Inflammatory!

Debbie and Katy return exhausted but energised after three intense days at the British Society for Rheumatology Conference in Glasgow,marking Inflammatory Arthritis UK’s first-ever national conference appearance.In this episode, they unpack what it meant to show up as a young charity, the powerful conversations they had with clinicians, researchers, and other charities, and the surprising innovations they discovered, from robotic ultrasounds to smarter blood monitoring systems.This is an honest, behind‑the‑scenes look at what happens when lived experience meets the wider rheumatology community and how much appetite there is for patient voice, collaboration, and change.“This gives us insights into what happens outside that clinic door and beyond the self‑management side.” Key TopicsOur first national conference as a charityMeeting the wider rheumatology communityWhy clinicians are listening to the podcastThe challenge of medication namesThe transition gap for young people (16–18)Admin frustrations & homecare inequalitiesNew technologies on the horizon Research culture is changingPPIE (Public & Patient Involvement and Engagement)Useful Resources & LinksInflammatory Arthritis UK – sign up for the newsletter: inflammatoryarthritis.orgFollow IAUK on Facebook, LinkedIn, Instagram, and BlueSkyPrevious episode on NHS admin challenges (referenced by clinicians at the conference)Upcoming guest: Dr Rosemary Hollick on research, psoriatic arthritis, and axial spondyloarthritisDisclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.·      For more information, head to https://inflammatoryarthritis.org/

In typical Inflammatory! style, Debbie and Katy somehow make even the dullest topic, NHS admin, funny, relatable, and full of those “only happens to us” moments. This episode dives into the hidden admin burden patients face when navigating NHS care - from missing paperwork and broken digital systems to long waits, confusing referrals, and the emotional toll of chasing appointments. They share honest, often hilarious, often frustrating real‑life stories that show how poor admin impacts treatment, family life,mental health, and flare management. They also explore new research from The King’s Fund, Healthwatch England and National Voices, and discuss what needs to change to make care safer, smoother, and more humane… ideally before any of us lose the will to live in another hospital phone queue.Key words: inflammatory arthritis, NHS admin burden,lost in the system, patient experience, rheumatology, long‑term conditions,healthcare communication, NHS digital systems, waiting lists, blood tests,steroid injections, chronic illness advocacy, National Voices, King’s Fund reportKey Topics Covered Admin failures delay careWhy NHS paperwork, referrals and digital systems break down, and how this affects patients with long‑term conditionsThe King’s Fund / Healthwatch England / National Voices report on admin problems and patient safetyBlood test chaos codes that don’t work, missing forms, slow systems, and parking nightmaresThe emotional and physical toll of adminWhy people with multiple conditions are hit hardestHow communication failures ripple out to families, work, and mental healthWhy simple fixes, like calendar integration, would make a huge differenceThe role of charities like IAUKWhat other countries do differently,The importance of continuity of care for chronic conditionsStandout moments:“I’ve been on a waiting list for over four years… and at one point they wouldn’t see me because they didn’t have the right paperwork.”“Forty‑four percent of people with admin issues just give up. And honestly, I get it.”“You shouldn’t have to psych yourself up to make a phone call just to get the care you need.”“What you see is the tip of the iceberg - not everything going on underneath.”Useful resources: Lost in the System: The Need for Better Admin –King’s Fund, Healthwatch England & National Voices report NHS App – forappointments, NHS number, and test results (when it works!) IAUK –support, advocacy, and community for people with inflammatory arthritisStay connected: Have your own admin nightmare story? Want to share how healthcare works in your country? Email [email protected] join the conversation on our social channels.Disclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.For more information, head to https://inflammatoryarthritis.org/

SummaryInflammatory arthritis doesn’t just affect the person living with it, it reshapes the daily lives, emotions, plans, and futures of the people who love them. In this heartfelt episode, Debbie and Katy explore the hidden impact on partners, children, siblings, and wider family members. Drawing on powerful listener submissions, they discuss the emotional load, the financial strain, the invisible nature of the condition, and the resilience that families build together.As Debbie notes, “our life revolves around how she feels that day… everything from plans to simple things like going for a walk dependso n pain levels.” And as one listener shared, “it’s been hard, but it’s also brought us closer together in ways I didn’t anticipate.”This episode is honest, validating, and deeply human, a reminder that chronic illness is always a family story.Keywordsinflammatory arthritis, family impact, chronic illness,relationships, partners, care giving, fatigue, invisible illness, financial planning, resilience, emotional wellbeing, IA community, lived experienceKey Topics CoveredThe unseen emotional load on familiesThe invisibility problemDaily life shaped by pain and fatigue.Financial and retirement planning challengesIdentity, independence, and shifting rolesResilience and unexpected closenessCommunication as the anchorLetting loved ones live their lives tooThe need for better support for familiesStand out Insights“Our life revolves around how she feels that day… everything depends on pain levels.”“Sometimes I don’t know whether to encourage her to push through or tell her to rest. I worry about getting it wrong.”“It’s been hard, but it’s also brought us closer together in ways I didn’t anticipate.”Useful Resources MentionedCitizens Advice — guidance on benefits, employment rights, and financial planningPIP & Universal Credit — support options for people living with long‑term conditionsIAUK Newsletter — updates on research, events, and community storiesIAUK Social Channels — Facebook, LinkedIn, Instagram, BlueSkyEmail — [email protected] ConnectedJoin the conversation, share your experiences, and help us shine a light on the realities families face. Sign up for updates at inflammatoryarthritis.org and follow us on social media.This episode was funded by UCB, who had no involvement in the development of the content or any associated materials.Disclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.·       For more information, head to https://inflammatoryarthritis.org/

In this powerful and deeply human conversation, Debbie andKaty sit down with Andy Kelly - physiotherapist, patient advocate, EULAR representative, and trustee of Inflammatory Arthritis UK to explore what it really means to live with psoriasis and psoriatic arthritis.Andy shares his journey from first symptoms at university,through years of misdiagnosis, to navigating the emotional and physical realities of a fluctuating autoimmune disease. He opens up about stigma, parenting with a long‑term condition, the impact of flares, and the transformative role of psychological support after an incident at a local swimming pool left him in a bad place. He also reflects on his work in research, patient advocacy, and the growing movement to involve lived experience in shaping future priorities.This episode is full of honesty, humour, and practical wisdom, from navigating treatment pathways to understanding fatigue, exercise, and self‑compassion.Key Topics CoveredAndy’s early symptoms and long road to a psoriasis diagnosisHow psoriatic arthritis developed and why he didn’t recognise the signsThe emotional impact of visible skin disease, including a painful experience at a swimming poolThe role of dermatology–rheumatology joint clinicsHow psychological support helped him accept his diagnosisStarting biologics and navigating treatment optionsLiving with flares: unpredictability, pain, fatigue, and the challenge of “looking fine”Parenting with a long‑term condition and supporting children who develop psoriasisExercise, movement, and the realities of managing energyAndy’s work with BRITPACT, the Psoriasis Association, EULAR, and the James Lind AllianceWhy patient involvement in research is changing the landscapeThe importance and difficulty of self‑compassionStandout moments: “Psychological support was a game changer — accepting what it was, accepting the diagnosis.”“You don’t look ill… but I’m in agony.”“Self‑compassion is the hardest thing. If you don’t slow down, it will make you.”Resources & Links James Lind Alliance https://www.jla.nihr.ac.uk/ Inflammatory Arthritis UK: inflammatoryarthritis.orgFollow us on BlueSky, Instagram, LinkedIn, and FacebookSign up for our newsletter for updates, stories, and community eventsThis episode was funded by UCB, who had no involvement in the development of the content or associated materials.Disclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.·       For more information, head to https://inflammatoryarthritis.org/

This week, Debbie and Katy sit down with the brilliant and endlessly determined Charlie Robards, who was diagnosed with axial spondyloarthritis at just 18 - right as he was chasing his dream of becoming a professional sportsman. Now 50, Charlie reflects on three decades of navigating pain, ambition, parenting, relationships, and the emotional weight of a lifelong condition.What unfolds is an honest, funny, and deeply human conversation about resilience, identity, and the surprising places we find strength. Charlie’s story is a reminder that life doesn’t always go to plan, but it can still be full, joyful, and meaningful.“I am who I am, work with what you’ve got rather than fight to be something you’re not.”Key topics: Impact of being diagnosed at 18Sport as a lifelineFlares, pain & the hot/cold debateWeather, mood & mobilityTalking to partners, friends & coachesParenting with AxSpAMental health & suppressed emotionsBiologics & uveitisWriting Hitting AS for SixAdvice to his younger selfKey words: Axial spondyloarthritis, AxSpA, ankylosing spondylitis, chronic pain, sport and disability, cricket, resilience, uveitis, biologics, flare management, men’s mental health, invisible illness, parenting with chronic illness, acceptance, pacing, inflammation, NASS, lived experience.Resources and links: Hitting AS for Six — Charlie’s book supporting NASSNational Axial Spondyloarthritis Society (NASS)Inflammatory Arthritis UK (IAUK) — resources, stories, and supportNewsletter sign-up: inflammatoryarthritis.orgFind us on BlueSky, Instagram, Facebook & LinkedInThis episode was funded by UCB, who had no involvement in the development of the content or any associated materials.Disclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content. For more information, head to https://inflammatoryarthritis.org/

In this special 50th episode, Debbie and Katy celebrate how far the podcast has come while shining a light on an often‑missed reality: children and young people do live with rheumatic and inflammatory diseases. Recorded on World Young Rheumatic Diseases Day, the episode blends lived experience with practical insight, from delayed diagnoses and complex referral pathways to the hidden admin burden families face when navigating paediatric rheumatology and the wider NHS system. They discuss the impact on siblings, the importance of being heard, and how empowering young people can transform their confidence and their experience of illness. Honest, relatable, and thought‑provoking, this episode is a reminder that behind every diagnosis is a whole person and a story worth hearing.Key topics: WORD Day and raising awareness of paediatric rheumatic diseasesMisconceptions around childhood joint pain and “growing pains”Tertiary centre is a highly specialized hospital providing advanced treatments for complex or rare conditions, typically requiring a referral from primary (i.e. GP) or secondary care (i.e. local hospitals)Delayed diagnosis and challenges in paediatric rheumatology pathwaysThe hidden admin burden on patients and parentsImpact on siblings and family lifeParental wellbeing and avoiding burnoutUsing technology and AI to support disease managementEmpowering young people to speak up in healthcare settingsDebbie’s visit to the House of Commons and meeting children with JIAEncouraging movement and sport for MSK and mental healthPreview of next week’s guest, author Charlie RobardsKey words: juvenile idiopathic arthritis, JIA, WORD Day, paediatric rheumatology, childhood arthritis, young people rheumatic diseases, inflammatory arthritis podcast, NHS admin burden, chronic illness parenting, early diagnosis arthritis, rheumatology awareness, lived experience arthritis, Inflammatory Arthritis UKResources: WORD Day – World Young Rheumatic Diseases DayARMA (Arthritis and Musculoskeletal Alliance) – Movement policy paperNational Axial Spondyloarthritis Society (NASS) – Beneficiary of Charlie Robards’ bookPrevious episodes referenced:Episode 11 – Parenting a child with JIAEpisode with 49 with Dr Keith GrimesDisclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.For more information, head to https://inflammatoryarthritis.org/

