PODCAST · health
Livingwithxxy
by Ryan Bregante
Living with XXY is changing the way the world views Klinefelter syndrome (47XXY). Focusing on community, awareness, and positive traits.
Episodes
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#113 XXY (Klinefelter Syndrome) with Ryan Bregante
Ryan is the president and founder of California-based non-profit Living with XXY. Ryan is a 37-year-old with Klinefelter syndrome or 47, XXY. Klinefelter syndrome results from an extra X chromosome, affecting roughly 1 in 500 males. Ryan’s parents learned about his XXY diagnosis during his…
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#112 - Mother of Boy with XXY - Brittany P.
Brittany is the mother of a 4 1/2-year-old boy named Callan. Their son was experiencing bloody noses at a young age. After a week in the hospital, Callan was diagnosed with Aplastic anemia, which is a rare but serious blood condition that occurs when your bone marrow cannot make enough new blood...
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#111 - Mother and Son - Kelly and Connor Stine, age 17
Kelly Stine is the mother to Connor, who is 17, a senior in high school. Connor encourages other boys his age to share their stories and help build a community for teenagers with XXY. Connor loves to play Roblox and Brawlstars. He also enjoys his government class because his teacher is super…
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#110 - Early Intervention - Carson Blake
Carson Blake shares with us about her son Louden, who is now four years old and has been in Early Intervention since he was six months old. Carson talks about why EI has been super helpful for her son and his accomplishments. Carson also got her state of Missouri to add Klinefelter syndrome to…
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#109 - Parents of Boy with XXY - Anne and Chris Price
Anne Price had an NIPT screening due to her age of 41. One week later, while their family was on vacation with their two older kids, Anne received a call while waiting for the Finding Nemo ride at Epcot. Her phone rang. Her OBGYN, who had a very somber tone of voice, delivered the news horribly,...
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#108 - Mother of Teen with XXY - Colleen Sanders (UK)
Colleen Sander's son, Jackson, was born at 29 weeks and wasn't speaking at the age of two. Once Jackson started school, he was given speech therapy, and over time, something didn't seem right for Colleen. Jackson, 14, had some routine blood work done a few days before receiving a strange phone…
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#107 - Mother of Teen with XXY - Jessica Henderson
Jessica Henderson's journey to diagnosis started with her firstborn son, Clay, who is now 18. When Clay was two, Jessica's Grandmother offered to pay for speech therapy. School started to become challenging for Clay in the third grade. One of the teachers told Jessica at a parent-teacher...
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#106 - Father and Son - Michael and Carson Bush, age 18
Michael Bush is the father to Carson, an 18-year-old diagnosed with XXY at 15, and together, they want to inspire other young men and their parents to do a podcast. Carson shares his story, from being unable to talk about XXY to his love of teaching people about it. At the age of three, Carson…
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#105 - Mother of Boy with XXY - Carolina (Brazil)
Carolina is the first person from Brazil to share her story on our podcast. She was 35 when she was pregnant so her OBGYN was concerned due to her older age. She asked her to proceed with doing an NIPT. After the results came in, her doctor called her and said she was having a boy with XXY. The...
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#104 - Adult with XXY - Melvin Amantiad 56
Melvin Amantiad was born and raised in Hawaii. When Melvin was in his early 20s (1980s for reference), he went in for a check-up for prostate cancer because he was having pain in his growing/stomach area. Because of his body shape, his doctor suggested doing a karyotype test. The test results…
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#103 - Mother of Boy with XXY - Tara Whitfield
Tara Whitfield shares her story about her son Westin. Her first pregnancy ended in a miscarriage. When Tara was ten weeks pregnant, she opted for NIPT. Being a nurse, when the results came back positive for XXY, she had never heard of it. Tara has listened to every single podcast, and it has been…
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#101 - Parents of Boy with XXY - Amanda and Jonathan Korb
Amanda found out she was pregnant in 2020. Having a background in the OBGYN field, they did an NIPT because they wanted to know the gender of their child. Amanda went online to her medical account to find the test results were completed before her doctor could call her. She saw the results said...
