PODCAST · education
myFace, myStory
by Dina Zuckerberg, myFace
myFace's Dina Zuckerberg hosts a monthly broadcast and podcast series with interviews and roundtable discussions from the craniofacial community.myFace, myStory aims to help educate the public about craniofacial differences and what those with facial differences deal with as individuals and as a community. Sharing these stories will enable those within the community to feel empowered by letting them know they are not alone and that their voices are heard.
Episodes
-
Don't Look Away: Storytelling, Strength, and Living Out Loud
In this episode of myFace, myStory, host Dina Zuckerberg sits down with filmmaker Joseph Lingad and actor Corey Taylor for a conversation about visibility, vulnerability, and self-acceptance. Joseph shares how his personal experiences living with a facial difference inspired his upcoming...
-
Facing The Lens: Adam Pearson on Film, Advocacy and Changing the Narrative
On this month's episode of myFace, myStory, host Dina Zuckerberg speaks with award-winning actor, presenter, and disability advocate Adam Pearson. From standout roles in A Different Man and Under The Skin to his upcoming portrayal of Joseph Merrick in the film adaptation of The Elephant Man, Adam...
-
Breaking Beauty Standards: Paige Billiot's Birthmark Advocacy | myFace, myStory
On this month's myFace, myStory podcast, host Dina Zuckerberg speaks with Paige Lauren Billiot, a birthmark advocate, model, and film producer redefining beauty standards. Based in LA, Paige uses her platform to create representation for those with facial differences, celebrating her birthmark as...
-
Empowering the Facial Difference Community with Special Guest Adele Capitella-Liu
On this month's myFace, myStory podcast, host Dina Zuckerberg is joined by Adele Capitella-Liu, a retired NYC teacher and a passionate advocate for the facial difference community. Diagnosed with Parry-Romberg Syndrome and having faced the challenges of breast cancer, Adele shares how her…
more -
Defining Beauty: A Conversation with Celina Leroy
In this episode of myFace, myStory, host Dina Zuckerberg speaks with Celina Leroy, an artist, art teacher, and advocate born with a Port Wine Stain birthmark. Celina shares how her personal experiences have inspired her to create powerful portraits of individuals with craniofacial differences…
more -
Taking Control of the Narrative
On this month's myFace, myStory podcast episode host, Dina Zuckerberg, is joined by Amy and Lazer Schefer, a dynamic mother-daughter duo who have turned their personal challenges into a mission of advocacy and support for the craniofacial and rare disease communities. Join us as we explore their...
-
Two Sides to a Face: A Journey from Adversity to Advocacy
On this month's myFace, myStory podcast episode host, Dina Zuckerberg, is joined by Chelsey Peat, born with Sturge-Weber Syndrome, and recently published author of her memoir, Two Sides to a Face. She will share her journey from childhood, marked by curiosity and challenges due to her condition…
more -
Finding Courage, Finding Self: A Conversation with David Cohen
On this month's myFace, myStory podcast host Dina Zuckerberg is joined by David Cohen, recipient of the 2024 myFace Courage Award. David talks about the dark twists on his journey of hope to acceptance of his life with Pierre Robin Sequence to who he is now. He shares what he thinks should be...
-
Stronger Together with Megan Gaydosh and Tiffany Kerchner
On this month's myFace, myStory podcast episode, host Dina Zuckerberg brings you an inspiring conversation with Megan Gaydosh and Tiffany Kerchner. Both Megan and Tiffany have turned their personal experiences with facial differences into powerful advocacy work, promoting self-love, acceptance…
more -
Advocacy - Be The Change: A Conversation with Melissa Tumblin
This month on the myFace, myStory podcast, Dina Zuckerberg welcomes Melissa Tumblin, a passionate advocate for the hard of hearing and deaf community. Melissa, the founder and Executive Director of Ear Community shares her remarkable journey—from navigating her child's microtia and atresia...
-
Challenging the Status Quo with Musician Austin Halls
On this month's myFace, myStory podcast episode, host Dina Zuckerberg is joined by Austin Halls born with Moebius Syndrome. He has incorporated his psychology degree, his journey, and his music to promote that you can love yourself and overcome any challenge that comes your way. Austin will share...
