost and...
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Leaning In: A Journey of Love, Resilience and Care EP19
November is Caregiver Awareness Month and, in this episode, Yulanda Brown and Steve Mayo talk candidly about their IgAN journey and how staying centered on what brought them together has helped them grow closer despite their struggles. Yulanda's diagnosis came as a shock for both. The uncertainty...
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Tips for Dealing with the Emotional Side of Living with IgAN EP 18
Living with IgA Nephropathy (IgAN) means not only managing the disease itself, as well as the related fatigue and other related health concerns, but also coping with the mental and emotional challenges come with having a chronic health concern. Patients may experience feelings of loss…
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Ep17 Family Planning and Pregnancy with IgAN
Compared with other kidney diseases, IgA Nephropathy tends to strike at younger ages, often coinciding with starting a career and/or having a family. While pregnancy is possible for women with IgAN, it's not without its challenges. Planning for a family with IgAN requires early planning and close...
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Ep16 Managing High Blood Pressure and Emerging Therapies EP16
For many people, uncontrolled or unexplained high blood pressure may be the first sign of IgA Nephropathy (IgAN). That's because when the filtering capabilities of the kidneys are damaged, as is the case with IgAN, blood pressure can rise. In turn, elevated blood pressure can further damage the...
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"One Day at a Time" - Advice from State Senator Kelly Hancock EP 15
IgAN Journey is dedicated to those affected by IgA Nephropathy (IgAN) and, in this episode, we have the pleasure of hearing from Texas Senator Kelly Hancock whose positive outlook has helped him live his best life despite his diagnosis with IgAN over 30 years ago. His diagnosis came at a time…
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Caregiving – Taking Care of You and Being Resilient EP 14
In this episode, and in honor of Caregiver Awareness Month, Bonnie Schneider, co-founder of the IgA Nephropathy Foundation talks openly about her journey as a caregiver to her son, Eddie, and growing the Foundation. She offers practical advice and tips for how to navigate this journey as a...
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IgAN Mindful Moments Introduction to Meditation
Are you ready to embark on a journey of healing and self-discovery? Welcome to "IgAN Mindful Moments," the podcast that explores the transformative power of mindfulness for individuals living with IgA Nephropathy. One big misconception many people have is that meditation is about clearing or...
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IgAN Mindful Moments: Guided Healing Hands: Meditation and Journey to Renewal
Are you ready to embark on a journey of healing and self-discovery? Our "IgAN Mindful Moments" series explores the transformative power of mindfulness for individuals living with IgA Nephropathy. In this episode, we explore the concept of healing hands and their ability to transmit positive…
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IgAN Mindful Moments - Calm and Center with Deep Belly Breaths Meditation
Are you ready to embark on a journey of healing and self-discovery? Our "IgAN Mindful Moments" series explores the transformative power of mindfulness for individuals living with IgA Nephropathy. In this episode, we explore the power of deep belly breaths as a way to manage stress and promote...
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IgAN Mindful Moments: Healing from Within - The Body Scan Meditation
Are you ready to embark on a journey of healing and self-discovery? Our "IgAN Mindful Moments" series explores the transformative power of mindfulness for individuals living with IgA Nephropathy. Dive into a transformative experience with our body scan meditation. We'll take you on a journey...
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IgAN Mindful Moments: The Gratitude Practice for IgAN Warriors meditation
Are you ready to embark on a journey of healing and self-discovery? Our "IgAN Mindful Moments" series explores the transformative power of mindfulness for individuals living with IgA Nephropathy. Cultivate a sense of gratitude in your journey with IgA Nephropathy. In this episode, we'll explore…
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IgAN Mindful Moments: Visualize Your Healing Journey with IgAN Meditation
Are you ready to embark on a journey of healing and self-discovery? Our "IgAN Mindful Moments" series explores the transformative power of mindfulness for individuals living with IgA Nephropathy. Visualization is a powerful tool for achieving your health goals. In this episode, we invite you to...
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IgAN Mindful Moments — Guided Sound Meditation Session
Using sound to meditate can help anchor your mind, allowing you to let go of distractions or thoughts that don't ultimately serve you. Most of the human body is water, so researchers believe sound vibrations work in the body to help produce a calming effect. Join Franck Raharinosy as he guides…
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Finding Your Zen, Tools for Meditating and Regaining Calm EP 7
Meditation has been around for thousands of years, and it turns out it's pretty good medicine for many people. Not only can meditation help us reset and tune into oiursevles by being more mindful and present, research also shows it carries a host of health benefits. For exampe, helping to ease...
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Tips for Kidney Friendly Eating EP6
The kidneys are responsible for excreting and getting rid of a lot of the waste products that come through the body, and a lot of these waste products come from the food we eat. So it's important that we consume foods that are friendly to our kidneys and easy for the body to digest and breakdown,...
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The Importance of Connection: Celebrating Mother's Day and IgAN Awareness Day with Two Moms EP 5
When someone gets a life-altering diagnosis such as IgAN, it not only affects the person living with it, but also the people around them. For parents, it's a different and unique experience. They provide support as they watch their child learn to cope and live with the impact of this disease. It...
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Ep4 New Treatments and Research for IgAN - The Future is Bright
https://igan.org/ Guest Dr. Jonathan Barratt talks with us about two new treatments for IgA Nephropathy (IgAN) –the first specifically designed and approved for the management of IgAN. TARPEYO® (budesonide, delayed release capsules) was approved by the U.S. Food and Drug Administration (FDA) in...
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Coping Post-Transplant -- Part 3 of our 3 part series On Coping and Mental Health at Different Stages of IgAN
Learn more about IgAN through the IgA Nephropathy Foundation IgA Nephropathy (IgAN) is an autoimmune disease that attacks the kidneys. Some people living with IgAN will need a kidney transplant. Finding a donor match, facing the anxiety about whether or not your body might reject the new kidney…
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Mental health matters -- part 2 of our 3 part series on mental health and coping at different stages of IgAN
Learn more about IgAN through the IgA Nephropathy Foundation IgA Nephropathy (IgAN) is an autoimmune disease that attacks the kidneys. It usually progresses slowly, but some people with IgAN eventually develop end-stage kidney disease, which means they will need dialysis or a kidney transplant....
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Tuning into your mental wellness and coping - Part 1 of our three-part series on minding your mental health along the IgAN journey
Learn more about IgAN through the IgA Nephropathy Foundation Finding out that you have IgA Nephropathy (IgAN) can be scary. Many people are flooded by a range of emotions, as well as the uncertainly of how the condition might progress. It can be a difficult and complex journey, and managing the...
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IgAN Journey Trailer
Whether you or someone you love has been diagnosted with the kidney disease IgA Nephropathy you are in the right place for information, support and encouragement. This podcast is brought to you by the IgA Nephropathy Foundation. It's mission: to be a patient-centric organization focused on…
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ABOUT THIS SHOW
Whether you or someone you love has been diagnosed with the kidney disease IgA Nephropathy you are in the right place for information, support and encouragement. This podcast is brought to you by the IgA Nephropathy Foundation. It's mission: to be a patient-centric organization focused on finding a cure for IgA Nephropathy. Using the power of the patient community we are focused on funding research, using patient advocacy to empower our patients, and building a network of support.You are not alone https://igan.org/
HOSTED BY
igan.org
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