PODCAST · health
Let's Talk About The POTS life
by The POTS Life
POTS, or Postural Orthostatic Tachycardia Syndrome, is a form of dysautonomia disorder. The hallmark of POTS is a rapid heart rate that occurs upon standing, leading to symptoms like dizziness, lightheadedness, and fatigue. Learn about the POTS life program developed by Physical Therapist Kelsey Botti, who is thriving with POTS. Hear about Kelsey's story, her patients, and her team. (The information provided in this podcast are for educational purposes only and does not substitute for professional medical advice
Episodes
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Electrolytes: The Key to Proper Hydration with Redmond's Darryl Bosshardt
In this episode, Kelsey and Redmond’s Darryl Bosshardt discuss the significance of salt and electrolytes, particularly for individuals with POTS. They explore the historical context of salt, its essential role in health, and the evolution of Redmond Real Salt and its product Re-Lyte. The...
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From Misdiagnosis To Management: Ryenn’s POTS Journey
In this episode, Ryenn shares her journey from misdiagnosis to managing POTS and vascular conditions, highlighting the importance of persistence, proper diagnosis, and lifestyle modifications. Her story offers hope and practical insights for others navigating similar health challenges. In this...
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POTS, Marriage, and Motherhood - What We Learned Along The Way
In this episode, Kelsey and her husband Cale discuss the journey of living with POTS, diagnosis, treatment, and how it has impacted their family life. They share insights, challenges, and advice for others navigating similar experiences.
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The Hidden Connections Between POTS, EDS, Hypermobility & Chronic Pain with Dr. Linda Bluestein
Living with chronic pain, hypermobility, POTS, or other complex conditions can make it difficult to connect the dots. In this episode, I sit down with Dr. Linda Bluestein, a board-certified physician specializing in connective tissue disorders, to discuss the connections between hypermobility,...
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Accepting Life After a POTS Diagnosis: Grief, Control & Building Your Support Team
Receiving a POTS diagnosis can be both validating and overwhelming. After finally getting answers, many people are surprised to learn there isn't a quick fix and that managing POTS often requires consistent lifestyle changes over time. In this episode, we talk about the emotional side of life…
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Dr. Marie-Claire Seeley on POTS, EDS & Changing the Future of Care
Dr. Marie-Claire Seeley is a registered nurse, researcher, Founder and Volunteer CEO of the Australian POTS Foundation, and one of the leading voices advancing POTS research, education, and advocacy. In this episode of Let's Talk About the POTS Life, Kelsey sits down with Dr. Seeley to discuss…
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Learning to Trust Your Body Again with POTS
How do you start trusting your body again after a POTS diagnosis? In this episode, Kelsey and Brit talk about the fear of doing everyday activities when your symptoms feel unpredictable. From weddings and travel to summer events and driving, they discuss practical ways to prepare, pace yourself,...
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POTS, EDS & Hypermobility: What Patients and Parents Need to Know with Dr. Cohen Solomon
What is the connection between POTS, hypermobile Ehlers-Danlos syndrome (hEDS), and hypermobility? In this episode, I sit down with Dr. Cohen Solomon, board-certified pediatrician, educator, and patient living with hEDS and dysautonomia. We discuss the overlap between POTS, EDS, chronic pain,...
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POTS, Advocacy, and The Dysautonomia Workbook with Joanna Behm
In this episode of Let’s Talk About The POTS Life, we sit down with Joanna Behm, occupational therapist, dysautonomia advocate, and co-author of The Dysautonomia Workbook. Joanna shares her personal journey to diagnosis, the challenges of living with POTS, MCAS, and hEDS, and the work she does...
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What to Do After a POTS Diagnosis (Electrolytes, Exercise, and Common Mistakes)
If you’ve recently been diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome), it can feel overwhelming figuring out what actually helps. In this episode, we break down what to focus on early and what to avoid. We talk through common mistakes after a POTS diagnosis, including…
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Pelvic Floor Dysfunction and POTS
GI symptoms, pain clues, and why a consult matters In this episode of Let’s Talk About the POTS Life, we break down the connection between POTS and pelvic floor dysfunction and why it’s often overlooked. We cover common “beige flags” like GI issues (IBS, bloating, constipation/diarrhea cycles,...
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From Surviving to Living Again: A POTS Life Graduate’s Journey
In this episode of Let’s Talk About the POTS Life, we sit down with Veronica, a POTS Life graduate now in our graduate program, to talk about her journey from simply surviving to truly living again. Veronica shares what life looked like when her symptoms were at their worst, navigating frequent...
