PODCAST · health
NICU Babies Parent Support
by Hand to Hold
The NICU is hard. We're here to help. Hand to Hold® is a national nonprofit dedicated to providing neonatal intensive care unit (NICU) parents with personalized emotional support, educational resources and community before, during and after their baby's NICU stay. NICU support is available at no cost to NICU parents in English & Spanish.Learn more or get support at handtohold.orgFollow Hand to Hold:Facebook.com/HANDtoHOLDInstagram: @handtoholdTwitter: @NICUHandtoHoldYouTube: @handtohold
Episodes
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S13 E162: Safe Sleep, SIDS & Exhaustion Plans ft. Dr. Susan Hwang, Professor, Neonatologist, Researcher, Perinatal Expert
Trigger warning: death and dying Exhaustion and sleep deprivation is a part of any parent's story. In this episode, we visit with professor, neonatologist, researcher and perinatal expert, Dr. Susan Hwang about SIDS (Sudden Infant Death Syndrome), SUID (Sudden Unexpected Infant Death) and safe...
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S13 E161: Born Twice for a Chance for Life ft. Keishera & Greg Joubert
The possible outcomes for Keishera and Greg Joubert's baby, Cassian, with Congenital High Airway Obstruction Syndrome (CHAOS) were grim. Doctors tried one option and failed, so in an act of faith surgeons tried a highly risky partial delivery to address the airway and then hoped for a chance at...
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S13 E160: Is It OK to Laugh in the NICU? ft. Dr. Gal Barbut
He loves babies, AND he's got dad jokes. While the NICU can be an intense, and often serious, place, neonatologist Dr. Gal Barbut believes that well-timed levity allows doctors, nurses and NICU professionals to better connect with NICU families. When we share the totality of our humanness - the...
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S13 E159: Fighting the 1% Odds ft. Derick Hall, NFL Player & Super Bowl Champion & his mom, Stacy Gooden-Crandle
September is NICU Awareness Month, making this an especially meaningful time to share Derick and Stacy's story. As part of its ongoing Little Fighters campaign, Huggies is continuing to spotlight the strength and resilience of NICU babies, including by renaming its Nano and Micro Preemie diapers...
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S13 E158: Season 13: In Their Own Words ft. Kathryn Whitaker
Everybody has a story. And it's our stories that have the power to heal, educate and inspire. This season, we alternate between family stories and NICU professional stories. We reveal their experiences and then we dig a little deeper, giving honor to the diagnosis and highlighting the emotions…
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S12 E157: Grieving Apart ft. Lana Macrum-Craig, Bereaved Single Parent
July is National Bereaved Parents Awareness Month. Twice a week, we are re-releasing past podcast episodes honoring a variety of families and circumstances in their grief. Trigger warning: this episode centers on infant loss and grief. In this episode, Lana shares the story of her daughter, Allie...
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S12 E156: No Matter How Brief ft. Ben & Emilee Blackburn, Bereaved Parents
July is National Bereaved Parents Awareness Month. Twice a week, we are re-releasing past podcast episodes honoring a variety of families and circumstances in their grief. Trigger warning: this episode centers on infant loss and grief. In this episode, Ben and Emilee Blackburn share the story of...
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S12 E155: The Beginning of Grief ft. Jennifer McDonald, Bereaved Parent
July is National Bereaved Parents Awareness Month. Twice a week, we are re-releasing past podcast episodes honoring a variety of families and circumstances in their grief. Trigger warning: this episode centers on infant loss and grief. In this episode, Jennifer McDonald shares the story of her…
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S12 E154: Stitched with Your Color ft. Anissa Scholes, Bereaved Parent
July is National Bereaved Parents Awareness Month. Twice a week, we are re-releasing past podcast episodes honoring a variety of families and circumstances in their grief. Trigger warning: this episode centers on infant loss and grief. In this episode, Anissa Scholes shares the story of her...