In this insightful interview, Dr. Keith Grimes, a former GP and digital health innovator, explores the transformative potential of AI in healthcare. From data sharing and patient access to AI-driven diagnostics and drug discovery, discover how AI can revolutionize patient care while emphasizing safety and privacy. Key Words: AI in healthcare, digital health, patient data, medical innovation, AI diagnostics, healthcare technology, data privacy, NHS, medical AI tools, NHS AppKey TopicsWhat artificial intelligence actually means in healthcareHow AI tools like machine learning and large language models workWhy healthcare data is often fragmented across multiple systemsThe role AI could play in reducing GP and hospital administrationHow wearable devices and health apps could support personalised careHow AI is speeding up medical research and drug discoveryWhy patient access to medical records is importantHow to safely use AI tools like ChatGPT with health informationKey comments: “Healthcare data isn’t one big database; it’s stored in lots of separate systems.”“The more accurate information AI has, the better it can help but privacy must be protected.”“AI could help identify which medications will work best for a patient much earlier.”“We’re entering a time where science and medicine could move much faster.”How to Connect with the Podcast Website:Inflammatory Arthritis – https://inflammatoryarthritis.orgSocial Media:Facebook, Instagram, BlueSky, LinkedInFollow, like, and share to continue the conversation around inflammatory arthritis, healthcare innovation, and patient experiences.Newsletter:Sign up via the website Disclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.·       For more information, head to https://inflammatoryarthritis.org/

Why do so many people with inflammatory arthritis say “I’m fine” when they’re not? In this episode, Debbie and Katy reflect on masking pain, stress-triggered flares, and the emotional impact of diagnosis. They discuss how overwhelming early treatment decisions can be, why people diagnosed young often feel embarrassed talking about it, and how hearing others’ perspectives can reveal what friends and family don’t always see.They also highlight the importance of community, from role models like Kathleen Turner to the online spaces helping people feel less alone, and share updates from Inflammatory Arthritis UK ahead of the British Society for Rheumatology conference.Key wordsInflammatory arthritis, autoimmune disease, masking pain, invisible illness, community, diagnosis, medication, shielding, family impact, mental health, stress, flare-ups, rheumatology, social prescribing, physiotherapy, lived experience, charity workKey topicsMasking pain and pretending to be “fine”The impact of stress and life changes on flare-upsDiagnosis overwhelm and medication fearsForgetting trauma as a coping mechanismEmbarrassment and stigma around young diagnosisShielding during COVID and explaining immunosuppressionThe power of online communitiesRepresentation and role modelsThe impact of inflammatory arthritis on family membersSupporting healthcare professionals and fitness professionals with educationBuilding a charity rooted in lived experienceKey Takeaways“Every time we say we’re fine, actually we’re not.”Diagnosis is overwhelming — physically and emotionally.Community doesn’t have to be in person.Being believed can be life-changing.Family members are impacted too — and their voices matter. Upcoming Episode – We Want to Hear From YouWe’re planning an episode focused on the family perspective.Are you a partner, parent, sibling, or friend of someone with inflammatory arthritis?How has it impacted you?What questions do you have?What support would help you?All responses can be anonymous.Email us: [email protected] or DM us on social mediaConnect with us Website: InflammatoryArthritis.org Email: [email protected] us on: Facebook, LinkedIn, BlueSky & InstagramDon’t forget to rate, follow & download the podcast wherever you listenSign up to our newsletter for episode updates, IA news, research, and events.Disclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.·       For more information, head to https://inflammatoryarthritis.org/

In this powerful episode of Inflammatory!, Debbie and Katy are joined by Hansa, who was diagnosed with rheumatoid arthritis at just 19 years old while at university.Hansa shares her journey of navigating diagnosis alone,hiding her condition at work, managing pregnancy and motherhood with inflammatory arthritis, and finally finding relief through biologic treatment.An honest and relatable conversation about pain, resilience,cultural expectations, self-advocacy, and raising empathetic children while living with an invisible illness.KeywordsRheumatoid arthritis, inflammatory arthritis, autoimmune disease, young diagnosis, university diagnosis, chronic illness, invisible illness, biologics, pregnancy and arthritis, motherhood with chronic illness, strength training, self-advocacy, NHS rheumatology, flare ups, chronic pain, Asian cultural expectations, arthritis support, biologic medication, autoimmune parentingKey Topics CoveredBeing diagnosed with rheumatoid arthritis at 19Feeling lost after diagnosis and receiving little informationCultural stigma and keeping illness privateHiding chronic illness at university and in the workplaceDating, relationships, and fears about acceptancePregnancy with inflammatory arthritisManaging flares while raising young childrenThe impact of biologic medication and finding the right treatmentThe emotional toll of “just coping” with chronic painLearning to speak up and advocate for yourselfRaising children to understand invisible illnessStrength training and movement for joint healthThe importance of community and shared storiesMemorable takeaways“I hid it from people, and I hid it from myself.”Pain became “normal” until the right medication changed everything.Speaking up earlier is something Hansa wishes she had done.Children raised around chronic illness often develop deep empathy and understanding.You shouldn’t have to justify yourself for having an autoimmune disease.Connect with us Sign up to our newsletter at inflammatoryarthritis.orgFollow us on Instagram, Facebook, LinkedIn, BlueSky Watch episodes on YouTube🎧 Follow, rate & download the podcast wherever you listenIf this episode resonated with you, please share it with someone who may need to hear it. Stories like Hansa’s remind us that we are not alone and that life with inflammatory arthritis can still be full of strength, growth, and joy.Disclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.For more information, head to https://inflammatoryarthritis.org/

In this episode of Inflammatory!, Debbie and Katy are joined by Katy’s close friend Cat for an honest and heartfelt conversation about love, friendship, and living with chronic illness. Together, they reflect on the evolution of their friendship, the realities of navigating inflammatory arthritis, how it felt to see your closest friend physically struggle, and the power of communication, humour, and support. Through shared memories and personal stories, they explore how diagnosis can reshape relationships and why awareness and understanding matter more than ever.Key topics: The theme of the month is love, friendship, and chronic illness.Friendship can evolve from work colleagues to lifelong companions.Understanding inflammatory arthritis requires open communication and education.Memories from shared experiences can highlight the onset of symptoms.Navigating a diagnosis can be challenging without clear communication.Chronic illness impacts relationships and requires support from friends.Hindsight often reveals what we wish we had known during difficult times.Supportive friendships are crucial for those living with chronic illness.Celebrating achievements despite challenges is important.Continuing the conversation about chronic illness helps raise awareness.Sound bites"I definitely think fun.""You deal with things with humour.""I think it was quite a shock."Connect with us Website: inflammatoryarthritis.orgNewsletter: Sign up on the websiteSocials: BlueSky, Instagram, Facebook, LinkedInDisclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.

Keywordschronic illness, inflammatory arthritis, support networks,medication management, health transparency, empathy, friendship, diagnosis,patient experience, healthcareSummaryIn this episode of Inflammatory! the hosts reflect on how stress, relationships, and chronic illness shape everyday life. Including the realities of moving house while managing refrigerated medication, highlighting the extra planning people with inflammatory conditions must navigate. They revisit last week’s guest, Haffy, and her experience of being diagnosed with inflammatory arthritis while pregnant and what that means for decision-making and self-advocacy.A key theme is frustration with NHS systems and the lack of easy access to personal blood test results, despite growing calls for shared decision-making in healthcare.With February’s theme of love, friendship, and chronic illness, Debbie and Katy discuss how living with inflammatory arthritis affects relationships, including:Key topics:    Managing medications during a move can be stressful.Support networks are crucial for those with chronic illnesses.Transparency in medical data is essential for patient empowerment.Explaining chronic illness to friends requires honesty and openness.Empathy is key in understanding the challenges of chronic illness.It’s important to recognize true friends during difficult times.Chronic illness can change social dynamics and friendships.Patients should have access to their medical information.Living with chronic illness involves a continuous learning process.Finding a supportive community can greatly enhance the patient experience.Sound bites"Why can't we see our blood test results?""It's a new life. It's a new chapter."Connect with usWebsite: inflammatoryarthritis.orgNewsletter: Sign up on the websiteSocials: BlueSky, Instagram, Facebook, LinkedInDisclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.·       For more information, head to https://inflammatoryarthritis.org/

In this powerful and deeply personal episode of Inflammatory! Debbie and Katy are joined by Haffy, a clinical pharmacist, university lecturer, and mum of two, who shares her journey of being diagnosed with rheumatoid arthritis and undifferentiated mixed connective tissue disease in her late 20s.Despite her medical background, Haffy’s diagnosis was delayed, highlighting the challenges of being a young woman with inflammatory arthritis and the importance of self-advocacy. She opens up about pregnancy, motherhood, cultural expectations, navigating work, and finally finding the right treatment that transformed her quality of life.This is an honest, emotional, and inspiring conversation about resilience, trust in your body, and making the most of the good days.Key topics discussedEarly symptoms of inflammatory arthritis and delayed diagnosisLiving with rheumatoid arthritis in your 20sBeing dismissed due to age and “normal” blood resultsThe emotional impact of misdiagnosis and missed test resultsPregnancy, fertility, and treatment decisions with inflammatory arthritisBalancing motherhood, chronic illness, and a demanding careerCultural attitudes toward illness and “just getting on with it”The importance of support systems and finding your “village”DMARDs, treatment side effects, and finally finding the right medicationLearning to pace yourself and protect your mental healthAdvocating for yourself within the healthcare systemMemorable takeawaysYou are the expert in your own body.Trust your instincts, if something feels wrong, keep pushing for answers.Chronic illness doesn’t stop at joints; it affects your whole life.Pregnancy decisions with inflammatory arthritis are deeply personal.The right treatment can be truly life-changing.Good support, family, work, and healthcare makes all the difference.Resources and links🌐 Visit: inflammatoryarthritis.org📩 Sign up for the Inflammatory Arthritis UK newsletter🎥 Watch the episode on YouTube⭐ Rate & follow the podcast wherever you listenDisclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.For more information, head to https://inflammatoryarthritis.org/