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What Makes The POTS Life Treatment Program Different
In this episode of Let’s Talk About The POTS Life, we walk through the philosophy behind the POTS Life treatment program and why it’s structured the way it is. We talk about the importance of a lower-and-slower approach when building exercise tolerance with POTS, how strengthening evolves over...
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Is The POTS Life Program Safe for CFS, EDS & Severe Fatigue?
In this Q&A episode of Let’s Talk About The POTS Life, we’re answering one of the biggest questions we get: Is The POTS Life Program safe if I have chronic fatigue syndrome, fibromyalgia, EDS, or severe fatigue? We talk through what happens if you’re mostly bedbound, how we modify when symptoms...
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Living with POTS: What It’s Like for a Spouse | Dysautonomia & Chronic Illness Support
What is it really like to love someone living with POTS and dysautonomia? In this episode of Let’s Talk About The POTS Life, my husband Cale shares what it was like watching me navigate years of undiagnosed Postural Orthostatic Tachycardia Syndrome (POTS) — the ER visits, the “normal” test…
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Cate’s POTS Journey: Chiari Surgery, CSF Leaks, EDS & Rebuilding Life
In this episode of Let’s Talk About The POTS Life, Cate shares her experience navigating POTS alongside Chiari malformation, CSF leaks, EDS, and multiple complex complications. What began as headaches and athletic injuries evolved into years of surgeries, overlapping diagnoses, and periods of...
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Navigating Medical Challenges: A Conversation with Dr. Poorvi Desai
In this episode of 'Let's Talk About The POTS Life,' hosts welcome Dr. Poorvi Desai, a hematologist oncologist with a unique perspective on both practicing medicine and being a patient with chronic illnesses. Dr. Desai shares her journey through medical school while managing symptoms of Postural...
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A POTS Life Graduate: Arielle's Inspiring Journey
In this episode of 'Let's Talk About the POTS Life,' Arielle shares her compelling journey with Postural Orthostatic Tachycardia Syndrome (POTS). Diagnosed at 12, Arielle recounts her initial symptoms, the challenges of finding the right medical support, and the invaluable role her parents played...
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Mental Health and Chronic Illness: Insights from Ashley Schuetz, CRNP
In this episode of 'Let's Talk about the POTS Life,' the hosts welcome Ashley Schuetz, a dual-certified Family and Psychiatric Mental Health Nurse Practitioner. Ashley shares her journey from cosmetology to the medical field and her extensive experience working in the Pittsburgh Public Schools.…
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Understanding the Tilt Table Test for POTS Diagnosis
In this episode of 'Let's Talk About the POTS Life,' the hosts delve into the frequently asked questions surrounding the Tilt Table Test, a crucial diagnostic procedure for POTS (Postural Orthostatic Tachycardia Syndrome). They explain what the test involves, who typically orders it, and its...
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Surviving Holiday Stress with POTS: Tips and Tricks
Welcome to a special holiday edition of 'Let's Talk About the POTS Life.' In this episode, we share essential tips and tricks to navigate the holiday season while managing Postural Orthostatic Tachycardia Syndrome (POTS). We discuss the importance of maintaining routines, prioritizing exercise,...
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Overcoming POTS: Lindsey's Journey and Recovery with the POTS Life Program
In this episode of 'Let's Talk About the POTS Life,' Lindsey, a graduate of the POTS Life program, shares her journey from a sudden onset of symptoms to diagnosis and eventual recovery. Diagnosed post-Thanksgiving 2023, Lindsey recounts her struggles with various symptoms, misdiagnoses, and...
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Understanding Rest and Activity Balance for POTS Management
In this episode of 'Let's Talk about the POTS Life,' the hosts discuss the importance of balancing rest and activity for those living with Postural Orthostatic Tachycardia Syndrome (POTS). The episode highlights why excessive rest can be detrimental and provides practical tips for gradually...
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Navigating Disney with POTS: Tips for a Successful Trip
In this episode of 'Let's Talk About the POTS Life,' we dive into the intersection of living with POTS and planning a Disney vacation. The hosts share personal experiences and practical advice for preparing, traveling, and enjoying Disney while managing POTS symptoms. Topics include packing...
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Navigating Thanksgiving with POTS: Tips and Advice
In this Thanksgiving episode of 'Let's Talk About the POTS Life,' the hosts share practical tips for managing the holiday season while living with POTS. They discuss the importance of eating small, balanced meals throughout the day, staying hydrated, and maintaining a manageable routine. They…
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The Importance of Recumbent Exercise in POTS Management
In this episode of 'Let's Talk About the POTS Life,' the hosts discuss why recumbent exercise is a fundamental part of the POTS Life program. They explain the scientific reasoning and practical benefits behind starting with recumbent biking instead of more traditional forms of exercise. They also...
