Jerry Cahill's Cystic Fibrosis Podcast

Michael Bramhall Michael is 24 years old with CF and 5 months post double lung transplant. Michael is from Nebraska, and loves fishing, hunting, exercising, and EMS. Michael also loves the outdoors and helping people. He was diagnosed at 4 months old and has a younger sister who is 20 years old, without CF. Michael never let's his CF stop him from doing the things he enjoys In 2001 Mike began to understand the severity to his CF, due to a collapsed lung. Michael believes that with a life threatening disease "feel lonely at times" is typical, so you need an outlet like exercise to feel better. Michael states"Post transplant, is the best I have felt. Ever… I can finally breathe and have a great outlook on life" and he is extremely thankful to the donor. Michael believes "if he keeps working hard and exercising he can keep his new lungs healthy and have a great quality of life" Life with a life threatening disease is "difficult" Michael is happy to wake up every morning and enjoy life and thankful to his donor and family everyday This educational podcast was made possible through an unrestricted educational grant from Allergan to the Boomer Esiason Foundation.

Adriane De Moerloose   Adriane is married with 3 children, and currently resides in North Carolina. She and her husband are the happy parents of 3 children. Alexis 7, Andrew 4.5, with CF, and Olivia who passed away 6 years ago from a rare heart disease. She currently enjoys running, biking, and hiking with her family. She also enjoys writing, listening to music and working out at the gym. She believes it is important to have inner strength and always be positive.   Adriane and her husband, Peter, believed that they needed to "buckle down" and get ready for another battle when they found out their son, Andrew, was diagnosed with CF. She relied a lot on close friends and family. They also reached out to other parents who have children with CF. She focused on one thought: "How can I raise my child while he will be dealing with a chronic illness everyday" Andrew started to question his CF when he was 2.5-3 years old. Andrew's treatments are "Non-Negotiable" He has begun teaching his peers about his CF and his treatments. He is a 3 year old CF Advocate   To learn more about Adriane and the ways she manages her mental well being, please listen to her podcast.     This educational podcast was made possible through an unrestricted educational grant from Gilead to the Boomer Esiason Foundation. 

CF Podcast: Callie Deanda Name: "Jumping the Fear with CF Sponsor: Genentech   Callie Deanda,:  20 years old with CF, athletic, attending college, and from Tennesse Hobbies include soccer (plays on varsity team), hiking, cross-stitching Watching Buffy & Vampire Slayer with friends and Callie is a huge Sporting Clays fan Callie believes that we all need to "jump the fear" with CF.you never know what's going to happen in life… big fear of the unknown things just happen so ENJOY! Family "24 hour rule" get over things in life and move forward… Callie and her family believe you should not get stuck in CF. CF opens doors! Callie loves life and always finds joy in life Callie's advice… "We all need people in life, we cannot do on our own   This podcast was made possible from an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

  In this podcast, we hear from Jerry's CF medical team about his journey with CF and life post-transplant. They share how they work as a team to make patients with CF feel cared for and supported. For Jerry, because of the extensive amount of time he spends with them, his doctors and nurses at Columbia University Medical Center have become like extended family – a group of caring individuals who tirelessly work to make sure he has a long, successful life. This video podcast/vodcast was made possible through an unrestricted educational grant made from Gilead to the Boomer Esiason Foundation.

Gunnar Esiason sat down with BEF CF Ambassador Jerry Cahill recently to find out more about his double lung transplant and the way his life has changed since he had the procedure 4 years ago. Jerry shares the many ways in which he has traded certain CF issues for complications that come along with any transplanted organs – and also reminds us that a transplant is not a cure; that he still has cystic fibrosis. This video podcast was made possible through an unrestricted educational grant from Gilead to the Boomer Esiason Foundation.

In this podcast, we hear from 24-year-old, Gunnar Esiason. He discusses how important it is for people with cystic fibrosis to remain compliant – with their medications, treatments, nutrition, and exercise. Gunnar also points out that airway clearance is one of the most important things he does to stay healthy and – outside of using a vest, percussor, and exercising – that he uses a machine called a frequencer. Check out the video to learn more! This video podcast/vodcast was made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

“I felt guilty I didn’t have the disease.” To Sydney Esiason, there is no bigger duty of a sibling than to be the other’s biggest fan and supporter. While Gunnar has been in the spotlight for the majority of his life because of cystic fibrosis, Sydney has been there right beside him, cheering him on – quite literally. The duo attended the same schools all the way through Boston College. Tune in to hear Sydney tell her story of growing up as a sister to someone with cystic fibrosis. This podcast was made possible through an unrestricted educational grant from Novartis to the Boomer Esiason Foundation.

Jen Eisenmann Show Notes   CF Podcast 153: CF, Living in Two Worlds, the Healthy and the Sick with Jen Eisenmann  Today we meet Jen Eisenmann, a 44-year-old living, breathing, and succeeding with cystic fibrosis. Diagnosed at 12 months old, Jen grew up similarly to most other kids, other than having to take enzymes and do occasional chest percussions. Because her parents had never heard of cystic fibrosis, they were wary of her participation in athletics, and so directed her in the direction of music as an extracurricular activity. *      At 22 years old, Jen visited a CF clinic for the first time. *      She had, admittedly, been naïve about the seriousness of CF and the need to care for herself. *      Her new doctors told her she had to change her ways to survive.  Listen in to the latest CF podcast to hear Jen’s entire story.  This CF Podcast was made possible through an unrestricted, education grant from Genentech to the Boomer Esiason Foundation.