Keywords: inflammatory arthritis, AI in healthcare, personalized medicine, early diagnosis, chronic illness, patient care, healthcare technology, living with arthritis, health podcast, medical advancementsIn this episode of Inflammatory!, Debbie and Katy dive into the growing role of artificial intelligence (AI) in healthcare and what it could mean for people living with inflammatory arthritis. They talk openly about the promise of AI, from helping personalise treatment to supporting earlier diagnosis, while also reflecting on the very real challenges of living with a long-term condition.Alongside the tech talk, the conversation keeps coming back to what really matters: human connection. Debbie and Katy explore why empathy, understanding and being truly heard can’t be replaced by algorithms, no matter how advanced they become. They also touch on the everyday realities of chronic illness, including fatigue, invisible symptoms and the importance of learning to advocate for your own health.The episode wraps up with a fun quickfire round, where the hosts share their honest thoughts on AI, data and the future of healthcare.Key topics:How AI has been around for decades and why it’s now becoming more visible in healthcareWhy personalised medicine matters so much for inflammatory arthritisThe life-changing impact of early diagnosisWhy human care and compassion must stay at the heart of healthcareFatigue and other invisible symptoms that are too often overlookedHow AI could reduce trial-and-error when prescribing medicationsThe importance of speaking up and advocating for yourselfWhy AI data needs to represent all patients, not just a fewLiving in the moment with a chronic conditionHow AI could give healthcare professionals more time to focus on patientsA thoughtful, honest conversation about balancing innovationwith humanity and putting people first.Sound Bites"You know your body better than anyone.""We need to advocate for our health.""AI predictions: trust or side-eye?"Keep connectedPlease do rate, follow and download the podcast andsubscribe to our YouTubechannel Follow us on social media: Search Inflammatory Arthritis UKon Facebook, Instagram, Bluesky and LinkedInSign up to our newsletter at https://inflammatoryarthritis.org/Disclaimer: Debbie and Katy are not medicalprofessionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personalhealth journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for anylosses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.·       Formore information, head to https://inflammatoryarthritis.org/

Keywords: chronic illness, spoon theory, energy management, school absences, NHS online hospitals, parenting, inflammatory arthritis, healthcare, pets, community support In this episode, Debbie and Katy discuss the challenges faced by parents of children with chronic illnesses, particularly in relation to school absences and the perception of illness by educational institutions. They delve into the concept of spoon theory, which illustrates how individuals with chronic conditions manage their energy levels throughout the day. The conversation also touches on the emotional support provided by pets, the potential impact of NHS online hospitals on patient care, and the importance of community engagement in navigating these challenges.Key Topics covered: Parenting, illness, and January fatigueSchool absence and chronic conditions (including JIA)Individual Healthcare Plans (IHPs)Spoon theory and energy managementPacing, boundaries, and prioritisationMedication-related fatiguePomodoro technique and life “project management”GPS theory of life and non-linear progressSocial media comparisons and chronic illnessPets as emotional supportFriendships and chronic illness (preview)NHS online hospitals and digital healthcare concernsHelpful Resources & Stay connectedIndividual Healthcare Plans (IHPs) – via the Healthcare in Schools Alliancehttp://healthconditionsinschools.org.uk/Follow Inflammatory Arthritis UK on Facebook, Instagram, LinkedIn, and BlueSkyPlease rate and review the podcast — it really helps others find us 💛Manage your spoons, pace yourself, and remember: my pace, not yoursDisclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys, and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content. For more information, head to https://inflammatoryarthritis.org/

Keywords: New Year, holiday experiences, illness impact, darts, self-care, resolutions, FOMO, JOMO, inflammatory arthritis, charity goals #MyPaceNotYours, Empowering patientsIn this episode, Debbie and Katy reflect on their holiday experiences, discuss the impact of illness on celebrations, and share their newfound interest in darts. They celebrate the one-year anniversary of their podcast, emphasizing the importance of self-care and the shift from New Year's resolutions to more sustainable intentions. The conversation also touches on the concepts of FOMO and JOMO, the challenges of managing inflammatory arthritis in winter, the goals for their charity in the coming year and their theme for January #MyPaceNotYours.They finish by talking about confidence in healthcare appointments, the importance of remembering that you are the expert in your own body, and how mutual respect between patients, parents, and clinicians is key.Topics covered in this episode:Christmas, New Year & managing fatigueCold weather, flares & winter symptomsOne year of Inflammatory Arthritis UKPressure of New Year’s resolutions“My pace, not yours”Incremental change vs unrealistic goalsFOMO vs JOMOSelf-compassion & pacing with IAConfidence in healthcare appointmentsBeing the expert in your own lived experienceAdvocacy, awareness & sharing IA storiesGet Involved: Visit: inflammatoryarthritis.orgSign up to the newsletter for podcast updates, events & research opportunitiesFollow Inflammatory Arthritis UK on BlueSky, Facebook, LinkedIn & InstagramSubscribe to our YouTube channel: Inflammatory Arthritis UKPlease rate, follow & share the podcast, it really helps others find us 💙Disclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.For more information, head to https://inflammatoryarthritis.org/

This week’s podcast episode didn't go entirely to plan so we decided to have a shorter relaxed end-of-year chat with quite a few laughs and festive outfits (you can watch the episode on YouTube!). Make sure you listen right to the end of the episode to hear our bloopers and outtakes, they’re too good (and too embarrassing) not to share.What we discuss:How exhausting this time of year can be (even when good things are happening)Debbie celebrating her Nan’s 100th birthday 🥳 — including a very special card from the King and QueenThe reality of podcast bloopers, outtakes, and why our intros take longer than the actual episodeChristmas onesies, sparkly jumpers, and making an effort (even when you’re knackered)Sending love to those celebrating Hanukkah and to friends in Australia during a difficult timeBeing very unprepared for ChristmasHow hard it is to buy presents for kids and partners who “don’t want anything”Moving house stress and a Christmas tree that’s up… but not decoratedWhy New Year’s resolutions don’t really work for us anymoreIntroducing our January theme: #MyPaceNotYoursHow do you set goals when your body doesn’t always cooperate?A look ahead to February, where we’ll be talking about love, friendship, and chronic illnessA huge thank you to everyone who’s listened, followed, messaged, and supported us this yearStay connected:We’d love to hear your thoughts for #MyPaceNotYoursFollow, rate, and review the podcast wherever you listenFollow us on social media (and thank you for helping us grow!)Sign up to our newsletter at inflammatoryarthritis.org for updates, research, and eventsWe will be back in January with new episodes (and a postponed guest!). Until then, take care of yourselves, rest when you need to, and go at your pace. 💛Disclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.·       For more information, head to https://inflammatoryarthritis.org/  

Keywords:  Darts, Fitness, Running, Mental Health, Community, Podcast, Christmas, Health Challenges, Strength Training, Autoimmune DiseaseDebbie and Katy wrap up the year with a warm, funny, and reflective catch-up. Katy shares her unexpected victory at a work darts tournament and recaps her chilly final 10K of the year, complete with a painful lesson in running gear. Debbie talks about flare-ups, stress, and picking up her daughter’s cold while trying to keep everything in balance.Together, they look back on their favourite episodes, the importance of strength training, mental health, and how hard it can be to juggle fitness with chronic illness. They also celebrate listener feedback, their growing global audience (hello Australia and Norway!), and the power of lived experience within the inflammatory arthritis community.The hosts chat about changing Christmas party trends, from darts to aquariums, and share some exciting plans for the podcast in the new year, including new guests, new trustees, and more community-focused content.Key TopicsKaty’s Flight Club darts triumphRunning injuries, rest, and balancing multiple sportsDebbie’s flare-ups, stress, and festive-season coldsStrength training vs endurance and why it’s hard to balance bothReflections on mental health, vulnerability, and community supportSpotify Wrapped listener statsChristmas party trends and alcohol habitsNew podcast plans and growing the charity’s reachEpisodes MentionedStrength Training (with Matt)1% BetterSound SystemYou Are Not Alone (mental health deep dive)Sex & RelationshipsOur Journey BeginsCan You Keep Your Humour?Alcohol EpisodeGuest episodes with James, Rachel, Adam, and SarahFollow us on social media: Bluesky, Facebook, Instagram,LinkedIn and YouTubeDisclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.For more information, head to https://inflammatoryarthritis.org/   

James Hollens joins us on Inflammatory! to share his honest and emotional journey of living with two types of inflammatory arthritis, whilst keeping his sense of humour, it is a very funny and honest episode. He talks about the sudden joint pain that hit in his early twenties, the months of misdiagnoses, and the moment a rheumatologist finally recognised rheumatoid arthritis. At just 21, James had to face the shock, stigma, and mental toll of a lifelong diagnosis far earlier than he ever expected.His story then takes us to China, where a new wave of intense back pain landed him in an emergency hospital and a suspected diagnosis of ankylosing spondylitis. Navigating a foreign healthcare system, language barriers, and a specialist shutdown during Chinese New Year made the experience even more daunting. Returning to the UK brought answers, faster treatment, and eventually a confirmed AS diagnosis, followed by a long recovery supported by biologics, physio, and major lifestyle shifts.We also dive into the emotional side of chronic illness,from pandemic isolation to the mental health battles many patients face. James shares how lock-down volunteering grew into a thriving social media presence where he raises awareness, builds community, and spreads humour and honesty, including his popular “prick & pic” travel series. He closes with heartfelt advice to his younger self about shame, vulnerability, and finding support sooner.Key Topics CoveredEarly symptoms and repeated misdiagnosesReceiving an RA diagnosis at age 21Living abroad and a second suspected diagnosis (AS)Navigating a foreign medical system and language barriersReturning to the UK for answers and treatmentRecovery with biologics, physiotherapy, and lifestyle changesMental health challenges and pandemic isolationHow volunteering led to chronic illness advocacy onlineTravelling with medication & the “prick & pic” seriesAdvice for his younger self:don’t be ashamedopen up soonerfind communitycare for mental & physical healthstop fighting yourselfConnect with James: Instagram: @JamesHollensConnect With Us: Follow Inflammatory Arthritis UK and the podcast on: Instagram | BlueSky | Facebook | LinkedIn💬 Please like, share, and comment to help us reach more people.⭐ And don’t forget to rate and follow the podcast wherever you listen! Coming UpWe have two more episodes before our festive break,including another special guest and our reflections on the past year—plus our favourite moments!Disclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.·       For more information, head to https://inflammatoryarthritis.org/

