PODCAST · science
Once Upon A Blue Moon
by Our Leaders: Pooja, Liesha, Anirudh, and Cayla!
Shaping Foundations is a 501(c)(3) student-led nonprofit that aims to raise awareness, advocate, and fundraise for rare diseases. These diseases, although mysterious and fascinating, are often ignored in the healthcare industry. This means that there is little research, funds, and treatment options available for rare diseases and the people who have them. By listening to this podcast, not only will you educate yourself about this topic, you will also support our cause and provide help to those who really need it! New episodes every Friday!
Episodes
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A Discussion with Katie Callaghan
This week, we spoke to Katie Callaghan, works with Rare Youth Revolution and runs an organization called Cards for Bravery. Tune in as we speak about Katie's experience with her own rare diseases and how she works to advocate for the rare disease community. A huge thanks to Katie for joining us…
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Update + Rare Disease Day
Happy new year! A big thank you to all of our listeners who have stuck with us so far. In this episode, we speak about the events of the past two months and what we hope to do in the next year.
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Victoria Jackson’s Story with Endosalpingiosis and Endometriosis: A Lesson in Self-Advocacy
Victoria’s story battling endometriosis and endosalpingiosis is one of true strength and bravery. Facing the intense pain and debilitating health issues that accompany endosalpingosis, she has struggled to get the help that she needs and deserves through all her life. Her story is one of…
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Sofie’s Journey with Spina Bifida
Sofie Cox is a champion athlete and renowned dancer - she’s travelled around the world, competed numerous times, and has several awards to her name. But what you wouldn't expect is that Sofie also lives with spina bifida; a rare congenital disorder that has left her paralyzed from the waist down....
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Ali’s Journey with Pediatric Wild-Type GIST
Ali lives like many other 22 year olds - she’s a student, blogger, activist. But Ali also lives with GIST cancer. Listen through this episode to learn about Ali’s diagnosis and how she lives with this cancer. Ali’s story is extremely empowering and inspiring - thank you to Ali for sharing her…
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Sickle Cell Awareness
Join cohost Liesha Yenduri as she discuss the various aspects and implications of Sickle Cell Disease in honor of National Sickle Cell Awareness Month. Please be sure to check out our website (https://shapingfoundations.wixsite.com/shapingfoundations) and socials (shapingfoundations) for more...
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Ishana Sukhbir’s Experience with SCA2 and International Ataxia Awareness Day!
In honor of international ataxia awareness day, we were able to talk to Ishana Sukhbir about her diagnosis. Being diagnosed at a young age, she had a unique experience with her disease and the people around her.
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Tabitha L. Frank’s Journey with Endosalpingiosis
This week, we talk about our rare star of the week - Tabitha L. Frank - and her journey with endosalpingiosis. Tune in to find out more about her struggle with her diagnosis and how she made her way to meeting with politicians to advocate for women with endosalpingiosis! Be sure to also check out...
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Interview with Rare Disease Advocate: Dr. Shyamala Peesapati
Hello everyone and welcome back to our podcast! This week, we have a recorded interview with Dr. Shyamala Peesapati, a dentist currently residing in Bangalore, India, who has become a powerful and inspirational voice in the rare community. She has used the experiences of her past to drive her...
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Mackenzie Lea's Battle with Trigeminal Neuralgia
This week’s podcast features Mackenzie Lea’s battle with trigeminal neuralgia, a rare disorder causing debilitating pain from a facial nerve. Join our co-founder Pooja Shah as she discusses Mackenzie's answers to questions about her journey to getting diagnosed, how it has impacted her social…
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Gary M. Johnson's Journey with SCA2
Listen now to our new episode featuring our first ever Rare Star of the Week: Gary M. Johnson! Join Cayla Xue, Shaping Foundation's co-founder and secretary, as she dives into Gary's journey with SCA2. Learn about Gary's personal struggles and how he overcame them as he was faced with his…
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Rare Disease Research
Tune into this episode to learn more about research of rare diseases! Join Liesha Yenduri, Shaping Foundation's co-founder and co-president, as she discusses how research on rare diseases works, organizations supporting research, and the challenges faced by the rare community in terms of research.
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Introduction to Rare Diseases
Our first official episode will introduce rare diseases and explore the importance of learning and spreading awarness for these diseases. Shaping Foundation's co-president, Pooja Shah, will be hosting this episode and begin our weekly discussions about the challenges of the rare disease community...
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Welcome to Once Upon a Blue Moon
Thanks for listening to our introductory podcast! Support those with rare diseases and our cause by staying tuned to this podcast, following us @shapingfoundations on twitter, instagram, and facebook, or finding us at www.shapingfoundations.wixsite.com/shapingfoundations!
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ABOUT THIS SHOW
Shaping Foundations is a 501(c)(3) student-led nonprofit that aims to raise awareness, advocate, and fundraise for rare diseases. These diseases, although mysterious and fascinating, are often ignored in the healthcare industry. This means that there is little research, funds, and treatment options available for rare diseases and the people who have them. By listening to this podcast, not only will you educate yourself about this topic, you will also support our cause and provide help to those who really need it! New episodes every Friday!
HOSTED BY
Our Leaders: Pooja, Liesha, Anirudh, and Cayla!
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Frequently Asked Questions
How many episodes does Once Upon A Blue Moon have?
Once Upon A Blue Moon currently has 14 episodes available on PodParley. New episodes are automatically indexed when they're published to the podcast feed.
What is Once Upon A Blue Moon about?
Shaping Foundations is a 501(c)(3) student-led nonprofit that aims to raise awareness, advocate, and fundraise for rare diseases. These diseases, although mysterious and fascinating, are often ignored in the healthcare industry. This means that there is little research, funds, and treatment options...
How often does Once Upon A Blue Moon release new episodes?
Once Upon A Blue Moon has 14 episodes. Check the episode list to see recent publication dates and frequency.
Where can I listen to Once Upon A Blue Moon?
You can listen to Once Upon A Blue Moon on PodParley by clicking any episode. We provide an embedded audio player for direct listening, and you can also subscribe via your preferred podcast app using the RSS feed.
Who hosts Once Upon A Blue Moon?
Once Upon A Blue Moon is created and hosted by Our Leaders: Pooja, Liesha, Anirudh, and Cayla!.
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