PODCAST · society
Meniere's Muse
by Heather Davies
I’ve spent the last several years trying to figure out how to live my best life with Meniere’s disease and vestibular migraine. I have learned just how important connection is with other vestibular warriors. Through support, stories, conversation and tears, we have shared through social media, we’ve found a community of amazing people that lean on and support each other. I want this podcast to reach other vestibular warriors regardless of their diagnosis or where they are on their journey, to let them know they aren’t alone and living a beautiful life, despite these symptoms, is possible.
Episodes
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Paul - Balance Awareness Week - How YOU Can Make a Difference, E55
In this episode, Heather sits down with the Development Director at VeDA (Vestibular Disorders Association), who brings over 30 years of nonprofit fundraising experience to the conversation. From regional theater to healthcare, to programs offering chess to low-income students, he has helped...
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In Sickness and Strength - Vestibular Minutes S3E54
What does support really look like when you have a chronic illness? In this deeply personal episode, I share an essay I wrote during the early days of my dizzy journey, a time marked by misdiagnosis, fear and overwhelming change. This episode is more than a reflection. It's a conversation about…
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Hope vs. Hype - Vestibular Minutes S3E53
In this episode of Vestibular Minutes, we’re talking about something that’s both sensitive and important—how to recognize red flags when someone promises a "cure" for Meniere’s disease. While it's natural to hope for relief, not all advice out there is trustworthy, and some people may use...
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"8 Minutes, One Connection" Vestibular Minutes S3E52
In this 1st episode of Vestibular Minutes of the Meniere's Muse Podcast, we explore the power of asking for support using the simple question: "Do you have 8 minutes?" Inspired by a thought-provoking reel by Simon Sinek, Heather discusses how just eight minutes of someone's time can bring…
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Lessons from My Sabbatical
I learned a lot during my unexpected sabbatical, and now I'm excited to be back! In this episode, I’m sharing the key takeaways from my time away. From unexpected lessons to moments of personal growth, I’m diving into what I discovered about myself, my work, and life along the way. Whether you’re...
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Heather - "Navigating Life with Comorbidities" - Vestibular Migraine, ME/CFS and BVD, E49
Have you ever heard the word comorbidity? Ever wondered what it is? The simple meaning is when someone has two or more medical conditions simultaneously. We hear this a lot in the vestibular community. These disorders/diseases can develop at the same or different times, they can interact with one...
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Glenn - "The Reality of Rewiring Tinnitus" - Meniere's, E48
"TINNITUS", that's what we are discussing today with Glenn Schweitzer. Glenn is a passionate entrepreneur, health coach, blogger, and the author of two best-selling books, “Mind Over Meniere’s: How I Conquered Meniere’s disease and Learned to Thrive” and “Rewiring Tinnitus: How I Finally Found...
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Cally - Healing though Natures Embrace - Meniere's Disease and Vestibular Migraine, E47
Scrolling Instagram, years ago I came across this stunning human, mermaiding. Watching her was hypnotic and our daughter became obsessed. After sometime I learned she had Meniere's. Today, Cally is here to share her story. She is a gentle soul and nature enthusiast, through her ups and downs…
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Menieres Muse Trailer
What does life look like after being diagnosed with a vestibular (balance) disorder? How do you accept this new normal and learn to live with and manage all the symptoms associated with these disorders? Join Heather Davies as she introduces you to vestibular warriors that will share their healing...
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Sarah - A Beacon of Hope - Bilateral Meniere's, E46
Welcome to Season 3! Todays guest, Sarah is here to share her story of going bilateral in her Meniere’s journey this past year. Sarah has been on the show 2 other times, in Season 1, Episode 2 she shares her vestibular journey and in Episode 27, we flip the tables and she interviews me where I...
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Heathers 7th DizzyVersary - Living with Meniere's and Vestibular Migraine
Welcome to the Meniere's Muse Podcast! In this episode, your host, Heather shares her thoughts on living and thriving with vestibular disorders. This episode sets itself apart from earlier ones, as she candidly expresses thoughts that might not align with popular opinions in the vestibular...
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Christine, "That Dizzzy Girl", Persistent Postural Perceptual Dizziness, E44
I am healing. I am healthy. I am steady. I am stable. This is one affirmation todays guest, Christine uses to ground herself when she feels symptoms increasing. After seeing 13 doctors in 13 weeks Christine met with a certified vestibular therapist that she feels, finally diagnosed her correctly,...
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Etta - Reclaiming Her Life - PPPD and Vestibular Migraine, E43
What would you think if you were told - you already have the right tools to begin your healing? With you right now! Honestly, what would you think? Would you want to know more? I would! I have another question for you, do you believe that your healing begins with your mindset? Of the nearly 4…
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Cynthia Ryan, VeDAs Executive Director
When you think of VeDA (Vestibular Disorders Association) what first comes to mind? Practitioners, support groups, pink flamingos what comes to mind for you? Well, after this conversation, VeDA, Vestibular Disorders Association will mean so much more. The magnitude of things this organization has...