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#100 - Adult with XXY - Daniel Sharp
Daniel Sharp was overweight at 24 and went to the doctor to see if they had any answers to why. The doctor talked to Daniel about having low vitamin D levels and lower testosterone. She suspected he had Klinefelter syndrome, but no further testing was done to confirm. After meeting his first…
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#99 - Adult with XXY - Nick Rodriguez 35
Nick Rodriguez has had his own contracting business since the start of the pandemic. He plays semi-professional football as an offensive tackle, and his team won the state championship. When Nick was 14, while playing football, he couldn't build muscle like his gym peers. His freshman year's max…
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#98 - Parents of Boy with XXY - Mariah and Romone
Mariah, 25, and Romone, 27, learned about Klinefelter syndrome at their 20-week appointment after their results from NIPT testing. They opted out of doing an amnio and waited till birth to confirm. When they learned about the diagnosis over the phone, being on Google while the nurse told them…
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#97- Adult with XXY - Deepak Kamnani, age 43
Deepak's family is originally from India. He was born in Brooklyn and raised in West Texas. At age 28, he and his wife started trying to have kids. After visiting over 14 doctors, many told him he didn't fit the stereotype of having Klinefelter syndrome. At 43, he's decided to share his story to...
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#96 - Mother of Boy with XXY - Grace Hatton
Grace Hatton is the mother to four beautiful children. She received Non-invasive prenatal testing (NIPT) with her youngest son. After a personal phone call revealing the diagnosis from her doctor, they both were excited. She felt a sense of calm and comfort in her son's XXY diagnosis and knew she...
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#95 - Father and Son - Michael and Hunter Bouley age 21
Welcome to our first-ever father-and-son podcast! Michael Bouley is a fantastic dad to Hunter Bouley, age 21. Hunter was born with club foot affecting one leg, which led the doctors to think something else was happening. Around puberty, Hunter was diagnosed with XXY, and things started to make...
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#93 - Overcoming Male Infertility: Antoni Strzelecki (Australia)
In July of 2020, Antoni Strzelecki, who is from Australia, discovered he had azoospermia. The doctors ordered more testing, and he later found out he had Klinefelter syndrome. After two years of trying to learn and process who he is, he has decided to share his story to help other men like him…
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#92 - Mosaic Klinefelter/XXY Podcast - Russell Martin
Russell Martin is the first person we know to be able to have kids without medical interventions. After his two boys were all grown up, Russell was diagnosed with mosaic Klinefelter syndrome in his mid 40's. After extensive research on mosaic XXY, even after his doctors told him there was no way…
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#91 - Overcoming Male Infertility - Saxxon Firestone
Saxxon Firestone was diagnosed with Klinefelter syndrome back in 2014 at the age of 24. After experiencing pain in his growing. An ultrasound was ordered and a visit to the urologist confirmed he had XXY.
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#90 - Overcoming Male Infertility - Scott Stapley
Scott Stapley got married in 2013, and two years later, after trying for kids, he and his wife realized they needed to get tested. After a sperm sample yielded nothing, Scott went to a urologist who recommended genetic testing. Finding out he had Klinefelter syndrome; he tried Micro-Tese surgery...
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#89 - Parents of Boy with XXY: Seth and Erin Cagle
Seth and Erin have a son named Chipper, who was diagnosed with Klinefelter syndrome in utero from non-invasive prenatal testing. They have embraced their son's diagnosis, and Chipper has met all his milestones.
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#88 - Over Coming Male infertility - Nathan Johns
Nathan Johns started trying for kids around 28 years old. After trying for over a year and nothing, he went in for testing. He was told he had a low sperm count and low testosterone, but no further testing was done. After his first marriage failed he met his second wife with her knowing he…
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#87 - Mother Kendra Hanson Dill and Son Blake
Mother Kendra and Son Blake Dill talk about what it's like going thru high school. Blake is 16 years old, a sophomore, and plays in the high school band. After a routine checkup while pregnant, the doctors told her Blake had XXY.
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#86 - Hunter College Presentation - What Is XXY?
Recently Ryan Bregante and Kelsey Fuglsby had the opportunity to be guest speakers at Hunter College in NYC. The Class is called Abnormal Psychology which has roughly 100 students. This video is just a few of the highlights from our hour-long conversation. 1-500 men are born with Klinefelter...