CF Podcast 152: Anxiety with Cystic Fibrosis   Today, you will meet Amy Whelan, a 21 year old from Dublin, Ireland. She was diagnosed at two weeks old, when her identical twin was extremely ill. *      Amy is studying anthropology and sociology in college. *      She enjoys reading, writing, and watching movies. *      Growing up, she did not have to do as many lung-based treatments. Now she has had to adjust to adding those treatments to her medical regime.     This podcast was made possible through an unrestricted educational grant from Chiesi to the Boomer Esiason Foundation. 

CF Podcast 151: Self Management and Pursuing Goals with Cystic Fibrosis   Today we meet Jessie Ennis, a 22 year old with CF who was born and raised in Dublin, Ireland. Because of a family history of the disease, Jessie's parents had her tested for CF before she was six weeks of age. In spite of CF, she had a relatively normal childhood - growing up with her brother and a series of foster kids - and remained healthy through high school.    Now Jessie:    studies health and society in college, is currently visiting and working a summer job in San Diego, and has taken up surfing and skiing.  To learn more about Jessie and the ways she manages her disease while pursuing her goals, please listen to her podcast here [insert link].      This educational podcast was made possible through an unrestricted educational grant from Chiesi to the Boomer Esiason Foundation. 

“Comfort With Your Feeding Tube” The fourth episode of the Own Your Feeding Tube video podcast series discusses some of the social questions that tube feeders, or potential tube feeders, may have when it comes to a new feeding tube. Obviously, it’s a pretty noticeable device. I think the social hurdle was really the biggest one that I had to overcome. With that being said, once I realized the benefits of the feeding tube, especially in my life, it was an easy hurdle to get passed. Here, the message is that I really want you to own it. What is it? The feeding tube. If the feeding helping make your life easier, then don’t worry about what it looks like. You never know where it will lead you.

CF Podcast 150: Sean Sullivan, Being Compliant with Cystic Fibrosis   Today we meet 40 year old, Sean Sullivan, who was diagnosed with CF at 16 months after his parents grew concerned about his chronic cough and lack of weight gain. Sean is the oldest of six kids and is the only person in his family who has CF. ï      He grew up extremely active – playing basketball, baseball, and swimming. ï      His doctors encouraged his parents to treat him the same as their other children. ï      From a young age, he learned to be not only medically compliant but also stick to an active lifestyle. ï      Now 6 months post transplant, Sean is even more vigilant than ever while taking care of his disease and its new challenges.     This podcast was made possible through an unrestricted educational grant from Gilead to the Boomer Esiason Foundation. 

CF Podcast 149: Exercising with Cystic Fibrosis featuring Jillian McNulty   Today, we meet Jillian McNulty, a 38 year old woman living, breathing, and succeeding with cystic fibrosis in Ireland. Growing up as one of four kids, she is outgoing and constantly challenges herself to stay on top of her disease.  - During her childhood, Jillian was never hospitalized for an extended length of time.  - In her early thirties, Jillian's health started to decline, and so she made the decision to push herself with exercise.  - After seeing an ad for a marathon while she is in the hospital, Jillian decided to sign up and start training.  - Since then, she continues to push herself by running, walking, and cycling on a regular basis and by competing in races.      This podcast was made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation. 

CF Podcast 148: Never Giving Up with CF   Today, we meet Chris Peacock, a 26 year old native of Durham, UK who loves sports, poker, and spending time with his girlfriend and friends.  - Chris suffered a collapsed lung in 2011.  - He stepped out of his comfort zone and started dedicating time to exercise and now walks/runs 2 miles every day. - Because of his health issues, he is on home oxygen. But after starting his exercise regime, he only uses it at night and hopes that one day, with continued fitness, he will not need it at all.  - Chris says that his friends generally don't treat him any differently, but don't fully grasp how serious his disease is because he never lets it slow him down.      This CF podcast was made possible through an unrestricted educational grant from Chiesi to the Boomer Esiason Foundation. 

In the first episode of the Own Your Feeding Tube video podcast series, this “How-To” video will show how I am able to use my feeding tube in different situations. I cover two different types of “feeds,” bolus feeds and nocturnal pump feeds. Bolus feeds are quick and easy and can get me as much as 750 calories in just a few minutes. My nocturnal feeds typically run for about 7 hours and give me anywhere from 1500-2500 calories depending on how much formula I use. I also discuss how the feeding tube system is undergoing a change to the ENfit connector system. The current ENfit transitional set has been introduced and has created many questions for tube feeders. In 2016, feeding tubes and their accompanying pieces will complete the total transition to the ENfit connector system, which is designed to improve patient safety. Hopefully this video can help answer some of those questions. This video podcast/vodcast was made possible through an unrestricted educational grant from Nestle Health Science.