-
Expanding the Concept of Beauty with Justin Stewart
On this month's myFace, myStory podcast episode, host Dina Zuckerberg is joined by Justin Stewart, who will share his journey from being born with frontonasal dysplasia with a cleft in his nose to being a signed model and the adversity and challenges he faced along the way. Through motivational...
-
Rebuilding a Life After Facial Cancer: A Conversation with Kathleen Watt
On this month's myFace, myStory podcast episode, host Dina Zuckerberg is joined by Kathleen Watt, an opera singer on some of the biggest stages whose life changed when she was diagnosed with bone cancer in her face. She will speak about her memoir, REARRANGED where she writes about coming...
-
Don't Stare, See Me: A Conversation
On this month's myFace, myStory podcast episode, host Dina Zuckerberg is joined by Naomi Levinshtein and Aaliyah Booker. They will share their personal journeys, and their advocacy work, and discuss the profound importance of the "Don't Stare, See Me" campaign for themselves and their community.…
more -
Taking Center Stage: A Mother and Son's Journey
On this month's myFace, myStory podcast, host Dina Zuckerberg is joined by Leah Riman, who will share her journey from when her son, Logan, was born with a bilateral cleft lip and palate, blindness and other challenges to the music prodigy he is today. At the age of 2, Logan started playing the...
-
Hiding Behind a Mask: A Conversation with Mary Avella
On this month's myFace, myStory podcast, host Dina Zuckerberg is joined by Mary Avella, born with Crouzon Syndrome. They will discuss how those with facial difference can hide their true selves wearing both figurative and/or literal masks, even creating a personality. What happens when you remove...
-
Clefthood: A Conversation with Father and Son
On this month's myFace, myStory podcast, host Dina Zuckerberg is joined by Jeremy and Henry Shipp. Jeremy is a writer for the Disney Junior cartoon, Firebuds. His son, Henry, was born with a cleft lip and palate and was the inspiration - and the voice - for the car character Castor on the…
more -
The Psychology of Facial Differences: A Conversation with Dr. Kathleen Bogart
On this month's myFace, myStory podcast, host Dina Zuckerberg is joined by Dr. Kathleen Bogart, who will bring us on her journey growing up with Moebius Syndrome and why she pursued a PhD in Psychology that would shape who she is today. She will share some of her research including her most…
more -
Facial Difference as an Underrepresented Disability: A Conversation with Sora J. Kasuga
Host Dina Zuckerberg sits down with Sora J. Kasuga, Face Equality Activist, to discuss her intersectional experience of living with multiple marginalized identities including being Japanese-American, neurodivergent, queer, and having a facial difference (lymphatic malformations and venous...
-
I've Just Seen A Face - Toolkit for Caregivers with Amy Mendillo
On this month's myFace, myStory podcast, host Dina Zuckerberg is joined by Amy Mendillo – author, advocate, and parent of a child born with a cleft lip and palate. Amy discusses themes from her new parent guidebook, I've Just Seen a Face: A Practical and Emotional Guide for Parents of Children…
more -
Lifelong Friends - A Shared Journey with Apert Syndrome
In honor of Apert Syndrome Awareness Month in June, host Dina Zuckerberg sits down with Morgan McGahan, Sara Pollak, and Emily Krebs - three best friends who were all born with Apert Syndrome. They will discuss their journeys, shared experiences, lifelong friendships, and overcoming the…
more -
A Mother's Journey: A Conversation with Erin Ashayeri
On this month's myFace, myStory, host Dina Zuckerberg sits down with Erin Ashayeri, the Mom of a child born with a cleft palate. When he was born, like all parents, they were thrilled, overwhelmed, and exhausted. Then to their surprise, they learned the next day that their son was born with a…
more -
Unhiding: A Conversation with Ruth Rathblott
On this month's myFace, myStory podcast episode, host Dina Zuckerberg is joined by Ruth Rathblott, a TEDx and inspirational speaker, bestselling author, and an award-winning nonprofit leader. Ruth shares her journey of living with a limb difference which she spent much of her life hiding and how...
