PODCAST · health
Narcolepsy 360
by Wake Up Narcolepsy
Every person diagnosed with narcolepsy embarks on a unique journey. There is no standard path, and for many, this proves to be among the most challenging aspects of the disorder.The Narcolepsy 360 podcast is a series of interviews that take a panoramic view of narcolepsy from the patient, caregiver, research and clinical perspective. Each conversation draws on experiences, best practices and expert advice from patients, parents and doctors. From the latest research to lifestyle tips, our podcasts shed light on the less discussed issues around narcolepsy.Join Claire Crisp, our Executive Director, as she chats every week with people within our community.
Episodes
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Narcolepsy 360: Tatiana Maria Corbitt
Tatiana Maria Corbitt is a writer, artist and advocate. Tatiana is also a person with Type 1 Narcolepsy. In this episode, Tatiana and Claire discuss how the onset of her symptoms occurred after having the flu, while in the first year of college. She was diagnosed in 2017 while studying Applied...
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Narcolepsy 360: Thomas Gow
Thomas Gow is a Client Experience Analyst at TruDataRx. Thomas is also a person with Type 1 Narcolepsy and one of the inspirations to the creation of Wake Up Narcolepsy. In this episode, Thomas shares his experience of diagnosis at the age of 10 and how it wasn't until he began to experience...
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Narcolepsy 360: Tove Maren Stakkestad
Tove Maren Stakkestad is a Danish American Writer and Blogger. She is currently sharing her experience of being a mom of 4 boys on her blog Mama In The Now. Tove is also a person with Type 1 Narcolepsy. In this episode, Tove reflects that she believes both her father and grandfather had…
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Narcolepsy 360: Desireé Gorbea-Finalet
Desireé Gorbea-Finalet is a person with Type 1 Narcolepsy and a student of Peace and Conflict Studies. In this episode, Claire and Desireé discuss how because she was labeled as a "good sleeper" as a young child that it may have contributed to a delayed diagnosis. Growing up in Puerto Rico, her...
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Narcolepsy 360: Dr. Michael Grandner
Dr. Grandner is the Director of the Sleep and Health Research Program at the University of Arizona, Director of the Behavioral Sleep Medicine Clinic at the Banner-University Medical Center, and an Associate Professor in the Department of Psychiatry at the UA College of Medicine, with joint...
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Narcolepsy 360: Nicole Kenyon
Nicole Kenyon is a person with Type 1 Narcolepsy. She is also a multi-faceted narcolepsy advocate. She is an author of a memoir, a blogger, legislative advocate, personal trainer and the face of @fitniknarcoleptic Instagram where she shares workout routines. In this episode, Nicole shares how she...
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Narcolepsy 360: Matthew Horsnell
Matthew Horsnell is a person with Type 1 Narcolepsy. He also is a multi-faceted narcolepsy advocate. He's a speaker, a blogger, legislative advocate and narcolepsy support group leader. In this episode, Matthew and Claire discussed how becoming a dad pushed him to figure out his extreme daytime...
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Narcolepsy 360: Grace McGinnis
Grace McGinnis is a college student studying Pre Med, a Division 1 college athlete and also a person with Type 1 Narcolepsy. In this episode, Grace and Claire discuss how Grace functioned as a "sleepy child" and how she was aware at a young age that her experience of sleepiness wasn't normal. In...
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Narcolepsy 360: Dr. George Church
Dr. George Church is a Professor at Harvard & MIT, co-author of 580 papers, 143 patent publications & the book "Regenesis"; developed methods used for the first genome sequence (1994) & million-fold cost reductions since (via fluor-NGS & nanopores), plus barcoding, DNA assembly from chips, genome...
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Narcolepsy 360: Ginna Freehling
Ginna Freehling is a neuroscience graduate and works in cancer clinical research at a biotech company. She is also a PWN. In this episode, Ginna shares how at the age of twenty she started experiencing symptoms of narcolepsy. In the process of trying to figure out what was going on, she was...
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Narcolepsy 360: Dr. Jennifer Gudeman
Dr. Jennifer Gudeman is the Vice President, Medical and Clinical Affairs at Avadel Pharmaceuticals. In this episode, Dr. Gudeman and Claire discuss how Avadel Pharmaceuticals is seeking FDA approval for a once-nightly form of sodium oxybate (FT218) for the treatment of EDS and cataplexy in people...
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Narcolepsy 360: Travis Pavlicek
Travis Pavlicek is a husband, father of three and his son Cruz is a child with narcolepsy. In this episode, Travis shares how the onset of Cruz's narcolepsy symptoms escalated within a span of 3 weeks. He details how his family struggled to find a doctor who knew what was going on with Cruz until...