Jonny Simpson Managing a Career with Cystic Fibrosis   Today, you will meet Jonny Simpson, who is living, breathing, and succeeding with cystic fibrosis.  - 28 years old - From Penrith, Cumbria, UK - His hobbies include bodybuilding, literature, and music. - He is one of four boys.  - He works in sports marketing and also personal training.      This podcast was made possible through an unrestricted educational grant from Gilead to the Boomer Esiason Foundation. 

Meet Gary Reay - a 26 year old who grew up in Ireland with cystic fibrosis.    - He plays soccer and boxes - generally trying to get to the gym at least 4 days a week with his friends - and also loves music and DJing.    - After 19 years without an extended stay at the doctor's, Gary fell ill and was hospitalized for 6 weeks.  - During that time, he lost a great deal of weight - leading him to the decision to get a feeding tube.    - He uses his feeding tube every night and has seen a major change in his ability to retain weight and has much higher energy levels.    This podcast was made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation. 

Tim Wotton – Show Notes    CF Podcast 145: Being a Father with CF Tim Wotton    Meet Tim Wotton, 44 years old, with CF.  Tim is from London, U.K.  He was an international junior field hockey player, works full time as a business consultant, and continues to play hockey and visit the gym regularly.    Tim is a loving husband, father, and has two brothers, one of which is a twin.   Tim is loving life with his family and proving everyday that he is OWNING IT!    Tim discusses CF and starting a family through in vitro fertilization.   It took Tim and his wife 6 IVF cycles to have their son Felix.   Tim’s son’s name Felix is Latin for lucky and Greek for happy.   Tim see’s all of his “tomorrows” in Felix   Tim has his own blog and book titled ‘How Have I Cheated Death?”      Tim’s Quote: “Everyone needs to row their own boat, with CF”

In this CF Podcast, we meet Bryan Warnecke – the young man with cystic fibrosis who was featured in the One Republic I Lived music video. He OWNS his disease every day by staying compliant and exercising. Active in various athletics, he is extremely passionate about ice hockey – a sport in which his team has won a state championship. Bryan’s goal is to become the first goalie with cystic fibrosis to play in the Olympics for Team USA. This video podcast/vodcast was made possible through an unrestricted educational grant from Gilead to the Boomer Esiason Foundation.

In this podcast you’ll see how I have taken to the coaching word, despite dealing with cystic fibrosis. Growing up, I was lucky enough to have some great coaches along the way. They always knew how far they could push me – just beyond the breaking point. I owe a lot of my character and success in life to my mentors, especially my coaches. They taught me invaluable life lessons away from sports that I one-day hope to pass on to my athletes. Success is something that is attainable for everyone, but not without hard work. This video podcast/vodcast was made possible through an unrestricted, education grant to the Boomer Esiason Foundation from Chiesi.

“Exercising with CF Pre & Post Transplant” – Lar Brennan Lar Brennan, 30 years old post transplant with CF, born and raised in Wexford, Ireland and was diagnosed at 9 months of age. Lar is an athlete, sports enthusiast, and passionate about fitness. Lar  received a double lung transplant on November 24th 2013. Lar studied fitness in college and is now a fitness instructor. Since his transplant Lar does everything he can to raise awareness and empower people with CF to excel in everyday life. Lar is RELENTLESS in his quest to stay fit and beat CF. Lar believes that through the “power of exercise” he cannot fail… Lar states:  “you need to stay positive and believe in yourself” Lar’s quote: “Smile and wave…”     This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

  Meet Tim Sweeney, a 37-year-old personal trainer living, breathing, and succeeding with cystic fibrosis. Tim, who ran the NYC Marathon one year after his double lung transplant, and his wife Beth have had two children – Timmy and Harrison – using IVF. While there are not many resources for CF couples going through IVF, the Sweeneys want other people going through the same process to know that it can and does work; that people living with CF can successfully start a family. his video podcast/vodcast was made possible through an unrestricted educational grant from Chiesi to the Boomer Esiason Foundation.

Meet Colin (11) and Sean (9) Randles – brothers who are living, breathing, and succeeding with cystic fibrosis. The brothers are active in sports, including baseball and basketball, and are constantly playing games like cops and robbers and tag outside with friends. They both agree that the best part of having a brother with CF is that they are always there to encourage each other, to hang out in the hospital, and to help each other get better. This video podcast/vodcast was made possible through an unrestricted educational grant from Chiesi to the Boomer Esiason Foundation.

Wise words given to CF mom, Whitney Randles, from her boys’ grandfather: “Special children are only given to special people.” Pat Randle: “My biggest fear is that I outlive my children – simple as that; that shouldn’t be. And I don’t want that to happen. That’s where it begins and ends with the fear. I don’t want that to happen.” * * * In this podcast, CF parents Pat and Whitney Randles, discuss the challenges they have faced while raising two young sons with cystic fibrosis. While most parents face the normal ups and downs of learning to raise kids, the Randles had additional challenges when they were told that they oldest son, Colin (now 11), had CF. When their second son, Sean (now 9), was born with CF – they faced an additional set of trials, balancing schedules and medications, among other things. The Randles are constantly learning the best way to raise their kids. They depend on one main phrase every day: “Do CF life first, then do your normal life.” By constantly challenging their boys to stay compliant and healthy, they are instilling skills both Colin and Sean will hold onto into the future. This CF video podcast was made possible through an unrestricted education grant from Genentech to the Boomer Esiason Foundation.

