PODCAST · health
Living With
by Health Union
Living With explores what it’s like to live with a chronic health condition. Health Union integrates the power of human connection and technology, uniting people in the shared experiences of life with chronic health conditions. Advocates from different Health Union communities are interviewed, sharing how they have learned to cope with trying symptoms and treatments.
Episodes
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Living With Fibromyalgia: Kristal Kent
The 2022 Social Health Award for Lifetime Achievement goes to Kristal Kent, who engages in legislative and healthcare advocacy to help the fibromyalgia and veteran communities. After developing fibromyalgia during her own military service, she has worked tirelessly to provide her communities with...
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Living With Hypothyroidism: Rachel Hill
Rachel Hill, aka The Invisible Hypothyroidism, is the winner of the 2022 Social Health Award for Social Media Master. She shares about her diagnosis of autoimmune thyroid disease and why it's critical to advocate for hypothyroidism.
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Living With Crohn’s & Rare Disease: Aaron Blocker
The winner of the 2022 Social Health Award for Revolutionary Researcher is Aaron Blocker. Aaron lives with Crohn’s disease and an ultra-rare genetic metabolic bone disease called hypophosphatasia. He uses his background in scientific research to break down those hard-to-understand topics related…
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Living With Fibromyalgia: Mildred Velez
Mildred Velez is the founder of the Fibromyalgia Care Society of America, winners of Best Team in the 2022 Social Health Awards. Milly shares about her personal journey with fibromyalgia and how the FCSA supports others with the condition.
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Living With Cystic Fibrosis: Ella Balasa
Ella Balasa is the 2022 winner of the Social Health Award of Healthcare Collaborator, recognizing her work of bridging the gap between industry stakeholders and healthcare consumers. Ella shares how living with CF inspired her to advocate for herself and others and why she empowers others living...
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Living with Migraine: Erica Carrasco
Erica Carrasco is the 2022 Social Health Award Winner for Creative Contributor. Erica uses her creativity to help advocate for migraine awareness, and she talks about how her experiences with hemiplegic migraine have influenced her work and advocacy efforts.
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Living With Disability & Chronic Pain: Jill King
The 2022 Social Health Award winner for Rookie of the Year is Jill King. Jill talks about how her advocacy work has helped her and others living with disability and the importance of finding and building community when living with challenges.
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Living With Crohn’s Disease – Natalie Hayden
The winner of the 2022 Social Health Award for Community Cultivator is Natalie Hayden. Natalie has been sharing her experiences of living with Crohn's disease and encouraging others with inflammatory bowel disease since 2016. She talks about her motivation and how she empowers others through her...
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Living With & Caregiving – Elle Cole
Elle is a mom of twin daughters, one of whom is living with both sickle cell disease and type 1 diabetes, and is the 2022 Social Health Award winner for Caregiving Champion. Elle shares why her advocacy work is important to her and resources for caregivers.
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Living With Fibromyalgia – Melissa Talwar
Melissa Talwar is the 2022 Social Health Award winner for Advocacy Trailblazer. Melissa shares how her own health challenges inspire her to advocate for others and how the Support Fibromyalgia Network supports and educates those with fibromyalgia while raising awareness and advocating for better...
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Living With PsA: Julie G and Dr. Bakewell, Part 2
As we learned in the last episode, psoriatic arthritis is a chronic inflammatory disease. It can impact more than just skin and joints. Too much inflammation from psoriatic arthritis can be associated with other symptoms such as fatigue. Over time, ongoing inflammation from PSA can cause...
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Living With PsA: Julie G and Dr. Bakewell, Part 1
Psoriatic arthritis or PsA is a chronic inflammatory disease that attacks your joints on the inside and your skin on the outside. Symptoms include skin symptoms like red, scaly skin patches known as plaque psoriasis, and joint symptoms like joint pain and swelling. About one in three people with...
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Living With Alzheimer’s & Caregiving: Pam F
Pam Farina became a caregiver for her mom as Alzheimer's disease progressively took away her ability to care for herself. Pam shares her experience of caregiving, how and when they hired additional help, and how she now keeps her mom’s memory alive by helping others.
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Living With & Finding Strength
For our 50th episode, hear how several of our contributors have found strength as they face incredible challenges: Will Jones (ProstateCancer.net), Abigail Johnston (AdvancedBreastCancer.net), Wren Vandever (RheumatoidArthritis.net), Angela and Karl Robb (ParkinsonsDisease.net), Lorene Alba...