Debbie and Katy dive into the chaos, pressure, and unexpected joys of the festive season, all while managing inflammatory arthritis. From flare frustrations and frozen fingers to minimalist Christmases, Santa mishaps, school nativity seating struggles, and the great“real tree vs fake tree” debate, this episode is full of relatable laughs and honest reflections.They explore how stress, weather, family expectations and endless December commitments can trigger symptoms and why giving yourself permission to slow down can be the best gift of all. Plus: cheese boards, mince pies, Christmas tiffins, flare-friendly cooking shortcuts, and why Debbie wants a “Be More Like Katy” t-shirt.The hosts also share what’s coming in 2026 and invite the IA community to get involved with recipes, workplace stories, mental health tips,and New Year’s habits.Next week: an incredible guest joins the show with a hilarious and moving story about life with RA and axial spondyloarthritis.Topics CoveredManaging flares during winter and holiday stressChristmas pressures vs. keeping it simpleReal vs. fake Christmas treesSanta experiences and family traditionsSchool nativity plays & accessibility challengesHosting vs. being a guest at ChristmasFlare-friendly cooking and festive food shortcutsMental health during busy seasonsCommunity contributions for the 2026 podcast plansPlease do follow, rate, and share the podcast to help grow the IA community.Website: inflammatoryarthritis.orgFind us on BlueSky, Instagram, Facebook and LinkedIn.Disclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.For more information, head to https://inflammatoryarthritis.org/

This week, Debbie and Katy dive into how a sudden UK cold snap is affecting their inflammatory arthritis and how the community is feeling it too. Debbie shares her current whole-body flare, why pacing is key, and the importance of looking after yourself when symptoms spike.They also chat about:How cold weather triggers stiffness and flaresYour feedback on sleep, boundaries, and slowing downDiet confusion: flare triggers, food testing, and why diet advice can be… irritatingExciting charity updates and new grants for 2025Energy management, spoon theory, and putting yourself firstHeated steering wheels, hot tubs, and Diet Coke vs fizzy waterWhy everyone’s IA journey is so individualPlus: a fun quick-fire Q&A covering brain fog, flare-day outfits, stairs vs tiny buttons, pain vs fatigue, sofa vs bed, and whether they’d choose Strictly Come Dancing or I’m a Celebrity.As Christmas approaches, the hosts talk openly about festive pressure, stress-related flares, and finding humour and community support during tough seasons.Stay ConnectedWebsite: inflammatoryarthritis.orgNewsletter & resources: via the websiteFollow us: BlueSky • Instagram • Facebook • LinkedInPlease rate and follow the podcast—it really helps us grow!Disclaimer: Debbie and Katy are not medicalprofessionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personalhealth journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for anylosses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.·       For more information, head to https://inflammatoryarthritis.org/

In true Inflammatory! style, Debbie and Katy bring plenty of humour, honesty, and a healthy dose of real talk in this heartfelt and relatable episode. They dive into what “looking after yourself” really means when you’re living with inflammatory arthritis or any long-term condition — and spoiler alert: it’s about a lot more than bubble baths and early nights!They chat about everything from blue post-it notes and children’s times tables to deep-tissue massages, blood test bureaucracy, hospital parking nightmares, and the realities of trying to cook healthy meals when your joints won’t cooperate. The conversation circles back to the importance of self-respect, community, and remembering to put on your own oxygen mask first.Key Takeaways: Self-care isn’t just physical, it’s mental, emotional, and social too.It can mean different things, from spa days to colouring books.Community and friendship are vital parts of health.Listen to your body and don’t feel guilty for slowing down.Advocate for yourself, whether with a massage therapist or the hospital system.Health management comes with invisible costs that deserve recognition.Find joy in the small things: origami, art therapy, and simple creativity.Resources & Links Mentioned:Teapot Trust – Art therapy charity supporting children and young people: teapot-trust.orgInflammatory Arthritis UK – Resources, blogs, and stories: inflammatoryarthritis.orgListen & Connect:Subscribe and follow Inflammatory with Debbie & Katy wherever you get your podcasts:Spotify | Apple Podcasts | Amazon Music | YouTubeJoin the conversation:Follow us on Instagram, Facebook, LinkedIn, and BlueSky — and share how you look after yourself.Disclaimer: Debbie and Katy are not medicalprofessionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our persona lhealth journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.·       For more information, head to https://inflammatoryarthritis.org/

In this week’s episode of Inflammatory with Debbie and Katy, the hosts dive into a conversation that every person living with inflammatory arthritis can relate to - what causes a flare and how to cope when it hits.From birthday party chaos and moving-house stress to hormones, grief, and sleepless nights, Debbie and Katy share their personal experiences, insights, and practical coping strategies. They explore the “cycle of doom” when life’s stresses, fatigue, and overdoing it collide, and discuss how to break that pattern with self-compassion, rest, and a realistic approach to living well with inflammatory arthritis.This honest, funny, and heartfelt chat reminds listeners that while flares are tough, they don’t define you, and you can still live a full, joyful life beyond diagnosis.Key takeaways:Stress is a major trigger: even positive stress like birthdays or weddings can cause a flare.Sleep is crucial: fatigue and poor rest often make symptoms worse.Hormones, grief, and big life events can all affect inflammation levels.Listen to your body: rest when you need to, without guilt.Don’t blame yourself: flares sometimes happen for no clear reason.Empowerment over management: learn from each flare rather than just “managing” it.Reach out for support: use your rheumatology team’s helpline, and don’t delay if pain persists.Resources & Links:Inflammatory Arthritis website & newsletterFollow Inflammatory with Debbie and Katy onInstagram | Facebook | LinkedIn | BlueskyIf this episode resonated with you, please rate, follow, and share the podcast. Your support helps others living with inflammatory arthritis discover they’re not alone and that life goes on, even through the flares.Disclaimer: Debbie and Katy are not medicalprofessionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personalhealth journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for anylosses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.·       Formore information, head to https://inflammatoryarthritis.org/ 

Final chance to fill Inflammatory! consultation hereTrustee Week Special – Behind the Scenes of Running aCharityThis week, Debbie and Katy celebrate Trustee Week (3–7November) with an honest chat about what it’s really like to start and run a charity from scratch.They share the story behind Inflammatory Arthritis UK,from that first message and business plan to launching a national charity, all while managing work, health, and life (plus a bit of Halloween chaos and a laser quest birthday party!).Hear them discuss:What being a trustee really involvesThe challenges of governance, funding, and planningBalancing health and volunteering with inflammatory arthritisWhy time is the best currency you can giveHow you can get involved as a trustee or volunteerIf you’ve ever thought about volunteering, joining a board,or just wondered how charities really work behind the scenes, this episode’sfor you.📧 Get in touch: [email protected] more: inflammatoryarthritis.orgMemorable Quotes“When you’re on a board, you’re all equal. It’s about havingthe confidence to use your voice.” – Debbie“The best thing anyone can give is their time. That’s thebest currency.” – Katy“We might not have big funds, but we have creativity,purpose, and lived experience and that’s powerful.” – DebbieFollow and share to help us grow the community 💫Instagram | Facebook | LinkedIn | Bluesky → @InflammarthritisNext week: What Triggers a Flare? 🔥🎧 Keywords:trustee week, charity, volunteering, nonprofit, chronic illness, arthritis,inflammatory arthritis, autoimmune disease, health advocacy, patient voice,trustees, governance, lived experience, charity leadership, giving back,community support, health podcast, UK charitiesDisclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to buildconnection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. Thepodcast does not assume responsibility for the accuracy of third-party content.·       Formore information, head to https://inflammatoryarthritis.org/  

As autumn turns to winter, Debbie and Katy chat about the ups and downs of seasonal change, the darker mornings, aching joints, and staying motivated when it’s cold outside.They share personal stories, warmth hacks, and practical tips for managing energy, mood, and inflammation through the colder months all with their usual humour and honesty. Topics CoveredSeasonal changes & mood: Why darker days can make us sluggish and how to boost your energy and mindset.Seasonal Affective Disorder (SAD): Recognizing symptoms and easy lifestyle tips to help combat the “winter blues.”Keeping warm:The ultimate indoor washing setup (dehumidifier + fan + heating)Fleece-lined trousers, heat packs, and hand warmersJoint pain & cold weather: Are aching joints in winter real or psychological? Debbie and Katy discuss their experiences.Motivation & movement:Scheduling exercise to beat the “it’s too cold” excuseIndoor exercise options (from Pilates YouTube videos to bean-can workouts)How to make movement fit your day and your moodStaying cozy:Hot water bottles, electric blankets, and recliner sofasKaty’s love of her dry robe (even if she’s not a wild swimmer!)Comfort foods and slow-cooker meals — soup, shepherd’s pie, and warm lunchesSelf-compassion: Letting go of guilt for not meeting unrealistic exercise targets. Listen to your body — and rest when you need to. Key Takeaways✅ Something is better than nothing. Small bursts of movement can make a big difference.✅ Daylight matters. Try to get outside during daylight hours, even for 10 minutes.✅ Warmth = comfort. Invest in items that make winter more bearable, from gloves to cozy blankets.✅ No guilt zone. Don’t feel bad for slowing down; winter is a time for rest and reset.✅ Community helps. Exercising with others keeps you motivated and connected.Links:⁠Hand warmers⁠ ⁠Coat ⁠📲 Follow us:Instagram | Facebook | BlueSky | LinkedIn📺 Watch the podcast on YouTube⭐ Rate, follow, and subscribe wherever you listen to your podcasts“Just listen to your body. If you want to wrap up in a blanket and watch a film - do it. There’s nothing wrong with cozy.” DebbieDisclaimer: Debbie and Katy are not medicalprofessionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.·       Formore information, head to ⁠https://inflammatoryarthritis.org/⁠

Guest: Matt Brown, Physiotherapist & Strength CoachIn this week’s episode, Debbie and Katy chat with Matt Brown, a physiotherapist and strength coach, about how strength training can support people living with inflammatory arthritis (IA).Matt shares his journey from personal training to physiotherapy and offers practical advice for building strength safely, even on flare days. They bust common myths, discuss how movement benefits both body and mind, and explore the science behind why something is always better than nothing.Key Takeaways:What Is Strength Training? Understanding what “strength” really means and how it differs from “resistance training.”Exercise & IA: How people with inflammatory arthritis can safely engage in strength training, and why it can improve overall health, bone density, and confidence.Bridging the Gap: The disconnect between personal trainers and healthcare professionals when it comes to chronic conditions — and how education and awareness can close that gap.Practical Advice:Start small — even 5–10 minutes of activity can help.Focus on something over nothing — every bit of movement matters.Modify exercises to suit your symptoms and energy levels.Track your response to activity to understand your body’s patterns.Find trusted, supportive fitness professionals who understand chronic illness.The Mental Health Link: How movement can support mood and motivation during flares.Systemic Benefits: Strength training not only supports joints and muscles, but also improves cardiovascular and immune health.“Start where you are, build gradually, and know that every bit of movement makes a difference.” – Matt BrownConnect & resources:Instagram: @mattbrown_physioFollow Inflammatory! on YouTube, Instagram, Facebook, LinkedIn & BlueSky.Research linkDisclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content. For more information, head to https://inflammatoryarthritis.org/

