Included: The Disability Equity Podcast
by Bonnielin Swenor
A podcast from the Johns Hopkins University Disability Health Research Center that challenges stereotypes of disability by sharing stories, data, and news. Episode transcripts can be found at http://disabilityhealth.jhu.edu/included
Episodes
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43: Decolonizing Social Science Methods
This episode features Dr. Autumn Asher BlackDeer, a queer decolonial scholar from the Southern Cheyenne Nation and an assistant professor in the Graduate School of Social Work at the University of Denver. She discusses how social science methods can be reshaped to learn from communities and...
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42: Reproductive Health and Disability
Dr. Willi Horner-Johnson takes a cross-disability approach to pregnancy and health in her work as Associate Professor at Oregon Health and Science University's School of Public Health, director of the Oregon Office on Disability in Health, and co-PI of the National Center for Disability and...
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41: Web Accessibility
Jared Smith, associate director of WebAIM, shares his expertise from over 20 years of working in web accessibility. In this episode, Smith highlights how online access means equity to information and ecommerce for all. He describes his team's systems to search websites for a wide variety of...
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40: Making Their Days Happen: Personal Assistant Services
In this episode, we welcome back Dr. Lisa Iezzoni, a professor of medicine at Harvard Medical school and an internationally recognized health services researcher, to discuss her new book, Making Their Days Happen: Personal Assistant Services Supporting People with Disability Living in Their Homes...
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39: Disability Health Equity and Health Implementation Science
Dr. Megan Morris is a University of Colorado-Anschutz Associate professor, certified speech-language pathologist, and founding director of the Disability Equity Collaborative, a community aimed at advancing equitable care for patients with disabilities through practice, policy and research. Dr....
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38: Disability and Emergency Management During COVID-19
Linda Mastandrea, Director of the Office of Disability Integration and Coordination at the Federal Emergency Management Agency (FEMA), shares her work as a disability law and civil rights attorney. She discusses her role in the COVID-19 response, the lack of data on how emergencies impact people...
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37: Health and Social Equity for People with Disabilities
Dr. Kimberly Phillips, Research Assistant Professor at the Institute on Disability at the University of New Hampshire, provides an overview of her broad range of projects on increasing equity for people with disabilities through employment and community participation. She differentiates the…
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36: Allyship and Education to Combat Disability Bias
Dr. Kathleen Bogart, Director of the Disability and Social Interaction Lab at Oregon State University, discusses her research on congenital and acquired disabilities, ableism, and stigma-related stress management. She describes the disability self-concept as an individual's disability identity…
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35: Disability Economics
Dr. Sophia Mitra, Professor of economics, co-director of the disability studies program, and founding director of the research consortium on disability at Fordham University, discusses the association between disability and economic outcomes. She describes how the current economic system...
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34: Healthcare During the COVID-19 Pandemic and Beyond
MaryBeth Musumeci, associate director of the Program on Medicaid and the Uninsured at the Kaiser Family Foundation, discusses how states are expanding access to behavioral healthcare, including the role of telehealth. She also describes the ethical issues behind COVID-19 mandates, the rights of...
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33: Disability Data Initiative
Dr. Sophie Mitra, professor in the department of economics, co-director of the disability studies program, and founding director of the research consortium on disability at Fordham University, discusses the disability data initiative. Dr. Mitra shares her findings that people with disabilities…
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32: Disability Moral Asymmetry
In this episode, the Director of the Institute for Ethics and Public Affairs at San Diego State University, Dr. Joe Stramondo, discusses his paper "Causing Disability, Causing Non-Disability: What's the Moral Difference?". In this conversation, he describes society's standard view of disability…
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31: Music and Hearing
Music producer, composer, and hearing technology consultant Richard Einhorn describes his diverse experiences from creating award-winning music to advocating for adults with hearing loss worldwide. Einhorn tells his story of suddenly losing hearing and experimenting with powerful hearing…
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30: Disability and Employment
This episode features Taryn Williams, the Assistant Secretary of Labor for Disability Employment Policy at the United States Department of Labor. She shares the mission of the Office of Disability Employment Policy (ODEP) and this office's policies and programs aimed at increasing employment...
