NICU Today: A podcast by Today is a Good Day

In this episode of the NICU Today Podcast, we are joined by Heather Johnson, an Executive Director at Morgan Stanley with a 19-year career on the Institutional Equity Electronic Trading Desk, and the founder of the Love for Liam Foundation. Heather established the foundation in honor of her son Liam, whose brief but powerful life continues to inspire her mission to advance epilepsy research and improve outcomes for families facing similar diagnoses.Heather is also a devoted mother to Emma (8) and Mia (2), and she brings both her professional leadership experience and deeply personal journey into her advocacy work. Through community engagement, philanthropy, and storytelling, Heather is committed to ensuring Liam’s life continues to make an impact.On today’s episode:Heather shares her journey to starting a family and welcoming her children.Her experience welcoming her son Liam and the medical challenges that followed.Being transferred to Children’s Hospital of Philadelphia and the emotions that accompanied that transition.Navigating life in the hospital while supporting her daughter at home.How the hospital team supported her and her family during an incredibly difficult time.Reflections on what she wishes she had known and what she hopes other families can learn from her experience.How Heather honors Liam’s life today and keeps him present within her family.Talking about loss with her daughters and helping them understand their brother’s story.What inspired her to give back through fundraising and the creation of the Love for Liam Foundation.An update on how her daughters are doing today.Heather’s story is one of profound love, resilience, and purpose. This episode offers heartfelt insight into navigating loss while continuing to show up for living children, and how honoring a child’s legacy can create meaningful change for families and communities alike.

In this episode of the NICU Today Podcast, we are joined by Emily Rosen, a mother, freelance creative director, copywriter, and children’s book author. Emily has built her career working with leading advertising agencies and global brands, always aiming to use her creativity to uplift women, mothers, and children. Inspired by her son Max’s time in the NICU, she wrote her debut children’s book with the hope of helping families like hers feel seen, supported, and understood.Originally from Cleveland, Ohio, Emily now lives in Los Angeles with her husband and two children. When she’s not writing, she loves running through her neighborhood, singing karaoke with friends, and reading bedtime stories with her kids.On today’s episode:Emily shares her family’s journey to welcoming Max and what led them into the NICU.How little she knew about the NICU before entering it herself—and what she wishes she had known.The practices and coping tools that helped her get through each day in the NICU.How she stayed connected to Max while he remained in the hospital and she returned home.What inspired her to write her new children’s book and why she chose to help families through storytelling.Writing from the perspective of siblings and cousins, and how she captured their emotions in her book.An update on how Max is doing today.Emily’s story highlights the emotional realities of NICU parenthood and the power of turning lived experience into creative support for others. Her work reminds families that their feelings matter, their stories matter, and their children’s journeys—whether big or small—deserve to be honored and shared.

In this episode of the NICU Today Podcast, we are joined by Nicole Nyberg, MSN, APRN, NNP-BC—Neonatal Nurse Practitioner, clinical specialist, educator, author, advocate, and founder of Empowering NICU Parents. Nicole earned her BSN from Purdue University and her MSN from Rush University, and today she practices as a Neonatal Nurse Practitioner while also serving as a Clinical Specialist for AngelEye Health.Nicole’s passion for supporting NICU families is deeply personal. After her son William was born at just 23 weeks, she devoted her career to empowering NICU parents and clinicians through education, advocacy, and family-integrated care. She serves as Co-Chair of the Advocacy Committee on the Family-Centered Care Task Force, has authored and co-authored numerous publications, and created Our NICU Roadmap, a guided journal designed to support families through the NICU journey. Nicole is also the CEO and founder of the nonprofit Empowering NICU Parents and host of the Empowering NICU Parents Podcast.On today’s episode:Nicole shares her journey into nursing and what inspired her to specialize in neonatal care.Her pregnancy experience and the birth of her son William at 23 weeks.An introduction to Family-Integrated Care and why it is so critical in the NICU.Nicole’s own NICU journey, including her family’s transfer to a different hospital.The biggest lessons learned during her extended NICU stay.The mission behind Empowering NICU Parents and the resources available to families.Where listeners can find her podcast and additional educational tools.An update on how William is doing today.Nicole’s story beautifully blends professional expertise with the lived experience of a NICU parent. Her work highlights the profound impact of parent engagement, advocacy, and compassionate support on the entire NICU journey. This episode offers invaluable guidance and encouragement for families navigating the NICU and for professionals dedicated to improving family-centered care.

Dr. Jason Baxter | Advancing Maternal-Fetal Medicine and Supporting Families Through High-Risk PregnancyIn this episode of the NICU Today Podcast, we are joined by Dr. Jason K. Baxter, MD, MSCP, FACOG, a nationally recognized Maternal-Fetal Medicine specialist and Chair of the Department of Obstetrics and Gynecology at Jefferson Health. With more than two decades of experience at Thomas Jefferson University Hospital in Philadelphia, Dr. Baxter has led inpatient obstetrics, built research programs, and mentored future physicians through the Maternal-Fetal Medicine fellowship program.Dr. Baxter’s path to medicine began after earning an engineering degree from Princeton University, where he met his wife, Heather. He received his medical degree from the University of Texas Medical Branch and completed residency and fellowship training in Obstetrics, Gynecology, and Maternal-Fetal Medicine, along with a Master’s in Human Investigation. His three children were born at the very hospitals where he trained, giving him both professional and personal insight into the care of high-risk pregnancies.Throughout his career, Dr. Baxter has authored more than 120 peer-reviewed publications and has been honored for clinical care, research, teaching, and leadership. His research interests include prediction and prevention of preterm birth, pharmacology in pregnancy, and evidence-based obstetric care. He also serves on Maternal Mortality Review Committees for both Pennsylvania and Philadelphia.On today’s episode:What led Dr. Baxter to a career in Maternal-Fetal Medicine and what his role entails.When families can expect to be referred to Maternal-Fetal Medicine during pregnancy.The number-one question families ask—and what they should be asking at their first MFM appointment.How the medical approach to bedrest has evolved and what that means for families today.Understanding the care team: OB, MFM, and NICU—and whether families can request a collaborative team meeting to discuss a birth plan.A meaningful story from Dr. Baxter’s career and how it shaped his perspective as a clinician and leader.His biggest advice for families navigating high-risk pregnancy or preparing for the possibility of NICU care.Dr. Baxter’s expertise, compassion, and commitment to patient-centered care provide clarity and reassurance for families experiencing complex pregnancies. This episode offers valuable education to help families feel empowered, informed, and supported every step of the way.

In this episode of the NICU Today Podcast, we are joined by Nicole Lewis-Keeber, MSW, LCSW—Business Therapist, author, leadership coach, and a thought leader at the intersection of trauma and entrepreneurship. Nicole is a Licensed Clinical Social Worker with a Master’s in Social Work and extensive experience working as both a therapist and a coach. She trained directly with Brené Brown and is certified in The Daring Way™ and Dare to Lead™ methodologies. Nicole has been featured in major media outlets including NPR and Fast Company for her work in breaking the stigma around mental health and business ownership.Nicole’s approach is grounded in understanding the impact trauma has on how people show up in their relationships, careers, and personal lives. She is passionate about helping individuals—especially leaders and caregivers—recognize how their past experiences influence the way they navigate stress, responsibility, and emotional resilience.On today’s episode:Nicole shares her professional background and what led her into trauma-focused work.Her experience training with Brené Brown and the most powerful lessons from that process.Understanding what trauma really is and the different ways it can show up in someone’s life.Why many people don’t realize they have experienced trauma and how it can resurface during high-stress situations.How the lens of trauma applies to NICU parents and families navigating fear, uncertainty, and medical trauma.Breaking the stigma around mental health and encouraging individuals to seek support.Nicole’s biggest piece of advice for those processing trauma or carrying emotional burden.Where listeners can learn more about Nicole’s work and access her resources.Nicole’s insight sheds light on the emotional weight NICU families carry—and offers tools to help them move from survival to healing. This episode empowers listeners to recognize their own emotional experiences and understand that healing is not only possible, but deeply deserved.

Darcy Walker Krause | Understanding and Navigating Grief in All Its FormsIn this episode of the NICU Today Podcast, we are joined by Darcy Walker Krause, Founder and CEO of Grieve to Thrive, LLC. With an impressive career spanning both law and social work, Darcy has dedicated her life to grief education, advocacy, and organizational leadership. After earning her Juris Doctor from Duke University School of Law and practicing labor and employment law for five years, Darcy shifted her focus, earning her Master’s in Social Work from the University of Pennsylvania. Since then, she has spent over a decade supporting individuals and organizations through the complexities of grief and loss.Darcy previously served as Executive Director of the Uplift Center for Grieving Children in Philadelphia, where she led transformational growth and supported countless families through loss. Today, through Grieve to Thrive, she provides grief-focused consulting, workshops, and educational services, helping workplaces and communities foster a grief-informed culture.On today’s episode:What inspired Darcy to transition from law to grief education and family support.How her personal experience losing her mother at a young age shaped her passion for this work.The different types of grief and how they can manifest in daily life.How NICU families can navigate the sense of loss that comes with premature birth or extended NICU stays.The importance of allowing space and time to grieve—and how families can recognize when they need support.Understanding the complex emotions that often accompany grief, especially in the NICU experience.Darcy’s biggest piece of advice for families learning to live, heal, and grow through loss.Darcy’s wisdom and compassion offer invaluable perspective for families and professionals alike. This episode sheds light on the many forms of grief, emphasizing that healing begins when we give ourselves permission to acknowledge, understand, and embrace the process.