In this listener-led episode, Debbie and Katy answer yourmost-asked questions about living with inflammatory arthritis. From managing pain and fatigue to navigating treatment options like DMARDs and biologics, they share their real-life experiences, the challenges, the lessons, and the small wins that make a big difference.The pair also catch up on exciting developments in arthritisresearch and patient initiatives, including Debbie’s work on a new Versus Arthritis-funded consortium and Katy’s role in the Parkrun Practice Initiative, which uses social prescribing to support community wellbeing.This is an honest, relatable, and hopeful conversation foranyone affected by inflammatory arthritis, whether you’re newly diagnosed, supporting someone who is, or looking for practical ways to live well day to day.Key Questions DiscussedHow long did it take to feel your symptoms were under control?How has your relationship with your body changed since diagnosis?What everyday gadgets or apps make life easier with IA?What do you still hope to achieve or experience despite living with IA?Key TakeawayManaging inflammatory arthritis looks different for everyone, progress takes time, and “well-managed” doesn’t always mean pain-free. With the right support, community, and mindset, it’s possible to live a fulfilling, confident life while managing chronic illness.Resources MentionedKettleZip up beddingJar openerParkrunInflammatory Arthritis UKDisclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.·       For more information, head to  https://inflammatoryarthritis.org/

In this episode of Inflammatory!, Debbie and Katydive into an honest conversation about alcohol and its impact on life with inflammatory arthritis (IA). From social pressures to medication side effects, cultural habits to personal choices, they explore how drinking affects their health, fatigue, and flare-ups and how difficult it can be to balanceself-discipline with wanting a “normal” social life. They also reflect on conversations with their children about alcohol, the changing attitudes among younger generations, and practical realities like what to wear, how late to stay out, and the fatigue that comes the next day.What You’ll Hear in This Episode:Katy's love for cardio tennis and how sport fits into IA lifeDebbie's experience with boxercise as a mental health boostHow alcohol interacts with disease modifying antirheumatic drugs (DMARD's) medications and blood testsDifference in drinking culture between the UK and EuropeHonest reflections on binge drinking, FOMO and self-disciplineParenting with IA: open conversations about alcohol with children and teensThe real impact on drinking on joints, fatigue, and flare daysWhy choosing to drink (or not) is deeply personal and always evolvingJoin the Conversation:How does alcohol affect your IA symptoms, flares, or fatigue? Do you drink socially, at home, or not at all? We’d love to hear your experience, share your tips, thoughts, or stories with us on social media or by completing our survey.Watch & Connect:Watch full episodes on YouTubeFollow us on Facebook, Instagram, Blueksy and LinkedInRate and Review the podcast wherever you listenDisclaimer: Debbie and Katy are not medicalprofessionals. They share personal experiences of living with IA to buildconnection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.For more information, head to  https://inflammatoryarthritis.org/

In this week’s episode of Inflammatory with Debbie andKaty, the hosts open up about one of the most difficult and often invisible aspects of living with inflammatory arthritis: pain. From describing what the pain actually feels like, to coping mechanisms that work (and don’t work), they share their personal journeys with honesty, humour, and resilience.This conversation covers everything from the daily frustrations of flare-ups, to how pain affects mood, fatigue, relationships, and even simple tasks like cooking dinner or holding hands. Debbie and Katy also discuss practical tools like wrist supports, heat/cold packs, breathing exercises, and distraction techniques that help them push through the tough days.Key Topics in This EpisodeWhy pain is so difficult to describe and how doctors don’talways “get it”. The difference between constant dull pain and sharp flare pain.Coping strategies: from ice packs and warm baths to breathing and distraction. The impact of pain on mood, patience, and social life.How fatigue and pain often feed into each other. Gadgets, occupational health, and supports that makedaily life easier. Building resilience and finding community through shared experiences. Learning not to take everyday activities (like typing or making dinner) for granted  TakeawaysPain is highly individual — no two people feel or describe it the same way. Distraction, relaxation, and pacing yourself can be as important as medication. Support systems matter, but sometimes solitude and self-care are what’s needed. Living with IA means constant balancing acts between movement, rest, and resilience.📲 Connect with UsFollow Inflammatory with Debbie and Katy on: Facebook,Instagram, Blue Sky, LinkedIn, YouTubeSign up to our regular newsletter at inflammatoryarthritis.org

Living with Rheumatoid Arthritis: Sarah’s Journey from Denial to EmpowermentIn this episode of Inflammatory!, Debbie and Katy sitdown with Sarah Yorke, who shares her deeply personal journey with rheumatoid arthritis (RA), from the confusion of her first symptoms to the challenges of getting a diagnosis, coping with denial, and ultimately finding strategies that help her live well with this unpredictable condition.Sarah opens up about: The frustration of being dismissed by doctors as "too young" for arthritis. The shock of learning RA is a lifelong condition, not a temporary setback. How denial shaped her early response & what finally helped her move forward. The mental health struggles that come with living with fluctuation illness. Day-to-day strategies that make the biggest difference: sleep, nutrition, exercise & pacing. The importance of self-advocacy in healthcare & learning to trust your own instincts. Misconceptions about RA & why fatigue is one of the hardest symptoms to explain. Her story is one of resilience, honesty, and hope, and a reminder that while everyone’s journey with RA is different, no one has to face it aloneGuest:Follow Sarah Yorke on Instagram at @arthritisfit_by_sarahfor more on her health, fitness, and RA journey.Links & Resources:Take our Inflammatory Survey to shape future episodes InflammatoryArthritis.orgWatch episodes on YouTubeFollow us on Facebook, Instagram, Blue Sky & LinkedInSubscribe to our newsletter at InflammatoryArthritis.org🎧 Don’t forget to rate, follow, and share the podcast to help us reach more people living with inflammatory arthritis. 

We need your help. Please do take a few minutes tocomplete our anonymous survey, to help us grow and improve the podcast. Please fill out the survey here: https://tinyurl.com/mtr7fvz5Please note: All responses are anonymous. Aggregateresults may be shared with funders, trusts, and partner organisations to highlight the need for Inflammatory! and ensure its sustainability.🎙️ Episode 26: Is Sitting Bad for Our Health?This week Debbie and Katy are back after the summer break to tackle a big question: how bad is sitting for our health, especially with inflammatory arthritis?They first discuss their summers, exam results, holidays andhaving a bout of Covid thrown into the mix. They then cover:   Why sitting for long periods can harm jointsSimple hacks to move more: school runs, dog walks, standing desks, fitness trackersSupporting children with JIA at school: healthcare plans & small adjustmentsUniversity and work Disability Student Allowance, workplace support, and useful toolsHealth updates: new JIA guideline consultation & vaccine news (chickenpox, shingles, flu, COVID)Resources & Links Healthcare Plan templateDisability Student AllowanceBSR JIA guideline surveyVaccine update: Chicken pox, shinglesStay ConnectedFollow Inflammatory Arthritis UK on Instagram,Bluesky, Facebook & LinkedIn.Sign up for the newsletter at InflammatoryArthritis.org.Disclaimer: The podcast is for informational purposes onlyand is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.For more information, head to https://inflammatoryarthritis.org/

In this bonus summer episode, Debbie and Katy catch up while one of them enjoys a holiday in Crete, navigating the intense heat, a lingering cold, and the added challenges of inflammatory arthritis and being immunosuppressed.They explore the realities of travelling with a chronic condition, from heightened sun sensitivity due to medication, to the constant need for sun protection, shade, and mindful pacing to balance relaxation with health needs.Their conversation also delves into family dynamics, making thoughtful food choices on all-inclusive holidays, and the value of self-compassion when things don’t go as planned. They reflect on the delicate balance between denial and mindfulness when living with a long-term condition, and the importance of giving yourself permission to rest.The episode closes with a gentle reminder to be kind to yourself, savour the moment, and stay connected through their website and social media.Stay Connected:Follow the team on Facebook, Instagram, LinkedIn, and Blue Sky. Visit inflammatoryarthritis.org for updates, newsletters, and ways to support the cause.Disclaimer: The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys, and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.For more information, head to https://inflammatoryarthritis.org/ Hosted on Acast. See acast.com/privacy for more information.

In this heartfelt episode, Debbie and Katy reflect on recent personal experiences, listener feedback, and plans for the future as they wrap up the podcast season for a short summer break.Topics Discussed:Coping with Heat & Chronic IllnessKaty shares a stressful experience with her son falling ill from the heat, leading to missed plans and increased physical symptoms. Both hosts reflect on how extreme weather and heat exacerbate chronic conditions like inflammatory arthritis and fibromyalgia, including the emotional and physical toll. They also cover community responses from Instagram on weather-related symptom changes and coping strategies.Symptom Management & SupportKaty describes how distraction helped her cope with wrist pain, while Debbie talks about medication access issues and the challenge of identifying whether symptoms stem from arthritis, fibromyalgia, or both. Mental Health & Chronic ConditionsThe hosts revisit the strong listener response to their mental health-focused episode, Episode 5 You’re not alone, highlighting the blurred lines between physical and emotional well-being. They emphasise how living with a chronic illness often affects mental health.Summer Break & Future PlansDebbie and Katy announce a summer pause for the podcast to recharge, plan future episodes, secure funding, and create outreach materials. They reflect on how much the podcast and charity has grown since launch and the impact it’s had on their community.Holiday Plans & Chronic Illness RealitiesThe hosts share their personal holiday preferences and how inflammatory arthritis still “tags along,” affecting travel plans and energy levels. From city breaks to cruises, they discuss balancing relaxation with the unpredictability of symptoms.Spreading AwarenessThey invite listeners to help raise awareness by sharing posters and materials about the podcast and charity in their local communities, hospitals, and libraries.Stay Connected:Follow the team on Facebook, Instagram, LinkedIn, and Blue Sky. Visit inflammatoryarthritis.org for updates, newsletters, and ways to support the cause.Until Next Time:This isn’t goodbye, just a “see you soon.” The podcast will return in September with new stories, guests, and conversations to continue supporting those living with inflammatory arthritis.Disclaimer: The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.For more information, head to https://inflammatoryarthritis.org/ Hosted on Acast. See acast.com/privacy for more information.

