Nick Strong - Finding Strength in Pediatric Cancer

In this episode we talk to Meryl Summers from the Adelia Strong Foundation. You can find out more at adeliastrong.comIn the opening half of the episode, we update you on the 3rd Annual Nick Strong Golf Tournament. Read more in our newsletter update on the website.

In this episode of the Nick Strong Podcast, pediatric neurosurgeon Dr. Katie Fehnel shares her insights on navigating the complexities of pediatric brain tumors, the importance of family support, and the tight-knit community of specialists in this field. She discusses the emotional challenges faced by families and healthcare providers, the significance of fundraising for research and support, and her personal reflections on patient care, particularly her experiences with Nick. The conversation emphasizes the need for second opinions and the collaborative nature of pediatric oncology.Learn more about Katie here: https://www.danafarberbostonchildrens.org/find-a-doctor/fehnel-katie-pricolaSupport the Nick Strong Foundation https://nickstrongfoundation.com/Chapters00:00 Introduction to Pediatric Neurosurgery02:36 Navigating a Child's Diagnosis05:33 Finding the Right Care08:40 The Importance of Second Opinions11:24 The Tight-Knit Community of Pediatric Neurosurgery14:32 The Role of Fundraising in Pediatric Care17:27 Personal Reflections on Patient Care20:14 The Emotional Journey of a Neurosurgeon23:06 Memories of Nick and Patient Relationships

In the very first episode of the Nick Strong Podcast, hosts Matt Medeiros and Jen Gaspar speak with Dr. Joanna Gell, a physician-scientist at The Jackson Laboratory for Genomic Medicine and Connecticut Children’s. Dr. Gell shares an accessible and heartfelt look at her groundbreaking research into germ cell tumors, including those found in the brain, and explains how scientific progress connects directly to the lives of children and families affected by pediatric cancer.Through this conversation, listeners learn how translational research — the bridge between lab discoveries and clinical care — can lead to better diagnostics, improved treatments, and reduced long-term side effects for young patients. Dr. Gell also discusses the unique challenges of studying rare cancers, the importance of community-driven funding, and how even modest donations can fuel life-changing breakthroughs.Jen reflects on her son Nick’s experience with a rare intracranial germ cell tumor, underscoring why awareness, research, and parent support networks are so critical. Together, they remind listeners that hope, collaboration, and persistence are at the heart of every medical advancement.Key TakeawaysTranslational research connects lab discoveries (in mice and cell models) to real-world treatments for children.Germ cell tumors originate from reproductive cells and can appear in unexpected areas, like the brain.Rarity makes research difficult, but focused funding and collaboration can drive vital progress.Liquid biopsy techniques may allow doctors to diagnose and monitor brain tumors less invasively.Every contribution counts — even small donations help launch projects that can evolve into major breakthroughs.Important Links & ResourcesThe Jackson LaboratoryConnecticut Children’s Medical CenterNick Strong FoundationHelp and Hope Happens Here Podcast