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Geri - BPPV, PPPD, Vestibular Migraine (Migraine Associated Vertigo), E41
What brings you joy? What would your life look like if you focused on things you have control over? Joy is defined as a feeling of great pleasure and happiness. Joy looks different for everyone, for me it may be listening to my daughter singing from another room, connecting with others in the...
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Michelle - Vestibular Migraine (Migraine Associated Vertigo) E40
Have you ever had one of those conversations that softly changes your perspective? When you sit back and just have to allow the moment to soak in, to let words take root? This conversation is one of those. Michelle Irving is a pioneer in the Chronic Illness Space, mentoring women around the world...
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Marissa - PPPD, Chronic Migraine, Vestibular Migraine - E39
So many of us can relate to Marissa’s story, symptoms coming on suddenly, heart racing, rocking motion, feeling as if she was drugged, and many unusual symptoms she had never felt before. Over time she found her voice and learned the importance of self-advocacy. Today, she uses her voice and…
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"Dear Meniere's", Excerpts from this Global Meniere's Project by people living with Meniere's Disease. E38
When approached by Julieann Wallace with this crazy idea that came to her in the wee hours of the morning, I could never have imagined the magnitude of the emotional journey we were about to partake in. Letters, poems, and artwork flooded in. People diagnosed with Meniere’s gave us glimpses into...
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Daniela - Part 2 of 2 - PPPD, Neurovascular Dizziness, Jugular Compression, Thoracic Outlet Syndrome, Third Window Syndrome from Cochlear-Facial Nerve Canal Dehiscence, E 37
This is Part Two of a 2-part series, where Daniela shares her story, if you haven't listened to Part One you may want to start there first. We deal with so many different emotions when experiencing vestibular symptoms; when we are misdiagnosed, or mistreated by the medical system, and even...
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Daniela - Part 1 - PPPD, Neurovascular Dizziness, Jugular Compression, Thoracic Outlet Syndrome, E36
Many have heard one of these variations in our lives, “burning the candle at both ends,” “biting off more than you can chew”, “spreading yourself too thin” or my personal favorite “you can’t pour from an empty cup”. Today's guest, was like many of the vestibular warriors I speak with, stressed in...
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Janine - Meniere's Disease, BPPV and Vestibular Migraine, "Unheard: The Ears of Meniere's " Documentary, E35
Janine, she is a Jersey Girl and a 25 year veteran of the entertainment industry having created and implemented tactical public relations campaigns, events, and marketing promotions for numerous studios including HBO, Universal and Cohen Media Group, where she led the publicity campaign for the...
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Kimberly - Part 2 of 2 - UnFixed Media - Mal de Debarquement Syndrome (MdDS) and Vestibular Migraine - E34
Kimberly shares so much of herself in this conversation. After spending a couple of hours with her, I understood so much more about her soulful passion for not only sharing stories of those with chronic illness and rare conditions but really seeing them, loving them, and sharing how adversity can...
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Kimberly - Part 1 of 2 - UnFixed Media - Mal de Debarquement Syndrome (MdDS) and Vestibular Migraine - E33
Kimberly shares so much of herself in this conversation. After spending a couple of hours with her, I understood so much more about her soulful passion for not only sharing stories of those with chronic illness and rare conditions but really seeing them, loving them, and sharing how adversity can...
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"Reaching Out" with The Beacon Coach, Meagan Grant, MBA, PMP, CIM - E32
Have you ever wondered what happens in a therapy or life coaching session? Today, you will hear (or watch) first hand a live coaching session on "Reaching Out" on those high symptom days, when we are struggling. Recently I had a few high symptom days, instead of reaching out I sunk down deep in…
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Kevin - Vestibular Migraine and Persistent Postural Perceptual Dizziness, E31
We all have a story, sharing isnt always easy. My guest today finds his strength by sharing his experiences openly on Instagram. He shares about his new life with what he calls “one of everything”. 1 physical disease, 1 neurological and recently diagnosed with a mental disorder. When I first met...
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Anthony - Part 2 of 2 - Chronic and Vestibular Migraine - Co-Founder and CEO Head Health Co., E30
Welcome to Part Two in a 2-part series where I speak with Anthony, former Chronic and vestibular migraine sufferer and Co-Founder and CEO of Head Health. If you haven’t listen to part one – you may want to listen to that first to hear Anthony's story and how his journey lead to a program that…
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Anthony - Part 1 of 2 - Chronic and Vestibular Migraine - Co-Founder and CEO of Head Health, E29
In this episode of the Meniere’s Muse Podcast, my conversation is with Anthony. Physicians told him many years ago, “there is nothing more we can do with you.” Many vestibular warriors have heard this very same thing or a variation of this comment. These words became his catalyst to become a...