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#85 - Overcoming Male Infertility - Charlie Plaisance
Charlie Plaisance got married when he was 27 and felt old enough to start trying for kids immediately. After trying for some time, he and his wife decided to get testing done. After giving a sperm sample, charlie learned he had three immobile sperm and later found out he would be diagnosed with...
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#84 - NYU Guest Speaker - Sexual Identities Across The Lifespan
This podcast is from a recent speaking engagement at New York University. The class is applied psychology, and the course is Sexual Identities Across the Lifespan. Ryan Bregante was born with Klinefelter syndrome and is the founder and president of Living with XXY. Kelsey Fuglsby is a mother to a...
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#82 - Overcoming Male Infertility - Ted Clark
Ted Clark was concerned about the size of his testicles when his girlfriend, a nurse, said they appeared smaller. Going to the doctor with his concerns, his doctor said there might be a tumor in his brain suppressing the growth. After ruling that out, more testing was ordered, and Ted discovered…
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#81 - Overcoming Male Infertility - Richard Martinez
Richard Martinez jumps right into sharing the details about his life while trying to have kids with his wife. Many questions came up on why nothing was happening. After a diagnosis of Klinefelter syndrome (47 XXY), Richard and his wife went with donor sperm. Richard shares his personal experience...
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#80 - Adult With XXY - Matt Dalley
Matt Dalley is 25 years old and living in Provo, Utah. After getting married at 21, Matt and his wife Katie wanted to be young parents. A year of trying with no luck led the doctors to start testing his wife. Matt ended up going to the doctor with a varicose vein in his scrotum, which led him to…
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#79 - Overcoming Male Infertility - Ryan T.
Ryan Turesson is from Brisbane, Australia. In 2007, he was trying for kids with his partner. Nothing was happening, so she went in for fertility testing. Her tests returned, saying nothing was wrong. So Ryan went in for testing and later found out he had Klinefelter syndrome. Learning he was...
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#78 - Mother of Boy with XXY - Yvette Maano
Yvette Maano is the mother of a young boy named Sammy. During her pregnancy, she was flagged for her baby boy having Klinefelter syndrome. After her diagnosis, her doctor handed her outdated information and asked if she wanted an abortion. After she declined, her doctor asked her if she was sure...
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#77 - Adult With XXY - Ariel Ze'evi (Israel)
Ariel Ze'evi might be the first man to share his story openly with the world from Israel. Ariel was diagnosed with Klinefelter syndrome while trying to create a family with his wife. He hid his diagnosis from family and friends for many years. After a successful Micro-Tese surgery and two…
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#76 - Overcoming Male Infertility - Jared Pike
Jared Pike was diagnosed with Klinefelter syndrome nearly 10 years ago while trying to have kids. After trying for more than five years and multiple sperm tests, a new doctor suggested doing a Karyotype. With his wife's support, Jared decided to take a year off from their fertility journey to...
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#75 - Adult with XXY - Jake Gray
Jake Gray, at the age of 25, found out about his XXY diagnosis while his wife was being tested for some health concerns. The doctor wanted to try Jake for fertility since his wife was flagged for FMA. At 25, he was in shock and denial about his diagnosis. Now 27, Jake is a new father to a baby…
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#74 - Mother of Boy with XXXY - Sierra Westley Wilson
After Sierra Westley Wilson became pregnant at 27, she wanted to know the gender of their baby, so they did NIPT, and they were told they had a 36% chance of their baby having Klinefelter syndrome. Once her son was born, they did a routine blood draw, and two weeks later, they learned their son…
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#73 - Adult with XXY - Elliott Day (Scotland)
In 2021, the day after Christmas, Elliott was hanging out with his niece and nephew, who were 8 and 12. The kids were telling him that he was a fantastic uncle. Suddenly his niece told him he couldn't have kids and that he could adopt if he wanted to. He felt they knew something he didn't know....