“CF and Exercise with Low FEV’s” – Lizz Kaup Lizz Kaup, 34 with CF, born and raised in California and currently living in Tecumseh, Oklahoma. Lizz was diagnosed at age 3 and is currently working as a senior social worker at a medium-secure juvenile facility and recently completed her program at East Central University. Lizz is active in her church and loves to travel. Lizz is always on the lookout for her next adventure. Due to her low FEV’s, Lizz exercises with oxygen and is RELENTLESS in her quest to stay fit and beat CF. Lizz has found that through the “power of exercise” she cannot fail with CF.  Lizz was hospitalized a lot growing up between the ages of 13 - 18 but states “My parents were amazing and taught independence”. Lizz started to exercise consistently due to the decline of her lung functions to help delay a double lung transplant. Lizz made a commitment to exercising by doing treadmill for 30 minutes, 7 days/week. “It was difficult but I noticed slow improvement in my strength. Lizz currently does weight training, treadmill, and biking.  “For me, the rewards of exercise include muscle tone, breathe a little better, and more energy”. Lizz did her first 5K event, the Dirty Thirty. “It was a mud run (with obstacles) and I did it with my oxygen tank”. “Coping with CF is not always easy… but I maintain a heart of gratitude, thinking of the good things in life and the great support of my family” states Lizz. Lizz’s Tips: “Just start” “Have a support staff” “Faced with challenges… ALWAYS look for the silver lining” “ Continue to fight!”  “Life is an Adventure… GO for it!”     This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.  

Meet Beau Rich – a 23-year-old filmmaker, actor, writer, musician, and traveler living, breathing, and succeeding with cystic fibrosis. After a series of tests and hospital stays, Beau was diagnosed with CF at six months old. By the age of 11, he took up skateboarding and discovered that it was a fun way to stay in shape and clear his lungs. Today, Beau makes a daily effort to stay healthy by staying compliant and exercising so that he can live life however he wants. By using his portable vest and treatments, he is able to stay healthy on the go and is able to keep his body moving so that he can enjoy every single day. 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The Boomer Esiason Foundation (BEF) is launching its newest Team Boomer event series, Bike to Breathe, which kicks off with Jerry and Em’s Great CF Adventure – a journey that will take the two cystic fibrosis (CF) advocates on a 500-mile bike ride from Cary, N.C. to Baltimore, M.D. Jerry Cahill and Emily Schaller will start their ride from the Chiesi USA headquarters, located at 1255 Crescent Green, Cary, NC 27518, at 10 a.m. on Monday, Sept. 15, 2014. The Team Boomer event series encourages people with cystic fibrosis and their families to stay active and exercise in order to stay healthy. Cahill is a 58-year-old CF patient and double lung transplant survivor who is living proof that an active, healthy lifestyle positively affects his quality of life. He is currently BEF’s CF Ambassador, volunteering for the Foundation to help the CF community in the here and now. 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<w:LsdException Locked="false" Priority="33" SemiHidden="false" UnhideWhenUsed="false" QFormat="true" Name="Book Title"/> /* Style Definitions */ table.MsoNormalTable {mso-style-name:"Table Normal"; mso-tstyle-rowband-size:0; mso-tstyle-colband-size:0; mso-style-noshow:yes; mso-style-priority:99; mso-style-parent:""; mso-padding-alt:0in 5.4pt 0in 5.4pt; mso-para-margin:0in; mso-para-margin-bottom:.0001pt; mso-pagination:widow-orphan; font-size:12.0pt; font-family:"Century Gothic";} This podcast was made possible through an unrestricted educational grant from Chiesi to the Boomer Esiason Foundation.

“Traveling with Cystic Fibrosis Pre & Post Transplant” – Anna Modlin Anna Modlin, 32 with CF, born and raised in the Bay area and had a double lung transplant on November 22nd 2010. Anna was diagnosed at 18 month of age, had a fairly normal childhood, hospitalized for the first time at 4 years of age and then not until junior high school. Anna graduated with a Masters in Counseling Psychology and her hobbies include cooking, spending time near water, and post transplant has become passionate about exercise. Anna, a true fighter, competes in the Transplant Games and gives back by volunteering in the CF community. Anna is LIVING BREATHING SUCCEEDING, passionate about living and “The hero of her own story…”   Anna prepares a travel list before ever adventure. Some things on the list include: Mira Lax, masks (N95), hand sanitizer, Clorox wipes, and an extra lithium battery for her glucose meter. Anna always “carries on” her medications, has a letter from the doctor, washes hands frequently, and only drinks bottled water on trips (never tap water…). “Also I carry extra scripts…” states Anna. Anna will always request a refrigerator at hotels but if not available will use an ice bucket at hotel. Insurance… just in case there is a problem with flights or getting sick while travelling, Anna always purchases travel insurance. Anna likes Travel Guard. (www.travelguard.com).  Sinus issues? Anna travels with Neil Med saline packets for sinus rinses and uses distilled water. “Since constipation is common for normal people when travelling, people with CF should use Mira Lax to help combat this problem. Anna’s Travel Tips Before: check list & chargers/adapters, and pre board. During: Hydrate, Snack, Positive attitude After: Rest     This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.  