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Emma - Vestibular Migraine and Chronic Migraine, E28
Emma is a bright light in the vestibular community, currently 33 and living in Sheffield In the UK and she is the founder of Emma Leigh Yoga, where she teaches supportive, gentle yoga for people looking to support their mental and physical wellness. Her classes are perfect if you are a beginner,...
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Meniere's Muse host, Heather shares her story with Vestibular Migraine and Meniere's Disease, E27 S2
Turning the tables today, where the host, Heather Davies becomes the guest! My special guest Sarah shared her story in the very first episode of the Meniere’s Muse Podcast back in 2022, returns to interview me, so I can finally share my story with you and celebrate one year of the Meniere’s Muse...
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Lisa - Meniere's Disease, E26
My special guest today is Lisa, we had such a lovely conversation despite some internet issues on my side, it didn’t stop us from going off topic many times. Before we jump right in, let me share a little about Lisa. Her first symptoms began in 2004, they disappeared until 2019 where she...
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Kristy - Vestibular Migraine and Meniere's Disease - Creator of the Vertige App, E25
This episodes conversation is with Kristy Carabello, she lives in Philadelphia with her husband, Nate, and their Cavapoo, Lucy. She was diagnosed with Meniere’s Disease and Vestibular Migraine in 2017. After experiencing 8-10 debilitating vertigo episodes a month, she began tracking her…
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Julia - Living with Meniere's Disease -Certified Holistic Nutritionist (PART 2 of a two part special), E24
Welcome, in this week's episode I am talking with someone who shares her vestibular journey that started when she was just 18 years old, Julia Savoia. This is art 2 of a two-part special, if you haven't heard the first episode, you may want to go back and listen to that one first. Let me share a...
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Julia - Living with Meniere's Disease - Certified Holistic Nutritionist (PART 1 of a two part special), E23
Welcome, in this week's episode I am talking with someone who shares her vestibular journey that started when she was just 18 years old, Julia Savoia. This is Part 1 of a two-part special of a beautiful conversation. Before we get started let me share a little about Julia. She moved to the U.S....
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Steve Schwier - Meniere's Disease, E22
Welcome, many of you may have heard his story, at the very least his mission, if not, let me share with you a little about Steve Schwier. Steve's life as a heavy equipment operator and professional musician came to a screeching halt, when he began experiencing tinnitus in 2011, later being...
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Marissa and Joy - Vestibular Migraine and PPPD - "Finding Joy in your Vestibular Journey", E21
Today I have the pleasure of speaking with Joy and Marissa. They are vestibular migraine patients who met in a support group having an instant connection through the similarities in their journey. Joy and Marissa share the same diagnosis, doctor, and even some of the same meds! Both women had...
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Veena - Vestibular Migraine and Persistent Postural-Perceptual Dizziness, E20
This week I am talking with Veena about her vestibular journey with Vestibular migraine, persistent postural perceptual dizziness that began in 2012. Like many vestibular warriors getting accurately diagnosed was a challenge, especially when her symptoms went away for months only to return…
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Nicolle (Part 2) - Meniere’s, Sudden Sensorineural Hearing Loss (SSHL), BPPV, TMJ and Cervicogenic Dizziness, E19
This episode will be part two in a 2-part series of a heartwarming conversation with Nicolle about her vestibular journey. If you haven't heard the first episode, I would recommend listen to that first. Nicolle has partnered with the Hearing Health Foundation and Vestibular Disorders Association...
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Nicolle (Part 1) - Meniere’s, Sudden Sensorineural Hearing Loss (SSHL), BPPV, TMJ and Cervicogenic Dizziness, E18
This week I’m sharing part one in a 2-part series of a heartwarming conversation with Nicolle about her vestibular journey with Meniere’s, Sudden Sensorineural Hearing Loss (SSHL), BPPV, TMJ and Cervicogenic Dizziness that began in 2017. Nicolle is a Colombia-American Artist and Hearing Health...
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Johan, "The Chappiness Guy" - PPPD and Migraine Associated Vertigo, E17
This week I am talking with Johan, "The Chappiness Guy" about his vestibular journey with PPPD (Persistent Postural-Perceptual Dizziness) and Vestibular Migraines (also called MAV - migraine associated vertigo or migraine induced vertigo). His journey began 3 years ago at the age of 33. Even…
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Em - Vestibular Migraine, Vestibular Neuritis, PPPD and Cervicogenic Dizziness, E16
Six years ago Em went through a health crisis after the birth of her second child. Her symptoms of dizziness, brain fog, derealization, eyes that didn't want to focus, anxiety, vestibular migraines (and more) were a chaotic storm that hit her system. Her symptoms were 24/7 for close to two years....