-
Face The World - With Ava Beeler
On this month's myFace, myStory podcast, host Dina Zuckerberg is joined by Ava Marie Beeler, who has been a member of the myFace Community since her first surgery at 2 years old. Ava seems like a typical young woman her age, however, she is anything but typical. In fact, she's quite…
more -
The Power of Facial Difference: A Conversation with David Roche
On this month's myFace, myStory podcast, host Dina Zuckerberg is joined by David Roche, an inspirational humorist with a facial difference, vascular malformation. David shared details about how he overcame the shame he felt about his differences, learned to accept them, and realized that his…
more -
Life with Apert Syndrome: A Conversation with Dorsey Ross
Navigating life with a craniofacial condition certainly comes with challenges. On this month's episode of myFace, myStory, host Dina Zuckerberg is joined by Dorsey Ross - minister, podcaster, and public advocate born with Apert Syndrome. Dorsey wants us all to remember that with support…
more -
Matthew Joffe - My Inspiration
On this month's myFace, myStory, host Dina Zuckerberg was joined by Matthew Joffe, born with Moebius Syndrome. Matthew is the Director of Outreach and Education at the Wellness Center at LaGuardia College/CUNY in New York. This episode was a special and intimate conversation between Dina and...
-
Redefining Beauty - A Conversation
On this month's myFace, myStory, host Dina Zuckerberg spoke with New York makeup artist and long-time friend of myFace, Naomi Levinshtein, along with founder and director of POSITIVE EXPOSURE, a non-profit organization that promotes a more inclusive world through award-winning photography and...
-
Exploring Face Equality with Phyllida Swift
myFace's Dina Zuckerberg sat down with Appearance Activist and CEO of Face Equality International, Phyllida Swift. This episode explored Phyllida's journey of sustaining facial scars in 2016 after a car accident, and how she turned that trauma into a triumph by becoming an Appearance Activist...
-
Meet Grace: Teenage Disability Advocate & TikTok Sensation
myFace's Dina Zuckerberg spoke with teenage disability advocate and TikTok sensation, Grace Nova. This episode shed light on Grace's journey of growing up with Escobar Syndrome and how her unique experiences inspired her to use social media platforms to advocate for those in the disability and…
more -
My Imperfect Beauty - A Conversation with Bella Lucia
myFace's Dina Zuckerberg spoke to author, poet, retired nurse practitioner, and advocate for the cleft community, Luci Capo Rome about her memoir, Lucia's Story: My Imperfect Beauty, written in honor of facial differences. We will follow her journey of being born with a severe and complete...
-
Advocating for Your Child: A Parent's Perspective
Advocating for your child with a cleft lip/palate or craniofacial condition can be challenging, but it has a critical impact on your child's outcomes. In this episode, we heard from parents who have helped their children navigate and overcome bullying, supported their children through medical...
-
A Q&A With Rasheera Dopson
myFace's Dina Zuckerberg sat down with author and disability justice activist, Rasheera Dopson, to discuss her memoir: Beauty With a Twist, and how her lived experiences led her to launch a brand that focuses on empowering young women living with various disabilities.
-
Finding Joy in Your Journey Growing Up with a Cleft or Facial Difference
The journey to find confidence and self-acceptance can be a long one for those in the craniofacial community, but rewarding nonetheless. myFace's Dina Zuckerberg sat down with guest speaker Cleft Confidence Coach & Transformational Speaker, Iva Ballou, as they discussed how Ms. Ballou helps…
more -
Life with a Facial Difference: A Conversation with Author Shelley Hull
myFace's Dina Zuckerberg sat down with guest speaker Author Shelley Hull as they discussed Ms. Hull's memoir, Shelley: The uplifting story of a battle to overcome disfigurement. This episode was autobiographical in nature as Ms. Hull spoke about the challenges and triumphs she dealt with while...
-
Life After High School: Transitioning to Adulthood with a Facial Difference
myFace's Dina Zuckerberg sat down with guest speakers Dr. Alexis Johns, Melvin Farmer, Naomi Levinshtein, and Ava Beeler as they talked about life after high school and the complexities that come with the journey of transitioning into adulthood for those in the craniofacial community.
-
Love is in the Air: Navigating Relationships & Intimacy with a Facial Difference
myFace's Dina Zuckerberg sat down with guest speakers Jeryl Brunner, Dean Kandilakis, Ann Piesen, and Eric Riklin as they talked about the challenges that those in the craniofacial community deal with while trying to navigate intimacy and building relationships while living with a facial difference.