This week, Katy and Debbie offer a raw and honest conversation about what it really means to live with inflammatory arthritis (IA). As both are currently experiencing flares, Katy facing increasing symptoms and Debbie managing spinal arthritis and severe pelvic pain, they speak from a place of lived experience, bringing warmth, truth, and relatability to the challenges of daily life with IA. They reflect on last week’s inspiring interview with Adam Newton (listen here), whose swift diagnosis contrasts starkly with the long, frustrating journey many, especially women, face. They highlight this disparity by referencing Rachell Smith’s powerful story (Listen here), where it took over 13 years to receive a diagnosis, underscoring how gender bias and symptom dismissal remain pressing issues in rheumatology. Katy and Debbie also speak openly about the emotional toll of IA and the importance of a good support network to help ease the isolation. A central theme of the episode is IAUK’s mission, grounded in the four pillars of AREA: Advocacy, Research, Education, and Awareness. The hosts explain how these values shape every aspect of the charity’s work, from elevating patient voices and building innovative research partnerships, to creating educational content like this podcast and spreading awareness about the realities of life with IA. They also explore the broader context in which IA exists, acknowledging that many people live with overlapping conditions such as fibromyalgia or chronic fatigue. Katy and Debbie call for a more joined-up, compassionate healthcare approach that sees the whole person, not just a diagnosis. Finally, they invite listeners to share their own stories and experiences, reinforcing the belief that every voice matters. Through speaking out, connecting with others, and challenging misconceptions, the IA community can grow stronger and together, push for the change and recognition they deserve. Links: ·      NHS Confederation Link·      Research paper on weather and IA·      REACT Study Link·      Please donate to our podcast appeal·      Sign up to IAUK newsletter Disclaimer: The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.For more information, head to https://inflammatoryarthritis.org/ Hosted on Acast. See acast.com/privacy for more information.

In this powerful episode, personal trainer and father of three daughters (all under the age of 5), Adam Newton shares his journey of being diagnosed with inflammatory arthritis while pursuing extreme endurance goals, including training for a 100-mile ultramarathon. His symptoms began with psoriasis and escalated following a 24-hour charity cycling event. Although quickly referred to rheumatology and diagnosed, Adam initially downplayed the seriousness of the condition, pushing through pain and keeping it mostly to himself.He opens up about the emotional and physical adjustments he’s had to make, from stepping back from sports like football and tennis to managing family life during painful flare-ups. Adam was diagnosed when his second daughter was just a few months old, and he speaks candidly about the crucial support he's received from his wife throughout his journey. He also reflects on how he talks to his daughters about his condition in an age-appropriate way, and how he eventually opened up to friends, helping them understand the reality of living with arthritis. Through trial and error, Adam has found ways to cope, emphasising the power of good nutrition, gentle movement, and a consistent routine. His transparency with personal training clients has helped build stronger relationships and foster empathy.Adam also hosts the podcast Through the Eyes of Adversity, where he speaks with others about how movement supports both physical and mental health through life’s challenges. He encourages anyone facing a new diagnosis to seek support, do their own research, and know they’re not alone.Find Adam on Instagram at @adam_c_newton, and listen to his podcast on YouTube and Spotify. Please do donate to our urgent appeal to keep the podcast going, https://www.justgiving.com/campaign/inflammatoryDo follow the podcast as it is easiest way to get updates on the podcast. Sign up to our newsletter at inflammatoryarthritis.org for more resources.Follow us on Facebook, Instagram, Bluesky and LinkedIn.  Disclaimer: The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.For more information, head to https://inflammatoryarthritis.org/ Hosted on Acast. See acast.com/privacy for more information.

In this episode, Debbie and Katy explore the powerful role of volunteering, especially for people living with inflammatory arthritis and chronic conditions, to coincide with volunteer’s week. The hosts share personal stories, practical advice, and inspiration on how giving back, even in small ways, can help you reclaim purpose and build a sense of community. They stress that meaningful volunteering is about using your strengths and passions, not about forced or physically demanding tasks e.g. clearing grave yards! Through anecdotes and humour, they illustrate the many forms volunteering can take, from peer support to admin roles, and emphasize the impact it can have on both the individual and the wider community.They also share that Inflammatory Arthritis UK is looking for volunteers and whether you're an expert in social media, admin, fundraising, grant writers, or would like to join the board of trustees or the expert advisory board, there's a place for you. If you would like to volunteer for IAUK, please do email [email protected]🔑 What You'll Hear in This Episode:How volunteering helped us rediscover confidence and connection after diagnosisWays to get involved; without needing physical activity or prior experienceBehind the scenes of starting a new charity: strategy, structure, and passionThe power of small contributions (yes, even sweeping counts!)How you can join our Trustee Board or Expert Advisory GroupVolunteer opportunities in admin, social media, grant writing, and more📣 Get Involved:We’re actively looking for volunteers to support Inflammatory Arthritis UK. Whether you can give one hour a month or a little more, your skills and lived experience are invaluable.✅ Interested in volunteering, becoming a trustee, or joining our advisory group?📩 Contact us via: inflammatoryarthritis.org💬 Or reach out on: Facebook | Instagram | LinkedIn | BlueSkyFor more information about being a trustee and what it entails please see here.📝 Quote of the Episode:“The best way to find yourself is to lose yourself in the service of others.” – Mahatma Gandhi📬 Stay Connected:Sign up to our newsletter for updates, guest announcements, and more at inflammatoryarthritis.org.🎧 See you next week for another inspiring guest episode!Disclaimer: The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.For more information, head to https://inflammatoryarthritis.org/ Hosted on Acast. See acast.com/privacy for more information.

Inflammatory! is making a real difference, helping people feel seen, heard, and supported in their journey with inflammatory arthritis. If you’ve found value in what we do, please consider donating to help us continue creating meaningful content. Every contribution, big or small, makes a huge impact.👉 Donate here: https://www.justgiving.com/campaign/inflammatoryIn this heartfelt and humorous Q&A episode, Debbie and Katy discuss the lighter and often hilarious side of living with Inflammatory Arthritis (IA). From hospital mishaps to dodging duty-free trolleys on long-haul flights, they share real-life stories that bring warmth and authenticity to chronic illness.The episode kicks off with Katy sharing how her hospital appointments are never simple, this time, a burst water pipe added to the chaos. Despite the disruption, she still managed to get her blood test done and even turned it into a teaching moment for her son, explaining why regular tests are so important. Meanwhile, Debbie talks about the charity’s ongoing work, from ensuring the voices of those living with inflammatory arthritis are heard in NHS service improvements, to awaiting clarity on how the NHS’s 10-year plan will involve the charity sector. She also highlights meaningful discussions with researchers focused on making research truly inclusive and accessible at every stage. They then go on to answer questions from listeners: ·      What side effects have you had with medication? ·      Pregnancy, medication and parenting·      What is the most obscure cure you have been told that would cure your IA?·      Do you have a funny story about inflammatory arthritis? ·      How do you support a partner who lives with IA? They end on thoughtful advice to partners supporting loved ones with IA and remind us that laughter and communication are powerful tools for navigating the ups and downs.Disclaimer: The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.For more information, head to https://inflammatoryarthritis.org/ Hosted on Acast. See acast.com/privacy for more information.

Urgent appeal for donations to help keep the podcast running until their planned summer break. Donate here https://www.justgiving.com/campaign/inflammatorySend us your questions for next week’s Q&A session, especially voice notes: https://inflammatoryarthritis.org/contact-us/In this episode of Inflammatory!, Debbie and Katy firstly reflect on the first Inflammatory Arthritis UK virtual community event, where they connected with the IA community and received helpful feedback on future topics. Katy shares touching moments of how the podcast has helped others, including family members who have a better understand life with IA.They then explore the vital role of research in improving care for people with inflammatory arthritis (IA). Katy shares her experiences participating in a range of studies, from surveys and focus groups to serving on research committees. The conversation highlights the importance of Public and Patient Involvement and Engagement (PPIE), showing how those with lived experience are essential in shaping research that truly matters.They discuss being involved in steering groups and helping to design digital health apps, while also reflecting on the real-world challenges of integrating new technology into clinical care, illustrated with a humorous story about handwritten notes on a napkin after a system failure.The episode also explores exciting areas of current research, including genetics, machine learning, and the MAPJAGstudy, which investigates what’s happening inside the joints by analysing biopsy samples from joint injections. Debbie and Katy emphasise how digital innovation and AI could transform diagnosis and treatment, while also urging caution around data privacy and the need for ethical use.A key theme is ensuring research remains inclusive and accessible—including fair compensation that doesn’t impact benefits. Finally, the hosts encourage listeners to find ways to get involved in research, whether through clinical studies, reviewing patient information, or sharing their voices to guide future priorities.Resources: ·       Research page: https://inflammatoryarthritis.org/research/·       Link to Map-JAG Study here·       Tax implications from HMRC“There will be no tax or NIC liability arising on the individual if the sums received do no more than reimburse the individual’s reasonable costs of participating in the trial or research, including costs of travel and subsistence. However, should the sums paid exceed those reasonable expenses then the excess may fall to be chargeable to tax as Miscellaneous Income, potentially giving rise to personal tax liabilities of the individuals which should be notified to the HMRC under Self Assessment”. Hosted on Acast. See acast.com/privacy for more information.

In this episode of Inflammatory with Debbie and Katy, the hosts celebrate the important role nurses play in supporting people with inflammatory arthritis, particularly in the context of International Nurses Day and Mental Health Awareness Week. They begin with a light-hearted catch-up about their weekends and segue into a candid discussion about mental health, personal experiences with stress, and the emotional impact of living with a fluctuating condition. Both hosts reflect on how weather and social environments affect their wellbeing, and the importance of being honest about mental health despite the British habit of saying “I’m fine.” They emphasise the need to normalise vulnerability and discuss how mental health and inflammatory arthritis are deeply connected. They share personal experiences of how nurses often offer more empathetic and practical care compared to consultants, although their roles can sometimes feel limited to administrative tasks. Debbie shares a moving story about her daughter’s struggle with medication and how a nurse’s insight transformed her daughter’s quality of life, underscoring the critical role of compassionate healthcare professionals.The conversation also highlights disparities in care due to regional differences and digital system inefficiencies within the NHS. The hosts praise the positive impact of nurse-led helplines and advocate for better integration and digital communication between services. The episode closes with an invitation to their first online community event to mark World Autoimmune and Auto-Inflammatory Arthritis Day.🔗 Resources & Mentions:Research paper: I’m Fine presentation is based on: ‘The current mental health status of children and young people with JIA, and their wider family’: a charity partner collaboration survey📧 To attend the event, email: [email protected]🌐 Visit: inflammatoryarthritis.org📱 Follow on: Facebook | Instagram | LinkedIn | BlueSkyDisclaimer: The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.For more information, head to https://inflammatoryarthritis.org/ Hosted on Acast. See acast.com/privacy for more information.