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Narcolepsy 360: Shamarla Morgan
Shamarla Morgan is a PWN and a narcolepsy advocate. In this episode, Shamarla shares how despite a self-diagnosis of narcolepsy type 1 within the first year of her symptoms, it took four years for her to receive a proper diagnosis. She experienced many frustrating interactions with doctors who...
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Narcolepsy 360: Dr. John Peever
Dr. John Peever is a professor of Cell and Systems Biology at the University of Toronto. In this episode, Dr. Peever shares why he got into narcolepsy and other sleep disorders research. He shares what his latest research is focusing on and how sleep research may influence future narcolepsy...
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Narcolepsy 360: Ginger Zee
Ginger Zee is the chief meteorologist for ABC News, author, advocate and a person with narcolepsy. In this episode, Ginger shares her journey to being diagnosed with narcolepsy type 2. She also shares about how her mental health was affected by her drug prescriptions to her narcolepsy symptoms....
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Narcolepsy 360: Belle Hutt
Belle Hutt is a fitness instructor, influencer, author, advocate and a pwn. In this episode, Belle shares her journey to being diagnosed with narcolepsy type 1. She also shares how she navigated her education while having narcolepsy and not feeling comfortable to disclose to her professors about...
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Narcolepsy 360: Dr. Indra Narang
Dr. Indra Narang is the Director of Sleep Medicine at the Hospital for Sick Children, in Toronto, Canada. She is also an Associate Professor at the University of Toronto. Dr. Narang specializes in many sleep disorders including pediatric obstructive sleep apnea and narcolepsy. She established the...
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Narcolepsy 360: Emily Kreuziger
Emily Kreuziger is a mom, a professional snowmobiler and a person with narcolepsy. In this episode, Emily shares her long diagnosis process. After being diagnosed and learning more about narcolepsy, she realized her first symptoms started 10 years prior to her actual diagnosis. She also shares…
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Narcolepsy 360: Gary Rutter
Gary Rutter is a sheep shearer, a dad and a person with narcolepsy. You read it right, a sheep shearer, a job so physical that you burn the same amount of calories as if you just ran a marathon. In this episode, Gary shares how he came about doing his unique occupation. He also shares that he was...
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Narcolepsy 360: Dr. Deborah Hartman
Dr. Deborah Hartman leads the global research program for narcolepsy and other sleep-wake disorders at Takeda, a biopharmaceutical company. In this episode, Dr. Hartman talks about Takeda's approach to studying sleep-wake disorders and the importance of working together with people with…
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Narcolepsy 360: Lauren Thomas
TW: This episode discusses sexual assault and rape, which may be triggering for some individuals. Lauren Thomas is a person with narcolepsy, a narcolepsy advocate and works in the champagne business. In this vulnerable and candid episode, Lauren shares how she was diagnosed with narcolepsy just a...
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Narcolepsy 360: Dr. David Ingram
Dr. David Ingram is a pediatric sleep physician at Children's Mercy Hospital. In addition to caring for children with sleep problems in clinic, he is the founding editor of the ATS Pediatric Sleep Case Series and is adjunct faculty in the department of psychology where he teaches a college Sleep…
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Narcolepsy 360: Shannon Burkoth
Shannon Burkoth is a person with narcolepsy, mother, and narcolepsy advocate in the rare disease space. In this episode, Shannon shares how she was diagnosed with narcolepsy when she turned 30, but since then has realized she experienced narcolepsy symptoms since she was a child. Shannon also...
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Narcoley 360: Kelly Main
Kelly Main is a person with narcolepsy, studying law, and expert sailor living in New Zealand. In this episode, Kelly shares that she struggled with narcolepsy symptoms since her childhood, but because she was so active in sports her diagnosis was delayed. Doctors believed she was tired from...
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Doing Life During COVID-19: Homeschooling During a Pandemic with Lindsay Jesteadt
Part of Wake Up Narcolepsy's mission is to provide supportive resources for people with Narcolepsy and their families. During this time of massive daily life alterations, we want to continue to offer those resources. We are all going through a traumatic event together and as we are adapting to a...
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Doing Life During COVID-19: Trauma + Isolation with Dr. Cynthia Eriksson and Dr. Alison Wong
Part of Wake Up Narcolepsy's mission is to provide supportive resources for people with Narcolepsy and their families. During this time of massive daily life alterations, we want to continue to offer those resources. We are all going through a traumatic event together and as we are adapting to a...