Lindsay Shipp:The Power of Exercise and Nutrition with CF LINDSAY SHIPP, 30 years old from Madison, Wisconsin currently living in San Diego, CA for the past 7 years and studied classical ballet for over 20 years. Lindsay’s hobbies include running, spinning, heated yoga, and nutrition. Lindsay was diagnosed at 9 months of age. “I had a normal childhood and traveled the USA competing in dance,” states Lindsay. After 20 years of ballet Lindsay stopped exercising and her lung function dropped considerably “When I stopped dance and exercise I started to get sick a lot more and my lung function dropped drastically… so I started the long uphill battle back to exercising with treadmill, spinning classes, and eventually running outdoors. It took months to get back in shape and clear out my lungs,” states Lindsay. Living with CF and exercising is a “journey…”” and that journey is what keeps Lindsay going and evolving. Lindsay’s motivation to exercise is her CF and clearing out her lungs and “coughing it out”. Lindsay’s goal is to run the Boston Marathon in 2015. Lindsay’s advice…”Get out there and do any type of exercise” It’s all about the journey… This CF Podcast is made possible through an unrestricted educational grant from GILEAD to the Boomer Esiason Foundation.

> Today, you will meet Stephen Bell, a 30 year old with cystic fibrosis, who is an avid runner and exercise enthusiast. Stephen has run 8 marathons in the last 5 ½ years, and attributes his health to his commitment to staying active. Running – something that was once used as a punishment in other sports – has become something that makes him feel free, and gives him time away from everything when he is feeling overwhelmed. This video podcast/vodcast was made possible through the promotional support and commitment from AbbVie to the CF community.

In this video, Jerry discusses several methods of airway clearance that help people with cystic fibrosis avoid lung infections. Jerry finds the following methods extremely helpful in keeping his lungs clear: the vest, the flutter, the power lung, sinus irrigation, the percussor, and last, but certainly not least, staying active and exercising regularly. This podcast has been made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

In July 2013, runners gathered for the third consecutive year for a race Central Park in New York City. Many of those runners were there to support the cystic fibrosis community, and they shared with us their many reasons for running. From lung health to stress relief, emotional well-being to freedom from their disease, all of these people have at least one thing in common: they run to fight cystic fibrosis. This podcast has been made possible through an unrestricted educational grant from VERTEX to the Boomer Esiason Foundation.

I Believe… in Compliance  The "I Believe" video series is a series of podcasts that features people in the CF community sharing their beliefs on what it takes to live, breathe, and succeed with cystic fibrosis.  In this podcast, four people who are at different stages in their fight against CF share what the word "compliance" means to them and to their health. The common belief in this video is that compliance prolongs the life of anyone living with cystic fibrosis.  This podcast was made possible by a patient education grant from Novartis Pharmaceuticals Corporation.

I Believe  The "I Believe" video series is a series of podcasts that features people in the CF community sharing their beliefs on what it takes to live, breathe, and succeed with cystic fibrosis.  In this podcast, four people with CF discuss the need to have a supportive community surrounding you. All people with CF feel some sort of isolation and low points throughout their lives, but those times teach you resiliency and personal discipline. The panelists in this podcast swear by movies, music, exercise, remembering to have hope, and even having a therapeutic cry as ways to overcome difficult times.  This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Exercising with CF “If it’s not important, breathe it out. What’s important, breathe it in.”In this video, Emily Schaller, a 31-year old living, breathing, and succeeding with cystic fibrosis shares her life-changing relationship with exercise and her determination to spread awareness about CF. Active in her youth and teenage years, Emily did not commit herself to making an entire lifestyle change until her lung function began to decrease in her early 20s. Since making that commitment, her health and overall lifestyle have improved dramatically. This video was made possible through an unrestricted educational grant from Pharmaxis.

Podcast 122: I Believe… in Exercise The "I Believe" video series is a series of podcasts that features people in the CF community sharing their beliefs on what it takes to live, breathe, and succeed with CF. In this episode, the discussion focuses on Belief in exercise and its importance to everyday health. While people with CF exercise and remain active in different ways, all four people featured in this video Believe that it strengthens and clears their lungs, and allows them to be strong both mentally and physically. Thanks to AbbVie Inc. for the promotional support and commitment to the cystic fibrosis community, which makes this program possible.