In this episode of the NICU Today Podcast, we are joined by Dr. Thiviya Selvanathan, a neonatal neurologist and clinician scientist at BC Children’s Hospital and the University of British Columbia in Vancouver, Canada. Dr. Selvanathan’s groundbreaking research uses advanced brain imaging to explore how early-life brain injury and NICU clinical care influence brain development and neurodevelopmental outcomes in preterm infants. Her work provides vital insights into how the smallest patients grow, heal, and thrive beyond the NICU.On today’s episode:Dr. Selvanathan shares her background and what inspired her to specialize in neonatal neurology.An overview of her current research on brain development and injury in premature babies.The connection between pain and brain development in NICU infants.Guidance for parents navigating uncertainty after a diagnosis such as brain bleeds.The most common questions families ask in the NICU—and how providers can best support them.The lasting importance of post-NICU care and early intervention in supporting brain growth.Memorable moments and stories from families that have shaped her perspective as a clinician.Her biggest piece of advice for parents navigating the NICU and early developmental care.Dr. Selvanathan’s expertise bridges science and compassion, helping families and healthcare professionals better understand the developing brain of premature infants. This episode offers invaluable education and perspective for anyone seeking to learn more about the long-term impact of early brain health and care in the NICU.

In this episode of the NICU Today Podcast, we are joined by Mary Farrelly, RN, BSN, RNC-NIC, a certified NICU nurse, doula, and educator dedicated to bridging the gap between clinical care and the lived experiences of NICU families. As the founder of The NICU Translator, Mary provides evidence-based education, compassionate guidance, and advocacy for both families and the professionals who support them. Through her courses, resources, online community, and work as a NICU doula, Mary’s mission is to make the NICU journey more empowering and less overwhelming for everyone involved.On today’s episode:What inspired Mary to transition from bedside NICU nursing to providing family-centered education and support.How parents can confidently advocate for a smooth transition home after NICU discharge.Understanding your baby’s unique feeding cues and navigating common feeding challenges.Guidance on when and how to ask for additional feeding or developmental support.The importance of follow-up care—how to find the right pediatrician and which appointments to schedule first.Preparing for life at home, both practically and emotionally, after leaving the NICU.Recognizing signs of postpartum depression and anxiety and how to seek help early.Actionable steps families can take to build confidence and create stability once home from the NICU.Mary’s insights offer a blend of professional expertise and heartfelt advocacy, providing parents with the knowledge and confidence to navigate life after the NICU. This episode is filled with practical advice and compassionate guidance to help families feel supported every step of the way.

Dr. Tanner Walsh | A Pediatrician’s Perspective as a NICU MomIn this episode of the NICU Today Podcast, we are joined by Dr. Tanner Walsh, a primary care pediatrician in Delaware County, PA, and proud mom of 6-year-old boy-girl twins. Her twins were born at 35 weeks and spent six days in the NICU at the very hospital where she worked—an experience that shaped her perspective both as a pediatrician and as a parent. Fluent in Spanish and a graduate of UAG in Guadalajara, Mexico, Dr. Walsh brings a culturally sensitive and family-centered approach to pediatric care. As an IBCLC, she is committed to supporting families throughout their feeding journeys and beyond.On today’s episode:Dr. Walsh shares her background in medicine and the story of her surprise twins.What her experience looked like during pregnancy and the early NICU days.Reflections on navigating the NICU as both a pediatrician and a parent.Lessons learned during her family’s NICU journey.Life after the NICU: what early care looked like for her family and the importance of NICU follow-up.How parents can build a strong care team post-NICU and what to ask their pediatrician.Guidance on feeding preemies and starting solids, including questions to bring to your pediatrician.Tips for families on choosing the right pediatrician.Updates on how her twins are doing today.Dr. Walsh’s story offers a rare dual perspective of NICU life from both sides of the bedside—bringing empathy, professional insight, and practical advice to families navigating life during and after the NICU. This episode highlights the importance of strong partnerships between parents and pediatricians in caring for NICU graduates.

Dr. Vanessa Freeman | Supporting NICU Families Through Psychology and Personal ExperienceIn this episode of the NICU Today Podcast, we are joined by Dr. Vanessa Freeman, licensed psychologist, NICU mom, and owner of Searching for Self Counseling and Consulting, a virtual private practice serving Black women and mothers. Dr. Freeman brings both her personal experience as a NICU parent and her professional training as a psychologist to guide and support families navigating the challenges of NICU life.Dr. Freeman’s daughter, Rylee, was born at 29 weeks and 1 day after an in-utero diagnosis of IUGR (Intrauterine Growth Restriction). She spent 66 days in the NICU, an experience that profoundly shaped Dr. Freeman’s outlook as both a parent and professional.On today’s episode:Dr. Freeman shares her family’s journey and the realities of receiving an IUGR diagnosis.How she prepared for a potential early delivery and the unexpected challenges of the NICU.Lessons learned during her 66-day NICU stay and the impact they had on her family.How her personal journey informed her career path and her focus on serving Black women and mothers.The most common struggles her clients face and the advice she shares to support them.An update on how Rylee is doing today.Dr. Freeman’s story highlights the resilience of NICU families and the importance of mental health support throughout the journey. This episode provides both education and encouragement, reminding parents that they are not alone and that resources exist to help them thrive during and after their NICU experience.

Jaylee Hilliard | Bridging Compassionate NICU Care and Digital Health SolutionsIn this episode of the NICU Today Podcast, we are joined by Jaylee Hilliard, Vice President of Clinical Strategy at AngelEye Health. With more than a decade of experience in neonatal and pediatric care—including her time as Director of Neonatal Services and Pediatric ECMO at McLane Children’s Baylor Scott & White—Jaylee now leads clinical innovation to strengthen family engagement, improve outcomes, and streamline care through technology.Beyond her professional expertise, Jaylee brings the personal perspective of being a two-time NICU mom. Her first daughter was born at 32 weeks during the height of the COVID-19 pandemic, and her second had a brief NICU stay in 2024. These experiences give her a powerful dual lens as both a healthcare leader and parent.On today’s episode:Jaylee shares her background in healthcare and how she transitioned into her leadership role at AngelEye Health.Her personal NICU journey, including time on bedrest and the challenges of leaving her baby in the NICU.The role her husband played during the NICU and post-NICU experience.How AngelEye Health is using technology to support families and improve communication.Resources available for families who may not have camera systems in their NICU.Her biggest advice for parents navigating the NICU today.Updates on how her baby is doing now.Jaylee’s story and expertise highlight the importance of compassionate care paired with innovation, ensuring families remain connected during some of the most challenging moments of their lives. This episode offers both practical insights and encouragement for NICU parents and professionals alike.

In this episode of the NICU Today Podcast, we are joined by Kasey Mathews, a mother, holistic life coach, inspirational speaker, and award-winning author of Preemie: Lessons in Love, Life, and Motherhood and A Mom’s Guide to Creating a Magical Life. Both books have earned the prestigious Mom’s Choice Gold Award, with Preemie also receiving the New Hampshire Non-Fiction Reader’s Choice Award.As a passionate advocate for premature birth awareness, Kasey shares her journey as a NICU mom through speaking engagements at medical conferences, hospitals, and events. Her mission is to inspire and educate healthcare professionals and families, offering hope and insight to those navigating the complexities of life with a preemie.On today’s episode:Kasey shares her family’s journey through the NICU and beyond.The inspiration behind her first book, Preemie, and what she hopes readers take away from it.Reflections on her NICU experience and the lessons that stand out most.Life after the NICU: what healing and growth looked like for her family.How to stay grounded when faced with challenges beyond your control.Her second book, A Mom’s Guide to Creating a Magical Life, and the inspiration behind it.Updates on her children today and their journey beyond prematurity.Kasey’s story is one of resilience, love, and finding purpose in life’s unexpected moments. Her thoughtful insights remind us that even in the face of adversity, there is room for hope and transformation. Tune in to hear her inspiring perspective on life, motherhood, and the lessons learned along the way.