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29: Disability and Intersectionality
Sandy Ho, a White House Champion of Change in 2015, returns to discuss her work supporting the inclusion of people from intersecting backgrounds in disability research and advocacy. She shares a brief history of the connection between intersectionality and the disability justice framework and why...
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28: Disability Civic Engagement
In this episode, we talk with Sandy Ho, a disability activist, policy researcher at the Lurie Institute for Disability Policy at Brandeis University, and co-founder of Disability and Intersectionality Summit. Sandy shares details from the report, Civic Engagement and People with Disabilities…
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27: L. Miché Aaron
A Planetary Science graduate student at Johns Hopkins University, L. Miché Aaron describes both her research studying minerals on Mars and her grassroots efforts to diversify science. Miché shares the story of her ADHD (attention deficit hyperactivity disorder) diagnosis and how society…
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26: Keyonna Mayo
Keyonna Mayo, a Baltimore City disability community leader, and Corey Warren, an attorney from Disability Rights Maryland, describe the obstacles faced by the disability community in Baltimore City. Keyonna discusses gaps in community accessibility within Baltimore City, including sidewalks, and...
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25: Ableism in Healthcare - Part 2
Assistant Professor at UNC School of Medicine and pediatric neurologist at the Carolina Institute of Developmental Disabilities, Dr. Diana Cejas discusses how ableism impacts patients and physicians in this two-part episode. She explains how disability is more than pathology, and shares how the...
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24: Ableism in Healthcare - Part 1
Assistant Professor at UNC School of Medicine and pediatric neurologist at the Carolina Institute of Developmental Disabilities, Dr. Diana Cejas discusses how ableism impacts patients and physicians in this two-part episode. She explains how disability is more than pathology, and shares how the...
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23: Advocacy for Physicians with Disabilities
University of California San Francisco Internal Medicine resident, Dr. Justin Bullock, shares his journey through medical training with bipolar disorder and explains how it drives his advocacy for disability inclusion among physicians, particularly those with a mental illness. Dr. Bullock…
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22: Disability within the Health Profession
Dr. Lisa Meeks is focused on promoting equal access in health professional education for trainees with disabilities. Dr. Meeks aims to change the paradigm from focusing only on individuals accommodations for people with disabilities to removing ableist barriers and creating inclusive environments...
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21: Disability Law - Part 2
In part two of this episode, Dr. Doron Dorfman describes his work identifying the "disability con", and the burden of proof for people with disabilities. He explains the importance of expanding understanding of disability law to combat these misperceptions and discusses how his work shows that...
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20: Disability Law - Part 1
Associate Professor of Law at Syracuse University College of Law, Doron Dorfman shares his work examining how ideologies, stigma, and stereotypes of disability impact policies, and the high stakes implications during the COVID-19 pandemic. Dr. Dorfman shares examples of how disability advocacy…
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19: Disability and Aging with Dignity
Sarah Szanton is the professor for health equity and social justice and director of the Center for Innovative Care in Aging at the Johns Hopkins School of Nursing. In this episode, Dr. Szanton describes her innovative model, Community Aging in Place—Advancing Better Living for Elders (CAPABLE),...
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18: Disability and the Arts
Molly Joyce, a nationally acclaimed composer, joins us to discuss the intersection of disability and music. Molly highlights what she calls a false social constriction — artists being limited by normative standards of performativity and virtuosity. She delves into the meaning of her debut album,...
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17: Healthcare and Disparities
Dr. Lisa Iezzoni is a professor of medicine at Harvard Medical school and an internationally recognized health services researcher. Dr. Iezzoni, with her decades of work on health inequities for people with disabilities, discusses disparities in healthcare and why the needle has not moved on...
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16: Disability & Policy
In this episode, we talk with Andrés Gallegos, chairman of the National Council on Disability (NCD), about his recent commentary in Health Affairs, "Misperceptions of People with Disabilities Lead to Low-Quality Care: How Policymakers Can Counter the Harm and Injustice." He shares insight on the...