In this episode, we talk with Katie O’Grady, a 17-year old senior at North Rockland High School in New York. Katie is an avid runner and is a member of the Red Raider varsity cross country and track teams. She talks about the role sports and exercise have played in managing her CF, but particularly how beneficial running has been in keeping herself healthy.  • Katie’s first sport was soccer. She played for five years, but eventually gravitated away from soccer and towards running. • Katie began running early in grade school, running side-by-side with her father. • For Katie, running provides her with an opportunity to think and take in the outdoors around her. • By the eighth grade, Katie was her school’s best competitive runner. • Katie says running has helped keep sinus infections at bay, while improving her breathing. • Aside from running, Katie keeps herself in shape through weight training, swimming, and biking. • When she does get sick, running can be frustrating for Katie, but she stays motivated by remembering the fun times at past events, and the support she has from her friends. • In 2012, Katie crossed the finish line at the New York City Half Marathon, running for Team Boomer. This CF Podcast is made possible through an unrestricted educational grant from GILEAD to the Boomer Esiason Foundation. For more CF Podcasts, visit www.jerrycahill.com

In this episode, we talk with Bret and Brennan Hatfield, both of whom are brothers and enjoying high school in Omaha, Nebraska. Bret is 15, Brennan is 17, and both are living, breathing and succeeding with cystic fibrosis. • Brett and Brennan were diagnosed with cystic fibrosis when they were four years old. • They acknowledge the challenge that cystic fibrosis presents, but are determined to lead normal lives. • For both, being compliant means setting up and sticking to a daily schedule for taking medications. • Some of their favorite things to eat for breakfast include biscuits, pop tarts, bacon, and a chocolate protein shake. • Both brothers like to run at least two miles on the treadmill and lift weights together. At times, they can get competitive with each other. • Brennan says one of the toughest parts about having cystic fibrosis is the time treatments take away from his social life. • Brett and Brennan both swim during the winter to stay active. This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Diagnosed at the age of 10 with cystic fibrosis, Lisa Ropers is now a happily married 33-year-old living in Holmesville, Nebraska. Lisa, in spite of dealing with the CF complication Pancreatitis, remains passionate about the fashion and retail management world. She loves going to the gym, doing yoga, and shopping – especially in second hand stores where she can find things to restore or ‘up cycle.’  Pancreatitis is caused by pancreas not functioning properly and symptoms include nausea and pain.  “I deal with my pancreatitis by watching my fat and protein intake and by living more of a vegan lifestyle and I avoid dairy,” states Lisa. “I usually have to go into the hospital a few times a year when the pain gets severe, and I go on some antibiotics and NPO (nothing by mouth) for 4 or 5 days,” according to Lisa  Lisa suggests that people with CF eat better and avoid a high fat diet to keep their pancreas healthy. “My family and husband are a great support system for me when I am getting a severe attack as they help with all my errands and just comforting me. Oh yes, my 2 dogs and 2 cats also add support…” Lisa’s advice to people with CF…  “Don’t ignore it, don’t be in denial, and take care of you!” This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

In this episode, we talk with Gunnar Esiason, a 21-year old senior at Boston College about the daily use of a feeding tube as part of CF treatment. While Gunnar continues to remain compliant and use the feeding tube, among other treatments, he has been living independently and has been enjoying college life for the past three years.• Gunnar was diagnosed with CF at the age of two. He is now 21 years old and a senior at Boston College.•  Gunnar made the decision to use the feeding tube during his sophomore year in college, shortly after enduring a serious lung infection and losing significant weight.• The surgical process of inserting the tube culminated with the placement of a “button”, an external port allowing Gunnar to receive the nutrients he needs in liquid form.• When the tube is initially put in, doctors gave Gunnar a “goal weight”, which is the ideal weight they would like to see him reach and maintain. Before the feeding tube Gunnar’s weight was at 142 pounds. Now, he is weighing 175 pounds. His goal is 185 pounds.• During the day, the feeding tube provides Gunnar with anywhere from 500 to 1,500 calories. At night, Gunnar may ingest upwards of 2,000 calories and sometimes totals nearly 5,000 calories per day.• Gunnar says the feeding tube hasn’t stopped him from leading a full life and enjoying college with his friends.• Gunnar washes his feeding tube with warm or hot water in an effort to sterilize it.• The only adjustment Gunnar says he has had to make is learning how to sleep at night while using the feeding tube.Big thanks to Genentech for their support and for making this CF Podcast possible.For more CF Podcasts, visit www.jerrycahill.com

In this episode, we talk with Lynne Sampson, Executive Director and CEO of the Pennsylvania-based non-profit HelpHOPELive. Lynne and her team at HelpHOPELive are passionate about providing assistance to transplant and catastrophic injury patients, helping to bring down the cost of medical expenses.•    HelpHOPELive works to mobilize communities in their efforts to raise money for transplant and catastrophic injury patients around the country, thereby helping the patients cover the difference between what insurance can cover and what the family can pay.•    HelpHOPELive teaches communities how to fundraise and encourages everyone in need of help to engage their communities early.•    Last year, the organization oversaw 572 online events for patients•    Through HelpHOPELive, communities raised $8 million in 2011•    Sampson says many times communities want to help, but don’t know how to do it.  •    Using HelpHOPELive, patients will be able to keep all funds raised as tax-deductible, meaning the funds will not count towards your income.•    All funds raised through HelpHOPELive are secured by the organization’s financial team, providing donors a sense that their donations will be accounted for and used for their intended purposes.•    Patients using HelpHOPELive also qualify for additional grants, including HelpHOPELive matching grantsFor more on HelpHOPELive, visit www.helphopelive.org