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Doing Life During COVID-19: Food + Nutrition with Chef Andre Royal
Part of Wake Up Narcolepsy's mission is to provide supportive resources for people with Narcolepsy and their families. During this time of massive daily life alterations, we want to continue to offer those resources. We are all going through a traumatic event together and as we are adapting to a...
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Doing Life During COVID-19: Pediatrics with Dr. Kiran Maski
Part of Wake Up Narcolepsy's mission is to provide supportive resources for people with Narcolepsy and their families. During this time of massive daily life alterations, we want to continue to offer those resources. We are all going through a traumatic event together and as we are adapting to a...
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Doing Life During COVID-19: Exercise and Movement with Belle Hutt
Part of Wake Up Narcolepsy's mission is to provide supportive resources for people with Narcolepsy and their families. During this time of massive daily life alterations, we want to continue to offer those resources. We are all going through a traumatic event together and as we are adapting to a...
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Doing Life During COVID-19: Mental Health and Mindfulness with Dr. Jason Ong
Part of Wake Up Narcolepsy's mission is to provide supportive resources for people with Narcolepsy and their families. During this time of massive daily life alterations, we want to continue to offer those resources. We are all going through a traumatic event together and as we are adapting to a...
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Narcolepy 360: Thaddeus Bath
Thaddeus Bath is a person with narcolepsy and is part of Wake Up Narcolepsy's 2020 #TeamWUN for the Boston Marathon. In this episode, Thaddeus shares how he was diagnosed with narcolepsy Type 2 in 2016. He discusses how sobriety helped realize that there was something bigger happening with his...
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Narcolespy 360: Mike McHargue
Mike McHargue is a bestselling author of Finding God in the Waves, and soon to be released You're a Miracle (and a Pain in the Ass). He is the host of Ask Science Mike podcast and co-founded The Liturgist Podcast. He also is an international speaker, science advisor and story consultant for film...
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Narcolepy 360: Kevin Cosgrove
Kevin Cosgrove is the Co-founder of Wake Up Narcolepsy, Biologic/Dermatology Sales Professional, and a PWN. In this episode, Kevin details his diagnosis process which led him to found Wake Up Narcolepsy with Monica and David Gow, with the intention to spread awareness about narcolepsy and fund...
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Narcolepsy 360: Dr. Emmanuel Mignot
Dr. Emmanuel Mignot is Professor of Psychiatry and Behavioral Sciences at Stanford University and Director of the Stanford Center for Sleep Sciences and Medicine. He is internationally recognized for discovering the cause of narcolepsy. Dr. Mignot has received numerous research grants and honors,...
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Narcolepy 360: Kayla Douglas
Kayla Douglas, known as @nomadnarcolepsy on Instagram, is a person with narcolepsy, a narcolepsy life coach and an extensive world traveler! In this episode, Kayla details her childhood with narcolepsy that led to diagnosis. As a child, she loved to read about the world and in her mind, she...
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Narcolepsy 360: Charlie Bain
Charlie Bain is a person with narcolepsy, who first noticed symptoms of narcolepsy at 19. In this episode, Charlie shares his experience of getting diagnosed with narcolepsy and taking time off from school to adapt to a new lifestyle. He also advises on ways to utilize accommodations during…
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Narcolepy 360: Julie Flygare
Julie Flygare is an author, Founder, CEO & President of Project Sleep, an advocate and a person with narcolepsy. She started the Narcolepsy Not Alone Campaign, the Jack and Julie Scholarships for college-age students with narcolepsy and the Rising Voices of Narcolepsy Program. In this episode,...
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Narcolepsy 360: Dr. Jason Ong
Dr. Jason Ong is an Associate Professor in the Dept of Neurology and the Center for Circadian and Sleep Medicine at the Northwestern University Feinberg School of Medicine. In this episode, Dr. Ong and Claire discuss narcolepsy and mental health. Dr Ong's primary research interest is focused on...
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Narcolepsy 360: Elle Wales
Elle Wales is a graphic designer, known as Falling Asleep Elle (on the internet), creator of narcolepsy memes and a person with narcolepsy. In this episode, Elle shares her diagnosis journey with Claire and how she navigated her university education while figuring out how to best manage symptoms....