In this episode of the NICU Today Podcast, we are joined by Dr. Adrianne Rahde Bischoff, a neonatal hemodynamics specialist and Clinical Assistant Professor of Pediatrics-Neonatology. Originally from Brazil, Dr. Bischoff earned her medical degree from Universidade Federal do Rio Grande do Sul and completed her pediatric residency there. She went on to pursue advanced training in neonatal-perinatal medicine at the University of Toronto’s Hospital for Sick Children, followed by a specialization in neonatal hemodynamics at the University of Iowa.Dr. Bischoff’s work focuses on advancing research, education, and care for critically ill neonates, with a particular emphasis on the cardiovascular health of NICU babies. As an active member of the PanAmerican Hemodynamics Collaborative and a council member of the Midwest Society for Pediatric Research, she is at the forefront of this evolving field.On today’s episode:What neonatal hemodynamics is and why it’s important for NICU babiesUnderstanding terms like "low blood pressure" and "heart function" in the NICU contextThe role of neonatal hemodynamics in managing PDA (patent ductus arteriosus) and pulmonary hypertensionHow parents can advocate for their baby’s care when neonatal hemodynamics isn’t available at their hospitalRecent advancements in neonatal hemodynamics that are improving NICU outcomesDr. Bischoff’s passion for neonatal care shines through as she discusses how this specialized field is transforming the way we support the tiniest and most vulnerable patients. This episode is an essential listen for parents and caregivers seeking to better understand the complexities of NICU care and the innovative approaches shaping its future.

In this episode of the NICU Today Podcast, we are joined by Miracle Pelayo, a talented actor, model, fashion content creator, and passionate advocate for the disabled community. Miracle’s inspiring journey began as a NICU Miracle herself, born at just 23 weeks and weighing only 1 pound, 12 ounces—later dropping to 14 ounces. Despite being given only a 5% chance of survival, Miracle defied the odds, living up to her name and thriving in ways that continue to inspire those around her.Today, Miracle is best known for her work on Nickelodeon’s Bella and the Bulldogs, Con Man with Alan Tudyk, and as the voice of “Lily,” the first American Girl Doll with Cerebral Palsy, in the American Girl Doll: The Travel TwinsYouTube series. Her career and advocacy stem from a pivotal moment at age 12 when she realized the need for authentic representation of disabled characters in media and vowed to make a change.On today’s episode:Miracle shares her personal journey as a NICU survivor and how she overcame incredible odds to live a thriving life.The origin story of her name and what her parents endured during her NICU stay.Key therapies and resources that were instrumental in her development.Her advice for parents navigating special education programs for their children.How she broke barriers to build a career in acting and modeling as a person with a disability.A glimpse into her current life and her mission to inspire hope and advocate for authentic representation in the media.Encouraging words for parents currently walking through the NICU journey.Miracle’s story is one of resilience, representation, and hope. Her advocacy reminds us of the power of believing in the impossible and championing a world where everyone’s unique journey is celebrated. This episode is a must-listen for anyone seeking inspiration and insights into navigating life’s challenges with strength and purpose.

In this episode of the NICU Today Podcast, we are joined by Chloe Ciferri, Co-Founder and Executive Director of the Adalyn Rose Foundation, a national nonprofit dedicated to supporting families who experience the loss of a child during pregnancy, infancy, or early childhood. Inspired by her own loss of her daughter Adalyn in 2017, Chloe and her husband, Adam, launched the foundation on what would have been Adalyn's second birthday. Chloe has since dedicated her life to helping families navigate the unimaginable, leaving her teaching career to lead the organization full-time.Chloe is also a proud mother to three living children: TJ (6), Enzo (5), and Elle (3). Her work through the Adalyn Rose Foundation focuses on providing comprehensive and continuous care for grieving families, offering hope and resources during one of life’s most challenging experiences.On today’s episode:Chloe shares her family’s story, including the profound impact of losing Adalyn.The founding of the Adalyn Rose Foundation and the initiatives inspired by Chloe’s personal journey.A look into the programs and resources the foundation offers to support grieving families.Advice for families navigating the loss of a child and finding a path forward.How the Adalyn Rose Foundation collaborates with hospitals and how families can access assistance, regardless of where they deliver.Insights into Chloe’s mission to ensure no family grieves alone and her vision for the future of the foundation.Chloe’s story and the work of the Adalyn Rose Foundation shine a light on the power of turning personal grief into a mission of support and healing. This heartfelt episode offers education, empathy, and a message of hope to families and advocates alike.

In this episode of the NICU Today Podcast, we are joined by Jessica Dashevsky, a mental health provider specializing in perinatal care, who brings a unique blend of professional expertise and personal resilience to her work. Jessica’s journey to motherhood includes profound challenges—five pregnancy losses, a complicated rainbow pregnancy, the trauma of NICU life, and navigating her own postpartum health struggles. Through these experiences, Jessica has dedicated herself to supporting families facing fertility challenges, pregnancy loss, and perinatal mood disorders.Jessica’s professional background includes overseeing the Maternity Care Coalition's Family Therapy program, as well as extensive training with Postpartum Society International and the American Society of Reproductive Medicine. Her story of hope and perseverance is both inspiring and educational.On today’s episode:Jessica shares her family’s journey to starting a family, including the emotional toll of pregnancy loss and fertility treatments.Her experience navigating a high-risk pregnancy and the birth of her NICU miracle, Vera.Coping with her own health challenges postpartum while balancing the needs of her older child during the NICU journey.How her expertise in perinatal mental health informed her perspective during these challenges.Vera’s progress today and how early intervention has played a role in her journey.Advice and insights for families facing similar struggles.Jessica’s story is a testament to the strength of families navigating complex medical journeys and the importance of mental health support in these moments. This episode is a must-listen for anyone seeking understanding, hope, and guidance in the face of fertility and NICU challenges.

In this episode of the NICU Today Podcast, we are joined by Stephanie Lee Jackson, founder of Practical Sanctuary, Sensory Interior Design, where art and healing merge to transform spaces into supportive environments for all neurotypes. With a background as an internationally exhibited fine artist and a massage therapist specializing in pain relief, Stephanie brings a unique perspective on how neuroscience can shape interior design to promote focus, healing, and emotional regulation.Stephanie’s mission stems from her personal connection as a highly sensitive person with friends and family on the autism spectrum. Her upcoming book, The Eccentric Genius Habitat Intervention: Interior Design for Highly Sensitive People, is set to release in 2024 and explores creating spaces tailored to individual needs.On today’s episode:Stephanie shares the personal and professional journey that inspired her work in sensory interior design.Defining neurodiversity and why inclusive design matters.Exploring the connection between your environment and your health.How Stephanie helps families design spaces that support neurodivergent needs.The benefits adults can gain from making intentional changes to their surroundings.Challenges with universal standard design and how to overcome them.Insights into how design can impact learning, relationships, and emotional well-being.Stephanie’s expertise highlights the transformative impact of sensory-focused design, offering practical strategies to create spaces that promote healing, connection, and inclusivity for individuals of all neurotypes. This episode provides valuable insights into how intentional design can improve well-being and foster supportive environments for everyone.

In this episode of the NICU Today Podcast, we are joined by Dr. Kristin K. Meyer, a dedicated advocate, educator, and leader in special education. As co-founder of The REACH Group and with over 15 years of classroom experience, Dr. Meyer empowers parents to navigate the often-complicated special education process. From her work as an Educational Advocate at The Arc of Chester County to serving as Program Supervisor at Vanguard School, she has committed her career to ensuring positive educational outcomes for students with disabilities.On today’s episode:Dr. Meyer shares the personal and professional journey that inspired her advocacy work.Explaining the difference between Early Intervention services and the Intermediate Unit.Recognizing how developmental delays impact physical, social, and emotional behaviors.Identifying early signs of academic struggles in children and differences between boys and girls.Key questions parents can ask to stay actively involved in their child’s education.Tips for forming strong partnerships with school teams during the early school years.Discussing whether parents can be "too proactive" and the importance of timely evaluations.Dr. Meyer’s insights on advocating for families and fostering positive educational experiences.Dr. Meyer’s wealth of knowledge provides parents with the tools and confidence to advocate for their children and build collaborative relationships with educators. If you’re navigating Early Intervention, special education, or IEP processes, this episode is a must-listen.

In this episode of the NICU Today Podcast, we’re thrilled to welcome back Dr. Stefanie Lopacinski, Licensed Clinical Social Worker and founder of Women’s Wellness of Abington. With nearly 20 years of experience in supporting women through reproductive, perinatal, and postpartum life changes, Dr. Lopacinski is a trusted expert and returning guest. Today, she joins us to discuss the unique challenges NICU families face during the holiday season, sharing compassionate advice for navigating the emotional complexities that arise.On today’s episode:Dr. Lopacinski offers support for parents spending their baby’s first holiday in the NICU.Tips for managing family expectations, from navigating texts and messages to handling requests for NICU visits and FaceTime calls.Balancing time between the NICU and children at home, especially during the busy holiday season.Advice for families who want to celebrate but aren’t ready for visitors if their baby is home before a holiday.Ideas for couples looking to stay connected with loved ones while focusing on their immediate family’s needs.Key advice for NICU parents seeking peace and balance through the holiday season.Tune in for Dr. Lopacinski’s insightful guidance on maintaining connection and emotional well-being during the holidays, even in the midst of a NICU journey. Whether you’re a NICU parent or a loved one seeking ways to offer support, this episode provides valuable tools for navigating the season with care.