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#72 - Adult with XXY - Ryan Brown
At 41 years old, Ryan Brown opens up to spread more awareness about his life with Klinefelter syndrome. When he had been trying to have kids with his ex-wife for over a year, the doctors recommended they both do fertility testing. After a sperm sample and a series of other tests, Ryan discovered…
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#70 - Adult with XXY - Gareth Landy (Ireland)
Gareth Landy was the first person on our podcast from Ireland. He was diagnosed with Klinefelter syndrome while trying to start a family. Gareth did his first podcast in March of 2021. Since March, he has been on a mission to raise awareness about male infertility. Gareth talks about his…
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#66 - Adult with XXY - Jose Ferreira
Jose Ferreira was diagnosed with Klinefelter syndrome while trying to have kids with his wife. A doctor gave them a blood test, and Jose had no idea what XXY was. After learning he was infertile, he experienced mixed emotions and finally realized there was some answer to knowing why he was...
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#68 - Mother of Boy with XXY - Whitney Lance
Whitney Lance received a prenatal diagnosis of Klinefelter syndrome via email from the hospital after a NIPT. In big red letters, it read XXY. Her doctor urged her to see a geneticist, and Whitney panicked and went to google. The geneticist printed information directly from google and didn't have...
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#67 - Adult with XXY - Bradford Stucki
Bradford Stucki was diagnosed with Klinefelter syndrome/47 XXY while trying to create a family with his wife. After his diagnosis, their quest to create a family turned to adoption. Despite his diagnosis, Bradford went on to earn his Ph.D. in Human Development and Family Science. Bradford is a...
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#65 - Donor Sperm Daughter From Father with XXY
A very special daughter from donor sperm shares her unique story. She learned about her father having XXY 30 years after she was born from DNA testing. Make sure you grab your tissues for her captivating story. By far one of the most extraordinary stories in the entire podcasting community.
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#64 - Adult with XXY - Matthew Keller Age 21
Matthew Keller is a 21-year-old man born and raised in Texas. Matthew was diagnosed with Klinefelter syndrome in high school at 17 years old. After diagnosis, he became angry and didn't want to understand his diagnosis. Learning he was infertile, his family offered to try Micro-TESE (a procedure...
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#63 - Adult with XXY - Taylor Bernstein
Taylor Bernstein is a 25-year-old man living alone in Nashville, Tennessee. Taylor was diagnosed in utero since his mother was in the high-risk age category. Taylor talks about what it was like growing up knowing about having Klinefelter syndrome. Despite his struggles, he has accepted and...
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#62 - Adult with XXY - Luke Breard
Luke Breard is a 29-year-old man living in Baton Rouge, Louisiana. When he and his wife could not conceive, they discovered he had an unknown diagnosis. Luke has been living his entire life with Klinefelter syndrome. This is the story of Luke’s XXY diagnosis and how he became an adoptive father…
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#61 - Adult with XXY - Rodrigo Marron
After one and a half years of trying for a baby, Rodrigo Marron was diagnosed with Klinefelter syndrome/47 XXY in February of 2022 at 32 years old. Feeling alone and isolated with a diagnosis no one had ever heard about, his wife spent many hours researching to find something to give them a…
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#60 - Father of Boy with XXY - Tyler Deur
Tyler Deur is the father of four-month-old Jax who was diagnosed with Klinefelter syndrome prenatally. Tyler and his wife decided to do NIPT testing to find out the sex of their baby for a gender reveal party. A doctor's phone call changed everything and a new journey started to form. Jax is…
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#59 - Mother of Boy with XXY - Carissa Holloway
Carissa Holloway is the mother of Hudson, who is four years old and was diagnosed with Klinefelter syndrome at the age of 2. Hudson's diagnosis came after they were searching for answers to his respiratory issues and frequent illnesses. After their doctors did a microarray around 2, they learned...
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Frequently Asked Questions
How many episodes does Livingwithxxy have?
Livingwithxxy currently has 108 episodes available on PodParley. New episodes are automatically indexed when they're published to the podcast feed.
What is Livingwithxxy about?
Living with XXY is changing the way the world views Klinefelter syndrome (47XXY). Focusing on community, awareness, and positive traits.
How often does Livingwithxxy release new episodes?
Livingwithxxy publishes regularly with 108 episodes available. Check the episode list for the typical release schedule.
Where can I listen to Livingwithxxy?
You can listen to Livingwithxxy on PodParley by clicking any episode. We provide an embedded audio player for direct listening, and you can also subscribe via your preferred podcast app using the RSS feed.
Who hosts Livingwithxxy?
Livingwithxxy is created and hosted by Ryan Bregante.
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