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S12 E153: Adding Life ft. Dr. Terri Major-Kincade
July is National Bereaved Parents Awareness Month. Twice a week, we are re-releasing past podcast episodes honoring a variety of families and circumstances in their grief. Trigger warning: this episode centers on infant loss and grief. In this episode, neonatologist Dr. Terri Major-Kincade shares...
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S12 E152: Channeling Grief Into Good ft. Charles & Claire George
July is National Bereaved Parents Awareness Month. Twice a week, we are re-releasing past podcast episodes honoring a variety of families and circumstances in their grief. Trigger warning: this episode centers on infant loss and grief. In this episode, Claire and Charles George share the story of...
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S12 E151: Immeasurable Love ft. Keira Sorrells
July is National Bereaved Parents Awareness Month. Twice a week, we are re-releasing past podcast episodes honoring a variety of families and circumstances in their grief. Trigger warning: this episode centers on infant loss and grief. In this episode, Keira Sorrells shares her journey through...
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S12 E150: Grief's Tasks ft. Becca Van Tassel, LCSW
July is National Bereaved Parents Awareness Month. Twice a week, we are re-releasing past podcast episodes honoring a variety of families and circumstances in their grief. Trigger warning: this episode centers on infant loss and grief. In this episode, we visit with grief counselor Becca Van…
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S11 E149: Calling All NICU Baby Cuddlers ft. Lynn Harris
Lynn Harris is a retired U.S. Army veteran and longtime volunteer at St. David's Medical Center in Austin. For more than a decade, he has served in the hospital's neonatal intensive care unit (NICU) as a "baby cuddler," providing comfort and gentle care to premature and medically fragile…
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S11 E148: Calling All NICU Grandfathers ft. Avid Noble
Avid Noble's introduction to Hand to Hold came first as a third-party vendor, helping a friend of a friend. A few years later, it was Avid reaching out to Hand to Hold for help when his first grandbaby was in the NICU. In this touching episode, Avid shares his greatest fears, how he stepped in to...
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S11 E147: Calling All Micropreemie NICU Dads ft. Lucas Manring
Everything was normal, until it wasn't. Lucas Manring's first baby was born via emergency c-section at 25 weeks and he found himself plunged into fatherhood faster than he imagined. Lucas shares how a strong community of men, physical fitness and honest communication with his wife enabled him to...
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S11 E146: Calling All Bereaved & Veteran NICU Dads ft. Matt Bialkowski
Matt Bialkowski is a two-time NICU dad and bereaved father. His first stint in the NICU left him struggling and seeking purpose, but over the course of their four-month NICU stay, Matt found renewed purpose. After their second pregnancy ended in loss and then another baby placed them back in the...
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S11 E145: A Men's Mental Health Expert ft. Sheehan Fisher, Ph.D
Dr. Sheehan Fisher's entire career has been focused on the mothers and fathers unique contributions to the family and child health, with a specialization in the emerging field of father mental health. As a clinical psychologist at Northwestern, he has a heart for helping dads understand the…
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S11 E144: Calling All Military NICU Dads ft. Adam Wood
With a military career that spans more than 20 years, Adam Wood thought his training would prepare him for a NICU stay. While there were some similarities, he discovered that learning and advocacy were in his new battle plans as he supported his wife and their miracle baby. That newfound role...
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S11 E143: Calling All NICU Co-Parenting Dads ft. Aaron Vasquez
When Aaron's (then) wife developed pre-eclampsia and was ushered to the hospital in an ambulance, he quickly found himself the dad of a 29-weeker. He was wholly unprepared for the sleeplessness, the worry and the cadence of the NICU. In this episode, he shares what he did to rediscover his mental...
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S11 E142: Calling All NICU Dads of Multiples ft. Jonathan Sandhu
Identical quadruplet girls + 2 other children, all under 6? If there's a dad that gets multiples and all that comes with it, it's engineer and dad of quads, Jonathan Sandhu. In this episode, Jonathan shares how he reconciled best-case and worst-case scenarios with his wife and the babies, the...