In this episode of the NICU Today Podcast, Martha is joined by Chelsea Petrosky, a Certified Trauma Therapist with over 13 years of experience supporting survivors of trauma. Chelsea is the founder of Chelsea Petrosky Therapy, LLC, where she offers EMDR Therapy and Trauma Healing Services, focusing on survivors of complex trauma, intimate partner abuse, maternal and pregnancy trauma, birth trauma, and traumatic grief. Chelsea is also a NICU mom, having navigated the NICU journey with her youngest son, Nathaniel, who is now two years old. Her personal experiences as a mother drive her commitment to supporting others through pregnancy and birth-related trauma.On today’s episode:Chelsea shares her family’s personal journey through the NICU with her son Nathaniel.Daily resilience: How Chelsea coped with the emotional challenges of being in the NICU and her advice for others currently going through the experience.Career insights: Chelsea discusses her path to becoming a trauma therapist and why this work is so important to her.Understanding EMDR: Chelsea explains Eye Movement Desensitization and Reprocessing (EMDR) therapy and how it aids in trauma healing.Deciding if EMDR is right for you: Tips for those considering EMDR therapy and insights on who may benefit from this treatment.Resources for trauma healing: Information on where listeners can learn more about Chelsea’s practice and the support she offers.Join us for an enlightening conversation with Chelsea, offering practical guidance and hope for NICU parents and trauma survivors alike. Whether you’re interested in trauma therapy or looking for support in the NICU journey, this episode provides meaningful insights and inspiration.

In this episode of the NICU Today Podcast, Martha is thrilled to welcome Kerri DiDario, Executive Director of the Eastern Pennsylvania Down Syndrome Center and proud mother of three. Kerri’s journey into motherhood began in 2004 when her firstborn daughter, Madison, was born seven weeks premature. This experience not only introduced her to the complexities of the NICU but also set her on a path of raising a medically complex child and planning for Madison’s future as an adult who will continue to rely on her family for care. On today’s episode:  • Kerri shares the story of her early family life and the NICU journey with her daughter Madison.  • Life after the NICU: Kerri discusses the challenges and adjustments of bringing home a medically complex child after relying on round-the-clock care in the NICU.  • Growing the family: How Kerri balanced the demands of raising two more children while caring for Madison.  • Current updates: Kerri talks about how her children are doing today and the ongoing care and planning for Madison’s future.  • Planning ahead: Insights into how Kerri and her husband are preparing for Madison’s adulthood and the long-term care she will need.  • Advice for other families: Kerri offers practical advice for parents facing similar journeys.  • A shift in career: How Kerri’s personal experiences inspired her transition into the non-profit sector, focusing on supporting families like hers.  • Learn more: Information on where listeners can connect with the Eastern Pennsylvania Down Syndrome Center. • Parting wisdom: Kerri’s biggest piece of advice for NICU families and others facing similar challenges. Join us for a powerful conversation that explores the intersections of family, advocacy, and career, and offers invaluable insights for parents, caregivers, and anyone invested in supporting families through difficult medical journeys.

On today's episode of NICU Today: A podcast by Today is a Good Day, Martha sits down with Matt Zalucki, a new father who recently relocated from upstate New York to Knoxville, Tennessee. While on vacation 1100 miles from home, their start to parenthood took an interesting twist. Matt is here to share more about their family’s journeyOn today’s episode:- Matt shares the unexpected twist in their journey to parenthood that began while on vacation, 1100 miles from home.- Understanding HELLP Syndrome: Matt discusses the life-threatening complications his wife experienced and how it impacted their family.- Navigating the unknown: How Matt and Kaylee managed the stress of dealing with a new health system in a new town, and the ways Matt advocated for his wife and newborn daughter, Amelia.- Transitioning care: The story behind Amelia’s transfer back to their home hospital.- Focusing on fatherhood: Matt opens up about his experience as a new dad in the NICU, offering advice for other fathers facing similar challenges.- Life after the NICU: How Amelia is doing today and what life looks like for the Zalucki family post-NICU.- Lessons learned: Matt reflects on the biggest takeaways from their NICU journey and shares valuable advice for parents navigating the aftermath.Join Martha for a heartfelt episode that delves into the emotional and practical realities of parenting through medical challenges. Whether you’re a parent, a healthcare professional, or someone who values stories of resilience, this episode offers a poignant look into one family's journey through the unexpected.

In this powerful episode of the NICU Today Podcast, Martha sits down with Jodi Laughlin and Julie Jacobs Shapiro, two incredible women who have turned their personal tragedies into beacons of hope and support for others.Jodi shares the heart-wrenching journey of her pregnancy, where joy quickly turned into a fight for survival after her daughter was diagnosed with Hydrops Fetalis, a rare and serious fetal condition. Despite the odds and the emotional toll, Jodi and her husband found a way to channel their grief into something beautiful: Noelle’s Light. This non-profit organization provides much-needed financial support to families facing life-threatening fetal or congenital diagnoses, offering them hope and reminding them that they are not alone in their darkest moments.Julie Jacobs Shapiro also opens up about her own experience of loss and the unexpected challenges that came with it. Faced with the overwhelming task of managing the “business side” of her daughter’s life, Julie found herself struggling with anger and frustration over the lack of emotional understanding from the medical community. In honor of her daughter, Julie created Aubrey’s Advocate, an organization dedicated to helping families navigate the complexities of insurance claims, medical care, and the emotional aftermath of loss.Together, Jodi and Julie discuss the importance of advocacy, the healing power of community, and how they continue to honor their daughters by supporting others through their organizations. This episode is a testament to the resilience of the human spirit and a reminder that even in the darkest times, there is a light that can guide us through.

In this episode, I am thrilled to introduce our guest, Regina Clark, a Lehigh Valley NICU Family Advocate with Today is a Good Day. Regina works directly with families navigating the NICU journey, drawing on her decade of experience as a Special Education Teacher and her personal experience as a mother of two preemies.On today’s episode:- Regina shares her personal NICU journey, including the 106-day stay with her first-born who arrived 14 weeks early.- Discussing the biggest struggles she faced during her time in the NICU and how she got through each day.- Insights into the discharge process and what follow-up appointments entailed.- Transitioning from the NICU to Early Intervention and what steps parents should take post-NICU.- Entering school and understanding Individualized Education Plans (IEPs) with advice for parents seeking extra support for their child.- The role of parents in the IEP process and how involved they can be.- Additional advice for parents navigating similar challenges.Join us for an inspiring episode that highlights Regina's dedication to supporting NICU families and her invaluable insights from both her professional and personal experiences. Whether you're a parent in the NICU, a healthcare professional, or someone interested in family advocacy, this episode offers essential support and guidance.

In this episode, I am excited to introduce our guest, Dr. Marilyn Pendleton, a transdisciplinary leader and the founder and CEO of Your Voice Heard, LLC. Dr. Pendleton utilizes The Grief Recovery Method® and other holistic approaches to equip leaders and organizations with skills to promote mental health and well-being.On today’s episode:Dr. Pendleton shares what led her to this line of work and how she supports families.Insights into her company, Your Voice Heard, including the origin of its name and the services it offers.The definition of grief and its relevance to the NICU journey, including early delivery, pregnancy loss, and infant loss.An in-depth look at The Grief Recovery Method and how it helps individuals navigate through grief.Identifying signs of an unhealthy response to grief and when to seek professional support.Healthy ways to experience grief and strategies for coping with waves of grief.Guidance on helping children navigate grief when a sibling is born prematurely or needs to spend time in the NICU.Join us for an enlightening episode that highlights Dr. Pendleton's dedication to helping people move beyond significant emotional losses and realize their life's purpose. Whether you're a parent in the NICU, a healthcare professional, or someone experiencing grief, this episode offers valuable support and strategies.

In today’s episode, Martha sits down with Dr. Allison Keen, a board-certified obstetrician and gynecologist at Philadelphia Women's Health & Wellness. With an impressive career spanning 17 years, Dr. Keen brings a wealth of experience and a deep commitment to patient advocacy to our conversation.Dr. Keen shares the story of her journey into Obstetrics and Gynecology, tracing her path from the University of Denver to Drexel University College of Medicine and beyond. As Martha explores her career trajectory, listeners will gain insight into the motivations and experiences that have shaped Dr. Keen's approach to patient care.Throughout the discussion, Dr. Keen offers valuable advice and insights on a range of topics:She provides guidance for first-time pregnant patients, drawing on her expertise to address common concerns and offer reassurance.Dr. Keen discusses symptoms to be aware of during pregnancy and emphasizes the importance of proactive communication with healthcare providers.Martha dives into post-delivery care and NICU admission protocols, with Dr. Keen sharing recommendations for ensuring continuity of care and advocating for patients' needs.As Dr. Keen transitions from delivering babies to supporting patients in the next phase of their lives, she offers guidance on family planning and postpartum care.Finally, Dr. Keen shares a meaningful moment from her career, highlighting the profound impact of patient care on both physicians and families.Join Martha for an engaging conversation with Dr. Allison Keen, as they explore the challenges and rewards of obstetric and gynecological care and gain valuable insights into patient advocacy and compassionate healthcare delivery. Whether you're a parent-to-be, a healthcare professional, or simply interested in the field, this episode offers something for everyone.

