PODCAST · arts
On Being Ill
by On Being Ill
On Being Ill is a podcast that platforms innovative thinkers working at the intersections of creativity and disability. Hosted by poet, academic, and author, Dr. Emilia Nielsen, you’ll hear conversations about illness, chronic pain, crip joy, and how we’re harnessing the capacity of our creative praxes to build worlds 𝘧𝘰𝘳 disability. In season one we ask ourselves how creative writing can help us to envision radically different futures for disabled and temporarily abled communities alike; and in Season two we talk to interdisciplinary visual artists working towards disability justice.
Episodes
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No Justice; No Health
How can being together on the land and engaging in ceremonies and healing support transformational change for people who have experienced incarceration? How can we create futures that center Indigenous perspectives and experiences of health and justice? And what examples can we look to of this...
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Where We Gather; Healing Comes
How can we support healing and create wellness in urban Indigenous settings? What role do policies and the land play in seeing that healing bloom? And how can we turn to hope and keep pushing for change when faced with the reality of systemic colonial harm? In episode two, Lyana sits down with...
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Our Communities; Our Healing
How can organizations like the Native Courtworker and Counselling Association of British Columbia support Indigenous healing in and beyond the justice system? What makes this work so vital? And what is the story behind this essential work? In this first episode of From Ceremony Up, we welcome…
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Season 6 Trailer
In Season 6 of On Being Ill we’ll be doing things a bit differently… This whole season will be a chance for you to explore a brand new podcast mini-series – From Ceremony Up, hosted by Lyana Patrick, our Podcaster in Residence. She'll present diverse Indigenous understandings of health and…
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Redefining Accessibility with Anna Veprinska
What role does noise pollution play on our embodied health and the health of the planet? How can the seemingly small act of writing poetry connect us to the biggest historical and contemporary issues? Does pain have a number? And if not, why are we still using pain scales? In this episode, Emilia...
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Listening to the Bees with Jenna Butler
How might one begin to transform a remote bush quarter in Northern Alberta into an off-grid organic farm and artist residency? Can citizen science help us keep track of ecological change? And why oh why must we listen to the bees? In this episode, Emilia sits down to discuss these questions and...
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Deconstructing Fluency Privilege with Joshua St. Pierre
How does the logic of speech pathology affect stutterers and non-stutterers alike? Can we deconstruct, unsettle, and bend fluency privilege in favour of embracing vocal difference? And how might one go about designing an interactive knowledge platform with this goal in mind? In this episode…
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Season 5 Trailer
We're back for season five of On Being Ill. This time, we sat down with three writers who ask: what might be gained, for stutterers and non-stutterers alike, by interrogating fluency privilege? Can numbers or words ever really convey the feeling of pain? And what might we hear if we stop to…
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Creating Art for the People with Moneca Sinclaire
What role can writing, reflection, and the help of a good counsellor play in a journey towards healing? How can storytelling help to complexify the field of diabetes research? And why, amidst a culture that expects self-doubt, is it so important to sometimes just say “eff this, I’m doing it...
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Cultivating Economies of Care with Angele Alook
What projects might you find in the research portfolio of an Indigenous feminist sociologist with a penchant for labour studies? Is it possible for a 6-person team to co-author a truly cohesive book on climate change? And how do we go about restoring balance in a world based in greed and excess?…
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Tracing Stories like Rivers with Lyana Patrick
Is there a connection between storytelling and wellbeing? How can we find beauty among lands and waters devastated by industry? And how does land-based knowledge and teaching defy disciplinary divisions and instead invite collaboration? In this episode, Emily sits down to discuss these questions...
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Season 4 Trailer
We're back for season four of On Being Ill! This time, we sat down with three Indigenous creatives who are working towards planetary health: Moneca Sinclaire is an artist and researcher who turns trash into interactive art for everyone to enjoy; Lyana Patrick is a filmmaker whose upcoming…
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Bending Into So Much More with Tea Gerbeza
What might it look like to bridge the mediums of poetry and paper quilling? How can pain be represented visually? And what the heck is scanography anyways? In this episode, Emilia sits down to discuss these questions and more with Tea Gerbeza, a queer, disabled, and neurodivergent poet, writer…
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Reclaiming a Future Through Music with Kate Lahey
When is it time to step back from community organizing to take care of one’s own health? What happens when you go from listening to music alone in your bedroom to performing on stage alongside your very best friends? And how does hope help to reclaim a future stolen by trauma? In this episode,...