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S11 E141: Calling All NICU Dads of Big Families ft. Scott Whitaker
Dads of big families, welcome to the group chat. Fundraiser and father of 6, including two NICU babies, Scott Whitaker shares how he embraced his role as a NICU dad, his clutch advice for other NICU dads (big or small families) and his honest reaction when his wife said she wanted to have another...
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S11 E140: Season 11: Calling All NICU Dads ft. Kathryn Whitaker
There are so many resources for NICU moms, but what about the dads, the grandfathers, the uncles and the men of the NICU? This season is all about them - their perspectives, their experiences, how they supported their partners, wives, grandkids and friends. The NICU affects an entire family and...
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S10 E139: What I Wish I Knew About…My Pediatrician ft. Dr. Mona Amin (@PedsDocTalk)
In this episode, pediatrician and creator Dr. Mona Amin (@PedsDocTalk) shares her path into medicine, why patient connection is important to her and how she built a meaningful presence on social media. Dr. Amin opens up about her own emotional NICU journey, sharing what she wishes she had known…
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S10 E138: What I Wish I Knew About…Birth Trauma & Advocacy ft. HeHe Stewart
Giving birth trauma a voice. Doula and advocate HeHe Stewart explores the emotional journey of NICU parents and the unseen wounds of traumatic birth experiences in this episode. From redefining advocacy to helping families find healing even in survival mode, HeHe shares powerful insights…
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S10 E137: What I Wish I Knew About…Parenting Special Needs Children ft. Kelly Mantoan
Special needs mom, Kelly Mantoan, a mother of five and advocate for families raising children with disabilities, gives some solid advice to parents. Two of her children have spinal muscular atrophy and she candidly shares the challenges, surprises, and moments of grace from her early NICU and...
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S10 E136: What I Wish I Knew About…Medical Billing ft. Jules Nowak
If you've ever felt overwhelmed by a medical bill, this episode is for you. Jules Nowak—NICU parent and founder of The Medical Bill Academy—talks about the often-overlooked financial side of a NICU stay. From surprise bills to navigating insurance denials, Jules shares her personal journey…
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S10 E135: What I Wish I Knew About…Child Loss & Grief ft. Amber Smith
In this deeply moving episode, Amber Smith, wife to Granger Smith, shares her journey through unimaginable loss after the passing of her son River and how she found light in the midst of profound grief. We talk about honoring River's memory, navigating marriage and parenting through sorrow, and...
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S10 E134: What I Wish I Knew About…NICU Nurses ft. Nurse Tori
NICU nurse and content creator Tori Meskin (aka Nurse Tori) sheds light on the unique role of NICU nurses and what families should really know during their baby's NICU journey. We talk about building trust in high-stress moments, common parent fears, and how nurses support both tiny patients and...
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S10 E133: What I Wish I Knew About…Raising Twins (One with Down Syndrome) ft. Missy Haughery
Twin and special needs mom Missy Haughery shares her journey of raising twins—one with Down syndrome—and the lessons she wishes she'd known from the start. She is as candid about the struggles, in parenthood and marriage, as she is about the lessons and the joy. It all helped shape the family she...
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S10 E132: What I Wish I Knew About…Being a Military NICU Family ft. Taneisha Stamps
The NICU and the military share common feelings of isolation, mental health challenges like PTSD, and dependence upon friends and co-workers for support. In this week's episode, NICU military mom Taneisha Stamps shares her experience of being in the NICU with her son while their family was on a...
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S10 E131: What I Wish I Knew About…Organizing & Storing Photos ft. Miss Freddy
Professional photo organizer Miss Freddy addresses the emotional and logistical challenges of capturing and storing photos during a NICU stay. In this episode, we discuss what we wish we had known earlier—from organizing photos of hard days, how albums can minimize the trauma and magnify the good...
