My Voice Is Still Here
by Paul Edwards
My Voice Is Still Here is Paul Edwards’ personal journey through neurological illness and Functional Neurological Disorder, beginning with the hospital admission that changed his life. Unable to physically speak, Paul uses technology to give a voice to his own words, experiences and story.
Episodes
-
Episode 10: FND Across America – The Warriors Behind the Awareness | USA Special Edition
🇺🇸 Functional Neurological Disorder has no borders. Neither should awareness, understanding or compassion. For this special milestone tenth episode of FND: The Questions Nobody Asks, Paul Edwards takes listeners across the Atlantic to explore Functional Neurological Disorder (FND) in the United...
-
Episode 9: Why Can FND Symptoms Change From Hour to Hour? | Understanding Fluctuating Neurological Symptoms
One moment, you can walk independently, hold a conversation or complete everyday activities. A few hours later, you may experience weakness, tremors, overwhelming fatigue, difficulty speaking or problems with mobility. How can someone's neurological symptoms change so dramatically within the same...
-
Episode 8: Can Children and Young People Develop FND? | UK Awareness, Education & Support
Functional Neurological Disorder (FND) is often associated with adults, but did you know that children, teenagers and young adults can also develop this complex neurological condition? In Episode 8, Paul Edwards explores the realities of FND in younger people, the challenges they face and why...
-
Episode 7: Can FND Cause Pain Even When Medical Tests Are Normal? | Chronic Pain Explained
Imagine experiencing burning sensations, sharp nerve-like pain, tingling or persistent discomfort that significantly affects your everyday life. You undergo blood tests, scans and medical examinations, yet the results appear normal. Does that mean your pain isn't real? Absolutely not. In Episode…
more -
Episode 6: Can FND Cause Extreme Fatigue Even After Resting? | Neurological Fatigue & Brain Fog Explained
Imagine waking up after a full night's sleep, only to feel as though you haven't rested at all. Your body feels heavy. Your concentration is limited. Even getting dressed, preparing breakfast or holding a conversation can feel exhausting. For many people living with Functional Neurological…
more -
Episode 5: Can FND Cause Someone to Collapse Without Warning? | Functional Drop Attacks Explained
Imagine walking through your home, standing in a supermarket or simply getting out of a chair when suddenly, without warning, your legs give way and you collapse. For some people living with Functional Neurological Disorder (FND), this is a frightening and unpredictable reality. In Episode 5 of...
-
Can FND Cause Someone to Lose Their Ability to Speak?
Imagine knowing exactly what you want to say, understanding everything happening around you, but being unable to produce your speaking voice. For some people living with Functional Neurological Disorder (FND), this is an everyday reality. In Episode 4, Paul Edwards explores functional aphonia, a...
-
Why Can Functional Seizures Resemble Epileptic Seizures?
Functional seizures and epileptic seizures can look remarkably similar, but what makes them different? In Episode 3, Paul Edwards explores one of the most misunderstood aspects of Functional Neurological Disorder (FND): functional seizures, also known as dissociative seizures or Non-Epileptic...
-
Can FND Symptoms Happen Without Feeling Stressed or Anxious?
Can someone experience Functional Neurological Disorder (FND) symptoms even when they feel completely calm, happy or relaxed? The answer is yes. In this episode, Paul Edwards challenges one of the most common misconceptions surrounding FND: that symptoms must be caused by stress, anxiety or...
-
Episode 1: How Can Someone Walk One Day and Not the Next?
How can someone living with Functional Neurological Disorder (FND) walk normally one day but struggle to stand or need a wheelchair the next? In this opening episode, Paul Edwards explores one of the most misunderstood aspects of FND: fluctuating neurological symptoms. Discover why mobility…
more -
The Seizure Has Ended — But Has the Recovery? | Functional Seizures & FND
In this episode, I’m exploring what happens after a functional seizure and why the end of the visible seizure does not necessarily mean the person has fully recovered. We look at the term “postictal”, why it is traditionally associated with epileptic seizures, and why terms such as “recovery…
more -
The Day Everything Changed — 16 October 2024
Episode 1: The Day Everything Changed — 16 October 2024 On 16 October 2024, my life changed. I entered hospital experiencing generalised weakness, difficulty finding words and changes in my level of consciousness. What followed was a month of investigations, uncertainty, seizure-like episodes and...
About this show
My Voice Is Still Here is Paul Edwards’ personal journey through neurological illness and Functional Neurological Disorder, beginning with the hospital admission that changed his life. Unable to physically speak, Paul uses technology to give a voice to his own words, experiences and story.
Hosted by
Paul Edwards