In this week’s episode, hosts Debbie and Katy welcome their first guest, Rachell Smith, a leading portrait and fashion photographer who lives with axial spondyloarthritis (axial SpA) and is behind the new national campaign “Faces of Axial SpA”. Rachell opens up about her deeply personal journey, from experiencing symptoms as a teenager to finally being diagnosed over a decade later.She discusses the vital role of family support, including her sister who also lives with axial SpA, and how the condition has brought her even closer to her husband. Rachell also shares how she navigates motherhood with a young daughter, emphasising the power of honest communication and emotional connection.Rachell speaks candidly about how her diagnosis has increased her empathy, for others and for herself, and how this has come across in her photography. She also explains she is open with her clients about living with inflammatory arthritis and unashamed of her condition.Most importantly, she talks about her impactful collaboration with NASS (National Axial Spondyloarthritis Society) on a national awareness campaign. Her mission: to empower others, shorten diagnostic delays, and break the silence around axial SpA.Rachell’s story is one of resilience, creativity, and advocacy. Tune in for a moving conversation that highlights strength, vulnerability, and the importance of raising awareness.🔗 Resources & Mentions:·       For more information about “Faces of Axial SpA” please visit: Faces of Axial SpA·       NASS website NASS.co.ukLearn more about axial SpA and access the symptom checker: symptom checkerFollow Rachell on Instagram: @rachell_photoThis podcast is in collaboration with National Axial Spondyloarthritis SocietyDisclaimer: The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.For more information, head to https://inflammatoryarthritis.org/ Hosted on Acast. See acast.com/privacy for more information.

Inflammatory Arthritis UK are hosting their first ever online event on the 20 May at 6-7pm to raise awareness of World Autoimmune and Autoinflammatory Arthritis Day. Please do join us and a chance to meet Debbie and Katy online to hear more about the charity and be part of our community. More information and full agenda will follow. Please do join us and to sign up email us at: [email protected] In this lively and heartfelt episode, Debbie and Katy reflect on a busy week and preview next week's exciting guest — acclaimed photographer Rachell Smith, who lives with axial spondyloarthritis. Please make sure you don’t miss it.Debbie covers how she did a Katy, and went to the wrong hospital for an Xray, and they kick off their fourth Q&A session by answering a question about traveling while taking biologic medications. The hosts share their own travel tips, stress the importance of medical guidance, and offer reassurance for those navigating similar journeys.Next, the conversation turns to sleep and inflammatory arthritis. From bedtime routines and positioning to gadgets and frustrations, Debbie and Katy talk openly about what helps — and what doesn’t — when it comes to getting quality rest with a chronic condition.They also tackle the question of whether inflammatory arthritis is more common in females, exploring key differences between RA, axial SpA, PsA, and juvenile arthritis. They address what frustrates them most about living with IA and they cover widespread misconceptions, including the confusion between inflammatory and osteoarthritis, and highlight the need for more male representation in arthritis narratives.The episode wraps up on a fun note with each host sharing their go-to feel-good songs and how music brings moments of joy amid daily challenges.💬 Topics Covered:Traveling with biologic medicationsSleep challenges and hacksGender and arthritis prevalenceInflammatory vs. osteoarthritisPersonal reflections and musical cheerJoin us next week for our special guest, Rachell Smith!Follow us on social media:BlueSky, LinkedIn, Instagram, Facebook:Search for Inflammatory Arthritis UKSign up for our weekly newsletter for updates and resources Leave a review & rating on your favourite podcast platform!Disclaimer: The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.For more information, head to https://inflammatoryarthritis.org/ Hosted on Acast. See acast.com/privacy for more information.

In this episode of Inflammatory!, Debbie and Katy kick things off with a light-hearted chat about springtime chaos, parenting, and the never-ending battle with household cleaning, offering a humorous but relatable peek into how daily life intersects with chronic illness. The conversation then dives into a powerful and personal discussion about exercise and inflammatory arthritis, challenging outdated fitness ideology of "no pain, no gain."Katy opens up about her journey training for marathons post-diagnosis, including a dramatic fall at mile 20 of the Edinburgh Marathon and her later attempt at the Brighton Marathon, complete with new injuries and mid-race regrets (sausage roll, anyone?). Through these stories, she highlights the emotional highs and lows of pushing her limits and adapting workouts to suit her body.The hosts reflect on how chronic illness shape how they move, underscoring that exercise doesn't have to be extreme to be effective. Whether it’s swimming, strength training, or simply taking a short walk, finding what works for you is key. They also touch on the mental and emotional benefits of movement, the value of physiotherapy, and how changing the narrative from "can't" to "can" empowers people living with inflammatory arthritis.Key Topics:• Redefining exercise with chronic illness• Katy’s marathon stories: Edinburgh disaster & Brighton comeback• How age and parenting shift fitness goals• Mental health benefits of movement• Making peace with low-impact, feel-good movement• Physiotherapy: importance and asking how it can fit it into your daily routine• Encouragement to focus on what you can doFollow us on social media:• BlueSky, LinkedIn, Instagram, Facebook: Search for Inflammatory Arthritis UK• Sign up for our weekly newsletter for updates and resources• Leave a review & rating on your favourite podcast platform!Disclaimer: The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.For more information, head to https://inflammatoryarthritis.org/ Hosted on Acast. See acast.com/privacy for more information.

In this episode of Inflammatory, Debbie and Katy get real about how even a simple cold can wreak havoc when you're living with inflammatory arthritis (IA). Debbie opens up about a recent bout of illness that hit her hard and amplified her joint pain (especially in her jaw), flaring up her fibromyalgia, and throwing her reactive hypoglycaemia into chaos. Katy, on the other hand, shares her experience of rarely getting sick despite being on medication, and reflects on the fear and uncertainty she felt early in the COVID pandemic.Together, they explore how illness can throw off everything—energy levels, medication schedules, even mental health. They talk about the tricky balance between rest and movement, how stress (even over little things) can spark flares, and the lingering emotional impact of being extra cautious during COVID. There’s also a candid discussion around how isolating chronic illness can be, especially when others don’t see or understand what you’re going through and how you can feel like a prisoner in your own body. Throughout the conversation, Debbie and Katy emphasize that no two journeys with IA are the same—but community, honesty, and listening to your own body can make all the difference.🎙️ In this episode:• How minor illnesses can trigger major flares• The toll of managing multiple conditions at once• Reactive hypoglycaemia + IA = a tough combo• Pandemic stress and long-term mental health impacts• Why self-awareness and a holistic mindset matter👉 Subscribe to our newsletter at inflammatoryarthritis.org, and follow us on Instagram, Facebook, LinkedIn, and Blue Sky (search for Inflammatory Arthritis). We’ll be back after a short Easter break—see you then!Leave a review & rating on your favourite podcast platform!Disclaimer: The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.For more information, head to https://inflammatoryarthritis.org/ Hosted on Acast. See acast.com/privacy for more information.

In this powerful and heartfelt episode, hosts Debbie and Katie, both parents living with inflammatory arthritis (IA), share their experiences balancing parenthood with chronic illness. They discuss the challenges of raising children while managing IA, the importance of awareness, support networks, and resilience.Firstly, they share their recent experience attending an event at the House of Parliament with the National Axial Spondyloarthritis Society (NASS), advocating for faster diagnosis times. The event was a great success, and they were thrilled to receive recognition for their podcast and charity work. They also discussed their charity Board Awayday, how they are developing the charity to help improve the lives of anyone living with IA. Along with the importance of fundraising to continue their work. They share moving listener stories about how the podcast has helped them feel less alone and where you can donate, at our website Inflammatoryarthritis.orgThe hosts go on to explore how their children knew about their inflammatory arthritis and has IA enabled them to be better parents? They discuss the use of age-appropriate language being key to help foster compassion and resilience, and Debbie shares the TikTok she watched from a rheumatologist explain the immune system like a sound system, and for auto-immune diseases the volume is turned up and the medications help to turn it down again. The also explore balancing honesty with protecting childhood innocence, the role of young carers programs and support systems and how amongst all the hard times of IA this can create a kinder more empathic child.Please do continue to:💜 Support Their Work – Donate or take part in fundraising efforts.📢 Raise Awareness – Share this episode to help educate and support those affected by IA.🎧 Stay Connected – Subscribe to the podcast for more stories, insights, and advocacy updates.📧Sign up to our newsletter at Inflamamtoryarthritis.orgThis episode is a must-listen for anyone navigating chronic illness, parenting, or wanting to support those living with IA. Tune in for insight, encouragement, and inspiration! 🎙️Follow us on social media:• BlueSky, LinkedIn, Instagram, Facebook: Search for Inflammatory Arthritis UK• Sign up for our weekly newsletter for updates and resources• Leave a review & rating on your favorrite podcast platform!Disclaimer: The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.For more information, head to https://inflammatoryarthritis.org/ Hosted on Acast. See acast.com/privacy for more information.

In this episode, Debbie and Katy answer questions in their third monthly Q&A session. They start by discussing Katy’s recent 10K race experience, discussing the impact of overexertion and fatigue. They explore the difference between general tiredness and inflammatory arthritis (IA)-related exhaustion, as well as Debbie’s experience with new fibromyalgia painkillers causing drowsiness and vivid dreams.The discussion moves to eye health and the importance of regular checkups for those on IA medications. They answer the first question on the proposed upcoming changes to the UK’s Personal Independence Payment (PIP) and how it might affect people with IA. They also highlight the significance of workplace support, early diagnosis, and improved rheumatology services.They also explore foot health and rheumatoid arthritis assessment with expert insights from Professor Adam Croft. They discuss the limitations of the DAS 28 score, which doesn’t include foot involvement, and share personal experiences with tracking disease activity and accessing biologic treatment.Parenting with IA is another key topic with two questions, with practical advice for parents of children with juvenile idiopathic arthritis (JIA), covering clinic visits, self-care, and preparing kids for independence. The episode wraps up with a fun discussion on irrational phobias—ranging from bees to polystyrene—and a humorous anecdote about a painful bee sting.Resources & Links:• What is PIP Government Link• Our response to proposed changes in PIP• Learn more about inflammatory arthritis at inflammatoryarthritis.org• Foot Health and IAFollow us on social media:• BlueSky, LinkedIn, Instagram, Facebook: Search for Inflammatory Arthritis UK• Sign up for our weekly newsletter for updates and resources• Leave a review & rating on your favorite podcast platform!Next Episode:Next week, we’re back with a deep dive into parenting with inflammatory arthritis—how it affects our daily lives and our children’s experiences. Stay tuned!🎧 Listen & Subscribe: Available on all major podcast platforms.Resources & Links: If you enjoyed this episode, please do follow the series. And please do leave us a rating or a review, if you have a few minutes to do so, thank you. Disclaimer: The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.For more information, head to https://inflammatoryarthritis.org/ Hosted on Acast. See acast.com/privacy for more information.