-
Celebrating 10 Years of Wonder
myFace's Dina Zuckerberg sat down with New York Times best-selling author of the book Wonder, R.J. Palacio, myFace Board Member Sondra Neuschotz, and educator and parent of a young adult living with a craniofacial difference, Mary Butters, to collectively celebrate the amazing impact that Wonder...
-
The Many Dimensions of Trauma
myFace's Dina Zuckerberg sat down for a panel discussion with Ava Beeler, Halley Crane, Nicole Hilton, and Rena Rosen as they spoke about the nuances of trauma experienced by those living with craniofacial differences, and how the different surgeries and medical procedures they received…
more -
A Face for Picasso
myFace's Dina Zuckerberg sat down for a discussion with Ariel Henley as they discussed her new memoir A Face for Picasso, and how she is using her personal story as a platform to advocate for mainstream inclusivity for the craniofacial community and to further educate the world about the...
-
Bullying at Any Age
myFace's Dina Zuckerberg sat down for a discussion with Scott Donnelly, Naomi Levinshtein, Morgan McGahan, and Patricia Simon as they relayed their personal experiences with bullying and shared tools and words of encouragement to help those in the craniofacial community dealing with it as well
-
NASCAR Xfinity Series Driver Joe Graf, Jr. and mother Nancy share why they're Racing for myFace
Joe Graf Jr. is a 23-year-old rising star on the racing scene who has competed in the ARCA Menards Series, NASCAR Modified Series, INEX Legends Car Series, and the INEX Bandolero Series. In 2021, he began his sophomore season in the NASCAR Xfinity Series, but Joe and his family have been…
more -
A Conversation with Sisters Charmaine and Sarah Cooper about Craniofacial Differences
Best-selling author, comedian, and internet sensation Sarah Cooper and her sister Charmaine Cooper, an accomplished nurse practitioner for over 2 decades, join host Dina Zuckerberg for a candid, in-depth conversation on humor, passion, and community on the next episode of our new podcast series,...
-
Panel Interview: Examining Facial Discrimination Throughout History
Join Dina Zuckerberg for a thought-provoking interview with Adele Capitella-Liu, Dean Kandilakis, and Jasmine Stewart as they address the history of craniofacial differences and discrimination.
-
A Roundtable Discussion: The Masks We Wear
Join Dina Zuckerberg, myFace's Director of Family Programs, for a thought-provoking discussion with members of the myFace community, including Nicholas Buoscio, Emily Krebs, Margaret Shair, and Patricia Simon, as we address the masks we wear, both physically and figuratively, and what's behind...
-
This is myFace, myStory!
Welcome to our first episode with an introduction to myFace, myStory, a new monthly series featuring conversations with the craniofacial community. Meet Dina Zuckerberg, Director of Family Programs at myFace, an amazing organization dedicated to changing the faces – and transforming the lives –…
more
We're indexing this podcast's transcripts for the first time — this can take a minute or two. We'll show results as soon as they're ready.
No matches for "" in this podcast's transcripts.
No topics indexed yet for this podcast.
Loading reviews...
ABOUT THIS SHOW
myFace's Dina Zuckerberg hosts a monthly broadcast and podcast series with interviews and roundtable discussions from the craniofacial community.myFace, myStory aims to help educate the public about craniofacial differences and what those with facial differences deal with as individuals and as a community. Sharing these stories will enable those within the community to feel empowered by letting them know they are not alone and that their voices are heard.
HOSTED BY
Dina Zuckerberg, myFace
CATEGORIES
Loading similar podcasts...
Frequently Asked Questions
How many episodes does myFace, myStory have?
myFace, myStory currently has 46 episodes available on PodParley. New episodes are automatically indexed when they're published to the podcast feed.
What is myFace, myStory about?
myFace's Dina Zuckerberg hosts a monthly broadcast and podcast series with interviews and roundtable discussions from the craniofacial community.myFace, myStory aims to help educate the public about craniofacial differences and what those with facial differences deal with as individuals and as a...
How often does myFace, myStory release new episodes?
myFace, myStory has 46 episodes. Check the episode list to see recent publication dates and frequency.
Where can I listen to myFace, myStory?
You can listen to myFace, myStory on PodParley by clicking any episode. We provide an embedded audio player for direct listening, and you can also subscribe via your preferred podcast app using the RSS feed.
Who hosts myFace, myStory?
myFace, myStory is created and hosted by Dina Zuckerberg, myFace.
URL copied to clipboard!