In this episode, I am thrilled to introduce our guest, Jenné Johns, MPH, a national health equity thought leader, author, and advocate for reducing healthcare disparities. Jenné wrote "Once Upon a Preemie," a groundbreaking children's book for parents of preemies in the NICU, inspired by her own experience advocating for her son.On today’s episode:Jenné shares her personal NICU experience and how she advocated for herself and her son.Advice for families navigating the NICU.The inspiration and process behind writing "Once Upon a Preemie."Information on where listeners can order her book.Discussion on her non-profit organization and the launch of the first Health and Racial Equity e-Learning Training program for healthcare providers.Details on the e-learning program, who can participate, and where to learn more.Reflecting on her NICU experience, Jenné shares what she wishes she had known during her stay.Her biggest piece of advice for NICU families.Join us for an empowering episode that highlights Jenné Johns' dedication to improving health equity and supporting NICU families. Whether you're a parent, healthcare professional, or advocate, this episode offers valuable perspectives and resources.

In this episode, I am thrilled to introduce our guest, Colette, the co-founder and executive director of the Breastfeeding Resource Center (BRC). Since 2003, Colette has dedicated herself to providing accessible and equitable lactation support through the BRC, ensuring no family is left without assistance.On today’s episode:Colette shares the inspiration behind founding the BRC and how it has evolved over the years.We discuss why pumping is essential in the NICU and what parents can expect in the first few days.Colette offers advice for parents of extremely premature babies facing challenges in milk production.Insights into Pump Flange Sizing and how to size at home.Emotional tips for connecting with your baby while pumping and advocating in the NICU.The importance of skin-to-skin contact and transitioning to breastfeeding.Handling pumping after a loss and options like weaning and donating milk.Colette's "WHY" – her motivation for continuing this vital work.Join us for an insightful episode that highlights Colette's dedication to improving lactation support and healthcare equity. Whether you're a parent in the NICU, a healthcare professional, or someone interested in lactation, this episode is a valuable resource.

In this episode, I am thrilled to introduce our guest, Colleen Weimer. Colleen is not only a devoted mother but a beacon of strength and resilience in the face of adversity. Her journey with her son, Sully, born at 30 weeks and weighing a mere 2lbs 3oz, is an inspiring tale of triumph over the challenges of prematurity and a rare heart condition known as transposition of the great arteries.Our introduction to Colleen's story takes us through the 158 days spent in the hospital, where Sully, a tiny warrior, underwent open-heart surgery at just 5 weeks old. Colleen is here to share the details of their incredible journey.On today’s episode:Colleen delves into where their remarkable journey began, offering insights into the early days of Sully's life.Colleen shares her invaluable advice for families facing challenging diagnoses, drawing from her own experience and wisdom gained along the way.Colleen sheds light on the importance of building relationships with healthcare professionals and provides recommendations for others looking to establish strong connections with their caregiving team.Recognizing the non-linear progress in the NICU, Colleen discusses how she and her family managed the ups and downs, embracing the unpredictability of their journey.Colleen reflects on her experience bonding with Sully, offering a glimpse into the special moments that strengthened their connection.Colleen shares how she found hope each day, even during the most challenging times, and offers encouragement to others navigating similar journeys.Colleen explores the dynamics of bringing Sully home, managing visits from family and friends, and navigating the delicate balance of protecting Sully from germs.Colleen leaves our listeners with her most significant piece of advice for families navigating the NICU or CICU, imparting wisdom from her unique journey.Join us for an emotionally charged episode that unveils a story of courage, perseverance, and the enduring power of hope. Colleen Weimer's journey is a testament to the resilience of the human spirit, and her insights offer support and inspiration to families facing similar challenges. Whether you're a parent, a healthcare professional, or someone seeking a story of triumph, this episode is a must-listen.

In this episode, we're honored to have Crystal Zukosky, a dedicated mother and aspiring family attorney, as our special guest. Crystal, a mom of two boys aged 18 and 2.5, brings a unique background in hotel restaurant management and culinary arts. Currently pursuing a Law and Society degree at Penn State University online, Crystal is actively involved in advocating for changes in Pennsylvania law to allow parents to be paid caregivers for their minor medically complex children.Join us as we chat with Crystal about:Crystal's family dynamics and her journey as a mom of two boysHer awareness of the NICU before her experience with her son, WillThe initial days in the NICU and how she coped with the challengesNavigating the emotional rollercoaster of the NICU journeyCrystal's advocacy efforts for her son and the support she receivedPractical strategies for keeping track of notes and reports from medical professionalsWill's extended NICU journey, including the surgery for a tracheostomy and the transition homeValuable advice for parents facing a similar journey in the NICUCrystal's involvement in advocating for legislative changes and the bill she's working to passAn update on how Will is doing todayWe're delighted to welcome Crystal Zukosky to share her inspiring story and insights into the NICU experience and the journey of caring for a medically complex child.

In today's episode, we're thrilled to have Ashlee Adams, a licensed clinical social worker passionate about supporting infants and their parents, as our special guest. Ashlee's journey includes a master’s degree in social work from the University of Pittsburgh, with specializations in direct practice and integrated health. With experience in community, hospital, and private practice settings in Pittsburgh, Philadelphia, and New York City, Ashlee currently focuses on postpartum mental health and parenting in her private practice.Join us for an insightful conversation with Ashlee as she shares: Ashlee's background and her deep-rooted passion for working with infants and their familiesIdentifying the most significant challenges parents face in their journeyPractical advice for NICU parents feeling isolated in the midst of various struggles, from sleep deprivation to feeding issuesExploring the gaps in care for parents during and after the NICU experienceNavigating relationships in the face of adversity, drawing from personal experiencesAddressing the common feelings of isolation and inadequacy in parents and providing supportExamining the challenges faced by both moms and dads in the NICU journeyAshlee's key piece of advice for parents navigating the NICU experienceTune in for an honest and informative discussion with Ashlee Adams as we delve into the challenges and support systems for parents in the NICU journey.

In today's episode, we're pleased to have Tracy Warren, co-founder and CEO of Astarte Medical, as our special guest. Tracy's extensive experience as a healthcare venture investor and her commitment to women's and children's health make her a valuable voice in the industry.Join us as Tracy shares insights into her background and how her focus on nutrition developed, particularly in the Neonatal Intensive Care Unit (NICU). In this conversation:Tracy sheds light on the often-overlooked topic of nutrition for babies in the NICUWe discuss the different types of nutrition crucial for the growth of premature infantsExplore the important questions NICU families should ask regarding their baby's nutritionUnderstand how families can track their baby's progress and ensure they are on the right developmental pathLearn about the collaborative efforts of the medical team in shaping a baby's nutrition in the NICUTracy provides practical recommendations for families actively participating in their baby's nutritional journeyTune in for an informative chat with Tracy Warren, where we break down the complexities of neonatal nutrition in the first 1000 days of life.

In this episode, we are honored to welcome our special guest, Quinn Forster, who, along with her husband, both come from large families and always dreamt of building a big family of their own. With three children and seven years of marriage, their journey to parenthood has been nothing short of remarkable, brimming with unexpected twists and turns. Quinn is here to share her family's incredible story, which includes multiple stays in the Neonatal Intensive Care Unit (NICU).On today's episode:Quinn shares her family's extraordinary journey to parenthoodQuinn opens up about the stark differences between their first NICU experience and their third stayWhen reflecting on her family's NICU journey, Quinn imparts invaluable advice for other families going through similar challengesQuinn shares her insights into how she learned to ask the right questions, empowering her and her family throughout their NICU experiencesDiscover Quinn's recommendations for other families on how to cultivate a strong and supportive relationship with the medical teamQuinn sheds light on the practical aspects, explaining where she and her family kept track of crucial questions, reports, and updates from the medical teamQuinn shares an update on how her beloved little ones are doing todayJoin us for a touching and insightful conversation as we dive into Quinn's family journey through the NICU and the valuable lessons and experiences they've gathered along the way.