In this heartfelt episode, in recognition of World Young Rheumatic Diseases Day, Katy interviews Debbie on the realities of parenting a child with juvenile idiopathic arthritis (a type of inflammatory arthritis), offering personal insights and reflections.  The conversation begins with personal updates, including Katy’s reflections on imposter syndrome and the differences between shame and guilt. Debbie shares her recent fibromyalgia diagnosis and the challenges of managing medications, fatigue, and brain fog. As the discussion unfolds, Debbie speaks candidly aboutthe reason she didn’t want to have children when she was younger, but how the conversation with her rheumatologist at university changed her mind. Then sharing the guilt andthe emotional weight of her daughter’s JIA diagnosis, the overwhelming medical appointments, and the impact on family dynamics. She shares the strategies she has developed to stay organised, create a strong support system, and foster resilience within her family. Despite the challenges, Debbie highlights the importance of open communication, honesty, and allowing others, especially her husband, to be more involved. The value of a support network that get what you are going through. The episode concludes with an uplifting message of hope, encouragement, and practical advice for other parents navigating similar experiences.Key Takeaways:• Managing a Parent’s & Child’s Health: Debbie opens up about her own struggles with IA andfibromyalgia while supporting her daughter’s JIA journey.• The Power of Organisation: Keeping track of appointments, treatments, and paperwork is essential for managing a child’s chronic illness.• The Emotional Impact of Diagnosis: Feelings of guilt and worry are common, but building a strong support network helps ease the burden.• Resilience & Positivity: Open communication and embracing support from loved ones can make a difference in managing long-term conditions.Resources & Links:• NHS link for Fibromyalgia• Sign up for our newsletter at inflammatoryarthritis.org• Follow us on social media: LinkedIn, Instagram, Facebook, and BlueSky• Stay tuned for next week’s Q&A session—submit your questions now! If you enjoyed this episode, please do follow the series. And please do leave us a rating or a review, if you have a few minutes to do so, thank you. Disclaimer: The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.For more information, head to https://inflammatoryarthritis.org/ Hosted on Acast. See acast.com/privacy for more information.

In this episode, Debbie and Katy dive into the realities of aging with inflammatory arthritis during Autoimmune Awareness Month. Reflecting on their March birthdays, they ask—are they any wiser? Katy shares her experience with a steroid injection in her wrist, detailing the unexpected pain and unique circumstances, while Debbie talks about a mishap with her microphone, sparking a conversation on clumsiness, strength loss, and how arthritis affects daily life.The discussion expands to aging with chronic illness, including shifting perspectives on midlife, family longevity, and balancing activity with fatigue. They also share how they’ve adapted to physical limitations, from car choices to planning for future living arrangements.Despite these challenges, they emphasize the importance of staying positive, active, and finding new passions, with a metaphor about old furniture symbolizing resilience. They also explore the emotional impact of inflammatory arthritis, how to distinguish disease-related symptoms from natural aging, and the need for better support from healthcare professionals in managing aging and stress.The episode concludes with a hopeful message about ongoing research, new treatments, and the importance of open communication with medical teams. They preview their next discussion on parenting a child with JIA, reminding listeners to embrace life despite its challenges.Key Topics Discussed:Ageing with autoimmune disease and inflammatory arthritisAutoimmune Awareness Month and World Young Rheumatic Diseases DayKaty's steroid injection experienceDaily life challenges: clumsiness, strength loss, and adaptationsShifting perspectives on midlife and family longevityBalancing activity and fatiguePsychological impact of inflammatory arthritisThe need for better healthcare support and communicationEncouragement to stay positive and embrace life’s opportunitiesResources & Links:Follow us on social media: Instagram, Facebook, Blue Sky, and LinkedInSign up for our newsletter at inflammatoryarthritis.orgDon’t forget to rate and review the podcast on your favourite platform!Next Episode Preview:Next week, we’ll be discussing parenting a child with juvenile idiopathic arthritis and the unique challenges families face. Be sure to tune in!Thank you for listening!Disclaimer: The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.For more information, head to https://inflammatoryarthritis.org/A Boutique Broadcast production for Inflammatory Arthritis UK Hosted on Acast. See acast.com/privacy for more information.

In this episode, Debbie and Katy start by sharing light-hearted moments, including stories about Pancake Day and how Debbie met her husband. Katy talks about her recent experiences with tennis and netball while managing ongoing foot pain despite using orthotics.The conversation explores who inspires them, a common theme is those who are living with long term diseases anddrawing inspiration from athletes like Caroline Wozniackiand actor Kathleen Turner. They go on to compare chronic illness management to the mental and physical strength required in professional sports. They also explore how the 1% trend, by doing 1% more to make yourself better each day, can be helpful for people living with IA, but recognise that sometimes you can feel like going backwards.They discuss the pressures of the “perfect body” shown through social media, and they encourage realistic expectations. They highlight the value of self-acceptance and learning to appreciate your body, especially as having inflammatory arthritis has already put your body through a lot. The episode concludes with reflections on parenting with inflammatory arthritis and fostering resilience in the next generation.Key Topics Discussed:✅ Managing Inflammatory Arthritis – The impact on mobility, ongoing pain, and frustrations with medical assessments.✅ Finding Inspiration in Athletes – Lessons from sports stars like , Andre Agassi, Rafael Nadal and Caroline Wozniacki on perseverance.✅ The Power of Small Changes: 1% – How making incremental improvements can lead to long-term benefits.✅ Balancing Life & Chronic Illness – Navigating social expectations, personal goals, and physical limitations.✅ Parenting & Support Networks – The importance of community and encouraging resilience in children.Resources & Links:🔗 Join Our Community: InflammatoryArthritis.org📩 Sign Up for Our Newsletter – Stay updated on new episodes and resources.📱 Follow Us on Social Media: Instagram | Facebook | LinkedIn🎧 Listen Now & Subscribe! If you enjoyed this episode, don’t forget to rate and review us on your favourite podcast platform!Disclaimer: The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.For more information, head to https://inflammatoryarthritis.org/A Boutique Broadcast production for Inflammatory Arthritis UK Hosted on Acast. See acast.com/privacy for more information.

Hosts Debbie and Katy, go through your questions in this second Inflammatory! Q&A episode.   Next week on Inflammatory! the hosts will be talking about who inspires them to coincide with World Book Day and International Women’s Day. Please do send in details about who has inspired/supported you and the hosts can do their first shout outs in the next episode. You can send them in and via voicenotes here https://inflammatoryarthritis.org/contact-us/ so you can be heard on the podcast. The first question Debbie and Katy discuss is one about their own journey with medication. They cover the psychological impact, feelings of fear and denial about starting long term medication and how it can be frustrating to find the right medication straight away.They then go on to discuss how can family support people living with IA. Is it more annoying to keep asking if you are ok? The conversation covers what not to say but can family do anything right in this situation? A question was asked about hand deformity/surgery and again this picks up on emotional side of what the future could hold. Steroid injections are covered and how Debbie felt when her daughter had her injections and that Debbie’s fingers are similar to that of King Charles III. They also briefly cover that everyone has a comment on a cure for IA, and that the hosts will cover in this in a future episode, but please do send in your most bizarre/obscure comments you have received as the hosts would love to hear them. They end with a few humorous questions one about T-shirts, and the other what their dream jobs were. Tracy Island is a clue for Katy and how did Kylie Minogue inspire Debbie?Please do leave a review and rating from where you listen to the podcast.Follow us on Social media: FacebookInstagramBluesky LinkedIn Sign up to our newsletter to be first to know about any upcoming episodes, research opportunities and any IA news/events at https://inflammatoryarthritis.org/ If you enjoy this episode, please do follow the series. And please do leave us a rating or a review, if you have a few minutes to do so, thank you.Disclaimer: The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.For more information, head to www.inflammatoryarthritis.orgA Boutique Broadcast production for Inflammatory Arthritis UK Hosted on Acast. See acast.com/privacy for more information.

In this episode, hosts Debbie and Katy, or should we say Lara Croft and Donkey (need to listen to understand why this is so) explore the realities of working life whilst living with inflammatory arthritis.  Next week is the Q&A episode so please do send in your questions, especially voicenotes here https://inflammatoryarthritis.org/contact-us/ so you can be on the next episode of Inflammatory! First, they have a light-hearted conversation about pets especially as it was National Love your Pet Day. Please visit Inflammatory Arthritis UK socials to see Whiskey, Debbie’s dog, debut! They also cover humorous personal anecdotes, including some unusual nicknames. They both reflect on being made redundant from different jobs and industries last year, highlighting how stress, a known trigger for IA, impacted them and their IA. The ongoing stress of looking for work, discuss what should or shouldn’t be included in your CV and a dive into the evolving workplace landscape. How laptops have moved on, and the sound of dial up still gives Debbie anxiety to this day! Make sure you listen to the end to fully understand. They explore what it means for employers to offer flexible working from day 1? Do they like working from home or do they prefer the office? How work provides them with routine and a purpose but discuss how they plan their day so they don’t trigger an IA flare. They also cover how employees with IA can advocate for their needs, how communication is key, what their manager should be doing and how being confident and open about your needs really can help. However, there is support out there for people who may have been discriminated against due to their IA? Support can be found here: Citizens AdviceACASEquality Advisory and Support ServiceNext Episode Teaser:Please do send us your questions for the next Q&A session. 🔗 Follow & Connect:Subscribe for new episodes every week, via https://inflammatoryarthritis.org/·       Follow us on social media for updates and community discussionsFacebookInstagramBluesky LinkedInReach out—we’d love to hear your thoughts and experiences! Email [email protected]🎧 Listen now and remember: You’re not alone in this journey. Hosted on Acast. See acast.com/privacy for more information.

Welcome to #fuckitland (you’ll need to listen to the episode to have any idea what we mean by this!).Debbie and Katy come out of their comfort zones and dive into an often-overlooked topic: relationships and sex while living with inflammatory arthritis and sex. They take a deep dive to explore the challenges of relationships and intimacy for those living with inflammatory arthritis. Discuss the physical limitations that affect sex, such as pain, stiffness, fatigue, and medication side effects, and emphasise the importance of open communication and setting boundaries with partners. They also highlight the emotional impact of the condition, including self-confidence struggles and fears of being a burden. Debbie shares her experiences navigating relationships with arthritis, while also reflecting on how societal attitudes have changed over time. They also speak openly about their experiences with the condition and emphasize that those affected are not alone. Katy shares her recent hand therapy session, where she learned about pain management and the importance of mobility, strength, and control. Debbie, on the other hand, talks about a difficult weekend due to an arthritis flare-up that even disrupted her plans with her husband. She also discusses the challenges of parenting, especially during her children's stressful exam period, and her new role as a trustee for an art therapy charity.The key takeaway is that people with inflammatory arthritis can still have fulfilling relationships and sex lives by embracing self-confidence, being clear about their needs, and surrounding themselves with supportive partners.Resources & Links:Visit inflammatoryarthritis.org for more information and resources.Follow us on Instagram, Facebook, Blue Sky, and LinkedIn for updates and community support.If you enjoyed this episode, please leave a review and subscribe to our newsletter to stay updated on upcoming episodes and research opportunities.🎧 Listen now and let’s keep the conversation going! Hosted on Acast. See acast.com/privacy for more information.