PODCAST · society
Inflammatory Breast Cancer WTF?!
by Inflammatory Breast Cancer WTF?!
Join Zoe and her mother Laura as they talk about their experience of Inflammatory Breast Cancer. New episodes every other week. Follow on Instagram @InflammatoryBreastCancer_WTF for updates.
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7
It’s all come down to this….
We're back, after a hectic month finishing chemo, prepping for surgery, having surgery, recovering from surgery. It’s mostly about surgery! Follow on Instagram @inflammatorybreastcancer_WTF.Resources (not recommendations)LYMPHA DIEP Flap Reconstruction: Everything you need to know Breast AdvocateBreast reconstruction using tissue from your tummyBreast reconstruction
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6
1 in 30,000
Zoe is preparing for surgery. And having spent too much time in hospitals, she and Laura are obsessing about spaces and weaponised words. What are the odds of getting Inflammatory Breast Cancer? Thanks to magical thinking, Zoe has raised her chance of a big lottery win. Follow on Instagram @inflammatorybreastcancer_WTFResourcesDame Phyllida Barlow DBE RAThe Essential Leonard Cohen
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5
Surgical Speculations
Zoe and Laura update the story so far, ramble about AC chemo, reconstructive surgery, and why rowing and the Thames mean so much to Zoe. Oh and why Laura probably won’t write a book called ‘All about me’. Follow on Instagram @inflammatorybreastcancer_WTF.ResourcesBreast Cancer Predict ToolAmerican Cancer SocietyDana FarberBreast Cancer NowMacmillan Cancer SupportIBC Network UK The IBC Network Foundation
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4
90s Bangers and the Red Devil
Goodbye Paclitaxol and hello AC. Check those side effects! Zoe and Laura are figuring out how a mother helps her adult daughter, and Zoe is challenged by the weird world of breast reconstruction.
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3
Getting on My Nerves
Zoe's taste buds have taken a hike, Laura got an MBE, all the 'parents' are happy with how treatment is going, and we dig into Inflammatory Breast Cancer getting lost in the wider breast cancer conversation. Follow on Instagram @inflammatorybreastcancer_WTFLinks:Macmillan - Heart Health and Cancer Treatment British Heart Foundation - Chemotherapy and the Heart Macmillan - Peripheral neuropathyNHS - Peripheral neuropathy overview
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2
Pass the Port
It's not about the wine...more's the pity! Zoe and Laura dive into portacath world, and blether about being pissed off with your body when you get Inflammatory Breast Cancer.Resources Cancer Research UK https://www.cancerresearchuk.org/about-cancer/treatment/chemotherapy/how-you-have/into-your-vein/portacathMacmillan https://www.macmillan.org.uk/cancer-information-and-support/treatment/types-of-treatment/cancer-drug-treatments/implantable-ports
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1
IBC and f-e-r-t-i-l-i-t-y
Zoe and Laura have a less personal conversation on the different fertility preservation options when you have Inflammatory Breast Cancer. Make sure you stay till the bitter end! Follow on Instagram @InflammatoryBreastCancer_WTFLinks:Cancer and fertility management: FIGO best practice advice https://obgyn.onlinelibrary.wiley.com/doi/epdf/10.1002/ijgo.70426Macmillanhttps://www.macmillan.org.uk/cancer-information-and-support/impacts-of-cancer/fertilityNHShttps://mft.nhs.uk/saint-marys/services/gynaecology/reproductivemedicine/fertility-preservation-for-patients-diagnosed-with-cancer/Cancer, Fertility and Mehttps://cancerfertilityandme.org.uk/CFM-homehttps://pmc.ncbi.nlm.nih.gov/articles/PMC9280471/Breast Cancer Nowhttps://breastcancernow.org/media-assets/pyck233u/bcc28-fertility-pregnancy-and-breast-cancer-web.pdfBMJ Oncologyhttps://bmjoncology.bmj.com/content/5/1/e000843
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0
St. Brigid's Day - Lá Fhéile Bríde
It's St Brigid's Day and Zoe's starting chemo for Inflammatory Breast Cancer. We talk about the first session, NHS and private health care, and leave fertility for another day.Follow on Instagram @InflammatoryBreastCancer_WTF
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WTF just happened?!
Blindsided by a diagnosis of Inflammatory Breast Cancer at 36, Zoe and her mother Laura give a patient's perspective on symptoms, treatment and battling to keep things normal. Follow on Instagram @InflammatoryBreastCancer_WTF
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