Joe, now 33 years old, was diagnosed with CF at age 5, and also had a sister who was diagnosed with CF. He currently resides in Norfolk, Virginia with his fiancé Jennifer with whom he shares a love of riding motorcycles. Joe works as a Director of IT and enjoys practicing photography on the side.  Joe Sleeper is LIVING BREATHING SUCCEEDING and determined that he WILL NOT FAIL… Joe has never defined himself by his cystic fibrosis. After heading a rebellious downward spiral in his teen years, he regrouped and took control of his CF after his sister passed away from the disease. “I had to regroup and take control of my life when my sister was gone. I was always sick with infections, my weight dropped to 118 pounds, and my PFTs were in the 20s… not a good thing,” stated Joe.  “I wanted to change… I did NOT want to be sick… the light bulb went on in my head and I took control. I went to Barnes & Noble and started looking at fitness magazines and started reading Muscle Magazine. I also started going to the gym and started lifting weights,” states Joe. Joe noticed he started gaining weight in a few weeks and after several months his PFT’s went up. “Over time I gained over 50 pounds and my PFT’s went from 20% to 58%.” Joe’s biggest challenge with CF is time management but he is confident that he will continue to “Breathe Easy” with his fiancée, Jennifer. – “My greatest support system along with my parents”. “Being disciplined with my CF treatments and my exercise is an investment I make so I can enjoy life” states Joe. Joe’s recommendations to young people with CF rebelling like he did: “CF today is a different game – It’s NOT a loosing game. You can and will live well past 30 years old. YOU are NORMAL and YOU are worth it!” What Joe wants people to know about him: “I am not a CF patient, I am just Joe, a guy that love riding motorcycles.”  This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

For 56 years, Jerry Cahill has courageously battled cystic fibrosis while awaiting a life-saving double-lung transplant.In April 2012, Jerry got the call. A new pair of lungs had become available.As a testament to his courage and dogged perseverance, Jerry crossed the finish line at the 2012 Boomer's Run to Breathe 10K - barely three months removed from his transplant surgery.Now, for the first time since that surgery, Jerry opens up about life before and after receiving a new set of lungs.

July 21, 2012 Central ParkNew York, NYIn its second year of existence, the Boomer's Run to Breathe 10K saw over 5,000 runners come out in support of the Boomer Esiason's fight against cystic fibrosis.Among them, Jerry Cahill - a 56 year-old living, breathing and succeeding role model to the cystic fibrosis community. Barely three months after receiving a double-lung transplant, Jerry took to the pavement in Central Park and completed a challenging 10K.Today, Jerry continues to inspire the CF community through his involvement in high school coaching,Team Boomer (www.esiason.org/teamboomer) and his newest initiative, You Cannot Fail (www.youcannotfail.com).Follow Jerry through the CF Podcasts (www.jerrycahill.com), CF WindSprints (www.cfwindsprints.com), and via Twitter (@bigair).