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Living With CML: Brian Boyle
Brian Boyle is a professional hockey player who is living with Philadelphia-chromosome-positive chronic myeloid leukemia in chronic phase (Ph+ CML-CP). He shares how he coped with the diagnosis and the importance of support along the way. This episode is sponsored by Novartis, and Brian has been...
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Living With Cystic Fibrosis: Megan B
Megan Barlow was diagnosed with cystic fibrosis (CF) at the age of 5. Now 28, she describes what it's like to live with CF and how advances in treatment have made a huge difference in her quality of life.
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Living With Endometriosis: Fela D
Fela Dunfee talks about life with endometriosis, chronic pain, and talking with others about your condition, including talking to your partner about how your sex life is impacted.
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Living With Asthma: John B
John has been living with asthma all his life. He shares about his experiences of avoiding triggers, how asthma has impacted his life and career, and the importance of finding a community of others with asthma.
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Living With Advanced Breast Cancer: Abigail J
After receiving a diagnosis of metastatic breast cancer at the age of 38, Abigail Johnston has drastically changed her life to maximize her time with her family, optimize her health and well-being, and use her experience as a lawyer and advocate to help others with MBC and other Stage IV cancers.
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Living With RA: Kelly M
Kelly Mack has been living with rheumatoid arthritis since the age of 2, but she hasn't let it slow her down. She shares about life in her "hot rod" wheelchair, coping with treatment challenges and insensitivities, and how she keeps her positivity throughout it all.
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Living With Diabetes: Toby S
Toby Smithson personally lives with diabetes and helps others with diabetes through her work as a registered dietician and certified diabetes educator.
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Living With & Working
Hear from six Health Union contributors -- Jed Finley, Jaime Holland, Hess Polanco, Kerrie Smyres, Simon Lord, and Kelly Mack -- on how a chronic condition or a life-changing diagnosis has impacted their work.
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Living With IBS: Hess P
Hess Polanco shares how IBS affects him on a daily basis, how (and why) he stopped apologizing for his IBS, and why it's important to talk about the condition to break down the stigma.
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Living With Prostate Cancer: Simon L
Simon Lord was diagnosed with prostate cancer at the age of 50. His experience with prostate cancer inspired him to make changes in his career, and his approach offers inspiration to others facing a difficult diagnosis.
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Living With Multiple Myeloma: Cindy C
Cindy "Myeloma Teacher" Chmielewski has been living with multiple myeloma, a form of blood cancer, since 2008. In this podcast interview, she spoke about her path to diagnosis, the value of being an empowered patient, and how she continues to live life at the edge of her comfort zone.
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Living With Psoriatic Disease: Alisha B
Alisha Bridges has been living with psoriasis since childhood, and in this interview, she shares how she navigated growing up with the added the challenges of psoriatic disease, as well as how her advocacy work has provided her with additional confidence and strength.
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Living With & Dating
How does living with a chronic condition impact dating? Hear from four Health Union contributors as they share the joys & challenges of dating while living with a chronic condition.
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Living With Lung Cancer: Jill & Ivy
Jill & Ivy share their stories of diagnosis, how advocacy helps them cope with the uncertainty of living with lung cancer, and how personal choices have helped them take back some control over their bodies and how they view this disease.
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Living With Macular Degeneration: Cora Lyn S
Cora Lyn talks about diagnosis and treatment for macular degeneration, the leading cause of vision loss in the U.S.
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Living With COPD: Michelle V
For Michelle Vincent, receiving a diagnosis of COPD at the age of 42 completely changed her world.
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Living With Psoriasis: Chris P
Chris Pettit shares how he became more educated and began to advocate for himself and others living with psoriasis. As Chris says, "it's a full body disease, not just a skin condition."
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Living With – Men’s Health: Scott M
Scott Matheny is an advocate for Health Union on SkinCancer.net, and he is passionate about raising awareness and encouraging men to take a proactive approach to their own health and well-being.
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Living With Parkinson’s Disease: Dan G
Dan Glass was diagnosed with Parkinson’s Disease at the age of 45, and he shares his experiences of what it’s like to live with the condition.
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Living With Migraine: Lisa B
Lisa Benson is passionate about raising awareness of migraine since she was undiagnosed for over 20 years.
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Living With Hep C: Karen H
After surviving hepatitis C, liver cancer, and a liver transplant, Karen Hoyt is passionate about helping others with liver disease.