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Dave - Labyrinthectomy and Meniere's Disease, E15
This week I am talking with Dave Giugno, about his vestibular journey with Meniere’s Disease which ultimately led him to a left sided labyrinthectomy. His symptoms began Christmas Eve 2014 and became chronic in 2018. Prior to his vestibular journey he sang baritone in the church choir and was an...
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Lara - Labyrinthitis, Vestibular Neuritis and Vestibular Migraine, E14
This week I am talking with Lara, about her vestibular journey with Labyrinthitis, Vestibular Neuritis and Vestibular Migraine that began after delivering her twin daughters, over twelve years ago. Her symptoms began to increase, and she was experiencing hyperacusis, light sensitivity and small...
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Amy - Vestibular Migraine, E13
This week I am talking with Amy about her journey with vestibular migraine which began when she was a young girl and became chronic 5 years ago. She has been a personal trainer for over 12 years and feels that continuing her fitness journey helped keep her symptoms under control. She also…
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Patrick - Meniere's and Mindfulness, E12
This week my conversation is with Patrick. Patrick grew up in the town of Durango, CO and currently lives with his wife in Denver. He has worked in the medical device industry throughout his career in both technical and leadership roles as a mechanical engineer and project manager. He’s had the...
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Alicia Wolf, The Dizzy Cook and Vestibular Migraine - Part 2, E11
This is part two of my conversation with fellow VeDa Ambassador, Alicia Wolf, also known to many as The Dizzy Cook. If you haven't heard the first episode, I would recommend listen to that first. She shares about her vestibular journey and publishing her first migraine friendly cookbooks. This...
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Alicia Wolf, The Dizzy Cook and Vestibular Migraine - Part 1, E10
Today, I am sharing a fantastic conversation with fellow VeDa Ambassador, Alicia Wolf, also known to many as The Dizzy Cook. She shares about her vestibular journey and publishing her first migraine friendly cookbooks. This episode is Part 1 in a 2-part series. Let me tell you a little about...
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Katie - Acoustic Neuroma (Vestibular Schwannoma), E9
This week I am talking with Kate about her vestibular journey with an acoustic neuroma, also known as a vestibular schwannoma. Katie lives in North Carolina with her family, where she is kindergarten teacher. She hopes one day to follow her passion of becoming a certified language therapist and...
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Dr. Jessica Pagan - Binocular Vision Disorder, E8
This week I am talking with Dr. Jessica Pagan about her journey with binocular vision disorder. She has been in the healthcare field for 17 years working as an athletic trainer, specializing in injury prevention and rehabilitation of athletes. She returned to school, graduating Magna Cum Laude…
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Tammy - Drop Attacks, Meniere's Disease, Vestibular Migraine, Neuritis, E7
Finding her passion by sharing her story. This week I am talking with Tammy about her vestibular journey with drop attacks, vestibular migraine, neuritis and Meniere’s disease after a labyrinthectomy. She also shares how finding the right support in a Facebook group helped her feel less alone and...
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Diana - Vestibular Migraine, E6
Learning the art of self-advocacy. This week I am talking with Diana about her journey with Vestibular Migraines, as a stay-at- home mother she shares how these disorders affect not only the warrior, but they can also take an emotional toll on our families as well. She learned that focusing on…
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ABOUT THIS SHOW
I’ve spent the last several years trying to figure out how to live my best life with Meniere’s disease and vestibular migraine. I have learned just how important connection is with other vestibular warriors. Through support, stories, conversation and tears, we have shared through social media, we’ve found a community of amazing people that lean on and support each other. I want this podcast to reach other vestibular warriors regardless of their diagnosis or where they are on their journey, to let them know they aren’t alone and living a beautiful life, despite these symptoms, is possible.
HOSTED BY
Heather Davies
CATEGORIES
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Frequently Asked Questions
How many episodes does Meniere's Muse have?
Meniere's Muse currently has 51 episodes available on PodParley. New episodes are automatically indexed when they're published to the podcast feed.
What is Meniere's Muse about?
I’ve spent the last several years trying to figure out how to live my best life with Meniere’s disease and vestibular migraine. I have learned just how important connection is with other vestibular warriors. Through support, stories, conversation and tears, we have shared through social media,...
How often does Meniere's Muse release new episodes?
Meniere's Muse has 51 episodes. Check the episode list to see recent publication dates and frequency.
Where can I listen to Meniere's Muse?
You can listen to Meniere's Muse on PodParley by clicking any episode. We provide an embedded audio player for direct listening, and you can also subscribe via your preferred podcast app using the RSS feed.
Who hosts Meniere's Muse?
Meniere's Muse is created and hosted by Heather Davies.
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