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Understanding POTS and Misdiagnosis with Dr. Erin Nance | Let’s Talk About the POTS Life
In this episode of Let’s Talk About The POTS Life, host Dr. Kelsey Botti and Britney sit down with Dr. Erin Nance, an orthopedic hand surgeon based in New York City, better known to her close to 1M followers as @littlemissdiagnosed. Dr. Nance shares how her personal journey with chronic illness...
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Navigating Life with POTS: Megan’s Journey from Diagnosis to Empowerment
In this episode of Let’s Talk About The POTS Life, we sit down with Megan, a nurse and recent POTS Life graduate, to trace her path from years of confusing symptoms and misdiagnoses to clarity, structure, and sustainable progress. Megan shares what it was like to “look fine” on the outside while...
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POTS Life Graduate Nicole: Her Journey and Breakthroughs
In this episode of 'Let's Talk about the POTS Life,' we welcome Nicole, a POTS Life graduate nearing her one-year post-grad anniversary. Nicole shares her journey, from her initial misdiagnosis and struggles through visits to multiple specialists to her eventual POTS diagnosis. She highlights the...
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Navigating the October Slide (Season 2 Premiere)
Welcome to Season 2 of Let's Talk About The POTS Life! In this episode, Kelsey and Brit unpack the “October Slide” — that seasonal dip so many POTS patients feel as temperatures shift. They share personal experiences and practical tools to help you manage symptoms during this time, from hydration...
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Wrapping up the First Year!
In this episode, the hosts of 'Let's Talk about the POTS Life' celebrate their podcast's first anniversary. They reflect on their journey, highlighting technical lessons learned, the variety of guests they've had including professional athletes, healthcare providers, and POTS graduates + the...
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Living with POTS: Nicole's Journey of Passion, Resilience, and Advocacy
In this episode of 'Let's Talk about the POTS Life,' the podcast dedicated to navigating life with Postural Orthostatic Tachycardia Syndrome (POTS), the hosts welcome special guest Nicole, a professional dancer and childcare director from the Bay Area. Nicole shares her story of being diagnosed...
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Conquering POTS as a Professional Athlete with Sophie Hilliard
In this episode of "Let's Talk About the POTS Life", professional footballer Sophie Hillyerd shares her journey of living and playing with Postural Orthostatic Tachycardia Syndrome (POTS). Sophie, who plays with the London City Lionesses, discusses the challenges she faced following her diagnosis...
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Overcoming Adversity: The Inspiring Journey of Adaptive Golfer Bailey Bish
In this episode of 'Let's Talk About the POTS Life,' hosts Kelsey and Britney welcome adaptive golfer and US Adaptive Open Champion Bailey Bish. Bailey shares her journey from a high school basketball player to becoming an adaptive golf champion despite being diagnosed with multiple health...
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Things I Wish I Knew When I Was Diagnosed with POTS
In this episode of 'Let's Talk About the POTS Life,' the hosts delve into the personal experiences and valuable insights that Kelsey wishes she had known at the time of her Postural Orthostatic Tachycardia Syndrome (POTS) diagnosis. They discuss the long and often frustrating journey towards...