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Living With IBD: Natalie H
Natalie Hayden offers encouragement and hope to those who are newly diagnosed with inflammatory bowel disease (IBD) and talks about how her life has changed since being diagnosed with Crohn's disease.
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Living With Skin Cancer: Judy C
Judy Cloud has been living with skin cancer for over 20 years, and she talks about the importance of skin cancer awareness, as well as how it has impacted her life both physically and emotionally.
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Living With Bladder Cancer: Shirley N
Shirley Norris was diagnosed with an aggressive bladder cancer in 2016. She shares the symptoms she was experiencing, how she was diagnosed, and how her optimism helped her cope with treatment.
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Living With Prostate Cancer: Doug S
Doug Sparling is living with metastatic prostate cancer and shares his experience of coming to terms with his diagnosis, treatment, and how making his Cancer as Art series has helped him cope.
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Living With RA & Blood Cancer: Daniel M
Daniel Malito is an advocate on two of Health Union’s communities: RheumatoidArthritis.net and Blood-Cancer.com. He shares his experiences with these two conditions and how living with these significant health challenges has impacted his life in many ways.
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Living With Breast Cancer: Susan R
Since being diagnosed with metastatic breast cancer (MBC) in 2013, Susan Rahn has been dedicated to advocacy work and shares her experience to raise awareness about MBC and help others who are dealing with the disease.
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Living With MS: Brooke P
Brooke Pelczynski was diagnosed with multiple sclerosis (MS) in her senior year of college, the summer before she graduated with a degree in illustration. As a visual artist, she shares her experiences of MS through her drawings on MultipleSclerosis.net and talks about how art has helped her...
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Living With Endometriosis: Jessie M
Jessie Madrigal suffered excruciating symptoms for years before finally receiving a diagnosis of endometriosis in her 30's. Now an advocate for Endometriosis.net, she shares how living with endometriosis has changed her life and how she works to raise awareness of the condition and its impact on...
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Living With Atopic Dermatitis: Jeff T
Jeff Ten Broeck was just an infant when he was diagnosed with atopic dermatitis, commonly known as eczema. In this interview, he talks about the struggles of being a child with a visible skin condition, the challenges of being a teen and navigating dating, and how he has learned to cope with the...
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Living With RA: Wren V
Wren Vandever has lived with rheumatoid arthritis (RA) for over 30 years. She shares what it's like to live with RA, her experiences of dealing with flares, and how she's found ways to keep hope and positivity alive throughout the tough times.
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Living With IBS: Hannah N
Hannah Noonan brings a holistic approach to her profession as a nutritionist, and she can relate to her clients personally as she has experienced irritable bowel syndrome (IBS).
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Living With Parkinson’s Disease: Angela & Karl R
After being diagnosed with Parkinson's disease at age 23, Karl and his wife Angela talk about how laughter and the complementary approach of Reiki have helped them both in dealing with the challenges of living with PD.
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Living With IBD: Marisa T
Marisa Lauren Troy shares the important life lessons she's learned by living with inflammatory bowel disease and how she uses her experiences to support and help others living with the condition.
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Living With Hep C: Rick N
Rick Nash shares his incredible Hep C story, from his diagnosis at age 12, through multiple treatments, and a liver transplant.
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Living With PsA & Skin Cancer: LB
LB Herbert not only works for Health Union, she has personal connections with two of our communities: Psoriatic-Arthritis.com and SkinCancer.net. LB talks about how her personal experiences make her work at Health Union so important.
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ABOUT THIS SHOW
Living With explores what it’s like to live with a chronic health condition. Health Union integrates the power of human connection and technology, uniting people in the shared experiences of life with chronic health conditions. Advocates from different Health Union communities are interviewed, sharing how they have learned to cope with trying symptoms and treatments.
HOSTED BY
Health Union
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Frequently Asked Questions
How many episodes does Living With have?
Living With currently has 62 episodes available on PodParley. New episodes are automatically indexed when they're published to the podcast feed.
What is Living With about?
Living With explores what it’s like to live with a chronic health condition. Health Union integrates the power of human connection and technology, uniting people in the shared experiences of life with chronic health conditions. Advocates from different Health Union communities are interviewed,...
How often does Living With release new episodes?
Living With has 62 episodes. Check the episode list to see recent publication dates and frequency.
Where can I listen to Living With?
You can listen to Living With on PodParley by clicking any episode. We provide an embedded audio player for direct listening, and you can also subscribe via your preferred podcast app using the RSS feed.
Who hosts Living With?
Living With is created and hosted by Health Union.
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