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S10 E130: Season 10: What I Wish I Knew ft. Kathryn Whitaker
Season 10 is here! What I Wish I Knew dives deep into the wisdom and hard-won life lessons parents and experts learned and now want to pass along to you. Our guest lineup includes a diverse group including a NICU nurse, pediatrician, special needs mom, bereaved mom, billing expert, birth trauma...
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S9 E129: How Art Helped me Heal ft. Savannah O'Malley
As NICU parents, we're all healing from a trauma. So when today's guest, Savannah O'Malley, sought her own healing she found it in a beautiful place, her art. And that healing didn't just benefit her own stories but the stories of thousands more NICU families. Listen in as Savannah shared how her...
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S9 E128: Giving NICU Babies a Voice ft. Candace Cronin
In this episode, we sit down with Candace Blair Cronin, Ph.D.—a full-time working mom of four and a passionate advocate for children in the foster care system. From fostering and adopting to mentoring families and serving as a CASA, Candace shares her deeply personal journey and the many ways…
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S9 E127: Seeing Double Double: Raising Identical Quads ft. Mercedes & Jonathan Sandhu
Identical quadruplets. You read that right. The girls, born to Jonathan and Mercedes Sandhu, joined two other siblings, making six kids under the age of three. In this episode, they share about that first ultrasound appointment, how they prepared for the impossible, and what daily life looks like...
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S9 E126: Adopting a NICU Baby ft. Shannon Donnelly
When parents get the call about a baby ready for adoption, they don't often expect it to be accompanied with a NICU stay. Adoptive mom, Shannon Donnelly, shares how life changed for her and her husband, how they navigated an out-of-state adoption and NICU stay and how they found peace with her...
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S9 E125: Is This Normal, or Not? ft. Dr. Meghan Martin (@dr.beachgem10)
"Is this normal?" is something almost every NICU parent asks about their baby at some point. In this episode, popular social media ER doctor, Dr. Meghan Martin aka drbeachgem.10, shares her own NICU story, how to be a good advocate for your child and encourages parents to always listen to their...
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S9 E124: ROP 411: All About Tiny Eyes ft. Dr. Rupa Wong
NICU parents worry about a lot, but we know that education is power. If your child is at risk for eye abnormalities like retinopathy of prematurity (ROP), or has been diagnosed, pediatric ophthalmologist and popular podcaster, Dr. Rupa Wong allays some of the common fears and gives you tools to…
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S9 E123: A Slow Exhale: Finding Purpose Through Special Needs Parenting ft. Valerie Rodriguez
Valerie Rodriguez wasn't planning on a lot of things: another pregnancy, multiples, a NICU stay or even having to say goodbye to one of her boys. In this episode she shares how she found her new normal, navigating grief, special needs and her evolving role as a mom and wife. Trigger warning: in...
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S9 E122: What it Feels Like to Lose Control ft. Britt Fisk
Her daughter was diagnosed with spina bifida during a tenuous spinal surgery and then she was diagnosed with breast cancer. As the mom of eight, Britt Fisk knows a thing or two about surrendering control. Her perspective was hard won and in this interview, Britt shares how laying down hard things...
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S9 E121: Supporting Families in Crisis ft. Katrina Moline & Kelli Kelley
Everyday, 3,000 parents find out their child may have a NICU stay. They may start by logging on to the Hand to Hold website, but Founder and CEO of Hand to Hold, Kelli Kelley, and Executive Director, Katrina Moline, hope that NICU parents receive a plethora of support before, during and after…
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S9 E120: Season 9: Finding Your New Normal ft. Kathryn Whitaker
How many times has someone asked you, "Are things back to normal yet?" following your NICU stay? We know how frustrating that question, and the answers, can be. In season 9, it's all about finding your new normal. Our guests include parents of quads, adoptive NICU parents, a pediatric ER doctor,...