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Navigating Life with POTS: Olivia's Journey
In this episode of 'Let's Talk About the POTS Life,' we welcome Olivia, a POTS patient and social media influencer based in Chicago. Olivia shares her journey from the sudden onset of her symptoms, through her diagnosis, and her struggles with treatment and setbacks. She discusses the challenges…
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Special Guest: Carson (Kelsey's Son) Shares His Perspective on his mom Living with POTS (Mini Episode)
In this special episode of 'Let's Talk about the POTS Life,' host Kelsey Botti welcomes her 8-year-old son, Carson, as the youngest guest ever. Carson shares his thoughts on his mom's job treating POTS, talks about his favorite activities and sports, and offers advice for living well with POTS.…
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Transforming Health Through Nutrition: A Conversation with Allianna Moximchalk
In this episode of 'Let's Talk About the POTS Life', the hosts welcome special guest Allianna Moximchalk, Allianna’s Kitchen, a meal prep company in Pittsburgh. Allianna shares her journey of starting the business, rooted in her struggle with chronic health issues and learning about nutrition.…
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Not My Problem: A Candid Conversation with Author Caitlyn Ursillo
In this episode of Let's Talk About the POTS Life, we welcome back Caitlyn, who recently launched her first book, 'Not My Problem,' on June 24th. Caitlyn shares her journey from being a teacher to becoming a full-time mom and a published author. She discusses the inspiration behind her book…
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Eating Right with POTS: Small Frequent Meals & Nutrition Tips
Welcome to another episode of 'Let's Talk about the POTS Life'. In today's episode, we focus on practical tips for managing POTS through nutrition and meal timing. Brit and Kelsey discuss the importance of small, frequent meals throughout the day, and how timing your meals can help manage…
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Navigating Year One After POTS Diagnosis: Insights and Support
Welcome to 'Let's Talk About the POTS Life,' your go-to podcast for everything related to Postural Orthostatic Tachycardia Syndrome (POTS). In this episode, Kelsey shares her first-year journey post-diagnosis, discussing the overwhelming feelings, exercising struggles, and the importance of…
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Navigating POTS: A Mother's Journey of Advocacy and Hope
Welcome to another episode of 'Let's Talk about the POTS Life.' In this episode, we hear from Christy as she shares the four-year journey of her son, Gannon, who has been dealing with POTS (Postural Orthostatic Tachycardia Syndrome). Christy describes the challenges, misdiagnoses, and the…
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Living with POTS: Caitlyn Ursillo's Journey from Diagnosis to Author
In this episode of 'Let's Talk About the POTS Life,' we welcome Caitlyn Ursillo, a mother, teacher, and new author living with Postural Orthostatic Tachycardia Syndrome (POTS). Caitlyn shares her journey from her initial symptoms and diagnosis, through the challenges of managing POTS while...
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Living with POTS: Insights from Health Psychologist Dr. Lindsay Cirincione
In this episode of 'Let's Talk About the POTS Life' podcast, we welcome Dr. Lindsay Cirincione a health psychologist in Maryland and an assistant professor at Johns Hopkins University School of Medicine. Dr. Cirincione shares her journey into working with Postural Orthostatic Tachycardia Syndrome...
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Navigating Life with POTS: Addressing FAQs and Real-Life Stories
In this episode of Let's Talk About the POTS Life, join Brit and Kelsey for an in-depth discussion on frequently asked questions from app users and patients about living with Postural Orthostatic Tachycardia Syndrome (POTS). They cover a range of topics including the impact of hormones, why...
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Navigating POTS Postpartum: Lauren's Triumph Over Challenges
Welcome to another episode of Let's Talk About the POTS Life! We are thrilled to bring you a unique perspective with our guest, Lauren. As a mom diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome) during her pregnancy journey, Lauren shares her compelling story of symptoms, diagnosis,...
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Living with POTS: Lauren's Journey of Perseverance and Positivity
Welcome to another episode of 'Let's Talk About the POTS Life'! Join us as we sit down with Lauren, a long-time friend of hosts Brit and Kelsey, who shares her personal journey living with Postural Orthostatic Tachycardia Syndrome (POTS). Lauren dives into the challenges she faced, from...
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Exploring Mast Cell Activation Syndrome (MCAS) and Its Link to POTS
In this episode of 'Let's Talk About the POTS Life,' we delve into Mast Cell Activation Syndrome (MCAS) and its connection to Postural Orthostatic Tachycardia Syndrome (POTS). We discuss what MCAS is, how it manifests, and ways to manage it. The conversation covers varying symptoms, common...
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Understanding Life with POTS: Diagnosis and Next Steps
Welcome back to Let's Talk About the POTS Life! This week, we delve into the crucial question, 'I'm diagnosed with POTS. Now what?' We break down what POTS is, explain common symptoms like dizziness, heart palpitations, and fatigue, and discuss why certain treatments are recommended. We aim to...
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Meredith's Journey Navigating POTS as a Mom and Physician
Welcome to another episode of Let's Talk About the POTS Life! This week, we're joined by Meredith, a mom and physician, who shares her journey with POTS. From her initial struggles to her eventual diagnosis at the Cleveland Clinic, Meredith provides a unique perspective on living with this…
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ABOUT THIS SHOW
POTS, or Postural Orthostatic Tachycardia Syndrome, is a form of dysautonomia disorder. The hallmark of POTS is a rapid heart rate that occurs upon standing, leading to symptoms like dizziness, lightheadedness, and fatigue. Learn about the POTS life program developed by Physical Therapist Kelsey Botti, who is thriving with POTS. Hear about Kelsey's story, her patients, and her team. (The information provided in this podcast are for educational purposes only and does not substitute for professional medical advice
HOSTED BY
The POTS Life
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