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15: Disability in Medicine
Dr. Ruffin describes his experiences as a medical provider with a disability during the COVID-19 pandemic, such as how masks have hindered his ability to communicate with patients. He also talks about his own experience with hearing loss and how it gives him a more complete understanding of…
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14: Disability Services in Higher Education
Dr. Terri Massie-Burrell, the Director of Student Disability Services at Johns Hopkins, shares her journey to working in disability services and how her experience as an African American woman with a disability informed her trajectory. She discusses how her field has changed and her hopes for a...
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13: Disability Data
Dr. Scott Landes is an Associate Professor of Sociology at Syracuse University. Dr. Landes has recently published multiple research articles characterizing the greater risk of poorer COVID-19 outcomes faced by people with intellectual and developmental disabilities (IDD). His work highlights the...
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12: Covering Disability During COVID-19
Sara Luterman, a journalist focusing on disability issues, talks about her coverage of the COVID-19 pandemic. Topics include COVID-19 in nursing homes, medical rationing, and quality of life metrics. Sara delves into specific issues facing long-term care settings during the pandemic and potential...
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11: Disability Health Trainees
In this episode, Nick and Bonnie talk with three trainees at the Disability Health Research Center: Caroline Cerilli, Jessica Campanile, and Sabrina Epstein. The three share their experiences with the lack of disability inclusion in public health and pre-medical education. They discuss their...
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10: COVID-19 and Equity
Andy Imparato, Executive Director of Disability Rights California, shares his work on disability issues during the COVID-19 pandemic. In addition to his California work, Andy is a member of the Biden-Harris Administration COVID-19 Health Equity Task Force, and he discusses his national work to...
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9: Bioethics and Disability
Dr. Mildred Solomon, President of the Hastings Center, joins Bonnie and Nick to discuss her leadership at the Center and how it relates to disability issues. She reviews several historical and current projects on bioethics. Additionally, Dr. Solomon explores COVID-19 and disability, particularly...
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8: The Economic Cost of Ableism and Racism
Nanette Goodman researches economic outcomes of people with disabilities, and she recently examined this issue through the lens of intersectionality. She shares her staggering findings in this episode: people with disabilities are twice as likely than those without to live in poverty, and this...
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7: Disability Identity
In this episode, Bonnie and Nick interview Dr. Anjali Forber Pratt, assistant professor at Vanderbilt University, Paralympian and disability rights activist. She talks about disability identity from both a personal and academic research perspective. Drawing on the disability justice framework…
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6. Disability Rights in Psychiatric Hospitals and Long COVID
Kathy Flaherty, Executive Director of the Connecticut Legal Rights Project, discusses how the COVID-19 pandemic has affected people with psychiatric disabilities, particularly those in inpatient facilities. Kathy shares her work in Connecticut advocating for the rights of patients in psychiatric...
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5. Get to know the host
In this episode, Bonnie interviews her co-host, Dr. Nick Reed, in this bonus episode. Nick shares his personal story of how he became interested in hearing research. You'll learn about Nick's journey in academia and medicine and how he balances his passion for public health with his own mental...
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4. Get to know the host
In this episode, Nick interviews Bonnie about her research and disability advocacy. She discusses her own experience with disability and her journey to public health. Learn more about the Johns Hopkins Disability Health Research Center here: https://disabilityhealth.jhu.edu/ Episode transcripts…
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3. Voting: Crip the Vote
In this episode, Andrew and Gregg talked about founding #CripTheVote in 2016 with Alice Wong out of a shared frustration with disability not being mentioned in the presidential debates. They gave specific examples of barriers to voting and how they vary for people with different access needs,...
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2. Voting: Plan Your Vote
In this episode, Sarah Blahovec discusses the work of disability nonprofits to organize the disability vote. From voter registration to polling sites, disabled people experience barriers at every step of the voting process. Problems with the US Postal Service have been highlighted in the news...
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1.Voting: National and State Perspectives
In this episode, our guest Maureen van Stone discusses educating candidates about disability policy, increasing the disability vote, and addressing issues specific to Maryland. With her expertise in advocating for children with disabilities, Maureen explains what's at stake in this election for…
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About this show
A podcast from the Johns Hopkins University Disability Health Research Center that challenges stereotypes of disability by sharing stories, data, and news. Episode transcripts can be found at http://disabilityhealth.jhu.edu/included
Hosted by
Bonnielin Swenor