“A Day in the Life of a CF Mom/Caregiver: Catherine Hopkins” Catherine Hopkins is facing the challenge of balancing a full-time job as a vet technician while making it possible for her 3 year old son, Philip to LIVE BREATHE SUCCEED with CF. Catherine and her husband, David, knew the diagnosis was a possibility just 8 weeks into the pregnancy and dove into research immediately. Since then, they have relied on their faith, friends, and family for support throughout their journey.   When Philip was diagnosed at 3 weeks old, they jumped into educating themselves about CF and therapies. Research and education are two of the most important things as a caregiver facing the challenges of CF. “We have been lucky,” Catherine states. In three years Philip has never been hospitalized or had any major scares.  At just 3 years old, Philip is brave in handling his therapies. “He’s my hero,” states Catherine. She is glad he was diagnosed young because it is all he knows.  Catherine is a CF mom, but she is also a normal mom who wants the same things all other moms want for their children.  Catherine and her family don’t think twice about the everyday responsibilities of a CF caregiver. “It’s just a part of our life,” states Catherine.  This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Bobby Bebber: Overcoming ALL Obstacles with CF Bobby Bebber, 28 years old and living in Miami, Fla., was diagnosed with cystic fibrosis (CF) at age two. Bobby has had three liver transplants and a kidney transplant, and he also has CF-related diabetes, but he continues to fight on and NEVER give up. Bobby, who discusses overcoming all obstacles with CF, is LIVING BREATHING & SUCCEEDING.  Bobby grew up pretty fast. He was in the hospital a lot during his childhood, including for three liver transplants (October 1987, November1987 and May 2001).  Bobby’s mom donated a kidney to him. “My CF has mainly been digestive issues, but now the respiratory component has kicked in, and I am now listed for a double-lung transplant at Duke Medical Center,” Bobby says. Bobby loves sports and played soccer and intramural basketball in high school. He also is passionate about horse racing.  “My uncle owns a few race horses,” he says. “The hardest part about living with CF is not having the lung capacity to do what I like … Being on oxygen limits you,” Bobby says. Bobby’s biggest accomplishment was graduating college, because “I never thought I would do it,” he says. “My goal is to visit all 50 states and live to be 50 years old,” Bobby says. Bobby’s recommendation to others with CF: “Never give up. No matter what people tell you, be a fighter!” This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Rick Lerz is LIVING, BREATHING and SUCCEEDING after a double-lung transplant. Forty-five-year-old Rick grew up Queens, N.Y., and was diagnosed with cystic fibrosis at six months. He now is married to his caring wife, Leigh, and the proud father of their 15-year-old daughter, Marty. Rick, who has spent more than 20 years in the medical field, became a registered nurse in 1990. One of his hobbies includes breeding Sharpie dogs. •    Growing up, Rick’s life was pretty normal and included exercise and bike riding. But his health started to go downhill when he was 26. •    “I was listed in March of 2010, and I was blessed to have a very supportive family,” Rick says. •    “The first thing I noticed post-transplant was that I could BREATHE… I could take a deep breath without coughing… it was truly amazing,” he says. •    Post-transplant, Rick became the “can do” dad.  “I was able to take my daughter to the mall and walk around with her and shop. That is a great feeling,” Rick says. •    Rick’s recommendation to people with CF who are thinking about a transplant: “Fight your depression, stay active, and have a strong support team you can talk to.” •    “I have a new lease on life, and I am a productive, normal guy again. I am very thankful to my donor family,” Rick says. This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Colleen Caul was born into a big Irish family in St. Louis, Mo. Growing up, Colleen was always active, but her whole life changed in 2004, when her uncle started to coach her little sister, Katie Rose, how to run. Katie Rose has cystic fibrosis. Elated to see the positive effect that running was having on her sister’s health, and inspired by their dedication, Colleen started to run. In the past five years, Colleen has completed four marathons and recently completed the “Run for Roses,” a 65-day running pilgrimage to spread awareness, raise funds and share stories about cystic fibrosis. Colleen founded the Run for Roses Foundation (www.runforroses.com) to support her efforts to raise funds toward a cure for CF. -    In honor of her sister, Katie Rose, Colleen ran from St. Louis to New York City from July to September 2011. She ran 1,000 miles in 65 days for one dream: to cure cystic fibrosis.-    Colleen ran 15.5 miles each day, and her stretching routine was about three hours a day. She ate Starburst candy for energy during her runs and refueled with chocolate milk.-    During the 65-day run, Colleen blogged with friends and fans. In Ohio, she had the opportunity to run with a family that has two children with CF. “It was amazing, they both ran four miles with me,” Colleen says.-    “People with CF never have a day off … when things got tough during a run, I just thought of that and said I can do it!” she says.-     “Crossing the finish line in New York City was incredible,” Colleen says. “Katie, family and friends joined in for the last five miles – it was an out-of-body experience that I will never forget.”-    The overall message Colleen wants Run for Roses to communicate is HOPE & POSITIVITY.This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

Josh Mogren: Moving Forward After Losing a Sister to CF Josh Mogren is a 32-year-old with cystic fibrosis and cerebral palsy. Josh, who lives in St. Paul, Minn., discusses overcoming all obstacles with CF, including the loss of his sister, Angela, to CF. Josh has been happily married to Carly for five years, and also enjoys the company of their two dogs and the puppet, “Moganko.”  Josh has a blog (www.welcometojoshland.com), is a movie buff, enjoys singing karaoke, and is LIVING BREATHING & LOVING LIFE.  Josh was diagnosed with CF at birth; his older sister, Angela, also had CF. Josh has fond memories of his Angela: “Angie was strong-willed, very funny and a real prankster. My sister taught me to be a strong advocate for myself, and that is very important when you have an illness like CF,” Josh says. “Growing up, Angie was a lot sicker than I was, and that was very frustrating for her. I felt terrible about it ‘cause I was doing so much better – it was not fair,” he says. Josh believes it’s ok to be sad but that people with CF have to keep fighting and be HAPPY!  “Having fun and making light of things is the key to being happy. That is why I created my blog and YouTube site (“Welcome to Joshland”). I share a lot of my thoughts and stories about my life, CF, and otherwise,” Josh says.  Josh appreciates things a lot more since the loss of Angie, and he feels blessed to have a great family and friends. This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

“The Power of Two” - A Story of Twin Sisters, Two Cultures and Two New Chances at Life Marc Smolowitz, making his directorial debut, speaks about “The Power of Two” documentary film.  “The Power of Two” offers an intimate portrayal of the bond between half–Japanese twin sisters, Anabel Stenzel and Isabel Stenzel Byrnes, their battle with the fatal genetic disease cystic fibrosis and the miraculous survival through double-lung transplants.  “Reading their book sealed the deal to make the film. Ana and Isa are great writers,” Marc says. Marc enjoys heath care storytelling that lends itself to bigger and more personal issues. “Seeing what patients go through with a chronic illness is very powerful,” Marc says. “Most people take breathing for granted, but it is amazing what people with CF go through just to breathe… I tried to focus a lot on breathing throughout the film,” he says. Marc’s trip to Japan with Ana and Isa was amazing. “Ana and Isa are cultural ambassadors.” “The Power of Two” engages the multiple communities: cystic fibrosis; transplant; and medical and health care. “Engage with us…” For more information on the film: www.thepoweroftwomovie.com. This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.