In this episode, we are thrilled to introduce our special guest, Roxy Romeo, a radio veteran with a nationwide presence, whose warm and relatable personality has won her the hearts of listeners across 63 markets, including Miami, Houston, Atlanta, and Detroit. Despite her national success, Roxy remains the friend you've always wanted to have. Born and raised in Miami, she kickstarted her radio career with a Sunday morning 6 am shift. Today, she's a prominent figure in Philadelphia, co-hosting the Rise + Grind Morning Show on Power 99.Roxy's connection with Today is a Good Day stems from a personal journey through the Neonatal Intensive Care Unit (NICU). In this episode, she graciously shares her family's experiences and emotions during their path to starting a family, including the challenges and triumphs they faced along the way.On today’s episode:Roxy shares her journey with starting a familyRoxy opens up about the feelings and emotions she felt when her sweet miracle ended up in the NICURoxy discusses the steps she took to become a part of her daughters care team and build a good relationship with the medical teamRoxy shares how she found a balance between home and the NICURoxy talks about her life Post-NICU with appointments, early intervention, and seeing specialistsRoxy opens about the guilt she faced and working through it today Roxy shares how she transitioned back to work and what that looked like for herRoxy shares a beautiful update about her daughter today

In this episode, I’m excited to introduce our extraordinary guest, Adam Wood. With a captivating journey that's both inspiring and impactful, Adam brings his unique perspective as a retired U.S. Army veteran, a devoted NICU Dad, and a published author who's authored three heartwarming children's books centered around prematurity and the NICU. Adam's story is a testament to the resilience and strength of fathers in the NICU, and we can't wait to share it with you.Adam's journey into fatherhood and the NICU is a story of determination, hope, and love. Join us as he shares the heartwarming tale of his family's path to parenthood, filled with trials and triumphs.On today’s episode:Adam's personal journey to starting a family, a journey that's bound to resonate with many.A deep dive into Adam's NICU experience, painting a vivid picture of the unique challenges and emotional moments he encountered.The biggest struggle he faced during his NICU journey and how he navigated through it, offering invaluable insights for others.Advice from Adam for fathers who are just embarking on their NICU journey, gleaned from his own experiences.Reflections on the lessons learned, as Adam shares what he knows now that he wishes he had known back then.Insights into why Adam decided to focus on the Dad's experience and the impact he's making through "Our Preemie Adventures."A look at his book series and how these heartwarming stories have provided support and hope to families navigating NICU life.Details on where you can find Adam's books, in case you're seeking a source of inspiration during your NICU journey.An update on how Adam's son is doing today, a story that's bound to warm your heart.Adam's dedication to supporting families, especially NICU Dads, shines through in his work and public speaking. His efforts to shed light on the unique challenges that men face during and after the NICU journey are truly commendable.

In this episode, I am honored to introduce my distinguished guest, Dr. Melinda Elliott. Dr. Elliott is a seasoned neonatologist and serves as the Chief Medical Officer for Prolacta Bioscience, a company dedicated to advancing the well-being of premature infants. Her extensive career in neonatology has touched the lives of countless families, and her dedication to improving neonatal care is truly inspiring.My introduction to Dr. Elliott occurred during a special tour of the Prolacta Bioscience Facility in Los Angeles, California. I was immediately struck by her passion for neonatology and her commitment to the littlest members of our society. A West Virginian at heart, Dr. Elliott's roots run deep, and her love for babies has been a guiding force throughout her medical journey.On today’s episode:1. Dr. Elliott's compelling background and her path to becoming a neonatologist.2. The paramount importance of nutrition in the NICU for premature infants, shedding light on a vital aspect of neonatal care.3. Delving into the profound concept that "breast milk is medicine" and understanding its transformative role in the NICU.4. Offering guidance and support for parents who face the unique challenges of breastfeeding or pumping in the NICU, drawing from Dr. Elliott's wealth of experience.5. Exploring the groundbreaking work carried out at Prolacta Bioscience, particularly their advancements in Human Milk Fortifiers and the remarkable health benefits witnessed in preemies on an exclusive human milk diet.6. Equipping parents with valuable insights on advocating for their baby's needs in the NICU, even in hospitals without Human Milk Fortifiers.7. Additional tips and advice for families navigating the complexities of the NICU journey, coming from a distinguished expert in the field.Join us for an insightful and heartfelt conversation that illuminates the transformative work being done to provide premature infants with the best possible start in life. Whether you're a parent, a healthcare professional, or simply curious about the world of neonatology, this episode offers a unique opportunity to learn from Dr. Melinda Elliott's expertise and passion for neonatal care.

Today, we have a special guest, Dr. Stefanie Lopacinski, a seasoned Licensed Clinical Social Worker with nearly two decades of experience in individual, couples, and group therapy. Dr. Lopacinski is the proud owner of Women's Wellness of Abington, a private practice that recently celebrated its second anniversary. Her specialty lies in providing support for female patients navigating the challenges of Reproductive, Perinatal, and Postpartum life changes.On today’s episode:Dr. Lopacinski sheds a light on the often daunting task of finding the right therapistDr. Lopacinski provides insight into the questions you should ask yourself before embarking on your therapist search, as well as the crucial questions to pose to potential therapistsUnderstanding the various credentials therapists hold is vital, and Dr. Lopacinski breaks down what these credentials meanDr. Lopacinski touches on different therapy modalities and which one she primarily uses in her practiceWe explore the timing of therapy and whether there's ever a "perfect" moment to begin your journey to improved mental healthDr. Lopacinski leaves you with some last-minute suggestions and tips for finding a therapist that suits your unique needs.Finding the right therapist is a crucial step in your mental health journey, and Dr. Lopacinski's expertise will help you make an informed choice.Please subscribe to the NICU Today: A podcast by Today is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel.

In this heartfelt and inspiring episode, we are joined by an extraordinary guest, Danielle Mundondo, who has faced remarkable challenges with unwavering strength. Her family's story is one of resilience, love, and the indomitable human spirit. Danielle shares her family's incredible journey towards starting a family, which led them to the NICU, CCNICU, and PICU with their three daughters.On today’s episode: Danielle discusses the distinct experiences in the NICU, CCNICU, and PICUHow Danielle advocated for her children in these different situationsDanielle talks through how she navigated having older children at home while constantly going back and forth to the hospitalDanielle shares the strategies and support that helped her make it through each dayWhat medical equipment Danielle had access to at homeDanielle opens up about her most significant piece of advice for families navigating the journey with medically-complex children, drawing from her own experiencesDanielle's family also has a genetic heart condition, and she opens up about how this has shaped their lives and influenced the relationship between her daughtersDanielle discusses losing her own mother to the same heart condition when she was a baby and how she manages the emotions she faces as she watches her own daughterWe get an update on how Danielle's daughters are doing today, showcasing the strength of their family and their remarkable bond. Join us as we listen to Danielle Mundondo's story, a tale of unwavering love, tenacity, and the power of family in the face of adversity.Please subscribe to the NICU Today: A podcast by Today is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel.

Welcome to the Today is a Good Day Podcast. In this episode, we explore the incredible power of finding strength through tragedy and using difficult experiences to drive philanthropy. When life takes unexpected turns, many of us yearn for ways to give back and help others in our communities. Whether you've experienced a traumatic event or are simply eager to make a difference in the world, this episode offers inspiration and insights into various paths for philanthropic endeavors.We are joined by three remarkable individuals who have harnessed their personal journeys to make a positive impact: Paul Isenberg - Founder of Bringing Hope Home, Alexia Doumboya - Founder of Cocolife.black and Tracy Ashdale - Founder of Girls on the Run Montgomery County Chapter. On today’s episode: Each guest tells us a little about themselves and why they founded their organizationsAfter a personal tragedy, Paul dedicated himself to supporting a larger non-profit organization. He shares how he found purpose in this work and his transition to starting Bringing Hope Home.Alexia discusses how she recognized a gap in care for mothers and embarked on a mission to fill it. She tells us about the inception of her organization and how she developed its innovative programs.Tracy explains her motivation for founding the local chapter of Girls on the Run and highlights the opportunities to launch chapters for various non-profit organizations.These extraordinary individuals have all launched their own organizations, but they emphasize that there are numerous ways to get involved in philanthropy without starting a new non-profit. They share valuable advice for those who want to give back but don't know where to begin.Don't miss this episode of the Today is a Good Day Podcast as we explore the transformative power of turning life's challenges into opportunities for positive change.Please subscribe to NICU Today: A podcast by Today is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel.

In this emotionally charged and deeply inspiring episode, we explore the transformative journey of Darren Sudman, a remarkable individual who, in the face of profound personal loss, channeled his grief into creating a national nonprofit that has touched countless lives. Join us as we sit down with Darren, founder of Simon’s Heart, a close friend and mentor, who has a unique and powerful story to share.On today’s episode:Darren reflects on those unforgettable moments in the NICU, the raw pain of loss, and the challenging days, weeks, and months that followed the tragic passing of his child, Simon. Darren shares how he and his wife, Phyllis, began the inception of their groundbreaking nonprofit, Simon's Heart.Join us as we explore the question that Darren is most frequently asked: what it's like to be a "loss dad" and how he has navigated this unique and challenging role. Hear his insights on communicating about their loss with their other living children, a topic that many families facing similar circumstances grapple with.With almost two decades passed since the loss of their son, Simon, Darren gives us a candid glimpse into where his grief stands today. Darren shares how he keeps Simon's memory alive and the world of "What ifs" he now resides in, as they didn't have the chance to create memories with their children.For those going through a similar journey, Darren offers heartfelt advice and guidance. His wisdom is rooted in his own experiences and his dedication to supporting others in their moments of heartbreak and hope.Join us for an episode that is sure to touch your heart, inspire you to give back, and remind us all that even in the world of "What ifs," there is room for healing, hope, and making a positive impact on the lives of others.