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Narcolepsy 360: Nicole Jeray
Nicole Jeray is an LPGA tour player and long-time advocate for narcolepsy awareness. Since graduating from Northern Illinois University, she has played professional golf worldwide for 22 years. Nicole is her own agent and has negotiated all of her sponsorship arrangements. In this episode, we…
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Narcolepsy 360: Betsy Ashcraft
This is this second of a two-episode series in our deep dive into idiopathic hypersomnia and potential relation to type 2 narcolepsy. This week we are speaking Betsy Ashcraft. Betsy Ashcraft is a retired lawyer who practiced law for over 20 years specializing in securities and corporate…
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Narcolepsy 360: Dr. David Rye
This is this first of a two-episode series in our deep dive into Idiopathic hypersomnia and potential relation to type 2 narcolepsy. This week we are speaking Dr. David Rye. Dr. David Rye is Professor of Neurology at Emory University, board certified in Neurology and Sleep Medicine. Dr. Rye is…
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Narcolepsy 360: Anna Leigh Marr
Anna Leigh Marr is an actor, writer, voice-over artist and a person with Narcolepsy. In this episode, Anna shares her diagnosis journey whereupon it took 4 years to get properly diagnosed and all they while she completed her BA at Northwestern University. Claire and Anna discuss our culture's...
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Narcolepsy 360: Sara Kowalczyk
Sara Kowalczyk is a mother and women's health patient advocate, clinical researcher, regulatory writer and person with Narcolepsy. In this episode, Sara shares her diagnosis story but also her decision and experience in becoming a mother. Claire and Sara discuss how Sara developed an expertise on...
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Narcolepsy 360: Andre Royal
Andre Royal is a father, chef, entrepreneur, and person with Narcolepsy. In this episode, Andre shares his complicated journey to get properly diagnosed since he was living with multiple complicated medical conditions. Getting diagnosed created a career crossroads for Andre. Since then, Andre has...
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Narcolepsy 360: Tara Stuart
Tara Stuart is a mother, teacher, daughter of a person with narcolepsy and currently training for the Boston Marathon. In this episode, Tara shares her memories of growing up with her father having narcolepsy and how it affected their family. Tara's dad wasn't properly diagnosis well into his…
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Narcolepsy 360: Erin Carey
Erin Carey is a mother of five girls and two are CWN (children with narcolepsy). When Kyla started showing symptoms of narcolepsy Erin initially thought it was diabetes. When Kyla communicated she was falling asleep at school, Erin knew due to her sister's own diagnosis of narcolepsy, that Kyla...
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Narcolepsy 360: Kelsey Biddle
Kelsey Biddle is a PWN (person with narcolepsy) that was diagnosed, just over a year ago, with Type 1 Narcolepsy. In this episode, Kelsey shares the unique journey of being diagnosed within six weeks of the onset of symptoms. Kelsey has taken this past year to fully transition into her "new…
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Narcolepsy 360: Dr. Brian Murray
Dr. Brian Murray is an Associate Professor, Neurology and Sleep Medicine at University of Toronto Department of Medicine, Chair of Royal College Specialty Committee in Neurology and Head of Division of Neurology & Chair of Research Ethics Board Sunnybrook Health Sciences Center. Dr. Murray cares...
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Narcolepsy 360: Gina Dennis
Gina Dennis is a PWN (person with narcolepsy), but is also an FWN (family with narcolepsy), since her mother, son and ex-husband all have narcolepsy. In this episode, Gina shares the decades-long journey to be diagnosed with narcolepsy. She remembers having narcoleptic symptoms as early as 5…
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ABOUT THIS SHOW
Every person diagnosed with narcolepsy embarks on a unique journey. There is no standard path, and for many, this proves to be among the most challenging aspects of the disorder.The Narcolepsy 360 podcast is a series of interviews that take a panoramic view of narcolepsy from the patient, caregiver, research and clinical perspective. Each conversation draws on experiences, best practices and expert advice from patients, parents and doctors. From the latest research to lifestyle tips, our podcasts shed light on the less discussed issues around narcolepsy.Join Claire Crisp, our Executive Director, as she chats every week with people within our community.
HOSTED BY
Wake Up Narcolepsy
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Frequently Asked Questions
How many episodes does Narcolepsy 360 have?
Narcolepsy 360 currently has 58 episodes available on PodParley. New episodes are automatically indexed when they're published to the podcast feed.
What is Narcolepsy 360 about?
Every person diagnosed with narcolepsy embarks on a unique journey. There is no standard path, and for many, this proves to be among the most challenging aspects of the disorder.The Narcolepsy 360 podcast is a series of interviews that take a panoramic view of narcolepsy from the patient,...
How often does Narcolepsy 360 release new episodes?
Narcolepsy 360 has 58 episodes. Check the episode list to see recent publication dates and frequency.
Where can I listen to Narcolepsy 360?
You can listen to Narcolepsy 360 on PodParley by clicking any episode. We provide an embedded audio player for direct listening, and you can also subscribe via your preferred podcast app using the RSS feed.
Who hosts Narcolepsy 360?
Narcolepsy 360 is created and hosted by Wake Up Narcolepsy.
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