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S8 E119: Life After Heart Transplant, One Mom's Story ft. Kasie Marek
From there to here. When Kasie Marek's son received a heart transplant after a long and difficult medical road of treating his hypoplastic left heart syndrome (HLHS), she had no idea what lay on the other side of treatment. Listen as Kasie shares their honest journey and what she's learned in…
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S8 E118: Pregnancy After a NICU Baby, One Mom's Story ft. Stephanie Goley
Should you have another child after a NICU stay? While it's a common question, there is no easy answer. Special needs mom Stephanie Goley shares how her family weighed the decision of adding to their family, how they focused on joy instead of fear and how they found peace with the decision. 💚...
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S8 E117: NICU Sibling-hood & Big Emotions ft. Dr. Siggie Cohen
During a NICU stay, there's often a population that gets overlooked: the siblings. Parenting expert and child development specialist Dr. Siggie Cohen helps parents get to the heart of conflict, develop positive sibling relationships and find confidence when you're surrounded by chaos. 💚 Connect...
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S8 E116: RSV Fears & Health Disparities ft. Chelsea Samms
As a nurse educator with a NICU nursing background, Chelsea Samms shares her honest experience in caring for NICU babies. She encourages parents to trust their instinct when treating illnesses like RSV, how to advocate for their baby when working with specialists and how to minimize overwhelm…
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S8 E115: Finding Hope After the Greatest Loss ft. Mary Lenaburg
Hope needs a face. We often wonder how parents and caregivers of very medically fragile children can find joy and hope, even in the midst of long days, hospital stays and unimaginable grief, but they do. Today's guest, Mary Lenaburg, gives hope to parents who are having a hard time believing that...
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S8 E114: Making the Most of a SPED Meeting ft. Suzanne Blume
You're worried your child may need special education services, but you don't know where to start, what questions to ask or how to advocate for your child properly. Former special ed teacher and diagnostician and current special education consultant Suzanne Blume will empower parents with the…
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S8 E113: Supporting Your NICU Grandbaby ft. Dr. Judith Enders
Did your grandchild just earn a first-class ticket to the NICU? Listen as grandparent (Jammie as she's called) and pediatrician, Dr. Judith Enders, share her best suggestions for loving your grandchild well and supporting your child without being overbearing. 💚 Connect with the host, Kathryn...
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ABOUT THIS SHOW
The NICU is hard. We're here to help. Hand to Hold® is a national nonprofit dedicated to providing neonatal intensive care unit (NICU) parents with personalized emotional support, educational resources and community before, during and after their baby's NICU stay. NICU support is available at no cost to NICU parents in English & Spanish.Learn more or get support at handtohold.orgFollow Hand to Hold:Facebook.com/HANDtoHOLDInstagram: @handtoholdTwitter: @NICUHandtoHoldYouTube: @handtohold
HOSTED BY
Hand to Hold
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Frequently Asked Questions
How many episodes does NICU Babies Parent Support have?
NICU Babies Parent Support currently has 164 episodes available on PodParley. New episodes are automatically indexed when they're published to the podcast feed.
What is NICU Babies Parent Support about?
The NICU is hard. We're here to help. Hand to Hold® is a national nonprofit dedicated to providing neonatal intensive care unit (NICU) parents with personalized emotional support, educational resources and community before, during and after their baby's NICU stay. NICU support is available at no...
How often does NICU Babies Parent Support release new episodes?
NICU Babies Parent Support publishes regularly with 164 episodes available. Check the episode list for the typical release schedule.
Where can I listen to NICU Babies Parent Support?
You can listen to NICU Babies Parent Support on PodParley by clicking any episode. We provide an embedded audio player for direct listening, and you can also subscribe via your preferred podcast app using the RSS feed.
Who hosts NICU Babies Parent Support?
NICU Babies Parent Support is created and hosted by Hand to Hold.
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