Navigating your baby’s health after discharge can be overwhelming. Our guest today will help us navigate the post-NICU experience with determining priorities and staying organized with post-NICU life. Dr. Kate Chappell is an Associate Professor with the University of South Carolina, College of Nursing and is a Pediatric Nurse Practitioner. She received her PhD in Nursing from the University of South Carolina and has been a nurse for nearly 20 years. She worked in the Pediatric Intensive Care setting and as a Nurse Practitioner in Pediatric Neurology and Forensics and Child Abuse. She has been part of the nursing faculty since 2007, teaching nurses and nurse practitioners. Her research and practice interests include family and healthcare provider vigilance for child abuse, creating equitable access to resources, integration of social determinants of health in nursing education, and resource support for children with specific healthcare needs. She serves as the Advocacy and Policy Chair for the Developmental, Behavioral, and Mental Health Special Interest Group in the National Association of Pediatric Nurse Practitioners. She is also the co-Program Director, alongside Dr. Victoria Davis, for two South Carolina based programs funded by US Dept. of Health and Human Services. One program, called Childcare Ready for All (or CRAwl), focuses on providing health need focused training and support for daycare and family care providers for children with a variety of health needs. The other program is BabyCoach, which focuses on providing nurse coaching support for families who have a baby leaving NICU or Special Care Nursery. Dr. Chappell is passionate about families feeling the emotional and material support they need to care for their child and feel secure in the care others are providing, to help families grow and stay strong and support the best outcomes for their children.On this episode you we discuss the following topics: • How Kate got into this line of work (in the Neonatal Intensive Care Unit);  • When families graduate from the NICU, it can be overwhelming to manage all of the follow-up appointments. How Kate determines priorities for care and follow-up appointments;  • Kate's advice for families on how to stay organized for their follow up appointments;  • If families need help with finding specialists, who they should contact for help after graduating from the NICU;  • Government and insurance funded programs available for families to look into; • The role of non-profit health & development organizations and programs to facilitate referrals and services;  • The resources available to support mom and baby;  • The roles of a case manager, NICU nurse, post-NICU nursing support/visiting programs, and how families know what these different roles can offer to support them; and, • The one piece of advice Kate gives to NICU families? If you enjoyed this episode, please subscribe to NICU Today: A podcast by TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel, and share our podcast with someone who may need it.

Some families move from the NICU (neonatal intensive care unit) to the PICU (pediatric intensive care unit) during an extended hospital stay. What is the Pediatric Intensive Care Unit? How do you manage an extended NICU and PICU journey? Today’s guest will share more about her family’s journey with their 26-weeker, Eli, navigating from an extended stay in the NICU to their journey in the PICU and beyond. Karen Johnson is a Nigerian born and raised, naturalized American with 20+ years of professional experience in the field of Information Technology. As she will share with you, though, none of her life’s experiences could have prepared her for the journey with her son, Eli.On this episode you will hear: • You will hear about Karen Johnson's pregnancy journey and how it affected her family; • Karen experienced both the NICU and PICU, and she will tell you about the difference between the two; • Karen's transition to the PICU; • What helped Karen make it through each day; • The importance of journaling and writing; • How did Karen prepare to go home, after her extended stay in the NICU & PICU; • What appointments you may need to schedule before discharge; • What equipment you may need to learn about; • How to navigate all of that; • Karen's advice for other families coming home with equipment, from the NICU and PICU; • What Karen's journey looked like the past several years, with her son Eli; • Karen's biggest piece of advice for families navigating the NICU; and, • How Eli is doing today. If you enjoyed this episode, please subscribe to NICU Today: A podcast by TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel, and share our podcast with someone who may need it.

We hear about case managers supporting families in the NICU, but what is the role of a case manager and when do you need one? Also, what are social determinants of health and how do they impact a family navigating the NICU. We will hear answers to these questions and more with our guest today. Madeline Szabo is the Senior Vice President of Clinical Operations at Progeny Health, a national healthcare company dedicated to Maternity and NICU Care Management. The company serves women, infants, caregivers, and families through the milestones of maternal health — from conception and pregnancy to postpartum and parenting, with special expertise in managing premature and complex births and resulting NICU admissions. With over 25 years’ experience in the managed care arena, Madeline has developed a keen understanding of key aspects of the healthcare industry. Prior to joining ProgenyHealth, she served as Regional Director and Associate Vice President with both Molina Healthcare and Aetna. In these roles, Madeline developed and implemented programs to support lines of business that included commercial, Medicare, and Medicaid membership. Madeline earned her Bachelor of Science in Nursing from Bloomsburg University.On this episode you will hear: • You will hear about what inspired Madeline to get into this area of work; • How and when case managers get involved in a NICU case; • The role of a case manager; • Who families should connect with to ask for support, If a hospital is not working with Progeny Health; • A NICU Stay is very overwhelming for families, and they may not fully understand everything that is happening; you'll hear a discussion about what questions families should ask when they are admitted to the NICU; • We hear a lot about social determinants of health, and Madeline helps us understand what that means and how her team addresses these concerns;  • Are there resources available for families who would be outside of the Progeny network; • The community partners ProgenyHealth works with to support families; • ProgenyHealth also has a special expertise in helping families and infants affected by Neonatal Abstinence Syndrome (NAS) or Neonatal Opioid Withdrawal Syndrome (NOWS); Madeline explains these conditions and how her team responds; • There has been a lot in the news about health inequities. We’ve read that Black Mothers, for example, have 3X the rate of maternal morbidity than white women. Madeline discusses how her work helps to “level the playing field” for all individuals; • Madeline shares how you can access case management services; and, • Madeline shares general tips for NICU Parents.If you enjoyed this episode, please subscribe to NICU Today: A podcast by TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel, and share our podcast with someone who may need it.

Advocating for yourself and your baby can be challenging in the hospital. Feeling intimidated by the medical terminology and the equipment is understandable. The large team of doctors and nurses caring for your baby can be overwhelming. Today we will discuss best practices for you to speak up and be a part of the care team for your baby. We will also hear about our guest’s personal journey as a caregiver.Today ‘s guest is Dwight McBee, Senior Vice President, Chief Experience Officer and Internal Health Equity Officer at Jefferson Health. In this role, Dwight has responsibility for managing the strategic priorities for the patient experience across the Jefferson Health system and has the responsibility of establishing the structures, processes and partnerships that build trust between patients, families and caregivers.In his prior role, Dwight served for four years as the Vice President and Chief Experience Officer for Temple University Health System, overseeing strategy and operations for the Offices of Patient & Community Experience, Food & Nutrition Services and Employee Health Services.In Dwight’s early career as a critical care nurse at AtlantiCare Health System in Atlantic City, New Jersey, he successfully led in various leadership roles on the journey to achieving the 2009 Malcolm Baldrige Quality Award. He led innovations in satisfaction, employee recognition and equity programs in his role as Corporate Director.Dwight earned his Bachelors of Science (BSN) degree in Nursing from Thomas Jefferson University, his MBA from Stockton University and is certified as a patient experience professional (CPXP) from the Patient Experience Institute. Dwight serves as a youth mentor for the Philadelphia Collaborative for Health Equity (P-CHE) and Temple’s Tools for Success Summer Youth Program. He is a volunteer for the American Heart Association, Gift of Life Family House and NJ Rett Syndrome Foundation.On this episode you will hear: • What inspired Dwight to go into patient experience, as a career path; • What family centered care is and more about Jefferson’s approach to this concept; • Dwight has worked with many patients and patients’ families over the years, and he shares what the first question you should ask the medical team members is; • The best way families can advocate for their baby (or a family member in the hospital); • After a hospital stay, how you can give feedback - either positive or negative, and where you should start with giving your feedback to the hospital;  • Which team members, in a hospital, receive feedback;  • Whether someone can really make an impact by providing feedback after their hospital experience, and the reasons why feedback is important; • Dwight shares more about his family’s personal journey, and his personal experience as a caregiver advocating for his daughter; • Dwight's advice for others just starting their family’s journey, navigating through appointments and setting up in-home care; and, • The moment that made the biggest impact on Dwight's work supporting families.If you enjoyed this episode, please subscribe to NICU Today: A podcast by TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel, and share our podcast with someone who may need it.

A prenatal diagnosis is filled with unknowns, anxiety, and fears for parents. Today’s guest knows this experience personally after her son was diagnosed with a Congenital Heart Defect at just 18 weeks gestation. Sarah Banach was always passionate for child development and wanting to be a mom. While in college and graduate school she turned to childcare as her career prior to becoming a teen therapist.  • Sarah shares a little about her story of starting a family, with you;  • Sarah discusses how she managed learning about her son’s diagnosis in utero, and what steps she took to help get her through her family's feelings of uncertainty, anxiety and fear;  • Sarah discusses what her pregnancy looked like, after receiving her son's diagnosis;  • Sarah shares how she prepared for her son's arrival and the “unknowns”;  • You will hear about what helped Sarah the most during her pregnancy, to help get through each day;  • Sarah discusses what her family's journey looked like, after Mikey (Sarah's son) was born; • Sarah shares the resources that she found to be the most helpful during her pregnancy and after Mikey was born;  • Sarah discusses how her background in childcare and today, as a therapist, has helped her through this process; and, • Sarah shares advice she has for others who may be navigating a similar NICU journey. If you enjoyed this episode, please subscribe to NICU Today: A podcast by TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel, and share our podcast with someone who may need it.