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Ushering in a New Kind of Spiritual Health with Stephanie Blyth
How can we integrate more meaning-making into our everyday? What’s the connection between healing and spiritual health? And why is it so important to slow down and feel into something bigger than ourselves? In this episode, producer Emily Blyth sits down to discuss these questions and more with…
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Season 3 Trailer
We're back for season three of On Being Ill! This time ‘round we’ll speak with three guests who are using creativity to steer their emerging careers: poet and paper quilling artist Tea Gerbeza; musician, writer, and academic Kate Lahey; and spiritual health practitioner Stephanie Blyth. We talked...
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Telling Stories to Change Systems with Syrus Marcus Ware
What does storytelling have to do with systems change? How do we build care into our practice and embrace interdependence as mad, deaf, and disabled communities? And what does it look like to turn towards the things that we love? In this episode, producer Emily Blyth sits down with Dr. Syrus…
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Creating at the Threshold with Kim Edgar
What happens when you create a micropress dedicated solely to publishing the work of Northern comic artists? What does art look like at the threshold between genders; between life and death; between material and spiritual worlds? And why is it important to watch ladybugs lay eggs? In this…
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Quilting a More Just Future with Jenna Reid
What happens when you join the art of quilting with a rallying call for radical justice? How can we make artist residencies more accessible for mad, deaf, and disabled artists? And why does it take so long for many of us to claim the title of “artist”? In this episode, Emilia chats with Dr. Jenna...
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Season 2 Trailer
We're back! In season two of On Being Ill you’ll hear conversations with three visual artists working at the intersections of creativity and disability: playwright, activist and artist Syrus Marcus Ware, textile artist and arts administrator Jenna Reid, and Northern comic book artist Kim Edgar.…
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Refusing to be Disciplined by our Discipline with Ela Przybylo
Have you ever wondered about the connections between chronic pain and menstrual pain? Or how we might be able maintain not only a commitment to, but an erotic sense of interest in our research, writing, and other creative acts? In this episode, Emilia sits down with Dr. Ela Przybylo, a...
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The Field Empties Out and That’s Where Things Can Grow with Julie Devaney
How can anyone even begin to address one of the most broken systems of our time, one that seems to be further splintering into irretrievable pieces everyday–that is, the healthcare system. In this episode, Emilia sits down with Dr. Julie Devaney, a chronically-ill practitioner and patient…
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Chronic Pain as Relational Experience with Travis Chi Wing Lau
Is vaccine hesitancy unique to our contemporary era? What happens when the way we talk about pain changes from the spiritual and soulful to a purely corporal experience that can and must be medicated away? And whose pain continues to be taken seriously while the pain of others is purposefully...
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Introducing On Being Ill
Join Emilia Nielsen for season one of On Being Ill - a podcast shining a light on innovative thinkers working at the intersections of creativity and illness. In this season you'll hear from three writers: Travis Chi Wing Lau, Julie Devaney, and Ela Przybylo. They'll talk pain, crip kinship, and…
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ABOUT THIS SHOW
On Being Ill is a podcast that platforms innovative thinkers working at the intersections of creativity and disability. Hosted by poet, academic, and author, Dr. Emilia Nielsen, you’ll hear conversations about illness, chronic pain, crip joy, and how we’re harnessing the capacity of our creative praxes to build worlds 𝘧𝘰𝘳 disability. In season one we ask ourselves how creative writing can help us to envision radically different futures for disabled and temporarily abled communities alike; and in Season two we talk to interdisciplinary visual artists working towards disability justice.
HOSTED BY
On Being Ill
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Frequently Asked Questions
How many episodes does On Being Ill have?
On Being Ill currently has 24 episodes available on PodParley. New episodes are automatically indexed when they're published to the podcast feed.
What is On Being Ill about?
On Being Ill is a podcast that platforms innovative thinkers working at the intersections of creativity and disability. Hosted by poet, academic, and author, Dr. Emilia Nielsen, you’ll hear conversations about illness, chronic pain, crip joy, and how we’re harnessing the capacity of our creative...
How often does On Being Ill release new episodes?
On Being Ill has 24 episodes. Check the episode list to see recent publication dates and frequency.
Where can I listen to On Being Ill?
You can listen to On Being Ill on PodParley by clicking any episode. We provide an embedded audio player for direct listening, and you can also subscribe via your preferred podcast app using the RSS feed.
Who hosts On Being Ill?
On Being Ill is created and hosted by On Being Ill.
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