Finding the right OB/GYN and high risk doctor can be a difficult process for families. When do you ask to speak with a high risk doctor? What can they help you with during a pregnancy? Dr. Jack Fitzsimmons is here to answer these questions and more. Dr. Fitzsimmons grew up in Philadelphia attending both LaSalle College HS and LaSalle University followed by medical school at Hahnemann, Abington Hospital for his residency, and Jefferson Hospital for Maternal Fetal Medicine Fellowship. He worked at various University health systems, including University of Wisconsin, University of Washington, and Allegheny University of the Health Sciences followed by time at the FDA and within the pharmaceutical industry before returning to clinical medicine in 2005 at Hahnemann. Dr. Fitzsimmons moved to Virtua Hospital in New Jersey for several years and now supports families at Temple Health and Holy Redeemer. On this episode you will hear: • What inspired Dr. Fitzsimmons to become an OB/GYN, focusing on high risk pregnancies • The difference between an OB/GYN and a high risk OB/GYN • When a family should typically seek out a high risk OB/GYN for the first time • Whether families should ask to see a doctor (like Dr. Fitzsimmons) if they are having a baby for the first time • Some of the questions families should ask when they first learn they are pregnant and continue to navigate through their pregnancy journey • Dr. Fitzsimmons' advice to families expecting multiples (for example: How serious should you take a pregnancy with multiples?) • The biggest piece of advice Dr. Fitzsimmons has for families navigating a high risk pregnancy • Dr. Fitzsimmons shares a moment/situation that impacted him the most throughout his career If you enjoyed this episode, please subscribe to NICU Today: A podcast by TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel, and share our podcast with someone who may need it.

Hearing about the NICU and becoming a NICU parent can be far from what you expect it to be. Advocating for your baby and learning how to navigate the ups and downs is important. Today’s guest knows this unique journey firsthand with her 26-weeker.On this episode you will hear: • Camille will share her journey to starting a family, with you; • You’ll hear what Camille knew about the neonatal intensive care unit before delivering prematurely, and what you should consider; • Camille will talk about what she did to advocate for her baby; • Camille discusses what was most helpful for her, when family members or friends asked how they could help; • Camille shares her advice for others who may not be sure how to ask for help from family and friends; • The NICU is a rollercoaster, Camille shares what she did to get through the difficult days; • Camille discusses her was the transition home from the NICU;  • Camille’s sweet miracle is almost a year old, Camille shares what was most challenging for her after coming home; and, • Camille shares her biggest piece of advice that she would give to other families just starting their NICU journey.Please subscribe to NICU Today: A podcast by TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel.

Parenthood is an adventure for all of us. Today’s guest knows this adventure well. Lena Young and her high school sweetheart husband are the parents to nine beautiful children including a set of twins and a set of quadruplets born nearly 8 months ago. Lena is a stay at home mom sharing her family’s adventures through her Instagram page - "Raising our Youngs." You can follow Lena at @raisingouryoungs.On this episode you will hear: • Lena's multiple NICU experiences from premature to full-term; • Lena's advice for families going through the experience of being the parent of a full-term child in the NICU; • How the experience of welcoming a full-term baby might differ from welcoming premature children into the world; • What it felt like going back into the NICU after having had a prior childbirth experience;  • Lena will discuss what is feels like taking one step forward and 2 steps backward in the NICU (Lena will share advice on how you can get through it);  • Lena experienced a miscarriage, and she shares her perspective from that experience with you; • We always say “You can cry as much as you want!” when sharing your NICU experience; today - nearly 12 years later, Martha still cries at times; Lena shares how she worked through her emotions during her NICU journey;  • Lena shares her experiences breastfeeding multiples; • When you graduate from the NICU, you can feel like you are going into this whole new “easy” chapter, but that is not always the case - Lena talks about her family’s chapter post-NICU;  • Lena talks about the transition home with her older kids; • Lena talks about the follow up appointments she has to have now that her children are are post-NICU; and, • Lena shares the biggest piece of advice she wants to give others about parenthood.Please subscribe to NICU Today: A podcast by TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel.

We have an action-packed roundtable for this episode! We are honored to welcome three incredible neonatologists who have impacted more families than they know…Dr. Eddie Chang currently serves as the Chief of Neonatology at Jefferson-Abington Hospital, but more broadly believes that it is important to build teams that care deeply about children and their families. His experience includes founding medical practices, a seed-stage healthtech venture, and a Clinically Integrated Network focused on children. Board certified in both General Pediatrics and Neonatal-Perinatal Medicine, Dr. Chang is a Castle Connolly/Philadelphia Magazine Top Doctor and also holds an MBA from the Wharton School of the University of Pennsylvania where he also studied as an undergraduate. He completed medical school at Thomas Jefferson University Sidney Kimmel Medical College and Pediatrics residency training at New York University. Finally he returned to Philadelphia where he finished his Neonatal-Perinatal Fellowship training at St. Christopher's Hospital for Children. Currently, Dr. Chang is a Clinical Assistant Professor at Jefferson and is interested in sustainable healthcare strategy, innovation, and entrepreneurship. Dr. Cindy Dembofsky went to Univ of Ct for undergraduate where she met her husband and continued at the Univ of Ct for Medical School. She came to Philadelphia in 1992 when she began her Pediatric Residency followed by her Neonatology Fellowship at Thomas Jefferson/AI duPont Children's Hospital. She joined the Crozer Health System covering the Delaware County Memorial Hospital and Crozer Chester Medical Center NICUs after fellowship in 1998. She has been Neonatology Division Chief for the Health System since 2012. She is also a member of the Delaware County Baby’s First project.Dr. Jay S. Greenspan is the Professor of Pediatrics and Emeritus Pediatric Chairman for the Sidney Kimmel Medical College at Thomas Jefferson University and Nemours. He is also a Trustee for the March of Dimes. Dr. Jay Greenspan received his undergraduate degree from Connecticut College, his medical degree at Case Western Reserve University, and his training in Pediatrics and Neonatal Perinatal Medicine at St. Christopher’s Hospital for Children and The Children’s Hospital of Philadelphia. He completed his MBA at Capella University. His research interests include neonatal pulmonary function, development and treatment. He is also involved in research on the prevention of preterm birth, healthcare reform and the medical home.On this episode: • The doctors discuss why they went into this area of focus helping NICU babies and families.  • You will hear about how the doctors encourage parents to be a part of the care team and ask the hard questions on the parents' minds, even though the NICU is overwhelming and many families feel intimidated, anxious, and isolated walking through those doors each day.  • Personal guilt about what happened with a premature birth can be difficult to work through. The doctors share how they walk parents through realizing the early delivery is not their fault. • You will hear about some resources for parents to look into to feel empowered.  • You will hear about “NICUitis” and why is it important for families to leave the NICU and take a break.  • We discuss what the doctors each tell parents when they start googling. • We breakdown the best advice for moms who need to ask for help. • We discuss advice for when families are nervous and getting ready to leave the NICU. • The doctors share their "one line" they have typically shared with families over the years to help encourage them.Please subscribe to NICU Today: A podcast TODAY is a Good Day Podcast, wherever you enjoy your podcasts!

The NICU journey can bring people into your life you never expected. I’ll never forget the day I met our next guests walking through the halls of the NICU. Melissa was wearing a Penn State sweatshirt and I said “We Are” walking past. That opened the door for us to connect with each other and we have stayed in touch for nearly 11 years. While our personal NICU journeys were different, we share a common bond of the NICU. Brett and Melissa have a special story to share of strength, determination, and dedication doing all they could do to advocate for their sons born at 24 weeks 5 days.On this episode: • Melissa and Brett share their journey with you; from pregnancy to the NICU.  • Melissa and Brett discuss how they made it through ‘one day at a time.’ • Melissa and Brett share their boys’ NICU journeys with you. • We will hear about the steps Melissa and Brett took to work through the difficult decisions. • Brett talks about his perspective as a NICU dad and his approach to the NICU journey. • Melissa and Brett share what it looked like bringing Brody and Cameron home • Melissa shares how her career changed and what it was like going back to work after 3 years. • Melissa and Brett share what co-parenting looks like for them, now that they are no longer together. • You will hear about what the boys’ therapies look like post-NICU, and how Melissa and Brett found the right specialists. • You will hear about some potential clinical trials in the NICU space, as well as how you can get into them. • Melissa and Brett offer their one piece of advice for families navigating a similar NICU journey.Please subscribe to NICU Today: A podcast by TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel.